Newbie- Fear of Peanut Residue/eczema/mystery blotches etc.

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My 19 month old daughter tested positive via skin prick test (wheal measured 15mm) about 2 weeks ago. Her doctor wanted her tested due to her eczema which she always has all over her body since she's been 6 weeks old. I ate peanut butter all the time while pregnant, she was delivered via C section, my family has a history of allergies (I myself have had to ana reactions to antibiotics and have an epi pen) and was on soy formula. We were keeping her away from peanuts and nuts but she had many may contains and my neice once gave her a peanut butter cracker which she took a bit out of before my mom grabbed it away when she was a year old. Thankfully she had no known reaction at the time.

To complicate matters a little she has dermagraphism (spelled really wrong) so she tends to get hives in her ezcema all the time from scratching (I have this as well) She also tends to sometimes have little pimple like bumps on her face (usually just one) that don't look like traditional hives (I get mystery hives ALL THE TIME) and usually come and go sometimes right away and sometimes they linger. They don't seem to itch and sometimes even if I give her an anit-histamine they do not go away.

Does anyone else have this problem- I am an anxious nervous wreck- I am afraid of peanut residue EVERYWHERE. We were in Target yesterday and my husband wiped off the cart and she got a mystery blotch on her face. Earilier in the day she did also and I had given her some zyrtec and it didn't go away. I discovered that there was a Riesens wrapper in the cart (I can't believe we didn't notice- I removed it and then washed all of our hands with wipes) and felt like I had to wipe all of our items down when we got home or she was going to have a reaction. We also went to Payless yesterday and my husband says let her walk- so she's running through the aisle screaming in Delight SHOES SHOES- THEY NICE (she loves shoes) the whole time I'm thinking what if those shoes have peanut butter on them. Can my child have a normal childhood. We have to ride the bus everyday to her babysitters- I'm afraid, her dad picks her up in the afternoons and they go over her cousins' house and I'm scared that one of the kids will touch her (not her cousins but the other kids outside) and she's going to have a reaction. I mean if I feel this way now and she hasn't had any kind of reaction how I'm I going to deal with it when she does. Can we go to parks, play on playground equipment etc??? We went to the playground about 2 months ago before I knew about her PA and when we come home she threw up about an hour later, then had one of those mystery is it a hive is it not hive which i gave her benadryl and it went away after a while then for the next three days she had diarhea- now her babysitters child, grandchild, my brother in law and nephew all had a stomach virus within the same week but I'm like oh my god was it a reaction or was she just sick. Then I think well she was around everyone eating all kinds of peanut candy at easter, my husband used to eat nuts ALL THE TIME and she didn't have any known reaction. I know that means nothing....

We decided to have a peanut/ tn free house, my parents have also, everyone who ever cares for her knows what signs to look for and how to use the epi pen. We carry benadryl and two epi pens with us. She only eats food from us at her sitters and everyone knows not to give her anything else. We've decided to not go to any restaurants for awhile with her (but it is hard anyway to take a toddler to a restaurant) I've joined FAAN, read through these boards, read two books etc. My allergist sort of just was like read labels, don't go to buffets, asian restaurants, carry an epi pen. Thats it. I've done the rest of the research myself. I actually have an appt. in August with a pediatric allergist at one of the children hospitals here on advice of my daughters doctor. She feels that they will be better in helping us manage this. Is it normal to feel this much anxiety? I was sitting at work and everyone was eating chinese food (except me because again I was like what if there is some sort of cross contamination and I go home and Lilly has a reaction) and I felt sad because will my daughter ever be able to be at work and sit around people eating peanuts/nuts and I got really upset. I'm sorry this post is so long. I just needed a place to vent.

On Jun 4, 2006

The stress is terrible in those first few months, I know. hugs} I remember it very well. Wondering crazy sounding things like whether it was safe to let my dd touch my car keys after I got the oil changed... was it safe to set my purse on that counter.... beating myself up over ever listening to my pediatrician who was clueless about atopic family hx....

[i]so stressful[/i]

I know that everyone gets through this, though-- as overwhelming as it is.

One thing I would encourage you to try embracing at the moment? Try to just live "day by day" with her PA for now. When your brain starts to go into overdrive about this kind of thing, don't allow yourself internal talk about school, what if she were with me now (if she isn't), etc. etc. These will come in their own time-- but you have plenty to deal with in the here and now. (right?)

