new to peanut allergy

Posted on: Mon, 05/15/2000 - 7:06am
shannon's picture
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Joined: 05/15/2000 - 09:00

Hi, I am new to parenting a PA child, my Son (16mo) recently had a reaction after my husband gave him a bite of a girl scout cookie. Luckily I was aware of the potential that a reaction could be life threatening, because my daughter attended pre-school with a PA child. Now I am trying to learn more about this allergy, and to correspond with others who have PA children. I have been looking at many posts here and am beginning to think I really dont know anything about this and need some help and suggestions to keep my son safe.

Posted on: Mon, 05/15/2000 - 8:05am
mkruby's picture
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Joined: 05/01/2000 - 09:00

Welcome aboard...you are already one step ahead of most new parents having to deal with pa. It is not as bad as it seems...just read labels, watch what your child puts in his mouth, keep eye out for cross-contamination, accompany child to social functions and keep a close eye, educate all teachers/caregivers etc., and start teaching your child now with what can be understood. Knowledge is power..not only to you but also to your child. Be aware that relatives may not understand, parents of your child's friends may not understand, and be aware that it's okay to be overprotective a little bit. You know who will understand...another child. They are easily adaptable and much more understanding than adults. Restaurants can be difficult, but if they aren't willing to help you learn of their ingredients, then basically you leave without giving them business. You will learn a lot about discrimination and what it feels like to be different...you will learn from it about how other's are viewed with handicaps you can see, and you will appreciate things a little more...but mainly..it is a pain in the butt..but you get used to it and it becomes a natural thing to deal with...and you will get to the point when you won't see it as dealing with it...just part of life. Best of luck and best wishes. Kim
------------------
I am a mom of two anaphalactic allergy PA boys and my daughter and myself also have allergies. You may e-mail me at: [email]mkruby@pcspower.net[/email]

Posted on: Mon, 05/15/2000 - 8:44am
melissa's picture
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Joined: 07/05/2004 - 09:00

Welcome!!!! It is a very scary thing at first. Mkruby is right, your just need to be aware at all times and help educate as many people as you can. I'm sure you will find a wealth of knowledge on this website. Everyone is very friendly and willing to help answer all your questions. My 7 year old is PA, and he does well. We have had a couple close calls, but everything was fine. The trick is to read, read, and read. I am a professional label reader, and if you still are unsure, call the manufacturer, most of the time they are willing to help. Stay safe!!!

Posted on: Sun, 08/12/2001 - 3:55am
Jandy's picture
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Joined: 05/21/2001 - 09:00

Hi, Welcome to these boards. Hope your DD didn't have serious reaction to learn of her allergies to nuts. My son is highly allergic to all nuts and some other foods. We found out gradually through testing- skin and later CAP RAST blood work. Our son is almost 11 and we've been able to keep him safe. I've gotten lots of help from FAAN and this web site.
Take Care and stay safe,
Jandy

Posted on: Sun, 08/12/2001 - 10:33pm
jf864's picture
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Joined: 08/09/2001 - 09:00

Jandy,
Thank you for your reply. We found out about Elizabeth's allergy when she tasted a bite of my english muffin with pb on it. Within 10 minutes she had hives all around her mouth, I gave her Benadryl and within 20 minutes they were gone. We had her Rast tested and it came back with a moderaate allergy to peanuts and a mild allgery to walnuts, cashews and hazelnuts. I don't know the numbers yet, I will find them out on the 22nd when we have another doctors appointment. My dh had asthma and food allergies until he was 6, so I hoping she outgrows them.
Thanks again for your support and suggestions!
Jayne

Posted on: Wed, 08/15/2001 - 5:06am
Rhonda RS's picture
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Joined: 02/24/2001 - 09:00

You have found a great resource here. Please see my post on these boards:
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum17/HTML/000255.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum17/HTML/000255.html[/url]
Stay Safe,
Rhonda

Posted on: Sun, 10/27/2002 - 2:34pm
teacher's picture
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Joined: 11/02/2000 - 09:00

I don't know of a single granola bar that doesn't have a warning for nuts on it, here in Canada. We do not buy granola bars of any kind at all anymore.
Gee, your son's scenario is a perfect example of how the "next" exposure can be the scary one!!! Even if past exposures were mild, right? Wow ...
Good luck! You will find this site to be invaluable to you in the coming years!

