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Posted on: Wed, 02/25/2004 - 12:02am
momma2boys's picture
Joined: 03/14/2003 - 09:00

Hi, welcome. Its a good thing you know what you're doing because your allergist sure doesnt. I would call them and tell them you would like a copy of the test results. Then I would confront them about the peanut and ask how they qualify that as negative. A class 2 can result in anaphylaxis and it seems as though they are being pretty irresponsible.
You need to find a new allergist. You also need to get some EpiPens. I am assuming your allergist did not give you them.
You are doing a great job, so read here and ask any questions you need to. You will find a lot of help here.

Posted on: Wed, 02/25/2004 - 12:20am
happymomof2amk's picture
Joined: 11/01/2003 - 09:00

Hi! Welcome to the site. My dd is three years old and has had eczema since she was 6 wks old. It was severe and uncontroled until she was about a year. We had to go to many different dermatologists before we got the right info on dealing with eczema. We recieved the best treatment info from the allergist though.
He has us bathe her every night and with in 3 mins of her getting out of the tub we put elidel on for when she is not so bad and triamcinalon for bad flare ups. Then we put a good coat of aquaphillic on. She looks pretty good most of the time.
She has had lots of allergy testing. Her rast test always show lots of 2 and 3 to stuff she is not reacting to yet. Kids with eczema always seem to have a lot of environmental and food alergies. Fortunately it doesn't seem like she will be developing asthma. Which goes along with the atopic children.
I would definately switch allergists. I hope you get more answers. Good Luck!
Angie & Hunter PA, TNA, EA

Posted on: Wed, 02/25/2004 - 12:31am
AlwaysAvoidAnaphylaxis's picture
Joined: 06/23/2001 - 09:00

I would suggest calling the doc's office and asking them to add on the CAP RAST for tree nuts to the blood already drawn to find out about
brazil nut
chestnut (chessnut, chesnutt, chesnut?)
what do others think?
do you automatically avoid tree nuts if you are allergic to peanuts? we do

Posted on: Wed, 02/25/2004 - 9:06am
Going Nuts's picture
Joined: 10/04/2001 - 09:00

Welcome Ladybug!
Boy, it's a good thing you are health-savvy, because you surely aren't getting any help from that allergist. Time for a new one.
And yes, by all means check for tree nuts as well. Our allergist didn't, and you can guess the rest. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]
Again, welcome!

Posted on: Mon, 02/09/2004 - 3:09pm
Jana R's picture
Joined: 02/09/1999 - 09:00

Welcome Kim. Have you heard of Parents of Children with Food Allergies (in Massachussettes?)
I've seen a lot of people describe their situation with their husbands and their attitudes quite similarly. More than likely you'll both reach a place that you're satisfied with how each other is handling the situation. The trick is discovering coping strategies to live as normally as possible while still keeping as vigilant as necessary.
Here's an article about the stress living with anaphylaxis can cause:
Hang in there!

Posted on: Mon, 02/09/2004 - 11:33pm
Going Nuts's picture
Joined: 10/04/2001 - 09:00

Welcome Kim!
Sorry to hear of your son's reaction. The "disagreement" between you and your DH is pretty common, as you will read here. Did your husband actually see the reaction? Sometimes they have to see it to believe it.
You guys are still pretty new to this. I'm sure in time your comfort zones will move closer together, but in the meanwhile read as much as you can here, and share the responsibility for learning about PA with your DH (if he is willing!). It took my DH quite awhile to "get it", and we still occasionally disagree but we're more in sync now than in the past.
Good luck - see you on the boards.

Posted on: Tue, 02/17/2004 - 12:34pm
Kim in Mass's picture
Joined: 02/09/2004 - 09:00

Thanks so much for your advice, it definately helped. My husband did see my sons reaction, so it is strange that he's not taking it as serious as I am.
We are going to Mexico in March, so I'm quite nervous about that. I called the allergist and she said to only bring 2 EpiPen jrs with us, because she said "remember, you have to go to the emergency room when you use one and the doctors will give us an Rx at the hospital" what do you all think about that?
Thanks so much.
Kim in Mass

Posted on: Wed, 02/18/2004 - 12:12am
mary beth's picture
Joined: 01/10/2004 - 09:00

Hi Kim, and welcome to this awesome site. Others have given you great advice on comfort zones,etc.
I'd just like to pitch in about the trip to Mexico. We had a bad experience with epi-pen failure on vacation. It's in the Reactions/Stories section. (My username was juliasmom, then). I don't want to freak you out, but I highly recommend more than two epi-pens, especially on a trip to another country. One epi-pen dose lasts approx. 20 min., so if you are more than that time/distance from an ER, you may have to give more than one dose during a reaction.
Also, be sure to bring plenty of liquid benadryl, and know the appropriate dose for your child, by weight. While the epipen is usually the drug of choice for a reaction, there are times when benadryl is useful. Remember to watch the storage conditions for your epi-pens, since you're going somewhere warm. They should not get above 80 degrees, or be placed in direct sun. It's super important, since you want the epi-pens to be operational in case of a reaction. Best of luck to you, and post more questions if you have them.
Mary Beth

Posted on: Wed, 02/18/2004 - 12:41am
Claire's picture
Joined: 04/19/2000 - 09:00

HI Kim,
YOU will be ok eventually it will become a way of life for you and your DH as well. Stick to your guns and be firm. Your dH will learn through you educating him even if you talk his ears off. Keep on talking,and learning. Read,Read and reread labels. Also remember your child will learn through you how to handle things. We have been 17 years and doing ok. My son is so allergic that even touch will cause hives. He did react to smell on the bus. Not a pretty seen but he is ok.
If people don't get it then stay away from them. They are not your friends and not worth it if they don't. Be very firm. good luck claire

Posted on: Sat, 02/28/2004 - 6:54am
mew's picture
Joined: 02/08/2000 - 09:00

My son is also allergic to peanuts and eggs. Our experience was similar to yours - bad reaction to peanuts at 15 months followed by a RAST telling us he was also allergic to eggs. The egg allergy is milder, but we have found it to be the more difficult one to manage. All of our accidental exposures since diagnosis 5 years ago have been to eggs.
Your husband may be taking this seriously, but is coping differently. Is he usually a "the glass is half full" kind of person? I tended to worry more than my husband at first and have found myself moving more to my husband's "we can manage this" attitude. Maybe you can come up with a list of situations that worry you and then let your husband come up with a plan of how the two of you can manage the situation. For example: a birthday party, going to a restaurant, Little League, etc. From there you can talk and tweak his plan so that you are both comfortable.
The FAAN food allergy conferences are coming up and there is usually one in Rye, NY. Maybe you both could attend together if it isn't too far away. My husband and I found the one that we went to very helpful. It was also nice to be in a room full of people who also had kids with food allergies.
I have found the two most difficult things about my son's food allergies to be grocery shopping (which I hated before his allergy and reading labels only makes it worse) and baking. It has been difficult to find good egg-free recipes.


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