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Posted on: Sun, 09/03/2000 - 6:05am
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hello to everyone, I am also a new member. I too am overwhelmed by all this information! We are new computer owners, and I just found this site yesterday. I have a 3 yo son who is PA. He has been diagnosed since he was about 10 months old. The only reaction he has had is a rash around his mouth when he was exposed to peanut butter for the first time, and we knew something wasn't right. I have already learned so much from the boards about restaurants and snacks. We don't think his allergy is severe because the few times he was exposed he only got a rash. Does anyone else have this reaction, and could it get worse? I look forward to learning and helping when I can!

Posted on: Mon, 09/04/2000 - 11:44pm
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Welcome Amy2.
No one can ever predict what the next allergic reaction will look like. I would not even hazard a guess.

Posted on: Tue, 09/05/2000 - 5:26am
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Hi Amy2 - As I mentioned in my post in PA Inherited, we have kids the same age! I also have a 13 year old son (from my first marriage) and he is allergy free. When I read your reply about your April baby sleeping, but needing the pacifier off and on all night - I could have wrote that! I am soooo tired all the time! Anyway, my PA daughter inherited allergies from both sides. Although I don't have any allergies, my sister and mother have a lot of animal and environmental allergies. My husband has seasonal allergies and a mild allergy to hazelnuts.
I hope, for your son's sake, that his allergy doesn't get any worse, but you should act as if his allergy is serious, just to be on the safe side. Allergies are very unpredictable, and they can suddenly become very serious. It's good that you are aware of cross-contamination issues and restaurants - you are on the right track. My PA daughter's first reaction was hives around the mouth and a bit of coughing, but she had a cold at the time, so we didn't really put 2 and 2 together. Her second exposure was hives, vomiting, choking, drooling, agitation - and a rushed trip to the ER.
About your son's allergy, assume the worst and hope for the best - and definitely get him retested if you suspect his allergy is mild. They say that a SMALL percentage of children outgrow PA, but there has to be total avoidance of peanut products - each exposure seems to make the allergy worse. Best of luck with this.

Posted on: Tue, 09/05/2000 - 7:20am
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To Cayley's Mom, thank you so much for your advice! I had a feeling that each exposure could be worse than the time before. I have tried my best to keep him away from any peanut containing products, but, you know, it is hard sometimes, some companies aren't very responsible letting us know. About my daughter, this pacifier thing is never ending. I think she is teething too, which could also be part of the problem, but she just can't seem to keep that sucker in there! My son never had any of these problems, but, he was like the perfect baby. He gave us hardly any sleepless nights. They say the second is much different! Boy are they right! She is a doll of course. I will take these rough nights, because she is a blessing! I keep telling myself, "it will pass!" Well, better go! Hope to hear from you soon!

Posted on: Sat, 12/28/2002 - 3:40am
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Welcome, you're lucky to have found this site quickly, I just found it a month ago also. We have been dealing with our sons PA for over 7 years without any kind of support system, and it is such a relief to find one. Good luck to you as you take on the role of educator and advocate, be loud and strong.
------------------
Cynde Punch

Posted on: Sun, 12/29/2002 - 10:34am
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Sounds like we are in the same boat - my 2 year old son was diagnosed 2 months ago and I just happened upon this site -- I have done a lot of reading - and have learned more here than from my doctor. I am glad there is a place to hash out the concerns and I am sure you are too. Good Luck.

Posted on: Tue, 09/24/2002 - 4:46am
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Hi! You are definately not the only one who is scared and confused. Isn't this website wonderful? We are waiting for an appointment with an allergist as well, I have so many questions for him/her. After both of our newly diagnosed kids get their appointments, we can compare the info we receive and see how much is the same. Maybe we can fill in some gaps for each other. Since we are both in Canada, maybe some of the info will be different than some of the US Moms and Dads.
Nice to see someone else from Canada (still far away though).
Take care...
Kristen