Posted on: Mon, 10/28/2002 - 6:44am
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Joined: 09/09/2002 - 09:00

I am also quite new to this PA thing. I have been doing an enormous amount of reading, which leaves little time to post. However, I can tell you that my PA son who is 2 1/2 used to eat all sorts of things, including nutty buddy bars which are full of peanuts. He tested class 5 (out of 6) for Peanuts. My dh as well as my mom (who babysat for me while I worked) both ate PBJ sandwiches all the time- and kissed my PA ds. Yet, there were times when one of his eyes would start to swell or his face would get all blotchy and I never could figure it out (before all the tests). The body reacts differently to each exposure. I try to monitor everything he eats. Sometimes I am successful other times I am not. My suggestion is to get a *few* allergy cookbooks and start experimenting with different snacks you can make. I make granola bars for my ds from a cookbook I have called "Mommy's best recipes for fun food" I'm not sure that is right- I'm at work and I can't remember the name. Anyway, it is overwhelming at first to think you have to be so vigilant about food. For me, I have tried to pace myself trying new recipes every other week or so and writing down which ones are good. Take it one day at a time.

Posted on: Tue, 11/28/2006 - 8:51am
Momcat's picture
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Joined: 03/15/2005 - 09:00

Welcome!
I hope you find what you need here. This is a great site, and I've learned a lot here.
What sort of foods have you introduced so far? Can your child eat rice, fruits, veggies, meats, corn?
If you are looking for recipes for multiple food allergies, you may find it worthwhile to join [url="http://www.kidswithfoodallergies.org"]www.kidswithfoodallergies.org[/url] They have many members whose young kids have multiple food allergies AND a great recipe section. If you can't afford the membership fee, they will sponsor you for a free membership. All you have to do is ask.
If you have any questions regarding peanut allergy, ask away [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Oh, and I just want to make sure you have epipens for your little guy, just in case.
Cathy
------------------
Mom to 7 yr old PA/TNA daughter and 3 1/2 yr old son who is allergic to eggs.
[This message has been edited by Momcat (edited November 28, 2006).]

Posted on: Tue, 11/28/2006 - 9:12am
ebrignole's picture
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Joined: 11/28/2006 - 09:00

Yes, we have our epipens and benadryl on hand all the time. I will join that website for sure. Any help I can get, I'll take it.
Our son is still getting most of his nutrients from nutramigen, but seems to be ok with oatmeal, various fruits, having hard time with veggies, but does well with squash and spinach and potatoes and eats avocado almost daily. he eats cheerios daily and ok with that, and rice. he's had chicken and turkey. Its hard to tell, because he is always congested, and has little bumps on his face (not hives, but little, tiny bumps) and occasionally has hoarse voice. He also has small patch of excema on his ankle. He also rubs his nose aggressively like it itches. Allergist suspects it is from our cat, which we keep out of main area of house and have thankfully just found a home for and will be shipping our poor kitty off to Seattle (my friend offered to take), so we will be able to tell after that, if all of those symptoms go away. even though cat is not in main area of house, we still track in the dander, I suppose.
the allergist told us to rotate the meats, so I've been trying to do that, but he only seems to really like ground turkey. We saute it with a little onion and olive oil and a little salt & pepper. I think that olive oil is ok?????
I noticed that some of the earths best baby foods have barley in them. I'm wondering if he may have allergy to that? Is that common? So many questions. Sorry.
Thanks so much!
Elena

Posted on: Tue, 11/28/2006 - 12:14pm
Momcat's picture
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Joined: 03/15/2005 - 09:00

Did you know that Cheerios brand cereal contains wheat starch? There are other brands of O's that are wheat-free. If you are using the brand with wheat starch, you might try switching to a different brand. You could try to carefully avoid all his allergens for a couple of weeks to see if those nagging symptoms--congestion, itchy nose, eczema, bumpy rash, hoarseness, etc. clear up.
I would think that most brands of olive oil are ok. I don't know about barley and wheat allergy but I have heard that some people are allergic to gluten and I know that gluten is in both barley and wheat. It would be a good question to ask the allergist.
I hope you get things figured out! As far as other veggies to try, what about yams, carrots, cauliflower, corn? I'm not sure what to tell you about meats, but my kids were always sensitive to texture at that age. If he likes ground meat, try different ground meats.
Cathy

Posted on: Tue, 11/28/2006 - 12:24pm
JenniferKSwan's picture
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Joined: 06/19/2006 - 09:00

