n.j. support groups

Posted on: Fri, 02/28/2003 - 4:23am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

I am very interested in joining a parents' support group for those of us with children with PA. If anyone knows of any in N.J. or would be interested in starting one, please let me know. Thanks!

Posted on: Fri, 02/28/2003 - 6:47am
SF's picture
SF
Offline
Joined: 06/06/2002 - 09:00

YES! I have been interested in starting one in my area (south jersey area). Please contact me off the board if you would like to discuss further, I am not sure where you are located. Thanks!

Posted on: Sun, 03/09/2003 - 4:10am
Kathy L.'s picture
Offline
Joined: 07/30/1999 - 09:00

Are you aware of the Food Allergy Support Group of Monmouth County? I'm in Ocean County, and it's about a 45-minute ride for me, so I haven't been able to attend meetings since they're on Monday evenings. But I stay on their mailing list. What southern NJ county are you in?

Posted on: Sun, 03/09/2003 - 10:49am
mamagaona's picture
Offline
Joined: 12/29/2000 - 09:00

I'm in northern monmouth county, Red bank was too far for me, too. Interested as well.
ARlene

Posted on: Thu, 03/13/2003 - 12:13pm
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

It looks like I'm the only one in northern N.J. so far. But I would be interested in getting onto the list for the newsletter for the group in monmouth county if that is possible.

Posted on: Fri, 03/14/2003 - 1:43am
Kathy L.'s picture
Offline
Joined: 07/30/1999 - 09:00

Caroline's mom - I'll get the Monmouth Support Group information for you. I don't have it handy now. But I'm positive there is a northern NJ support group. There's a woman on these boards who appeared on CN8 on cable at one point (my mother taped it for me, she's in Essex County) who's in northern NJ. Can't remember her name. I'll see what I can find out for you. Maybe the Monmouth Group knows of other groups in the state.

Posted on: Fri, 03/14/2003 - 10:26am
Kathy L.'s picture
Offline
Joined: 07/30/1999 - 09:00

Caroline's Mom - here's the address:
Food Allergy Support Group of Monmouth County
1 Branch Avenue
Red Bank, NJ 07701
If you email me, I can give you the leader's telephone number. She's really helpful.
my email: [email]klorenzo2@cs.com[/email]
By the way I see you're in Verona! My husband's from West Caldwell and used to work in Verona. Small world!

Posted on: Sat, 03/15/2003 - 9:25am
ACBaay's picture
Offline
Joined: 03/19/2002 - 09:00

The Food Allergy Support Group of Central New Jersey meets in Bridgewater. My email is listed if you would like more info.
Andrea

Posted on: Sat, 03/22/2003 - 11:36am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Thanks so much ACBaay and Kathy L. for the info. Sorry it took me so long to reply but I haven't been at my computer much lately. I really appreciate the help!
KathyL. it really is a small world or state at least!!! Too bad you guys aren't still in the Caldwell area. I haven't found too many other parents/kids in the same situation as we are. Thanks again.

Posted on: Mon, 04/07/2003 - 11:13am
Kathy L.'s picture
Offline
Joined: 07/30/1999 - 09:00

Caroline's Mom - I replied to your email but it came back to me as unknown. If you have a new address, email me again. I have info for you.

Posted on: Sat, 05/17/2003 - 12:06pm
patsmommy's picture
Offline
Joined: 10/31/2001 - 09:00

moving this up because I am interested in a support group in middlesez county. Redbank is too far and I am not sure where Bridgewater is.

Posted on: Thu, 08/07/2003 - 12:16pm
Ginger's picture
Offline
Joined: 11/17/1999 - 09:00

We live in Old Tappan, NJ Bergen County
Anyone near by???
Ginger

Posted on: Fri, 09/05/2003 - 3:19am
townie416's picture
Offline
Joined: 09/03/2003 - 09:00

Im interested!
I'm originally from Monmouth County (Howell), but I now live in Hoboken (Hudson Cty, just outside NYC). My family still lives in Howell, so I could do either. let me know who's interested.
BTW -- Bridgewater is in somerset county -- near basking ridge (if that's familiar) it's sort of north/central jersey.