Posted on: Tue, 09/24/2002 - 7:59am
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Thanks for your reply!
It really is comforting to know I'm not the only one. How did you find out your son or daughter was allergic? How old is you child? Ever since my son's reaction (5 days ago), I've had a headache. I think it just the stress of trying to learn everything I can to keep him safe. Once we have all the systems in place (like rules for his caregiver and grandparents, a procedure for the nursery school to follow, all the proper groceries in the house, etc.), I think I'll start to feel better. But, I must admit, I hate the fact tht my son is so vulnerable to something so common and I know I'm complaining but I'm going to miss going out for ice cream and muffins (our family has a huge sweet tooth and we used to love going out for treats!).
So, when do you see the allergist? We go this Thursday afternoon. The receptionist said the doctor will do the prick test on his back and they'll be able to tell us the results in 10 minutes. I guess my major question is what is he not allowed to eat. Definately peanuts are out but what about gua1r gum, mangos? I hope he has a list or something.
Thanks again for your reply and I hope you get lots of answers from the allergist.
CindyG

Posted on: Tue, 09/24/2002 - 8:40am
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CindyG,
Hi Cindy and welcome.
I edited my post because I had a blonde moment. I thought when I looked at your profile that Thornhill was Thorndale(which is close to London where I live)Duh.
Anyway, Just another Canadian looking out for ya.
P.S...Hi Kristen, forgot to say hi to you as well, being that your new here [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by smack (edited September 25, 2002).]

Posted on: Fri, 09/27/2002 - 2:48am
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Hi everyone, thank you so much for the welcome. My appointment with my Doctor is this Monday, and then who knows when I'll get to see an allergist. Hopefully not too long, but I'm going to request an appt. with a pediatric allergist, so that may take longer. Let me know what your Doctor says OK? It might give me some more info for when I go... Also, I've heard that 18 months is too young to test for anything, should I insist on it being done despite her age?
Kristen

Posted on: Fri, 09/27/2002 - 7:02am
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Hi again,
Just back from the pediatric alergist. I was a little disappointed. First, I naively thought she would be able to tell me everything my son is allergic to, but, I learned that the skin prick test isn't too reliable unless it is accompanied with some history (like a previous reaction). So, she did the test for peanuts and the welt on my son't back was almost as big as a quarter. So, she confirmed he is very allergic to peanuts. The second reason the appointment was anti-climatic was that I hoped she'd have all the answers but it seemed my husband knew perhaps more than the doctor about how to live with the peanut allergy due to all the internet research he's been doing. In hindsight, it makes sense that she is not necessarily an expert on what to do about the allergy - she knows about how to diagnose it. For example, I was hoping she'd have a comprehensive list of all the things to avoid on food labels. She did give us a list but it was missing some things I've seen on other lists. I asked about guar gum and mango pits but she didn't know. Anyway, the good news is that there are web sites which seem to have alot more information. (Have you heard anything about these two items, as an aside?)
By the way, I'd love a email - I think my email address is with my profile and we live in Thornhill (just north or Toronto) - not too close to London or Banff, unfortunately!
I guess the morale of the whole allergist story is that we have to investigate and do our own research and help each other. I was glad we had learned as much as we did prior to the appointment. And, I recommend having a written list of questions.
Thanks for your notes!
CindyG

Posted on: Wed, 08/14/2002 - 8:11am
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Yes almonds are different from peanuts. you will hear about tree nuts and peanuts (which are actually from the lentil family). Tree nuts are nuts like almonds, walnuts, hazelnuts (all the nuts from trees) whereas peanuts come from the ground. My daughter is allergic to peanuts but not tree nuts - however to avoid confusion the allergist just told me to avoid all nuts regardless because there is a higher chance for her to develop tree nut allergies as well if I expose her often enough. Hope this helps.