With the nut allergy, I would skip the Earth's Best baby foods. There can be cross contamination issues on much of their food.
My son has an issue with barley...last ingredient on a Gerber jar landed us in the ER with head to toe hives. It is uncommon, but common for those who have wheat allergies...does that make sense?
I replied to your thread about what to eat, but forgot to mention a site that I used in the past [url="http://www.foodyoucaneat.com"]www.foodyoucaneat.com[/url] When you register, select the foods you are avoiding. When you sign in, it will allow you to search recipes minus those ingredients. It gives me a great jumping off point on those days I just want to go bonkers trying to figure out what to feed him.
------------------
Mommy to Aiden (1/26/05) PA,wheat,barley,soy,egg and others yet to be discovered and Connor (7/21/06) with possible egg allergy

Posted on: Fri, 12/01/2006 - 2:08pm
McCobbre's picture
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Joined: 04/16/2005 - 09:00

In the Living forum there's a thread on peoples' top 3 and worst 3 manufacturers. Earth's Best shows up in a couple of "worst" lists.I wasn't aware of it before, but apparently their labeling isn't good. ??? We gave that to DS when he was a baby (now 8).
Welcome!

Posted on: Mon, 12/04/2006 - 3:03am
ebrignole's picture
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Joined: 11/28/2006 - 09:00

Wow! Had no idea about the Earth's Best products. I did notice that their teething biscuits were processed on equimpment that also produces peanuts, which I think is bizarre for a baby food manufacturer. I wrote them a letter about that, actually. I'm not too terribly concerned about the wheat as his wheat allergy is borderline and allergist advised to stay away from whole grain or whole wheat products. Stick to more refined. He thought regular pasta would be ok. Although I just found a rice pasta and quinoa pasta at whole foods that I will try. Thanks for all the good and much needed advice.
Elena

Posted on: Wed, 07/05/2006 - 11:18pm
Adele's picture
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Joined: 01/31/2005 - 09:00

Hello Erika,
I'm sorry to hear of your son's PA diagnosis...but you've come to the right place for information. PA.com is the best place you'll find for info on learning to live with PA.
Most of the members are like you - parents of PA kids - but there are also PA adults here, like me.
If you spend time here, not only reading the daily postings but browsing through the archived posts, you'll learn a lot. 'Manufacturer's - safe & unsafe' is the best source for finding safe foods to feed your son. You'll also learn about how manufacturers label - and which ones we trust.
At first, it's almost overwhelming, but it does get easier.
You'll find a lot of others here in the same boat. Ask questions, read a lot and if you feel overwhelmed - you'll find support here.
The 'Support Groups' thread has information on local support groups. There are active groups, but many of us come here for info.
good luck,
Adele
[This message has been edited by Adele (edited July 06, 2006).]

Posted on: Wed, 07/05/2006 - 11:20pm
Anonymous's picture
Anonymous (not verified)

Welcome Erika! I've only been here a few weeks myself but I can tell you that there is a mountain of information here!
As far as local support goes, there is a section especially devoted to that at the bottom of the page where it says "Hop To".
You don't mention where you're from. We have people here from all over but mainly the US and Canada with someone (or more, I'm not sure) from Australia if I'm not mistaken. As I've said, I'm pretty new here too.
It's good to hear that you caught your son's allergy before an extremely serious reaction. Right now your nerves are probably raw but as everyone here keeps telling me, it DOES get better.
I know it feels as though you need to know everything instantly to protect your little one. My little girl is 3 1/2...allergic to p-nuts and tree nuts. It's tough but doable. There are many on this site who are dealing with multiple food allergies. I don't know how they do it...but then I guess none of us really have a choice. You just do it and go on with life.
{{{{{{{HUGS}}}}}}}} Hang in there!