Your daughter is in such good hands because you know how to care for her very well-- you need to tell yourself that too. How incredibly lucky she is to be your daughter-- you already understand certain things about her lifestyle because of your own family history. Many PA children aren't so lucky. (This fact has helped me a lot over the years... )

Hang in there-- in another year, you won't even recognize yourself. And you will feel sooo much better then. Really. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

But for now, just take it one challenge at a time.

On Jun 4, 2006

Amen, CorvallisMom! You are always the voice of intelligent reason.

Melissiabeth, There are many safe places for your daughter to work. I work in a lab; no food or drinks allowed in our work areas. And we often wipe our tables down in the break room, anyway. Just to clean up after messy people. Daisy

[This message has been edited by Daisy (edited June 04, 2006).]

On Jun 4, 2006

This will get easier....My youngest pa dd also gets little spots on her face, exactly as you describe it. They come and go, we've given her benadryl with no impact. I really worried about this being pn exposure until we found out that her older sister is also pa, eats the same thing with no reaction. So now, we just chaulk it up to sensitive skin. I also worried the same things, fretted over how she would be able to attend university, get a job and live a "normal" life. I've gotten a great deal from many of the pa adults here....they are normal! Our daughters take part in all kinds of activities, we just make sure they wash up afterwards and don't put their hands in their mouths...difficult with the youngest, she's a thumb sucker. I still worry some times, but in the grand scheme of things, it could be a whole lot worse....did I say this will get easier? Cheers, Gilli

On Jun 17, 2006

It does get easier and your child will live a normal life. I have had my PA for over 28 years or so and I think my life is great. Of course I have my days or moments (I recently had a reation.. I posted a story in the main gallery)

The main thing is when your child does have a reaction, make sure you are calm and seem under control. (even when you are not.. it can be stressful) This will make your child feel a LOT better! My parents did this with me, and it made me feel safe even when I did have a reaction.

Today, I know I have to be careful at work when people bring in things, but I have my own food I bring and a big tub of M&Ms on my desk so I can eat those when everyone else has cookies or cake when someone brings things in.

On Jun 17, 2006

where do you find m&m's that are not "may contain?" we have never seen any of those. joey

On Jun 18, 2006

The dermatographism actually makes the skin prick test less reliable. You might request a blood draw for CAPRAST.

ygg

On Jul 24, 2006

I could have written this myself. I am feeling exactly the same as you - just overwhelmed and scared to death. Our 2 year old daughter has numerous food allergies and is extremely sensitive. The mysterious hives and blotches are constantly there making me feel like she is a ticking time bomb. Just last night her forearms completely erupted into hives with no apparent reason why. She does go to a peanut free daycare, but they don't limit the "traces of peanutes", etc... items from school. I provide ALL of her food and drinks and they know not to feed her anything without our prior permission. She is also highly allergic to peas and eggs making it even more difficult. Although it's good to hear from others in the same boat, it is just so horrible for all these children. I constantly wonder what her life will be like and what will she be excluded from? We do to go playgrounds but keep a very close eye on everything and everyone. She has never eaten food in a restaurant and we have no future plans of doing so. The other day a 10 year old girl (stranger) came up to my daughter while we were grocery shopping - talking very closely to her, touching her, and I noticed her mouth was full of food. You of course could imagine the thoughts that immediatley went through my head. I am looking for a support group b/c I just cannot handle this on my own any longer. This site is a great start though and is already helping with the unavoidable anxiety that comes with this.

Quote:

Originally posted by melissiabeth: [b]My 19 month old daughter tested positive via skin prick test (wheal measured 15mm) about 2 weeks ago. Her doctor wanted her tested due to her eczema which she always has all over her body since she's been 6 weeks old. I ate peanut butter all the time while pregnant, she was delivered via C section, my family has a history of allergies (I myself have had to ana reactions to antibiotics and have an epi pen) and was on soy formula. We were keeping her away from peanuts and nuts but she had many may contains and my neice once gave her a peanut butter cracker which she took a bit out of before my mom grabbed it away when she was a year old. Thankfully she had no known reaction at the time.

To complicate matters a little she has dermagraphism (spelled really wrong) so she tends to get hives in her ezcema all the time from scratching (I have this as well) She also tends to sometimes have little pimple like bumps on her face (usually just one) that don't look like traditional hives (I get mystery hives ALL THE TIME) and usually come and go sometimes right away and sometimes they linger. They don't seem to itch and sometimes even if I give her an anit-histamine they do not go away.