Posted on: Thu, 08/15/2002 - 12:54am
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Thanks for clearing that up! I guess my girls aren't allergic to tree nuts, but to be safe, I will avoid them. But I'm still reeling from the fact that I gave them Honey NUT Cheerios when they are allergic to nuts! I was just thinking Cheerios, you know?
Also, just to clarify, my girls haven't had an anaphylactic episode. I gave them pb on bread at 14 months, just a bit smeared on a slice which I quartered. A few minutes later, Lillian was broken out on her face. We are not sure if any pb was actually digested, but had her tested to be sure.
Beth
------------------
Beth
Audrey and Lilian 11/25/00

Posted on: Thu, 08/15/2002 - 2:31am
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Hi Beth,
Welcome to the board. My son is 4 1/2, and he was diagnosed his peanut allergy at 22 months. Until that point, an eating disorder kept him from eating just about anything but dry Cheerios and milk. His favorites at the time were Honey Nut Cheerios. We had given him the other "flavors" too, but tried to stay away, since they are laden with sugar, and if it's the only thing your kid eats, then we preferred it wasn't sugar-filled.
Anyway, when he had his initial reaction, we were unsure as to whether it was peanuts or almonds that he reacted to. (He had a lick of vanilla ice cream that had peanuts and almonds mixed into it.) The ER doc said it was more likely peanuts, but we should keep him off almonds until we knew for sure.
I was flabbergasted, because the kid got almonds all day, every day in those Honey Nut Cheerios.
Long story short, he has nothing now but the PLAIN Cheerios. I won't even let him have the no-name plain Cheerios. (He can tell the difference, anyway!) However, his babysitter "accidentally" fed him Honey Nut Cheerios one day a few months ago, with no reaction.
I'm not sure if that answers any questions, but I thought you might like to hear of a similar scenario to yours ...
Good luck with everything!!

Posted on: Mon, 07/08/2002 - 11:08am
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Hello NoPNuts! Welcome.
I am fairly new also. You're best bet is to put some time aside and read through as many previous posts as you can. I learned a lot that way. If you haven't bought the book "The Peanut Allergy Answer Book" yet by Michael Young, I recommend it.
And yes, my allergist also had said the last time I was in that a shot of some sort was due out around now for PA. I will ask her when we go in a few weeks. Anyone have more info on this?
Grace

Posted on: Mon, 07/08/2002 - 11:20am
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Thanks for the reply. I just read recent postings and the information is very helpful. There appears to be some very informed and considerate people on this site. Thanks for the input everyone.

Posted on: Wed, 07/10/2002 - 5:51am
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HI! I agree with the other poster-read the boards, but I can also tell you some things.In my intro I mentioned that I was 21 before my pa affected me too much, so I don't know how much certain places will affect me when I go.
I can tell you to read, read, and read some more on EVERY label of food he eats. You don' say how allergic (airborne, contact, or just ingestion allergic he is.)
I know some foods he should avoid: M&M's plain (they DO have peanuts in them!!)Natural ovens bread (just found that out-that they use the same machines for all their products. MIlk duds, the soft chips ahoy cookies (made with peanut flour). There's more, but I am drawing a blank right now.
I've been to a couple ball games and didn't have problems.
I can eat Dairy Queen-I will only get a cone or dilly bar-something like that.
Hope that helps a bit.

Posted on: Wed, 04/17/2002 - 12:04pm
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Posted on: Thu, 04/11/2002 - 3:54pm
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Parents Guide... by M. Barber is great, Peanut Allergy Answer Book by Dr. Young is also good. This is the best site for peanut allergies. Here are some other useful links:
[url="http://www.aaaai.org/default.stm"]http://www.aaaai.org/default.stm[/url]
[url="http://www.theallergyreport.org/reportindex.html"]http://www.theallergyreport.org/reportindex.html[/url]
Foodallergy.org
In the links section of this board there are several useful links including one which is a summary of all the recent research conducted on peanut allergies- very useful if you want to know the *science* of the allergy.
Hope these items get you off to a good start.
Be aware that you may find in time that your child has more than one allergy, so once you learn the symptoms- keep your eyes peeled. Some children are *just* allergic to peanuts, but many of us deal with several different allergies.
[url="http://groups.yahoo.com/group/POFAK"]http://groups.yahoo.com/group/POFAK[/url] is a site for parents of children with multiple food allergies.