Posted on: Sun, 09/07/2003 - 11:59pm
synthia's picture
Offline
Joined: 10/05/2002 - 09:00

reraising for saknjmom
Love this site
Synthia

Posted on: Mon, 10/20/2003 - 11:04am
Soapy Jo's picture
Offline
Joined: 10/20/2003 - 09:00

There is a great support group for South-Central NJ which meets in Princeton every month. On alternate months we have speakers and open discussion. There are playgroups, non-food holiday parties and they even visited a Fire/EMT station to play in the ambulance and learn about it. We are now doing some advocacy in our area--letter writing campaigns to help push through the implementation of EMT/EPI law, restaurant education and more. To get on the distribution list, please email the group's co-ordinator at [email]bmwlaw123@aol.com[/email]. I hope some of you in Jersey can join us!

Posted on: Mon, 01/26/2004 - 2:27am
ElleMo's picture
Offline
Joined: 06/19/2003 - 09:00

I just received information in the mail from the Food Allergy Support Group that I thought others might find of interest. (I have nothing to do with this group; I am just posting in case someone else is interested) They will be hosting the following workshops:
Feb 4 -- Coping Strategies for Parents
March 3 -- Paramedic Responses to Anaphylactic Emergencies
April 7 -- Emergency Room Treatment of Anaphylaxis
These all start at 7:30 at
Asthma, Sinus & Allergy Center
1 Branch Ave.
Red Bank
For info, contact:
[email]ggckc@yahoo.com[/email]
------------------
Ellen
Allergic to Shellfish/ Mom to Jesse 9/01 who has PA
[This message has been edited by ElleMo (edited January 26, 2004).]
[This message has been edited by ElleMo (edited January 29, 2004).]

Posted on: Thu, 02/26/2004 - 11:12pm
Sharon C7's picture
Offline
Joined: 02/23/2004 - 09:00

I'm in Union COunty, NJ. Red Bank's really not that far for me. ABout 45 minutes.

Posted on: Sat, 02/28/2004 - 12:26pm
NutlessinNJ's picture
Offline
Joined: 02/23/2004 - 09:00

Hi
I live in Northern NJ and have a PA son. I would love to find a support group. It has been a pretty tough few months emotionally and I could really use some sympathetic ears instead of "what are you insane" looks. If anyone knows of one please let me know. Thanks alot
Julie

Posted on: Mon, 03/29/2004 - 7:18am
patsmommy's picture
Offline
Joined: 10/31/2001 - 09:00

Soapyjo, I emailed that support group, thanks.
Nutless(julie?? sorry now I cant remember), I can use an understanding ear also. How old is your pa son? My son is 6.
Flo

Posted on: Sun, 04/18/2004 - 12:26pm
NutlessinNJ's picture
Offline
Joined: 02/23/2004 - 09:00

Hello Flo
My son is 4 now. He was diagnosed when he was 18 months old and we confirmed with a RAST test when he turned 3. Somedays it feels impossible. I have alot of problems with the moms in his class. One woman actually complained to the teacher that it was not fair to her daughter or the other kids to not be able to bring in nut products or have to worry about ingredients for snack time. If my son didnt love his teacher so much I would pull him from the school but I dont think that is the answer either. Max now has his own snack box in the room so I dont have to worry about anyone giving him "may contains" nuts products. Apparently label reading is a very difficult concept for these parents. Whatever...I just need to keep Max safe.
Do you have these problems with your 6 year old at school?
Thanks for listening.... Julie

Posted on: Tue, 06/15/2004 - 10:17am
mcmom's picture
Offline
Joined: 06/15/2004 - 09:00

I'm in Bergen County; if anyone knows of a group in my area please let me know!

Posted on: Tue, 06/22/2004 - 12:54am
Lisa Melchers's picture
Offline
Joined: 06/22/2004 - 09:00

Did you ever find a support group in Bergen County? I live in Hawthorne, border to Glen Rock and Ridgewood, NJ. I am really interested in finding a support group for my daughter. She really needs to talk to other kids who are PA. She is 9 and is really becoming aware of her condition.

Posted on: Tue, 06/22/2004 - 3:20am
mcmom's picture
Offline
Joined: 06/15/2004 - 09:00

Hi Lisa - no, haven't heard about any support group in our area yet (although I was looking for one for myself, not my son). I saw your post about your daughter, I am sorry she's struggling with anxiety over her PA. Have you called any of the area hospitals? I know of them have support groups for other things. Hackensack, or Valley in Ridgewood...I would even try St. Joseph's in Paterson since they are a children's hospital (they are excellent too.)
I live in the Paramus area - if you ever want to get a mom's support group going in Bergen county, I'm in! Or if you have time to email me, please do - I'd love to hear how you have handled you dd's PA in the school setting, as you seem to have done an excellent job of keeping her safe! Take care.

