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Posted on: Mon, 12/27/2004 - 5:17am
k9ruby's picture
Joined: 03/25/2004 - 09:00

Welcome to the boards!!!
just if your intrested- ive got a nut allergy site too!! (Im 13 and treenut anaphylatic!)
and also its forum

Posted on: Wed, 12/29/2004 - 8:17am
luisa's picture
Joined: 12/23/2004 - 09:00

Hi and welcome BelindaA!
MY DS is 3 1/2 and PA - avoiding all nuts.
DH was a little bit slower in the starting process, he backed me up but I had to go over some details over and over, til he got the picture of how serious this is. (that is probably because we have never had to face any bad reaction). DH always tought of me as a worrier anyway before the allergy (I can worry too much sometimes about things but now I am glad I am this way).
I showed him some posts on this site, so he could see that everybody worries in a situation like that, asked him to do some searches on the Net, go to the doctor with me, etc.. and now he is doing all that on his own. He is getting more and more aware and careful everyday.
My family was worse to explain to, I had to be firm and make my point across. Now they are very supportive.
My tip is educate your husband and family with proofs and facts and ask for total support.
Best wishes,
Luisa [img]/peanut/boards/images/%%GRAEMLIN_URL%%/smile.gif[/img]

Posted on: Wed, 12/29/2004 - 10:24am
DRobbins's picture
Joined: 07/19/2001 - 09:00

Quote:Originally posted by BelindaA:
[b]Also, I've read that some people trust Pillsbury slice and bake cookies. Last night I was making some of the chocalate chip for my kids (I don't eat it b/c I don't trust it) and there was a nut in it. It was either a walnut sliver or a pecan. I'm not sure which. Just thought I'd let you all know.[/b]
Belinda, welcome to the group, and I'm sorry you had to join us!
Have you contacted Pillsbury to let them know about the nut you found in their product? I'd really like to know what they say in response. Did you save that bit of dough or anything by any chance for testing?

Posted on: Wed, 12/29/2004 - 10:37am
mommyofmatt's picture
Joined: 03/12/2004 - 09:00

Hi Belinda,
Sounds like you're having a rough time getting your family to help protect you. Does your dh think you're a worrier? Would talking to your doctor or allergist (assuming they take things seriously) be helpful? Maybe he's a facts kind of guy. Present him with some.
The last statistics I saw were around 30,000 ER visits a year and 150-200 deaths from food allergies. Check out foodallergy.org for some good facts if you haven't already.
I feel for you, if I were in your shoes, I'd be really upset. Maybe he just needs some time to digest what this means, or he doesn't want to believe how serious this can be. Sorry, just guessing here...
When we got my son's diagnosis, my dh's first response was, "ok, we'll avoid peanuts, no big deal". It took him a few days and then his father did some research and talked to him and it sunk in how serious it is.
Obviously, you need your family's support to help you feel safe and to prevent reactions. Good luck with everything. Post any questions you might have.
Meg, mom to:
Matt 2 yrs. PA,MA,EA
Sean 2 yrs. NKA

Posted on: Wed, 12/29/2004 - 10:51am
KarenT's picture
Joined: 10/30/1999 - 09:00

Have you been tested or need any new tests done? Sometimes I think the family needs to hear it from the doctor how serious this allergy can be and what they recommend for your safety.
Teach your 10 year old how to administer the epi-pen, just in case. Pracitce with an old one into a grapefruit.
Buy peabutter or soybutter and have your family try it as an alternative. I have read where some families did a blind taste test and did not know it wasnt peanut butter.
Good luck.

Posted on: Thu, 01/06/2005 - 4:25am
BelindaA's picture
Joined: 12/27/2004 - 09:00

Thanks everyone for the advice. Sorry, I haven't logged on in a few days.
My husband did go to the allergist with me once, but he acted like it still was nothing to worry about. I have printed out some info for him to read, and I tell him a lot about the allergy. He's always been the type to NEVER worry about anything. It's just going to take a LOT of me educating him over and over until he gets it.
I do have a list of instructions by the phone for my 10 year old in case something happens. He knows where my epi pens are, but I haven't shown him how to inject one in case I can't. That's a very good idea!
About the cookie dough, I haven't called Pillsbury. It happened at night, and then I just kept putting it off until I forgot. I will call them. That was the last of the dough, and my kids finished it off. I'll let ya'll know what they say.
I bought some soybutter last week, and I love it! My son took a teeny taste and said ugh!, but he didn't really give it a try. I did tell him the pb will be banned from our home, b/c I have to feel safe in my own home.
Sorry I'm replying to everyone at once. I haven't really looked at all the ways to reply or post.
Thank you all!!!

