No chance DS will outgrow...

Posted on: Thu, 01/24/2008 - 3:07am
PeanutFreeInMD's picture
Joined: 04/23/2007 - 09:00

Well, now I know. After my son had his 1st and only reaction at age 2 to peanut, he skin tested positive and we were given little info from that allergist. He said "stay away from peanut and tree nuts." Everything I learned is through reading books and sites like this one. (Thank you) We are very diligent and also chose to be a nut free household. Now that my DS is 6, and has not had another reaction since his first, we decided to have him tested again at John's Hopkins with Dr. Wood. This was a RAST test. I had to know if our diligence was working or if we were being so cautious for no reason...was there a chance he had outgrown his allergy...? Just got the call yesterday that his peanut was greater than 100. He will never outgrow this allergy. I didn't really get my hopes up knowing the chance was so slim, but still I am feeling the sadness of this diagnosis all over again. (maybe I was hopeful...)
I guess I am here to stay...thanks to all for all I have learned and will continue to learn through this site!

Posted on: Thu, 01/24/2008 - 4:14am
CorinneM1's picture
Joined: 06/20/2002 - 09:00

We were in a similar position. My son had a reaction at 13 months. He is 6 and has not had a reaction since.
I know how you feel as our son rated btw a 4-5 on a scale of 6 for this allergy. Therefore he is also highly unlikely that he will grow out of it. So, I too will continue to hang out here with you! :)

Posted on: Thu, 01/24/2008 - 7:12am
niche's picture
Joined: 02/05/2007 - 09:00

Me too - last year he was class 6 this year class 5. Come on researchers HURRY UP!

Posted on: Fri, 01/25/2008 - 2:52pm
stella's picture
Joined: 07/06/2007 - 09:00

It's so hard to accept the news, I know... Why does it seem that the more diligent a parent is in preventing exposures that the higher those scores climb? Does anyone else seem to notice that? We're in the same boat. My daughter has a dairy, egg, and peanut allergy and her RAST scores are getting higher despite not having had a reaction to any of her allergens. Why does that happen?

Posted on: Fri, 01/25/2008 - 11:48pm
joyojoy's picture
Joined: 12/15/2007 - 08:00

We just learned that my 15-year-old daughter is in the same boat. The good news for those of you for younger children: As your children, they have better understanding of the allergy and are able to help shoulder the burden more. My daughter is VERY good about watching what she eats, and we haven't needed to use and EpiPen since she was 4. She's a happy girl, and leads a relatively normal life, in spite of PA and milk allergies. Reading labels and asking questions at restaurants is just normal "every-day routine" for us. Life goes on...

Posted on: Sun, 01/27/2008 - 4:27am
SkyMom's picture
Joined: 10/27/2001 - 09:00

So sorry to hear your news. I do believe that when your child has gone a significant amount of time with no reaction hope and/or denial can happen. At least thats how I felt at times with my dd. As the years go on with no reaction (10) I often think either we're very good at avoidance or she's outgrown. After the last rast being over 100 still, I now look at her pa reaction free years as lucky/fortunate.

Posted on: Sat, 02/02/2008 - 12:22pm
Resa's picture
Joined: 12/15/2007 - 15:53

I'm sorry to hear that news, too. We are in the same boat as you. My DS had never even ingested peanuts but was tested for a variety of things at age 1 because he had severe eczema. At the time, his RAST level was 0.52, the allergist prescribed an epi-pen and said just to avoid peanuts; and told us there was a chance he could outgrow it. We recently had him retested at age 4 and now his RAST level is 38 and the allergist is now saying he will never outgrow it. It was extremely devasting to us. I think we are all hopeful that this is something that our children will outgrow,no matter how slim the chance is. I just encountered this site a few months ago and you're right, it is nice to know that there are people who understand!

Posted on: Sun, 02/03/2008 - 2:00am
Mrsdocrse's picture
Joined: 01/16/2007 - 09:00

HI There... I know how you feel. MY DS is 7. we had him re test at age 6 hopeing he would would be one of the lucky ones. I did not get my hopes up too high.... But I cried when I hung up the phone after hearing the results... I all of us hold out that someday this will not be an issue!!!!

Posted on: Fri, 02/08/2008 - 7:01am
Ivycosmo's picture
Joined: 09/18/2007 - 09:00

So sorry to hear that. It truly is like getting the original diagnosis all over again.
I had a similar experience this year. My DS was diagnosed at 10 months with a severe PA/TNA. He is now 9 and has never had to have the Epipen b/c of our diligence. Our doctor thought he had possibly outgrown it, so she ordered tests. They came back as no change (89.9 on the scale)and he tested just as severe for cashews and pistachios. The allergist said he would never outgrow it. It was heartbreaking, I cried for days.
I am just so happy to have everyone here. It is so comforting to see that we are not the only ones who feel the way we do. All we can do is hope and pray that they find a cure.
Stay strong,

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