Posted on: Wed, 06/23/2004 - 9:36am
Going Nuts's picture
Offline
Joined: 10/04/2001 - 09:00

New Jersey families, check out this link. It was originally in the Media Forum, thanks to SF:
[url="http://www.eden.rutgers.edu/~bvparks/peanut_patrol/peanutpatrol.htm"]http://www.eden.rutgers.edu/~bvparks/peanut_patrol/peanutpatrol.htm[/url]
Amy

Posted on: Wed, 07/14/2004 - 3:14am
Lisa Melchers's picture
Offline
Joined: 06/22/2004 - 09:00

mcmom, Sorry, I never saw your reply to my message. Nutlessinnj (Julie)is starting a group for parents in the Northwest Bergen, Passaic area and are going to start meeting in Ridgewood on July 27. Don't know if you are still interested.
As far as you question about my handling my daughter's situation in school, she sat at a peanut-free table in the lunch room and at a separate table in the classroom for snack. All of the kids had paper placemats on their desk for snack, which were discarded after. The kids that had peanut and peanut-containing snacks had to wash their hands after snack. She feels a little isolated at school at her table, but she is allowed to bring a friend to sit with her every day as long as their lunch is checked beforehand. The one thing that makes her feel good is that sometimes the kids fight over who will sit with her and it makes her feel really important. She has not really had any trouble in school and the school has become much more peanut aware, due to my vigilance and the nurse has always been my advocate since the principal is from the old school and does not deal with change very well. Dana has been doing somewhat better and has now become penpals with two kids from this site. She seems to have passed this last wave of anxiety, but I am sure their will be more to come. I am really looking forward to the support group starting. It will be so good to talk to other people and share experiences. Friends who do not experience this can listen, but do not necessarily truly understand the magnitude and all facets that are involved, I am looking forward to meeting people who will.

Posted on: Wed, 01/12/2005 - 10:39am
ElleMo's picture
Offline
Joined: 06/19/2003 - 09:00

reraising for Mira

Posted on: Sat, 05/28/2005 - 12:22pm
TwokidsNJ's picture
Offline
Joined: 05/28/2005 - 09:00

We are in Morris County NJ. My 5yo is allergic to tree nuts (esp walnuts), my 3.5yo is allergic to peanuts, treenuts. Anyone near me? I've had a rough few months and realzied a regular support group might be a good option.

Posted on: Sun, 09/04/2005 - 5:38pm
ElleMo's picture
Offline
Joined: 06/19/2003 - 09:00

The Food Allergy Support Group of Monmouth County will hold its next meeting on Sept. 7, 2005 at 7:30 p.m. at the Asthma, Sinus & Allergy Center, 1 Branch Ave., Red Bank. Guest speaker will be Dr Tina Zecca. We will also discuss the planning of the food-free Halloween party and our participation in The FAAN Walk

Posted on: Tue, 02/20/2007 - 2:12am
Jana R's picture
Offline
Joined: 02/09/1999 - 09:00

Here are a couple of other groups that deal with food allergy support in NJ
[url="http://www.alanewjersey.org/groups/asthmasupport/"]http://www.alanewjersey.org/groups/asthmasupport/[/url]
Essex County
Asthma & Food Allergy Support Group of Northern NJ
Saint Barnabas Ambulatory Care Center
200 South Orange Avenue, Livingston, NJ 07039
Meets every third Wednesday. Call for times.
Susan DiAnthony, 973-514-1654, [email]PalKidz@aol.com[/email]
Somerset County
Food Allergy and Asthma Support Group of Central New Jersey
Friends Conference Center at Arbor Glen
100 Monroe Street, Bridgewater, NJ 08807
Call for meeting dates and times.
Suzanne Cardali, 908-685-2275
------------------
Jana
[url="http://www.seattlefoodallergy.org"]www.seattlefoodallergy.org[/url]

Posted on: Thu, 02/22/2007 - 4:07am
Kathy L.'s picture
Offline
Joined: 07/30/1999 - 09:00

If anyone is in Ocean County, please email me.