Posted on: Wed, 07/05/2006 - 11:24pm
Daisy's picture
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Joined: 01/16/2006 - 09:00

Welcome and hello,
So glad his reaction was not too bad. But it's scary enough! And you are one step ahead in that you know from the loss of your friend how serious this can be.
Where are you located? You might look through the posts under "Support Groups" to see if there are any other parents in your area.
You are in the right place! This is an excellent online support system with loads of information and updates.
Start by doing a bit of Spring cleaning in your kitchen by going through the pantry and cleaning out all of the PN products and "may contains".
Daisy

Posted on: Sat, 01/21/2006 - 11:09am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

Jennifer,
Glad to "meet" you... as always, we are certainly sorry that you have a reason to have sought us out. Of course. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
But I also wanted to say WOW! Congratulations!! [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] You and your family have done an amazing job of learning all this very rapidly. You are doing all the right stuff. It doesn't even sound as though you are feeling terribly distressed. I am glad. The first few months can be so very hard-- especially with a toddler.
Again- pat yourself on the back. Really. When I read your post, I did a double take when you said you'd been doing this for just months. I was sure that you had been dealing with PA for years and just found the boards. Many of us do that.
What you said about your allergist rings true for a lot of us... we often feel like the "experts" who go to the allergist merely to get fresh scrips and testing... *sigh* The fact is that they don't usually live it everyday like we all do.
A very warm welcome to you and your family. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sat, 01/21/2006 - 10:01pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Thanks for the encouragement. We have only been dealing with this for a short time, but it feels like forever! I do feel lost at times. I wish there was a clear cut way to keep my guy safe. (avoid nuts, I know, but that seems overwhelming at the grocery store) I'm also inding it's especially hard to explain to friends and family about cross contamination. Most just don't seem to get what I mean.

Posted on: Sat, 01/21/2006 - 10:54pm
Lisa V's picture
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Joined: 03/12/2002 - 09:00

Hi! Just wanted to let you know that it is the scariest and most overwhelming at first. I literally hibernated with my son for a year. It does get better though. I comforted myself with information - as it is the only "protection" we have.
I agree with you, explaining about the risk of cross contamination is the hard part. Anyone can avoid eating actual peanuts. The hidden traces are the trickiest. Eventually, finding peanuts/nuts in any shape and form will become a 6th sense.
Hang in there. You are not alone. There are 32 children who are allergic to peanuts at my daughters elementary school alone. My son has a preschool class where 4 of the 12 children are allergic to peanuts. (He is one of them)
Take care, Lisa

Posted on: Sun, 01/22/2006 - 12:54am
Momcat's picture
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Joined: 03/15/2005 - 09:00

Trust your instincts about the allergist! Shop around for a new allergist as soon as you can. When you feel that you are getting good care for your son and good information it will ease your anxiety.
Good luck! If you feel comfortable posting your location, you may get a recommendation for an allergist from another member.
Cathy
------------------
Mom to 6 1/2 yr old PA/TNA daughter and 3 yr old son who is allergic to eggs.

Posted on: Sun, 01/22/2006 - 4:36am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I think I can speak to the "class 6" test results a little too (since we've been there for years)... yes, these kids tend to be on the extremely sensitive end of the spectrum in terms of what sets them off, but even so, you DO learn how to "live" with it. It just takes time and accepting that other people will think you are totally insane. I just smile and pretend that they think I am "eccentric" instead.
(riiiiiight.) [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] Seriously, though NOBODY else feeds my child. Nobody. And I don't care what sort of trouble they went to or how rude they think I am.
Anyway, most people do not get cross-contamination and never will. With that said, you can try explaining it this way. Ask if it would be OK with them if you filled a bowl with chicken manure, oh-so carefully wiped it out and then made them a salad in it. [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] The more graphic, the better they seem to understand.
The other thing I would tell you about your test results (according to several allergists and the experience of others here) is that after a major reaction, the level of circulating antibodies can shoot up. This doesn't mean it will stay that way. (But allergic is still allergic.)
It is encouraging that your child hadn't been reacting to traces prior to his diagnosis, though. Some kids DO outgrow PA, but I personally wouldn't count on it with a RAST test that high.
It struck me as a bit odd that your allergist thought a skin test would be too dangerous with your reaction history, though... none of our 4 allergists would have seen it that way. Then again, some allergists think that PA in general is a bad thing to SPT for, which is OK, IMO.
I, too, am a little concerned that your allergist may be a bit, how do I say this? Alarmist? Gosh....never though I'd say THAT, but if the reaction you described is the most severe he's seen/heard about, you might want someone with more experience in food allergies....Being frightened out of your wits is not a healthy thing to try to live with, especially as you start out.

