non-typical reaction?

Posted on: Sat, 06/05/2004 - 2:41pm
Nola's picture
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Joined: 06/06/2004 - 09:00

Hi, I'm in my 40's and I have a lot of allergies, both food and non-food. But I've never had a reaction to peanuts - until recently. Now if I eat anything with peanuts in it, or which came into contact with peanuts, or if I'm in a room where peanuts are being cooked, I get very ill - severe back pain, vomiting, muscle spasms, blurred vision, and all over extreme pain. I do not, however, have any problems breathing or with hives or the like when I eat them (which I do with some other allergies). I do however break out if I touch them.

Has anyone ever heard of this type of reaction to peanuts? I live way, way out in the boonies and it is a 5-6 hour drive (one way) to the nearest allergist, and I don't know when I can get out there. The local doc doesn't have any idea what up and is afraid to prescribe anything without having allegry tests done as I've had severe reactions to meds before.

I'm worried that the reactions might keep getting worse. I'm trying to be very careful about what I eat, but I keep discovering, the hard way, that things that I thought were totally peanut free, really aren't!

Any suggestions or ideas would be appreaciated. In the meantime, I'm getting real good at reading labels!

Thanks.
Nola

Posted on: Sun, 06/06/2004 - 1:36am
williamsmummy's picture
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Joined: 03/26/2002 - 09:00

Yes , I have heard of this type of reaction to food, you are very allergic !
My uncle is allergic to shellfish, his first reaction had the hospital docs thinking he had a stroke! his whole left side went numb ! It wasnt until he had a huge asthma attack that they realised that he was having an allergic reaction.
They treated him, and he left hospital with no epi-pens as they just told him to avoid shell fish!
sarah

Posted on: Sun, 06/06/2004 - 9:48am
California Mom's picture
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Joined: 07/14/2000 - 09:00

Welcome Nola. I am so sorry to hear what you are going through. Your reactions sound absolutely horrible. I think you should ask your doctor to prescribe an epi-pen for you. This is a life saving dose of epinephren (in case you didn't know). This is something you would carry with you in case of an emergency reaction that progressed to becoming life threatening.
I guess I can't help much, unfortunately. Good luck to you; I'm sure you'll find a lot of compassion and some helpful advice here.
Take care,
Miriam

Posted on: Fri, 06/18/2004 - 11:43am
Nola's picture
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Joined: 06/06/2004 - 09:00

Howdy all!
I just wanted to thank everyone for taking the time to reply to my orginial post and for this site! Just knowing that I'm not alone is a great confort - and the info is proving to be a big help in dealing with my PA.
I also wanted to add an update. Went to the local doc today and brought along a ton of stuff that I printed out from this site. (He had not wanted to give me anything due to the fact that I have a lot of allergies, and he wanted me to go see an alergist - but it might be months before I can get to one.) End result - I came away with a couple of epis - just in case. He also gave me some stuff, like benadryl, to try when I wasn't having a reaction to see if I can tolorate the drugs. I'd hate to find out that I was alergic to benadryl or such while I was having a PA attack! Hopefully I'll never have to use the epi or the other drugs in an emergency situation, but it is somewhat comforting to know that they are on hand if needed.
Thank you all so very much!
Have a great weekend, Nola

Posted on: Sat, 06/19/2004 - 7:15am
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

Hi Nola, just wanted to make sure that you actually know how to use the Epi if you have a reaction. Since your doctor did not seem to know much about allergies, and you had to convince him about the Epi, I am not sure if he would have shown you. The Food Allergy and Anaphylaxis Network, has a video called "It Only Takes One Bite". It talks all about food allergies and shows how to use an Epi. They also have an Epipen Trainer, which is a fake one (no needle) you can practice with. Their phone number is (800) 929-4040. They usually send things pretty quickly.

Posted on: Thu, 06/24/2004 - 6:19am
Nola's picture
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Joined: 06/06/2004 - 09:00

Thanks for the tip! I'll order the video right away. And you were absolutly right - all the doc did was give me a perscription for the epipen and sent me out the door with just the direction to use it if I feel a reaction coming on. He did not tell me how to use it or anything, and the pharmacist wasn't much more help - she just told me to read the insert in the box!!
Thanks!
Nola

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