new test results are not good ....need advice please

Posted on: Wed, 03/17/2004 - 3:21am
KATHYANN's picture
Joined: 09/29/2001 - 09:00

I just got the results from my pa sons blood test and he also tested severe to shrimp with moderate to soy and green peas.. I have often read about the soy allergy here but have no clue what it really means to keep him safe . I have an appt. next week but till then could you give me a heads up on some foods or snacks to stay clear of . thank you, Kathy Ann

Posted on: Wed, 03/17/2004 - 8:22am
PeteFerraro's picture
Joined: 07/10/2001 - 09:00

I feel your pain. My wife and I are in a similar boat with our son. We had a previously diagnosed PA mushroom into tree nuts, eggs, soy, potatoes, and.... allergies.
The appointment with our nutritionist isn't for 3 more weeks!
We've been giving all kinds of food away!
Call the allergist often with questions.
Not all soy is bad. I understand that Hydrogenated soybean oil ok, put we are not taking any chances until we speak to the nutritionist.
I will say one thing. Since we removed eggs, potatoes & soy from his diet his asthma and eczema seemed to have improved.
He's also been less irritable! BIG Plus!
See, it's not all bad! I also understand that there is a high probability that when my son gets older he will outgrow most of his food allergies. We'll still have the Peanut and Tree Nut allergies to worry about.
We now have a few more reasons to spoil the little guy.
I wish you luck and keep that EpiPen handy!
Pete Ferraro
[This message has been edited by PeteFerraro (edited March 17, 2004).]

Posted on: Wed, 03/17/2004 - 8:56am
Sandy's picture
Joined: 05/27/2002 - 09:00

Hi Kathy, My son is also anaphylactic to green beans. I stay clear from all legumes (peas,chick peas, beans, and lentils).
A lot of foods contain soy, so you have to read every label. It's a drag at first, but it becomes second nature after so many years. Good luck

Posted on: Wed, 03/17/2004 - 11:17am
KateB's picture
Joined: 05/11/2004 - 09:00

My 17 year old son has been PA since the age of three and a half. At the age of 12/13 he developed an allergy to soy. When re-tested just before his 17th birthday we discovered he is also now allergic to nuts.
Soy IS avoidable. We have been told that he can have soy lecithin (in lots of candies) and soybean oil, not soy anything else. Unfortunately soy protein is in many 'convenience' foods such as chicken nuggets etc. We buy Chicken Strips from M & M Meats (we are in Canada), which are very good quality and safe. M & M's Chicken Nuggets DO contain soy protein, so we only buy the Strips.
You also have to watch out for hydrolised plant or vegetable protein, which could be peanut (but unlikely) or soy (more likely). Soy flour is also used in many fast food places in buns.
The addition of the nuts to his list of allergies did not change our way or the ease of doing things. Soy did change things, it's much more of a nuisance, but it is manageable.
My son was also told to avoid all legumes, since he is so highly allergic to peanut (>100 on the CAP RAST test)
Hope this helps and doesn't make you throw up your hands in despair [img][/img]

Posted on: Wed, 03/17/2004 - 12:27pm
nancy023's picture
Joined: 12/12/2002 - 09:00

Soy fiber is in most breads and many bakery type products, like Hostess stuff and Krispy Kreme doughnuts. Soy protein is in lots of prepared foods, too.
My soy allergic son can tolerate soy lecithin and soybean oils, but some soy allergic people cannot.
The soy allergy is a pain, but you will get used to it-- you have to. Just give it time and read foods carefully. Good luck.

Posted on: Wed, 03/17/2004 - 9:57pm
KATHYANN's picture
Joined: 09/29/2001 - 09:00

thank you so much for your help. I never let James eat outside food so I don't feel overwhelmed by that , but he adores bread and I saw that Sunbeam has it in it. I cannot make bread to save my life, maybe you can advise if a bread machine makes the same type as a store bought.Also could you pls. tell me if you continue to feed them green beans and yellow beans. I get confused about the legume thing . also Pete do most people see a nutrishonist . Is this something we should be doing beside just the allergist for an extra handle on this.. thanks again Kathy ANn

Posted on: Thu, 03/18/2004 - 12:22am
kelly01's picture
Joined: 03/19/2001 - 09:00

Hi Kathyann:
Definately talk to your doctor about what he means by "moderate" to soy and what precautions you should take. I can't remember the numbers, but back when ds had his blood test he had slightly elevated numbers to soy(along w/severe allergy to peanuts). The doctor told us we did not have to avoid soy in products, only to avoid giving him "high-soy" foods (like tofu, soynut butter, etc) on a regular basis. We followed that rule and his soy sensitivity never became an allergy. He is 7 years old now.

