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Posted on: Tue, 04/04/2006 - 9:37pm
Gilli011's picture
Joined: 12/05/2004 - 09:00

As a parent of two girls with pa/tna (still waiting to find out about our baby boy...)I always appreciate hearing from adults who have lived this, a few more adults here have eased my mind on several occasions. I think I will print your post for a later time when my girls can get the benefits of your experience and your great sense of humor! Thanks.
Cheers, Gilli

Posted on: Wed, 04/05/2006 - 3:05am
amartin's picture
Joined: 02/22/2006 - 09:00

I second Gilli, Kyla! Thank you for your post! As a parent, it really is great to read this...

Posted on: Thu, 04/02/2009 - 11:21pm
Food Allergy Assistant's picture
Joined: 03/04/2009 - 07:15

Hi Crystal,
You'll find lots of support and resources on-line. My 8 year old has dairy, egg, peanut and tree nut allergies. I have a website at www.foodallergyassistant.com. Feel free to visit and check out recipes and resources. From the site, you can jump to my blog which lists many other blogs and sites you'll find helpful.
My son has worn his Epi-pen around his waist to school since kindergarten. He knows not to eat anything unless the ingredients have been checked. As a result of his allergies, I believe our family is healthier because we make so much from scratch and we're very aware of what we eat.
Good luck to you!

Posted on: Thu, 05/05/2011 - 5:01am
Samantha418's picture
Joined: 04/11/2011 - 12:44

Hi there! I am 22 years old, and have had a severe peanut allergy my entire life. Schooling was definitely tough, and I have some stories that would make you wary of public school, yet I still encourage you to go through with it. Dealing with my allergy at a young age and being forced to stand up for myself has made me who I am today. I learned at a very young age that I need to stand up for myself in order to keep myself safe and healthy. I have gone into shock when I was three, and then last year, and have had many serious reactions along the way, but I have learned through my experiences how to be a stronger person. I have a loving family who has always watched out for me, and a boyfriend of two years now who gave up eating peanuts to keep me safe, so there are compasionate people out there, and your child will be sure to encounter them. Be strong, and despite your fears, your child will navigate their own path through this allergy. It will define them in ways unreachable by others without the allergy, and they will be a stronger person in the long run. Good luck, and if you have any questions or need advice, don't hesitate to ask!

Posted on: Thu, 05/05/2011 - 5:44am
PA Mommy's picture
Joined: 04/05/2011 - 19:56

I think some districts are better than others. Go in and meet with the principals and teachers in your area schools. You might be pleasantly surprised by one. And even if the area is not School of Choice, I think you could get a variance given the severity of her condition.
My PA son is just turning three, so I'm a bit behind you yet, but I do have a friend with a son with severe TNA. He is in a public school that is nut-free. Even so, his mom sends "safe" treats for him to have at birthday celebrations and parties. His teachers do not allow him to have anything any other parent/student ever brought in. They are very careful, and give his mom some notice so she can supply items for holiday celebrations. It's worked well for her.
Now, the public school closest to me is not as supportive, so we have chosen a neighboring district with better allergy-handling policies for our family (school of choice). So they can't take the bus, but I'm pretty sure I do NOT want my PA boy on a bus, anyway, so I'm happy with the choice.
And there is always home schooling as an option if you really are unsure.

Posted on: Thu, 05/05/2011 - 5:48am
Jenbenito's picture
Joined: 05/04/2011 - 20:18

Thanks so much to both of you for the encouragement. Like I said, I have no one to turned to about PA. So this is very helpful. And Samantha...thank you! My daughter wants to go to school SOO bad! I think I will set up some meetings with the school to be more prepared. She is such a strong little girl..at such a young age. I know she wont let this slow her down...so I shouldnt either! Honestly...thank you both!!

Posted on: Thu, 05/05/2011 - 5:53am
PA Mommy's picture
Joined: 04/05/2011 - 19:56

:) We're all in this, together!
Samantha418s posts always make me feel better, too :)

Posted on: Thu, 05/05/2011 - 5:55am
Samantha418's picture
Joined: 04/11/2011 - 12:44

Thanks ladies! You both remind me of my mom and how hard she tried to make me life safe for me when I was growing up. It's one thing to have the allergy, but its another to watch your baby grow up with it and worry every time they leave the house. I give you both SO much credit, and wish you a very happy mothers day! :)

Posted on: Thu, 05/05/2011 - 11:56pm
Samantha418's picture
Joined: 04/11/2011 - 12:44

To Jenbenito and PAMommy, I would love to feature you both in my weekly stories section about families struggling with this allergy, or any kind of allergy. If you are interested in more details, please e-mail me at sbpeanutfree@gmail.com and I will tell you more! Thanks ladies :)


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