New - Question about negitive RAST test, what to do next?

Posted on: Wed, 05/21/2008 - 8:04am
kmm2004's picture
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Joined: 05/21/2008 - 14:30

Hi all~

I'm new to the board, but we've known about my 4 year old daughter's PA since she was 20 months. We found out she was allergic after a bite of a PB&J. She got really lethargic, eyes watery and swollen, and was covered in hives. Not knowing the severity of allergies, I drove her to the ER where they gave her Benadryl. We were sent to the pediatrician who referred up to the pediatric allergist. They did a SPT - for which she was positive to peanuts only. They gave us an Epi-Pen Jr. prescription and some education.

Now I was told to have her retested before she started school which she is this fall. So I questioned her pediatrician and was hoping for a referral to the allergist (we moved so her old one was not an option). The pediatrician instantly ordered a RAST test, which we did.

The results came today and all it says it "Allergen panel nuts - Negative" and under clinical recommendation "Not nut allergies." I had called prior to getting the mailed results and the nurse told me it was negative - I was so shocked that I didn't know what to do. I asked the nurse what we do now and she said "Well, I guess you could continue avoiding if that makes you more comfortable."

Because the pediatrician didn't really discuss what we would do in case of a negitive, I'm feeling really lost. I know I should be excited ... but we've lived with this and it's hard to just accept that she is not allergic.

So I need help, what do I do next? What would you be asking the doctor? Would you still want to see an allergist? Should I request a SPT? I am going to call but I want to have a plan first. Please help me figure out what to do next.

Silly as it sounds, I'm a bit disappointed that I pushed for the retest - as I would feel better with her starting school, knowing that her Epi-Pen and Benadryl are at hand. The school won't go peanut-free without the doctor's say - so if I send her she will be in a possible peanut environment. It is seriously stressing me out.

Thank you if you have gotten this far - please any and all advice would be greatly appreciated.

Bea's Mom

Posted on: Wed, 05/21/2008 - 8:50am
peanuts4yucky's picture
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Joined: 12/10/2007 - 08:35

Wow, congratulations! This is wonderful news....it's so rare!! My little neice just outgrew her peanut allergy last month (she is 5) so my sister in law is going through this too....all of a sudden, it's ok to eat peanuts??? She was in shock for a while. If it were me, I would want to have an allergist to talk to about this. They (the allergist)did a blood test on my neice and then next time she came back they made her eat peanut butter in the office and watched for a reaction. My biggest question to the doctor for you would be "can my child develop the allergy again, later in life?" If the blood test and everything are negative and he says that it can't come back.......you take take a nice deep breath....you won't ever have to worry about those darn peanuts again! :-)

Posted on: Wed, 05/21/2008 - 10:33am
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

I would absolutely ask to be referred to an allergist. I would first speak to the pediatrician about it. but I would ask for an appointment with an allergist. Remeber your pediatrician is not a specialist in allergies. According to my allergist... If the Rasttest caem out negitive or # that are really low.. then he would do a SPT if that came out negitive he would then do a " food challenge" in the office or ina setting that can be controlled. I would absolutely not just start eating peanuts..
If she is them still negitive and has not reaction... then Yippeee! your one of the lucky ones.. and I am also pretty sure that if you are negitive and can tolerate the food you should incorporate into your diet on a regualr basis...
Definately defiantely call for an allergist!
good luck!
Therese

Posted on: Thu, 05/22/2008 - 7:28am
LisaZ's picture
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Joined: 05/20/2008 - 09:42

Hello,
I am still waiting for my daughter to be tested for peanut allergies, so I have been doing a lot of looking around on the internet. I was just reading about peanut allergies on the mayoclinic.com website. Under risk factors they mentioned that one in five children may outgrow but also that it may recur. I don't know if that helps but I thought I would let you know.
Lisa

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