Does anyone else have this problem- I am an anxious nervous wreck- I am afraid of peanut residue EVERYWHERE. We were in Target yesterday and my husband wiped off the cart and she got a mystery blotch on her face. Earilier in the day she did also and I had given her some zyrtec and it didn't go away. I discovered that there was a Riesens wrapper in the cart (I can't believe we didn't notice- I removed it and then washed all of our hands with wipes) and felt like I had to wipe all of our items down when we got home or she was going to have a reaction. We also went to Payless yesterday and my husband says let her walk- so she's running through the aisle screaming in Delight SHOES SHOES- THEY NICE (she loves shoes) the whole time I'm thinking what if those shoes have peanut butter on them. Can my child have a normal childhood. We have to ride the bus everyday to her babysitters- I'm afraid, her dad picks her up in the afternoons and they go over her cousins' house and I'm scared that one of the kids will touch her (not her cousins but the other kids outside) and she's going to have a reaction. I mean if I feel this way now and she hasn't had any kind of reaction how I'm I going to deal with it when she does. Can we go to parks, play on playground equipment etc??? We went to the playground about 2 months ago before I knew about her PA and when we come home she threw up about an hour later, then had one of those mystery is it a hive is it not hive which i gave her benadryl and it went away after a while then for the next three days she had diarhea- now her babysitters child, grandchild, my brother in law and nephew all had a stomach virus within the same week but I'm like oh my god was it a reaction or was she just sick. Then I think well she was around everyone eating all kinds of peanut candy at easter, my husband used to eat nuts ALL THE TIME and she didn't have any known reaction. I know that means nothing....

We decided to have a peanut/ tn free house, my parents have also, everyone who ever cares for her knows what signs to look for and how to use the epi pen. We carry benadryl and two epi pens with us. She only eats food from us at her sitters and everyone knows not to give her anything else. We've decided to not go to any restaurants for awhile with her (but it is hard anyway to take a toddler to a restaurant) I've joined FAAN, read through these boards, read two books etc. My allergist sort of just was like read labels, don't go to buffets, asian restaurants, carry an epi pen. Thats it. I've done the rest of the research myself. I actually have an appt. in August with a pediatric allergist at one of the children hospitals here on advice of my daughters doctor. She feels that they will be better in helping us manage this. Is it normal to feel this much anxiety? I was sitting at work and everyone was eating chinese food (except me because again I was like what if there is some sort of cross contamination and I go home and Lilly has a reaction) and I felt sad because will my daughter ever be able to be at work and sit around people eating peanuts/nuts and I got really upset. I'm sorry this post is so long. I just needed a place to vent. [/b]

On Jul 24, 2006

It is horribly scary- last week my daughter started itching like crazy in her eczema and then had all of these huge scratch shaped welts where ever she had scratched - I was by myself and I took at the epi pen, called the allergist and gave her atarax and secretly freaked out- she was fine- she just gets welts where she scratches- she had just woke up and didn't even have breakfast yet so rationally i knew she probaly wasn't having a reaction- she hadn't eaten anything strange or different the day before (which i know doesn't necessarily mean anything) and they went back down before the atarax would of even kicked in.

It's hard when your child has really sensitive skin and always has weird little splotches- you never know if they are reacting to a food or what- My husband also gets mystery hives ALL THE TIME- we are an itchy itchy family

I know that i feel a lot less anxious right now then i did when i originally wrote that post. I stopped shreiking out loud when kids touch her now (although I still whip a wet one out) It is easier right now because our world is pretty small (I haven't been able to deal with expanding it yet)

I'm sorry you have to deal with mulitple food allergies- reading about other families who have more allergies really makes me feel grateful that we only have to deal with one (so far- hopefully it will stay that way). I guess we have to just take it one day at a time and hopefully as time goes on it will become easier or atleast a bit less anxiety ridden.

I actually had to stop looking at this site for a few weeks because it was making me so scared - its a great place and i'm so happy i found it - but can be overwhelming at first when your overloaded with all the information right after diagnosis. I wish you luck in finding a support group!

[This message has been edited by melissiabeth (edited July 24, 2006).]

On Jul 25, 2006

Yeah, my daughter has extremely sensitive skin to boot so it's hard to know when it's an allergy or just an irritation. I'm keeping hopeful that she will outgrow the other allergies and maybe we'll get a miracle and her peanut allergy will at least lessen. She's had it rough from day one - severe eczema head to toe for the 1st 16 months, but luckily that has really lessened and she only gets minor flareups now.

Our world is very small too, I'm just not ready to open it up yet, nor do we really need to right now. It's just not worth it.

Thanks for the helpful words and best of luck to you all!!

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