Posted on: Tue, 11/28/2006 - 8:51am
Momcat's picture
Offline
Joined: 03/15/2005 - 09:00

Welcome!
I hope you find what you need here. This is a great site, and I've learned a lot here.
What sort of foods have you introduced so far? Can your child eat rice, fruits, veggies, meats, corn?
If you are looking for recipes for multiple food allergies, you may find it worthwhile to join [url="http://www.kidswithfoodallergies.org"]www.kidswithfoodallergies.org[/url] They have many members whose young kids have multiple food allergies AND a great recipe section. If you can't afford the membership fee, they will sponsor you for a free membership. All you have to do is ask.
If you have any questions regarding peanut allergy, ask away [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Oh, and I just want to make sure you have epipens for your little guy, just in case.
Cathy
------------------
Mom to 7 yr old PA/TNA daughter and 3 1/2 yr old son who is allergic to eggs.
[This message has been edited by Momcat (edited November 28, 2006).]

Posted on: Tue, 11/28/2006 - 9:12am
ebrignole's picture
Offline
Joined: 11/28/2006 - 09:00

Yes, we have our epipens and benadryl on hand all the time. I will join that website for sure. Any help I can get, I'll take it.
Our son is still getting most of his nutrients from nutramigen, but seems to be ok with oatmeal, various fruits, having hard time with veggies, but does well with squash and spinach and potatoes and eats avocado almost daily. he eats cheerios daily and ok with that, and rice. he's had chicken and turkey. Its hard to tell, because he is always congested, and has little bumps on his face (not hives, but little, tiny bumps) and occasionally has hoarse voice. He also has small patch of excema on his ankle. He also rubs his nose aggressively like it itches. Allergist suspects it is from our cat, which we keep out of main area of house and have thankfully just found a home for and will be shipping our poor kitty off to Seattle (my friend offered to take), so we will be able to tell after that, if all of those symptoms go away. even though cat is not in main area of house, we still track in the dander, I suppose.
the allergist told us to rotate the meats, so I've been trying to do that, but he only seems to really like ground turkey. We saute it with a little onion and olive oil and a little salt & pepper. I think that olive oil is ok?????
I noticed that some of the earths best baby foods have barley in them. I'm wondering if he may have allergy to that? Is that common? So many questions. Sorry.
Thanks so much!
Elena

Posted on: Tue, 11/28/2006 - 12:14pm
Momcat's picture
Offline
Joined: 03/15/2005 - 09:00

Did you know that Cheerios brand cereal contains wheat starch? There are other brands of O's that are wheat-free. If you are using the brand with wheat starch, you might try switching to a different brand. You could try to carefully avoid all his allergens for a couple of weeks to see if those nagging symptoms--congestion, itchy nose, eczema, bumpy rash, hoarseness, etc. clear up.
I would think that most brands of olive oil are ok. I don't know about barley and wheat allergy but I have heard that some people are allergic to gluten and I know that gluten is in both barley and wheat. It would be a good question to ask the allergist.
I hope you get things figured out! As far as other veggies to try, what about yams, carrots, cauliflower, corn? I'm not sure what to tell you about meats, but my kids were always sensitive to texture at that age. If he likes ground meat, try different ground meats.
Cathy

Posted on: Tue, 11/28/2006 - 12:24pm
JenniferKSwan's picture
Offline
Joined: 06/19/2006 - 09:00

With the nut allergy, I would skip the Earth's Best baby foods. There can be cross contamination issues on much of their food.
My son has an issue with barley...last ingredient on a Gerber jar landed us in the ER with head to toe hives. It is uncommon, but common for those who have wheat allergies...does that make sense?
I replied to your thread about what to eat, but forgot to mention a site that I used in the past [url="http://www.foodyoucaneat.com"]www.foodyoucaneat.com[/url] When you register, select the foods you are avoiding. When you sign in, it will allow you to search recipes minus those ingredients. It gives me a great jumping off point on those days I just want to go bonkers trying to figure out what to feed him.
------------------
Mommy to Aiden (1/26/05) PA,wheat,barley,soy,egg and others yet to be discovered and Connor (7/21/06) with possible egg allergy

Posted on: Fri, 12/01/2006 - 2:08pm
McCobbre's picture
Offline
Joined: 04/16/2005 - 09:00

In the Living forum there's a thread on peoples' top 3 and worst 3 manufacturers. Earth's Best shows up in a couple of "worst" lists.I wasn't aware of it before, but apparently their labeling isn't good. ??? We gave that to DS when he was a baby (now 8).
Welcome!

