New to group...son with peanut allergy

Posted on: Mon, 03/17/2008 - 6:33am
TwinsMommy's picture
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Joined: 03/17/2008 - 12:57

I just wanted to check in and say hello to everyone. My name is Kim and I have 18 1/2 month old twins named Ryan and Samantha. They have been through so much already! The twins were born at only 27 weeks weighing less then 2.5 lbs. each. My son Ryan was only 13 inches long and my daughter Samantha was 15 inches long. We had a very long NICU stay with lots of ups and downs.

Today they are both happy healthy little kids running all over the place and driving eachother crazy!!! I'm a super proud mommy!

While Samantha seems to have no allergy issues my son Ryan can't seem to catch a break. We ended up getting rid of our dog because he would get hives when the dog licked him. They after they were one...we tried some eggs for breakfast. My poor guy got hives, face swelling, red face, eyes swelling. He did not seem to have a problem breathing during this time.
Then grandpa gave him a kiss after eating peanut butter sandwich and he got a hive on his cheek. Several months later great-grandpa (only watching him for about 1/2 hour) gave him a bite of his peanut butter bread and he had about the same reaction as he did to the eggs but with hives all on his chest and back and worse swelling around his eyes.
The doctor suggested we "test" him again when he was a bit older with the eggs...so I did...and it was bad. It seemed that he was feeling something with his breathing. He kept sticking his neck out like it hurt him and he was trying to help himself.
So now we have Epi Juniors. I pray I will not need to use them...but people are not always smart...or care about the health of others around them.
We had blood work done today to see how severe the peanut issues are. I pray they come back fairly mild...but I don't think it will.
Well thats all for now. Glad to be here and learn how to keep my little one safe.

Posted on: Mon, 03/17/2008 - 6:38am
Newallergymom's picture
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Joined: 03/09/2008 - 15:23

Welcome Twins Mommy!!
I am so sorry to hear about the poor little fella! I myslef joined the group a little over a week ago...and it is amazing what I have learned. The people on here are wonderful, and there are a lot of good tips to help guide you through this allergy!
One thing I have noted...you really shouldnt deem an allergy as mild or severe...because one never knows how the reaction is going to present itself next time...so always err on the side of caution and treat it as a severe one, even if you think its not...thats my 2 cents ;)

Posted on: Mon, 03/17/2008 - 7:01am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

Hi and welcome TwinsMommy. Your twins sound like very healthy toddlers after coming into the world with their struggles.
Unfortunately, my dd who is almost ten is my child who can't catch a break either. My other two have no allergies and my daughter continues to get new ones every so often. I think the plus side is that the other two are learning compassion for others with differences in a more profound way as it effects a family member.
As the previous poster has said the test results do not give a mild/severe reaction prognosis. There are many here whose results are not as high as my dd's but have had anaphylactic reactions to contact whereas my dd hasn't had a reaction since her initial and has very high numbers. It just goes to show that a spt or rast does not gage how future reactions may be.

Posted on: Mon, 03/17/2008 - 10:25am
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

Hi and welcome!
Sorry that you have this rotten diagnosis! and boy little guy... Ufortuately allergic is allergic when it comes to peanuts! you can be mildly allergic and have a severe reaction. So don't put a lot of faith inthe tests.. The good news is my sone has an egg and milk allergy when he was little he is 7 now and has out grown those! ( still allergic to peanuts and amoxicillian, dogs, cats, dust, oak) *sigh* but we manage and he is a healthy active little boy!
welcome!
Therese

Posted on: Thu, 03/20/2008 - 11:17am
tamahome's picture
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Joined: 03/20/2008 - 14:19

Hi, I'm new to this board and have just been reading so far and wanted to see if somebody responded to something you said. I appologize ahead of time if you already new this. You mentioned that your dog licked your son's cheek and that he got hives from it. Almost all dog food has egg product in it, and it's common for people with egg allergies to react to the substance on the dog's tongue instead of being allergic to the dog itself. I'm sure you've already verfied it with the doctor, but I thought I'd mention it in the hope that he still might be able to have a dog.

Posted on: Fri, 03/21/2008 - 10:36am
Kanji's picture
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Joined: 01/30/2008 - 16:26

Hi. Welcome!
Re the dog - sometimes dog food contains peanuts. Sometimes kids are very allergic to dog saliva even when the dog hasn't eaten any allergens.
I would recommend you find a good pediatric allergist that really 'gets' food allergies. When you said your doctor advised you to try egg at home again, that really worried me. Effectively, the doc was suggesting you did a food challenge at home, which I would consider dangerous. I have gone through 2 pediatric allergists because they didn't seem right to me, and have just now found one that seems to be on the ball. The first was trigger happy, the second way too laid back. I find it amazing that there can be such a difference in the way food allergies are treated from one doc to another!
Having a good doctor, and support from forums like this will make the food allergy journey a lot easier for you.

Posted on: Wed, 04/30/2008 - 12:41pm
sjv's picture
sjv
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Joined: 04/21/2008 - 07:07

I am new to the group. I have twin daughters almost 4 years old. One has the PA & TNA the other does not. I feel like you. She has been through so much but today she is an active, thriving, beautiful child so full of life. But the PA worries my every day. I joined the network to try to learn more. I appreciate the labels on food but I wonder and worry about "hidden" products or peanut products/oils that cross over. But I must admit the people of this network are a wealth of knowledge. Sitting here reading through post after post educates myself and reassures me that I am my child's best voice right now. Take care and good to here your twins are doing well! Do you every wonder if the premature birth had anything to do with the allergy?

Posted on: Wed, 04/30/2008 - 1:45pm
cristym's picture
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Joined: 11/19/2007 - 17:26

HI! I too have twin girls who will be 3 in July. One has an allergy to Peanuts/tree nuts, the other has eczema and seasonal allergies. My 8 yo son also has a peanut/ tree nut allergy. When he was an infant he was allergic to eggs, he would get hives when we went to a diner that served a lot of eggs, even if he did not have anything to eat while we were there. He did eventually grow out of it, although to this day he does not like to eat eggs. He can however eat food that has eggs in it.

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