No Debates. Why do you believe your/your child\'s allergy is \"severe or not severe\"?

Posted on: Tue, 06/08/2004 - 3:20am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

?

Please describe in relation to [b]any[/b] FA.

Myself? I'm just touching on PA right now.

I *believe* my children's PA allergy is severe. Period. While oldest cub has experienced anaphylaxis, youngest has not. Not sure if we have ever seen *observable* symptoms that we were able to connect to a known exposure in the youngest. Oldest cub has a "diagnosis" of PA. Youngest cub has an "incomplete diagnosis".

Disclaimer: I am not offering advice in any manner or form. Merely describing what I *believe* in relation to *my own cubs*. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 06/08/2004 - 4:12am
Anonymous's picture
Anonymous (not verified)

I believe my son's PA is severe because he has had three anaphylactic reactions with less exposure to actual peanut product each time (for example, with his last anaphylactic reaction, he touched residue and then it entered his body either through his mouth or nose).
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Tue, 06/08/2004 - 4:29am
momtomitchell's picture
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Joined: 04/20/2004 - 09:00

I believe my ds is severe PA because the allergist told me so [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
I choose not to think anything less, I believe it keeps him much safer. For instance he has had the mysterious reactions all weekend to something we can't figure out. If you can't figure it out then he can come in contact with it again without even knowing. Going by the glass is full theory and you don't know whats in the glass, how can I choose not to think anything other than its serious?
Ok, probably more info than you were looking for [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 06/08/2004 - 6:09am
williamsmummy's picture
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Joined: 03/26/2002 - 09:00

Will's Peanut and all bean allergy is severe, or has a very high potential to kill him.
Egg , however is another story, he is now able to eat cooked egg, ( not great quantities of cooked egg white) but, as he used to have horrible reactions to whole egg when younger, to the point where his skin would hive up when I fried an egg in the kitchen if he was standing next to me, this gradual out growing of egg allergy is a miracle.
The kiwi allergy is life threatening, new reasearch has pointed to quicker severe reactions on second exposure.
Dog. I know that in certain situations, dog can be severe. But can to some extent , at the moment, can control exposure.
cat mild, dustmite now mild , compared to when younger, never life threateing, but did reduce quality of daily life.
Tree pollen and hay fever the same as dustmite.
William used to be allergic to almond and hazelnut, but has outgrown those ones, but of course that means little difference to our/williams life.
As to new , mild reactions to E numbers and colours, hmmm will have to wait and see!
If I listed every bean and all the other foods that William is allergic to , I would become very depressed!.
When he was younger all everyone would say was that he would 'grow out of it' now at age 8 they express surprise that he hasnt.
Both reactions do not make me a happy mother!

Posted on: Tue, 06/08/2004 - 6:41am
ALLERGYMOM's picture
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Joined: 10/09/2003 - 09:00

I like williamsmommy would be depressed if I named everything ds is allergic too.
PA, TNA and egg I know are anaphylaxis. He has never consumed egg only had a contact reaction but he scored a 5+ on the rast. The contact reaction was pretty bad.
Shellfish and Fish have only been contact reactions. He has never consumed any of these. The contact reactions were pretty bad also. Hives all over, red swollen eyes, itchy eyes and swelling where he was touched. Allergist wont skin test for the food allergies. He says it is to dangerous. So I plan to ask at our next app for another rast test for the fish and shellfish. Do these contact reactions sound ana?
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Have A Great Day

Posted on: Tue, 06/08/2004 - 9:32am
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Joined: 02/24/2002 - 09:00

Wow, that's a tough one. I believe some of DS' allergens trigger more severe reactions than others. Some I fear instinctively, others I fear statistically. Some I don't really fear but avoid because of the hope of outgrowing them.
DS never had any type of 'severe' reaction to any of his allergens and he had eaten them all before testing. He had stomach upset, behavior and sleep disturbances and eczema. An exposure to ground wheat did make him cough once. I fear egg more than wheat or dairy. Don't really know why except it had the biggest wheal. We won't cook with egg in the house. Peanuts and treenuts, fish and shellfish, I fear because of the statistics. Soy I feel similarly to egg, don't know why- I just do.
Do I really think DS will have anaphylaxis? I think I'm about 80% certain he won't. We still *make* ourselves carry the epi-pens and take all the precautions though. It's not something I'd want to find out I'm wrong about the hard way. KWIM? The only reason I can justify for thinking he is in the non-anaphylaxis group is that he has the more atypical eczema and GI reactions and they were always pretty delayed. Again though, I'm not planning on testing the hypothesis any time soon!

Posted on: Tue, 06/08/2004 - 10:30am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

Let's see...
For Sam, the younger of the 2, I believe her allergy is severe b/c of the way she reacted to just the teeniest bit of peanut butter that first (and only knock wood) time. Her face swelled to 3x it's normal size, her tongue and eyes became very swollen. She also reacted when skin tested where the doctor documented her allergy to be: "exquisitely sensitive" and advised us to immediately give the epi pen regardless of symptoms if peanut ingestion is suspected. Lastly, her cap rast results are thru the roof... and she has reacted whenever she's come in contact with any contamination from toys kids have played with etc..
For Marianna, my oldest, I will say she's severe b/c that's what our allergist told us after reviewing the skin tests and blood tests. Also, her initial reaction was a bit frightening with swelling of her face, eyes and tongue although not as bad as her sisters. She did ingest less peanut butter than her sister so that could explain the different reaction.
I prefer to say severe b/c it tends to get people's attention to the seriousness of the allergy in general. When people say not so severe or no where as bad as your kids, I feel it tends to demean the seriousness of PA...

Posted on: Tue, 06/08/2004 - 1:24pm
Renee111064's picture
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Joined: 07/05/2001 - 09:00

interesting post momma bear
a little food for thought (pardon the pun)
I always thought that my son's allergy to peanuts was mild to moderate. He only has broken out into hives once.
Now after this past weekend, I have changed my mind to moderate to severe. :sad:
best wishes,
Renee

Posted on: Tue, 06/08/2004 - 2:49pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

As of this date, my child's pa allergy is not severe.
My reasoning, because he had 1 reaction at 17 months to peanut butter (half of lower lip swelled and had about 12 blisters/hives around his mouth). Tested positive to skin test. Tested positive (lower to mid range) to blood test.
To date, he has had only 1 reaction (17 months). He is now 5 1/2.
- He has been on airplanes where I could smell the peanut dust.
- I have stopped washing down his seats and tables at public restaurants and airplanes.
- He has eaten in numerous restaurants.
- He has been around (although very rarely) peanut butter when others are eating it.
- We go to many other homes where I know children and adults eat peanut butter.
To all of the above, he has never had any reaction of any kind.
This is just to name a few things.
He also has no other known allergies and no asthma.
So I'm going with not severe. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 06/08/2004 - 9:40pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

After describing three definite reactions, and the initial RAST score being >100, the allergist determined he is "severe" and likely to react to smell, touch, and ingestion.

Posted on: Wed, 06/09/2004 - 11:40pm
attlun's picture
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Joined: 06/13/2003 - 09:00

Definitely severe.
After seeing him have an anaphylactic reaction, there is no doubt.
------------------
Tina
Trevor age 2 -PA
Harmony age 1 -KNA
It's a BOY!!! due June 24, 2004

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