Posted on: Mon, 12/04/2006 - 3:03am
ebrignole's picture
Offline
Joined: 11/28/2006 - 09:00

Wow! Had no idea about the Earth's Best products. I did notice that their teething biscuits were processed on equimpment that also produces peanuts, which I think is bizarre for a baby food manufacturer. I wrote them a letter about that, actually. I'm not too terribly concerned about the wheat as his wheat allergy is borderline and allergist advised to stay away from whole grain or whole wheat products. Stick to more refined. He thought regular pasta would be ok. Although I just found a rice pasta and quinoa pasta at whole foods that I will try. Thanks for all the good and much needed advice.
Elena

Posted on: Wed, 07/05/2006 - 11:18pm
Adele's picture
Offline
Joined: 01/31/2005 - 09:00

Hello Erika,
I'm sorry to hear of your son's PA diagnosis...but you've come to the right place for information. PA.com is the best place you'll find for info on learning to live with PA.
Most of the members are like you - parents of PA kids - but there are also PA adults here, like me.
If you spend time here, not only reading the daily postings but browsing through the archived posts, you'll learn a lot. 'Manufacturer's - safe & unsafe' is the best source for finding safe foods to feed your son. You'll also learn about how manufacturers label - and which ones we trust.
At first, it's almost overwhelming, but it does get easier.
You'll find a lot of others here in the same boat. Ask questions, read a lot and if you feel overwhelmed - you'll find support here.
The 'Support Groups' thread has information on local support groups. There are active groups, but many of us come here for info.
good luck,
Adele
[This message has been edited by Adele (edited July 06, 2006).]

Posted on: Wed, 07/05/2006 - 11:20pm
Anonymous's picture
Anonymous (not verified)

Welcome Erika! I've only been here a few weeks myself but I can tell you that there is a mountain of information here!
As far as local support goes, there is a section especially devoted to that at the bottom of the page where it says "Hop To".
You don't mention where you're from. We have people here from all over but mainly the US and Canada with someone (or more, I'm not sure) from Australia if I'm not mistaken. As I've said, I'm pretty new here too.
It's good to hear that you caught your son's allergy before an extremely serious reaction. Right now your nerves are probably raw but as everyone here keeps telling me, it DOES get better.
I know it feels as though you need to know everything instantly to protect your little one. My little girl is 3 1/2...allergic to p-nuts and tree nuts. It's tough but doable. There are many on this site who are dealing with multiple food allergies. I don't know how they do it...but then I guess none of us really have a choice. You just do it and go on with life.
{{{{{{{HUGS}}}}}}}} Hang in there!

Posted on: Wed, 07/05/2006 - 11:24pm
Daisy's picture
Offline
Joined: 01/16/2006 - 09:00

Welcome and hello,
So glad his reaction was not too bad. But it's scary enough! And you are one step ahead in that you know from the loss of your friend how serious this can be.
Where are you located? You might look through the posts under "Support Groups" to see if there are any other parents in your area.
You are in the right place! This is an excellent online support system with loads of information and updates.
Start by doing a bit of Spring cleaning in your kitchen by going through the pantry and cleaning out all of the PN products and "may contains".
Daisy

Posted on: Sat, 01/21/2006 - 11:09am
Corvallis Mom's picture
Offline
Joined: 05/22/2001 - 09:00

Jennifer,
Glad to "meet" you... as always, we are certainly sorry that you have a reason to have sought us out. Of course. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
But I also wanted to say WOW! Congratulations!! [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] You and your family have done an amazing job of learning all this very rapidly. You are doing all the right stuff. It doesn't even sound as though you are feeling terribly distressed. I am glad. The first few months can be so very hard-- especially with a toddler.
Again- pat yourself on the back. Really. When I read your post, I did a double take when you said you'd been doing this for just months. I was sure that you had been dealing with PA for years and just found the boards. Many of us do that.
What you said about your allergist rings true for a lot of us... we often feel like the "experts" who go to the allergist merely to get fresh scrips and testing... *sigh* The fact is that they don't usually live it everyday like we all do.
A very warm welcome to you and your family. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sat, 01/21/2006 - 10:01pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Thanks for the encouragement. We have only been dealing with this for a short time, but it feels like forever! I do feel lost at times. I wish there was a clear cut way to keep my guy safe. (avoid nuts, I know, but that seems overwhelming at the grocery store) I'm also inding it's especially hard to explain to friends and family about cross contamination. Most just don't seem to get what I mean.