Posted on: Mon, 03/25/2002 - 6:46am
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A very warm welcome, Joan Marie! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
It is so great to hear from veteran families like yours! Your posts are particularly valuable for those who are so new to all of this that they are unsure of what a "reasonable" and "sustainable" lifestyle means. Even those of us with some experience often find ourselves wondering what changes the years ahead will bring, as our children want more freedoms.
I was also so relieved and thrilled to find a place where there were so many people on the same page (more or less- of course, it wouldn't be interesting or informative if we agreed *all* the time [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] )... definitely helps with those days when you have the willies!
I will look forward to seeing more posts from you soon! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Shannon

Posted on: Mon, 03/18/2002 - 3:08am
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Hi Susiesmom:
You shouldn't feel guilty. Nobody knows the reason why PA is happening and increasing. In fact I've been hearing about adults who are suddenly developing the allergy. The breast feeding theory is a big fat guess---that's all.
Also, as for feeling you introducted pb at too young an age---well, your daughter was bound to get traces of it anyway. You know how much it takes to avoid it. How can anyone possibly avoid it without adopting the lifestyle of the peanut allergic outright?
Anyway, welcome and I hope you find strength and information from these boards.

Posted on: Mon, 03/18/2002 - 3:37am
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Welcome to the boards! I understand the guilt you feel, because I am experiencing the same!! Mother's guilt is horrible, but I am finally working through and feel that my son would have this allergy no matter. Good luck!

Posted on: Mon, 03/18/2002 - 4:18am
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Thanks to River and Cooper's Mom.
River, your point about avoidance is a really good one. At least I know about the PA. If I didn't I practically positive that my dd would have been exposed.
We spent a month at my parents cottage up north last summer. She spent a great deal of time playing and eating with her 8 and 6 year-old cousins. And they were always trying to pick her up, grab her carry her around etc. Also, the summer cottage tradition of feeding peanuts to the chipmunks. Bags and bags of peanuts would normally pass throught that cottage and be spread around the deck and grounds. And though I may not have let her eat them, I probably wouldn't have thought to stop Grandpa or the cousins from helping her feed them to the chipmunks. And everyone else would be cracking and eating them as well. Not to mention ice cream from the town dairy - my favourite treat - so I know I wouldv'e been giving it to her on every trip in.
And as she is still breast-feeding (we had real trouble getting started but now at 2 1/2 I'm wondereing if she's ever going to stop!) I now know that I cannot consume anymore peanut products myself.
So, at least I know and I can do my best to protect her.

Posted on: Fri, 03/15/2002 - 10:25am
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It's great to hear from you, Gloria!
That's the bizarre thing about PA... and the most exasperating, it seems. Some people are evidently capable of actually consuming PN with no apparent ill effects on one day, and having full-blown anaphylaxis the next from a mere contact exposure. It makes it excruciatingly difficult to a) accept the allergy and its seriousness, and b) to track down the source of reactions.
Welcome!
It is great to finally hear from you! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 03/11/2002 - 4:55am
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Hi Annemarie, I'm the welcoming committee today [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] anyway, look forward to hearing about you and your allergy. You say it was moderate growing up and has developed into anaphylaxis now?
Can you tell us about that and were you tested frequently growing up?
Thanks in advance and look forward to hearing from you!
[This message has been edited by smack (edited March 11, 2002).]

Posted on: Tue, 03/12/2002 - 1:55am
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When I was a kid and ate nuts I would just get sick: I'd throw up (lots!) and have basically a bad cold for a couple of days. When I was 16 I had my first anaphylactic reaction. I got hives, my face became swollen, my breathing became congested. I guess in the grand scheme of things my reactions are not bad: it doesn't take a lot to set me off, but I have a long time before the reaction becomes critical - so plenty of time to get to the hospital.
As for allergy testing, the first time I was tested was only a few years ago for chick peas. My doctor diagnosed the allergy and since it wasn't very bad nobody felt the need for an allergist. Peanut allergies weren't as prevalent then.