Posted on: Thu, 03/18/2004 - 1:07am
PeteFerraro's picture
Joined: 07/10/2001 - 09:00

Quote:Originally posted by KATHYANN:
[b]Pete do most people see a nutrishonist . [/b]
I think just for peanut allergy, no. In our case when my son was initially diagnosed with the peanut allergy a nutritionist was not even discussed.
Because my son has recently added new food allergies, the list of 'safe' foods is getting smaller. In our case, the danger is not just the food allergies. We need to make sure the little guy is getting the proper nourishment that a growing 4 year old needs.
We also need help with our official list of foods to avoid.
Pete Ferraro

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Latest Post by sunshinestate Thu, 11/21/2019 - 10:37am
Comments: 6
Latest Post by sunshinestate Thu, 11/21/2019 - 10:31am
Comments: 172
Latest Post by absfabs Tue, 11/19/2019 - 11:01am
Comments: 478
Latest Post by absfabs Tue, 11/19/2019 - 10:51am
Comments: 3
Latest Post by william robenstein Mon, 11/18/2019 - 10:35am
Comments: 1
Latest Post by sunshinestate Sun, 11/17/2019 - 1:16pm
Comments: 3
Latest Post by absfabs Fri, 11/15/2019 - 5:32pm
Comments: 2
Latest Post by Italia38 Tue, 11/12/2019 - 2:43pm
Comments: 2
Latest Post by absfabs Mon, 11/11/2019 - 1:23pm
Comments: 3
Latest Post by Italia38 Fri, 11/08/2019 - 12:10pm
Comments: 4
Latest Post by Italia38 Fri, 11/08/2019 - 11:47am
Comments: 6
Latest Post by sunshinestate Thu, 11/07/2019 - 3:43pm
Comments: 4
Latest Post by sunshinestate Thu, 11/07/2019 - 2:48pm
Comments: 7

More Articles

It’s the time of year when holiday parties, and family gatherings can make allergen avoidance more problematic. Whether you celebrate Christmas,...

When love is in the air we can get caught up in the moment and throw caution to the wind. However, if you have a...

Food allergies and sensitivities are on the rise. Almost everyone knows someone who has problems with at least one food. The most common food...

Peanuts and Nuts Can Trigger An Asthma Attack

According to the American Academy of Allergy, Asthma and Immunology (AAAI), more than 3...

The relationship between anxiety and food or other allergy is a complicated and puzzling one. Research has shown that stress can exacerbate...

More Articles

More Articles

According to the American College of Allergy, Asthma & Immunology, over 50 million people in the U.S. have allergies. Today's allergy tests...

The Food Allergen Labeling and Consumer Protection Act of 2004 (FALCPA) addresses the labeling of packaged food products regulated by the FDA....

For people who suffer from anaphylaxis, a severe allergic reaction that can result from an allergy to...

Anaphylactic shock (A-nuh-fih-LAK-tik shok): A severe and sometimes life-threatening immune system reaction to an antigen that a person has been...

In 1963 the American Medical Association designed a special symbol that would alert emergency medical personnel of special medical conditions when...

Finding allergy-free foods for an office potluck may seem impossible, but more options are available than you might think. Eating foods prepared...

One of the most difficult things for a parent to do is determine whether his or her toddler has a cold or a...

You no doubt have your own way of teaching people about your child’s food allergy, a way that suits your temperament, and style of communication....

Reliable peanut allergy statistics are not that easy to come by. There is a lot of available research on food allergies in general but not too...

Most people know that to enjoy whatever food safety accommodations an airline offers they need to inform the airline of their allergy prior to...

A 504 plan* documents food allergy accommodations agreed to by parents and their child’s school. Plans are typically created during a 504 meeting...

If there is a child at your children's school allergic to peanuts, the school probably discourages or may not allow peanut products to be brought...

If you are on a budget, but you need to wear some sort of notification that you have a peanut...

Unless we consciously carve out time for self-care, constant food allergy management can slowly erode our sense of well-being. Signs of allergy-...

Peanuts cause more severe food allergic reactions than other foods, followed by shellfish, fish, tree nuts and eggs. Although there is only a...