Posted on: Sat, 01/21/2006 - 10:54pm
Lisa V's picture
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Joined: 03/12/2002 - 09:00

Hi! Just wanted to let you know that it is the scariest and most overwhelming at first. I literally hibernated with my son for a year. It does get better though. I comforted myself with information - as it is the only "protection" we have.
I agree with you, explaining about the risk of cross contamination is the hard part. Anyone can avoid eating actual peanuts. The hidden traces are the trickiest. Eventually, finding peanuts/nuts in any shape and form will become a 6th sense.
Hang in there. You are not alone. There are 32 children who are allergic to peanuts at my daughters elementary school alone. My son has a preschool class where 4 of the 12 children are allergic to peanuts. (He is one of them)
Take care, Lisa

Posted on: Sun, 01/22/2006 - 12:54am
Momcat's picture
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Joined: 03/15/2005 - 09:00

Trust your instincts about the allergist! Shop around for a new allergist as soon as you can. When you feel that you are getting good care for your son and good information it will ease your anxiety.
Good luck! If you feel comfortable posting your location, you may get a recommendation for an allergist from another member.
Cathy
------------------
Mom to 6 1/2 yr old PA/TNA daughter and 3 yr old son who is allergic to eggs.

Posted on: Sun, 01/22/2006 - 4:36am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I think I can speak to the "class 6" test results a little too (since we've been there for years)... yes, these kids tend to be on the extremely sensitive end of the spectrum in terms of what sets them off, but even so, you DO learn how to "live" with it. It just takes time and accepting that other people will think you are totally insane. I just smile and pretend that they think I am "eccentric" instead.
(riiiiiight.) [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] Seriously, though NOBODY else feeds my child. Nobody. And I don't care what sort of trouble they went to or how rude they think I am.
Anyway, most people do not get cross-contamination and never will. With that said, you can try explaining it this way. Ask if it would be OK with them if you filled a bowl with chicken manure, oh-so carefully wiped it out and then made them a salad in it. [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] The more graphic, the better they seem to understand.
The other thing I would tell you about your test results (according to several allergists and the experience of others here) is that after a major reaction, the level of circulating antibodies can shoot up. This doesn't mean it will stay that way. (But allergic is still allergic.)
It is encouraging that your child hadn't been reacting to traces prior to his diagnosis, though. Some kids DO outgrow PA, but I personally wouldn't count on it with a RAST test that high.
It struck me as a bit odd that your allergist thought a skin test would be too dangerous with your reaction history, though... none of our 4 allergists would have seen it that way. Then again, some allergists think that PA in general is a bad thing to SPT for, which is OK, IMO.
I, too, am a little concerned that your allergist may be a bit, how do I say this? Alarmist? Gosh....never though I'd say THAT, but if the reaction you described is the most severe he's seen/heard about, you might want someone with more experience in food allergies....Being frightened out of your wits is not a healthy thing to try to live with, especially as you start out.

Posted on: Tue, 07/08/2008 - 10:24am
Jen224's picture
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Joined: 05/22/2006 - 09:00

Welcome--I know how overwhelming this can be, but please know that you both will be OK and you will be able to manage it.
I understand how food can seem like the enemy right now. It will get easier--promise! Read all labels, call companies, check websites, and read the board. (But first and foremost, make sure you have an EpiPen for your son!!) There are a lot of experts here who have been dealing with it a long time and really know their way around the PA world. You will too.
Take your time and take breaks from the board--a lot of this can be overwhelming. Try to stick to Main Discussion and Manufactures to start---I recommend you stay away from the reactions thread right now.
Ask any question, any time. Welcome!

Posted on: Sat, 07/12/2008 - 11:49pm
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

Hi Budsmom... Welcome.
I remeber very well the feeling of never being able to go any where or do anything. It is really over whelming. BUT you WILL be able to manage it. It takes a little extra preparation and some compromise when you go places and do things. But it is managable. My son is now 7 and we have know about his allergy since he was 2. We have successfully sent him to school and took vacations to Canada, Disney, & acouple Cruises, CA and more.
Read all the labels on things. I keep " little packs of handy wipes in my purse to wipe hands and surfaces down. I bring food to places I am not sure about.
There is a lot to learn.
Good luck

Posted on: Wed, 07/16/2008 - 3:15am
MommyOfTwo's picture
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Joined: 11/08/2007 - 09:44

Welcome! I understand about everything feeling overwhelming and so scary at first. I felt the same way too. Over time though it will get easier and you will settle into a new way of life of reading lables and you will get more assertive when talking to others (especially at restaraunts).
The biggest thing that has helped us is reading as much as possible, The Peanut Allergy Answer Book by Dr. Michael Young helped us a lot, this board is a great source of info, and making our house safe.
Welcome!