Posted on: Fri, 03/09/2007 - 11:17pm
pdarki's picture
Offline
Joined: 02/17/2007 - 09:00

I am in Northern NJ, Sussex County. Anyone know of a group in my area?? If so please e-mail me.
Thanks.

Posted on: Sun, 09/09/2007 - 12:17am
Jacobs Mom's picture
Offline
Joined: 02/12/2002 - 09:00

Hello! Any Southern NJ moms or dads? Any support groups already in the area?

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Displaying 1 - 20 of 20
Latest Post by lavonneo4907189 Fri, 09/20/2019 - 1:16pm
Comments: 0
Latest Post by blprestangen Mon, 09/16/2019 - 1:06pm
Comments: 12
Latest Post by mom2two Mon, 09/16/2019 - 1:03pm
Comments: 18
Latest Post by Kathryn Mon, 09/16/2019 - 1:02pm
Comments: 7
Latest Post by TheDaddy Mon, 09/16/2019 - 1:01pm
Comments: 9
Latest Post by desmond Mon, 09/16/2019 - 1:00pm
Comments: 1
Latest Post by desmond Mon, 09/16/2019 - 12:58pm
Comments: 19
Latest Post by desmond Mon, 09/16/2019 - 12:55pm
Comments: 1
Latest Post by TeddyCan Mon, 09/09/2019 - 4:32pm
Comments: 10
Latest Post by DTurner Mon, 09/09/2019 - 4:31pm
Comments: 5
Latest Post by B.M.18 Mon, 09/09/2019 - 4:30pm
Comments: 3
Latest Post by abolitionist146 Mon, 09/09/2019 - 4:28pm
Comments: 2
Latest Post by nutfreenyc Mon, 09/09/2019 - 4:19pm
Comments: 4
Latest Post by AllergicTeen2 Mon, 09/09/2019 - 4:18pm
Comments: 2
Latest Post by PeanutAllergy.com Fri, 09/06/2019 - 1:52pm
Comments: 1
Latest Post by mom1995 Fri, 09/06/2019 - 1:52pm
Comments: 2
Latest Post by mom1995 Fri, 09/06/2019 - 1:52pm
Comments: 35

More Articles

Do you think you may have a food intolerance? Many people make it to adulthood without realizing they have a food intolerance because they have...

With only a casual understanding of Oral Immunotherapy (OIT) some people assume that simply feeding children a bit of their problem food, in order...

Babies usually show the same peanut allergy symptoms as older children as adults. It is estimated that up...

If you have a mold allergy, you’ve likely been advised to remove all sources of mold from in and around your house. But it doesn’t stop there....

You may be surprised to find that peanut butter is used to make many products. Someone who has a peanut...

More Articles

More Articles

What if, while attending a summertime family picnic, a food-allergic child shows signs of anaphylaxis. In a panicked instant, adults realize the...

Are the signs of nut allergies different than those of peanut allergies? Many people who have an allergic reaction after eating a peanut butter...

There is much buzz in the news about the potential health benefits of fecal transplants, and some of that benefit may extend to people with food...

If you or your child has a food allergy, a doctor or allergist might have talked to you about “co-factors.” Allergy co-factors are substances,...

An epinephrine auto-injector provides an emergency dose of epinephrine (adrenaline) to treat life-threatening allergic reactions. Those who have...

Oyster sauce is used for a variety of recipes, including as an earthy dressing for noodles, vegetables, and stir-fries, or as a base for other...

The high incidence of food allergy in children, and the reason many kids eventually...

Parents of children with food allergies often share tips about safe foods, allergy-friendly restaurants, and other experiences and challenges of...

Because food allergies are so common among children today, a great idea for sharing information with other classmates is to incorporate the topic...

When a child is diagnosed with peanut allergy, the implications ripple past the parents to rattle the rest of us - older siblings, grandparents,...

Your best defense against anaphylactic shock is to know what you’re up against. Anaphylaxis is a severe, life-threatening allergic reaction....

Inhalers Sometimes Contain Soy

Many people use inhalers to take the drug albuterol to help their asthma or allergies, and those with COPD...

Some people with shellfish allergy have concerns about consuming sea salt that might be contaminated with traces of shellfish. Though there are...

Nearly 25 percent of children with a peanut allergy will outgrow it. However, there is a small risk...