new test results are not good ....need advice please

Posted on: Wed, 03/17/2004 - 3:21am
KATHYANN's picture
Joined: 09/29/2001 - 09:00

I just got the results from my pa sons blood test and he also tested severe to shrimp with moderate to soy and green peas.. I have often read about the soy allergy here but have no clue what it really means to keep him safe . I have an appt. next week but till then could you give me a heads up on some foods or snacks to stay clear of . thank you, Kathy Ann

Posted on: Wed, 03/17/2004 - 8:22am
PeteFerraro's picture
Joined: 07/10/2001 - 09:00

I feel your pain. My wife and I are in a similar boat with our son. We had a previously diagnosed PA mushroom into tree nuts, eggs, soy, potatoes, and.... allergies.
The appointment with our nutritionist isn't for 3 more weeks!
We've been giving all kinds of food away!
Call the allergist often with questions.
Not all soy is bad. I understand that Hydrogenated soybean oil ok, put we are not taking any chances until we speak to the nutritionist.
I will say one thing. Since we removed eggs, potatoes & soy from his diet his asthma and eczema seemed to have improved.
He's also been less irritable! BIG Plus!
See, it's not all bad! I also understand that there is a high probability that when my son gets older he will outgrow most of his food allergies. We'll still have the Peanut and Tree Nut allergies to worry about.
We now have a few more reasons to spoil the little guy.
I wish you luck and keep that EpiPen handy!
Pete Ferraro
[This message has been edited by PeteFerraro (edited March 17, 2004).]

Posted on: Wed, 03/17/2004 - 8:56am
Sandy's picture
Joined: 05/27/2002 - 09:00

Hi Kathy, My son is also anaphylactic to green beans. I stay clear from all legumes (peas,chick peas, beans, and lentils).
A lot of foods contain soy, so you have to read every label. It's a drag at first, but it becomes second nature after so many years. Good luck

Posted on: Wed, 03/17/2004 - 11:17am
KateB's picture
Joined: 05/11/2004 - 09:00

My 17 year old son has been PA since the age of three and a half. At the age of 12/13 he developed an allergy to soy. When re-tested just before his 17th birthday we discovered he is also now allergic to nuts.
Soy IS avoidable. We have been told that he can have soy lecithin (in lots of candies) and soybean oil, not soy anything else. Unfortunately soy protein is in many 'convenience' foods such as chicken nuggets etc. We buy Chicken Strips from M & M Meats (we are in Canada), which are very good quality and safe. M & M's Chicken Nuggets DO contain soy protein, so we only buy the Strips.
You also have to watch out for hydrolised plant or vegetable protein, which could be peanut (but unlikely) or soy (more likely). Soy flour is also used in many fast food places in buns.
The addition of the nuts to his list of allergies did not change our way or the ease of doing things. Soy did change things, it's much more of a nuisance, but it is manageable.
My son was also told to avoid all legumes, since he is so highly allergic to peanut (>100 on the CAP RAST test)
Hope this helps and doesn't make you throw up your hands in despair [img][/img]

Posted on: Wed, 03/17/2004 - 12:27pm
nancy023's picture
Joined: 12/12/2002 - 09:00

Soy fiber is in most breads and many bakery type products, like Hostess stuff and Krispy Kreme doughnuts. Soy protein is in lots of prepared foods, too.
My soy allergic son can tolerate soy lecithin and soybean oils, but some soy allergic people cannot.
The soy allergy is a pain, but you will get used to it-- you have to. Just give it time and read foods carefully. Good luck.

Posted on: Wed, 03/17/2004 - 9:57pm
KATHYANN's picture
Joined: 09/29/2001 - 09:00

thank you so much for your help. I never let James eat outside food so I don't feel overwhelmed by that , but he adores bread and I saw that Sunbeam has it in it. I cannot make bread to save my life, maybe you can advise if a bread machine makes the same type as a store bought.Also could you pls. tell me if you continue to feed them green beans and yellow beans. I get confused about the legume thing . also Pete do most people see a nutrishonist . Is this something we should be doing beside just the allergist for an extra handle on this.. thanks again Kathy ANn

Posted on: Thu, 03/18/2004 - 12:22am
kelly01's picture
Joined: 03/19/2001 - 09:00

Hi Kathyann:
Definately talk to your doctor about what he means by "moderate" to soy and what precautions you should take. I can't remember the numbers, but back when ds had his blood test he had slightly elevated numbers to soy(along w/severe allergy to peanuts). The doctor told us we did not have to avoid soy in products, only to avoid giving him "high-soy" foods (like tofu, soynut butter, etc) on a regular basis. We followed that rule and his soy sensitivity never became an allergy. He is 7 years old now.

Posted on: Thu, 03/18/2004 - 1:07am
PeteFerraro's picture
Joined: 07/10/2001 - 09:00

Quote:Originally posted by KATHYANN:
[b]Pete do most people see a nutrishonist . [/b]
I think just for peanut allergy, no. In our case when my son was initially diagnosed with the peanut allergy a nutritionist was not even discussed.
Because my son has recently added new food allergies, the list of 'safe' foods is getting smaller. In our case, the danger is not just the food allergies. We need to make sure the little guy is getting the proper nourishment that a growing 4 year old needs.
We also need help with our official list of foods to avoid.
Pete Ferraro

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