Posted on: Fri, 07/18/2008 - 5:03am
jsmmom's picture
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Joined: 07/18/2008 - 11:56

I just found out yesterday my 21 month old son has a peanut allergy. I didn't freak out at first because I have suspected this for about a month (grandmother gave him a peanut butter nab--immediate reaction, but not severe). I followed my allergists advice on coming to this web site for information and now I think my level of freaking out may have escalated tremendously! I just had not even thought of some of the things that we are reading. I have never thought twice about taking my child to restaurants. We went last night and this morning (allergists office is out of town for us) Is Chick fil la off limits? I asked my allergist and he said peanut oil was safe. Now I am even questioning that.

Posted on: Fri, 07/18/2008 - 6:32am
robyn's picture
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Joined: 07/15/2008 - 02:54

Welcome!! I am so sorry that you son has PA. Trust me, life will get easier. But there will be a lot of "freaking out" on this PA road. It's just comes with the allergy. For what it's worth, my allergist said to avoid PA so we do.
In terms of where to eat out, I just made a list for our upcoming vacation last night. Places I consider "safe" are Burger King, McDonald's, Arby's KFC, Taco Bell, Subway, and Long John Silver's. Just stay away from desserts and even some salads even if they say they are "peanut free" just to be safe.
I just started a blog for PA parents. Feel free to stop by (address is below). Shoot me an e-mail if you have more questions. We've been living with PA for over two years. As I said, this will get easier.

Posted on: Mon, 07/21/2008 - 11:20am
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

Hi there.. Just wanted to coment on chick -fila
I have heard that they use chemically extracted and refined peanut oil doesn't have the protien that causes a reaction. Howver... I will never allow my son to eat ther because all it takes is one person to decide dwith out telling people that they mixed in cold pressed peanut oil and he will have a reaction. Also it is confusing for him and me to decided what peanut oil is safe and what is not.. so I just don't even chance it. But definate have your Dr clarify that for you!

Posted on: Tue, 03/26/2013 - 10:38pm
Pinotte's picture
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Joined: 03/27/2013 - 05:31

My answer comes years later, but here goes anyway! It might be helpful or not. If you live in upstate NY, the you are close to Montreal, and I just wanted to mention that if you ever do come to Montreal, there is a restaurant called Zero8 that caters specifically to allergic people. Zero8 means there is 0 of the top 8 allergens in the restaurant. They don't use nuts, peanuts, milk, eggs, fish, shellfish, etc. And it's really, really good, too! And once you're in Montreal (or anywhere in Quebec, for that matter), you can stock up on Ange Gardien foods (available in groceries), which are also made for allergics.

Posted on: Mon, 04/22/2013 - 11:24am
mj mom's picture
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Joined: 10/14/2009 - 09:32

We live in upstate...in outside of Syracuse...I know the only ones we go to are McDonald's and Wendy's. Even though there are peanuts at Friendly's, ours was very good about allergy awareness about four years ago....my son had almost died at the mall, and we have since stopped eating at restaurants. I know 99 steakhouse is pretty strict about allergens and great about modifying the menu, but that was just for me (and I have a TON of allergies). Good luck...it's overwhelming, but it will be ok!!

Posted on: Mon, 06/03/2013 - 9:55am
SherilynDDive's picture
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Joined: 06/03/2013 - 16:27

Zero8 is the restaurant to check out in Montreal. I've gone there with a friend whom has peanut allergies. It tastes wonderful as well!

Posted on: Tue, 10/14/2014 - 11:44am
melliemt's picture
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Joined: 10/12/2014 - 11:21

Hi. I'm new to this too. I just figured it out last week after having constant tingling in my face for the last month. It didn't occur to me that it was the same timeframe as when I started eating PB&Js again. I've never had a problem in the past. I ate a Reese's on Sunday and got a mild tongue numbness and after eating peanut butter off a spoon on Monday, my face and tongue swelled and were numb and my lips tingled. Since then, I've never so afraid to eat anything in my life. I'm waiting for a definite diagnosis after my bloodwork comes back. I'm 99% sure it's a peanut allergy.

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