New to PA with a one year old

Posted on: Tue, 02/18/2003 - 4:47am
jussjenni's picture
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Joined: 02/18/2003 - 09:00

Hi There,
My husband and I are parents of a little one year old diagnosed with PA and we are trying to gather as much info as possible on protecting him. What about dining out? What about vacationing? What about typical things like Birthday parties etc. Any advise would be greatly appreciated! Thank you!

Jennifer

Posted on: Tue, 02/18/2003 - 5:13am
cynde's picture
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Joined: 12/10/2002 - 09:00

As you probably know there is far too much information for any one person to answer. All I can suggest is do a lot of research here, there is a search option and you can find older questions that have been asked and answered already. Welcome and good luck.
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Cynde

Posted on: Wed, 02/19/2003 - 1:10am
Jeannine's picture
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Joined: 12/31/2002 - 09:00

Welcome!
As stated above there is a tremendous amount of information here as well as a very supportive group of parents that truly get how confusing and sometimes scary PA can be. Just be patient and keep searching.

Posted on: Wed, 02/19/2003 - 3:47am
mchammond's picture
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Joined: 09/21/2000 - 09:00

Sorry you have to have located this site but welcome.
You will find suggestions to many of your questions on this site. If you can't find the topic you are looking for, you could post one. The nicest thing about this site is that you will get a variety of opinions and comfort levels so you can decide what works best for you.
Good luck!

Posted on: Fri, 02/21/2003 - 12:57am
nancy023's picture
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Joined: 12/12/2002 - 09:00

Jennifer,
My son was also diagnosed with PA at one year. I wish I had been more careful about exposing him to other highly allergenic foods, like tree nuts-- for which he has since tested positive-- after his diagnosis. There is so much information on the questions you have asked, that it will just take time and reading to feel comfortable with your decisions. Briefly, we go to Disney twice a year by plane. We always take our own cupcakes to birthday parties. We rarely dine out, but usually take our own food for the kids, then DH and I order from the menu. Each person or family has their own comfort level.
Welcome and good luck.
Nancy

Posted on: Thu, 03/27/2003 - 9:59am
NattiesMom's picture
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Joined: 03/27/2003 - 09:00

Hi! New, too. Same questions. Did you get any info that you'd like to share? We eat out alot. Who knew?
Thanks!
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Sheri

Posted on: Thu, 03/27/2003 - 11:23am
synthia's picture
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Joined: 10/05/2002 - 09:00

Jussjenni,Natties mom
Welcome
This site offers a world of info,as well as
realy great people for support.
I would suggest looking thru the topics and threads as they will answer most questions.
If you still cant find the answers,Iam sure that some one would be able to locate the thread for you.
On the topic of schools,(I know that the little ones are young now)how ever I suggest you getting a little not book and loggin all
reactions for future use.Just a suggestion.
We are here for you.
again welcome
Love this site
Synthia

Posted on: Thu, 03/27/2003 - 11:48am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Glad you found us. My PA daughter was 4 when I found this site. I wish I had found it sooner. The people here are the greatest. I've learned so much here and so will you.
As for vacations.... we travel by car and always have our trusty cooler packed with safe foods like yogurt, pudding & fruit. We bring crackers, cookies and bread from home. Our first time away for a weekend was when our daughter was 18 mos. So far our trips haven't been more than 3 hours from home. We try to stay at motels with kitchens unless it's just for one night. This year we are renting a trailer at a campground. The first order of business will be to clean the unit just in case there is some lingering peanut butter residue from previous renters. Disney is over a year way and I'm already working at planning a safe trip for her.
When dealing with PA, planning ahead is crucial.
Best wishes to you and your family!

Posted on: Thu, 03/27/2003 - 1:36pm
jussjenni's picture
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Joined: 02/18/2003 - 09:00

Thank you for all of your advise. We have gotten some good news. We were not satisfied with our first allergist so we went to a new one. He did a lot more testing and seemed very informed. After the RAST and Skin test he told us that Hayden is basically, skin allergic to peanuts. He did have a positive skin test but a negative RAST test...both times tested. So, he wants us to continue to use caution when feeding him, but he said he was very comfortable with Hayden dining out and vacationing. He feels very strongly that he will grow out of this allergy as a child. I hope that this giaves some hope for you other parents out there.
Jennifer

Posted on: Mon, 03/31/2003 - 5:09am
NattiesMom's picture
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Joined: 03/27/2003 - 09:00

Hi! We are new to this, too. My 2 year old had a bad reaction last week to peanut butter. We are going on vacation soon. Looking for eating out advice as well. I found out from calling and reading, McDonalds and Wendy's are safe. (Can always do drive through and take it with you!) BK uses sesame seeds. We've eaten eaten most cheese sandwhiches and chicken fingers and french fries from places all along the East coast without a problem before, but now I've started asking about the oil the kitchen uses. I've read lots about Pizza. For the most part, I'm very confused because it goes back and forth. I'm still VERY new to this. Don't know if I've said anything new. If you have anything for me, please let me know. I've been reading like crazy!!! Good luck! Sheri
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Sheri

Posted on: Mon, 03/31/2003 - 12:58pm
Suz-a-loo's picture
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Joined: 10/19/2001 - 09:00

Hi Jennifer and Sheri! Welcome! You came to the right place for information. I remember how overwhelmed I was when I found out my DS has PA. Getting information from these boards has been a tremendous help for my family. I'm sure you will find this to be true as well.

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