New to this site...

Posted on: Thu, 08/19/2004 - 11:15am
MADISONMOM's picture
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Joined: 08/19/2004 - 09:00

Hello! I am new to this site, although not quite new to the world of Peanut Allergy. My daughter will be six in a few months and we have known about her peanut allergy since before she was a year old. She has severe reactions and almost lost her with her last reaction. She is kept in a "safe" enviroment, all family members and sitter are completely peanut free!
She started kindergarten this week and she is now thrown back into the peanut world. The allergy that she faces each day can become deadly with the slightest touch, or smell of peanut butter. The school does not want to remove peanut butter from lunch room, because the rights of other children. I understand they have rights, but are the children who live with deadly allergies,the ones who should loose their rights?

Posted on: Thu, 08/19/2004 - 4:57pm
Nutternomore's picture
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Joined: 08/02/2002 - 09:00

Madisonmom,
Welcome to the site. Sorry that you're experiencing some trouble at school...
What your school is telling you is absolutely false. Children to not have any legal right to eat peanut butter at school!
You'll want to take some time to check out the School Thread here, and you may want to consider whether to pursue development of a 504 plan for your child.
A 504 plan relates to Section 504 of the Rehabilitation Act of 1973. According to the US Dept. of Education (Office of Civil Rights), allergies (including food allergies) are regarded as a "hidden disability". The legislation mentioned is Civil Rights legislation enacted to protect people with disabilities; in the case of the elementary school environment, its intent is to ensure that your child has access to a "free appropriate education" (FAPE) in a "least restrictive environment" (LRE). What that means is that assuming your child is designated as 504-eligible, then a team is convened by the school 504 coordinator (the team typically includes the parents as well) to determine what accommodations (including potentially things like removing peanut butter from a menu) need to be put into place to ensure that your child can safely attend school.
This is admittedly a really brief description, so check out the topics about 504, and you can also read some really good articles at [url="http://www.allergysupport.org"]www.allergysupport.org[/url] (maintained by one of the members here).

Posted on: Thu, 08/19/2004 - 5:51pm
mama2aidan's picture
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Joined: 07/09/2004 - 09:00

Madisonmom, Welcome, I am new also. I have found a fountain of info at this site. Good Luck with your little one. Just inform everyone. It is sad, but you have to let people know that your child can die from PA.
Aidan starts a 2day a week program in a couple weeks. The school has been great working with us so far.
Best wishes

Posted on: Fri, 08/20/2004 - 9:24am
MADISONMOM's picture
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Joined: 08/19/2004 - 09:00

Thank you Nuttermore,
I have been trying to get a 504 plan written up on my daughter. I have done quite a bit of research over the past month. The school is dragging their feet on doing a 504 for her. They gave me a form to fill out, when reading over the form it is for behavioral and academic problem childern. The form is to request a Special Student Team. This team will sit down and review Madison's learning ability and behavioral tributes to see if she needs a 504 plan. When I told her that Madison's disability was not a learning or behavior problem,it was a life of death problem, she informed me that " The S Team is the first step in processing a 504." I do not believe this, I have a friend across town who's child is also PA and his school quickly done a 504 and are planning to take all peanut products from their school. They did not have to fill out a S-Team form.
Again Thank you for your support and help. It is wonderful when people can relate to what you are going through.

Posted on: Mon, 08/23/2004 - 9:49pm
Geneveive's picture
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Joined: 08/13/2004 - 09:00

My daughter is severe P/A and going into 1st grade at a public school. I have had meetings with the school and they are not willing to do a 504 plan either. They keep insisting that their Action plan is sufficient. I am so frustrated at this point I am looking for a good lawyer. Is the lawyer or an advocate the right way to proceed here? not sure?

Posted on: Mon, 08/23/2004 - 9:50pm
Geneveive's picture
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Joined: 08/13/2004 - 09:00

My daughter is severe P/A and going into 1st grade at a public school. I have had meetings with the school and they are not willing to do a 504 plan either. They keep insisting that their Action plan is sufficient. I am so frustrated at this point I am looking for a good lawyer. Is the lawyer or an advocate the right way to proceed here? not sure?

Posted on: Tue, 08/24/2004 - 11:49am
MADISONMOM's picture
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Joined: 08/19/2004 - 09:00

Hi!
I have some great news! The School has finally given me my request. We filled out Madison's 504 Plan today. What I did to get the ball rolling in the direction that my child needed was simple and it got things done quickly.
First find out who the systems lawyer is for the school system. Find out who the county 504 Plan coordinator is. Give them a call and let them know that the school is not helping in the safety of your child. I had results in three days ( weekend included)
The school called yesterday late evening and requested I be there today to fill out her 504 plan.
Has your doctors sent letters to school yet?

Posted on: Fri, 08/27/2004 - 6:37am
Faithfullyhis7's picture
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Joined: 07/25/2004 - 09:00

Welcome! Madisonmom! Where do you live in TN? I am in Memphi, are you close by? I have a peanut allergy and have a small child.

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