Posted on: Thu, 01/06/2005 - 5:08am
Suzy Q's picture
Joined: 05/20/2004 - 09:00

Hi and welcome. I am also pretty paranoid about what my son eats. We have known about his PA for about 1.5 years. After we found out, it took us about 4 months to get all of the PB out of our house. He was only 2 so we kept it on a high shelf and my daughter only ate it occassionally. We also had a few may contains in the house which my son did not eat. But after a lot of reading and learning about contact and inhalation reactions, everything was removed from the house. Our allergist also told us we needed to get it out of the house or he was going to have a reaction eventually.
The Peanut Allergy Answer Book is pretty good and short. There are a lot of stories about people having reactions from contaminated sources and also how fast deadly reactions can occur. Perhaps your husband could read this book as well and maybe he will get the idea of how serious it is.
I would just tell him that PB won't be in the house anymore. If he wants to eat it away from the house fine, but he needs to let you know so he won't get you sick by kissing you.
I have a 12 year old daughter and she is great about the allergy. Definitely let your son practice and also review procedures with him regularly. I posted our action plan on the refrigerator which describes the symptoms of a reaction and how to use the EPI.
PB is good, but I really don't miss it at all. I can't bring myself to eat it anymore.

Posted on: Thu, 01/06/2005 - 6:28am
Anonymous's picture
Anonymous (not verified)

Hi Belinda,
I've got adult on-set allergies to peanuts and sesame seeds. I was married and had two kids when this all started.
I can completely understand your fear of being alone with your children and having a severe reaction. At first, we couldn't figure out what I was reacting to. I couldn't get off antihistamines long enough to get testing done, and I was reacting every day. My husband missed a lot of time at work. [img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img] He ended up having to book a few weeks off, just to babysit me so that I could NOT take antihistamine to get some testing done.
He also did a lot of travelling, all across Canada and occasionally in the US. Usually he would only be gone 3 - 5 days.
As I got more accustomed to what I could/could not eat, I got a lot more comfortable with him travelling. Now, I don't worry about it. (The two kids I had are now adults, and I have a six year old, so, I am still often alone with my child.)
I agree that it would be a good idea to teach your 10 year old how to use the epi-pen on you. My six year old has been trained on using the epi-pen - but because he carries his own. He is allergic to insect bites/stings.
I wanted to mention that there is an *adult forum* on the board. If you haven't yet, you might want to take a look at it.
btw, peanuts and sesame seeds are both banned from my home. I do allow *may contains*, although I don't eat them, and I'm careful not to let them actually touch anything I might eat.
Gotta run, be back lately.

Posted on: Thu, 01/06/2005 - 6:47am
BelindaA's picture
Joined: 12/27/2004 - 09:00

Thanks SuzyQ for the book!
Anna Marie, I felt like I was reading some of my own words. I have severe outside allergies, and I was also constantly having some kind of reaction. I would have to wait for my husband to be in town to stop taking my antihistamine in case I had a bad reaction. Before he started traveling, he was coming home from work a lot b/c of some reaction. I guess now that I've had all of my testing done, and learing so much, I can look forward to relaxing. (But I doubt it will be any time soon!)
P.S. Anyone from Mississippi?

Posted on: Fri, 01/07/2005 - 12:10am
Anonymous's picture
Anonymous (not verified)

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Yes, over time you can relax.
btw, when my husband eats anything with peanuts, nuts, or sesame seeds - I sleep on the couch. Now, when he goes away on business, he has an affair with a box of Turtles. (the chocolate kind) Sometimes, when I know he'll be gone for several days - I hide a box of them in his bag.


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