Posted on: Tue, 03/12/2002 - 8:48am
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Welcome Annemarie. I think that the one thing we have all learned about PA in recent years is that reactions are unpredictable. You should never assume that the next reaction will be the same as the one before. It worries me a little that you seem to underestimate your reactions and assume that you will always have time to get to a hospital. We've all come to realize that the key is to ALWAYS BE PREPARED FOR THE WORST, because you really don't know what's around the corner. That includes knowing what you're eating, carrying an epipen, training people around you to use it, wearing a medical bracelet, being close to a hospital, and not being afraid, ashamed or embarrassed to take immediate action when a reaction does happen, (I don't think I left anything out.)
Check out the board below "Adults Living with Peanut Allergy". There are a number of young adults there, like youself, who know something of the challenges you face.

Posted on: Fri, 03/15/2002 - 2:07pm
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Hi River,
I'm sorry I apparently frightened you! I've been dealing with this allergy for going on 23 years now, I clearly respect it. What I meant when I said I had plenty of time to get to the hospital was that AFTER the epipen and the antihistamine I can get to the hospital without running any red lights. I know a few people for whom this isn't the case. For all you moms out there, don't worry, I have a medic alert bracelet, carry an epipen and benedryl (and my bracelet says all this!). I've used my epipen, and am always aware of what I'm eating. However, my allergy does not run my life, so I guess I sometimes appear to be blase about it.

Posted on: Sun, 03/17/2002 - 10:59pm
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Thanks Annemarie for the reassurance. I suppose it just the generational gap between being 23 and fancy free, and being 40 with kids and a mortgage. But it's good to hear you are well prepared. (For all you mature women and others on your way, I do still believe that life begins at 40, YEEHA.)

Posted on: Sun, 03/10/2002 - 10:45pm
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KF,
Hi and welcome!
Have you been tested with the new Cap Rast test? Have you monitored your allergy using tests at all?
It sounds like you have multiple allergies, are you smell, touch, sensitive as well?
Do you have a lot of reactions and how do you deal with them? Do you see an allergist?
I know it sounds like 20 questions but this helps everyone.
Thanks in advance to all the questions.

Posted on: Mon, 03/11/2002 - 7:30am
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Wow! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I will definitely look forward to seeing your input on the schools forum! (Its helpful to get both PA and non-PA classroom perspectives- my mom was in elementary ed. for 33 years!)
Be sure to check out the Airlines forum- lots of great information. Ajas_folks can probably provide you with some excellent information as well, if you don't see what you are looking for there... she has an inside track [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] on the industry, shall we say. I have personally had the worst luck flying with United and the best experiences with Northwest, but have not flown in over a year.... (big changes since then!)
A Warm Welcome!!

Posted on: Sat, 07/26/2003 - 1:21am
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mae
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Hi Shereen- Welcome! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
If you check in the "links" section there was a thread with printable posters/signs for classrooms that you can print out - this is the site
[url="http://www.angelfire.com/pa5/peanutallergy"]http://www.angelfire.com/pa5/peanutallergy[/url]
Hope you find what you need.

Posted on: Sat, 07/26/2003 - 11:00am
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Hi Shereen and welcome
There are a lot of good articles and information at the Calgary allergy website [url="http://www.calgaryallergy.ca"]www.calgaryallergy.ca[/url]
They have a good 2 pager called Peanut Allergy What you Need to Know which I like to give out.
good luck
deb

Posted on: Sun, 02/02/2003 - 11:15pm
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Welcome, Paula. I'm glad you've already gotten a lot of useful information here. We've had an epi-pen jr. for my daughter since she was 14 months old, and had a severe allergic reaction to milk. She didn't weigh quite 20 pounds at the time. I look forward to seeing you around on the boards... [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

Posted on: Mon, 02/03/2003 - 12:22am
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Welcome Paula
Lots of good info here.
Does she have a medic-alet braclet?
Look forward to seeing you around.
Love this site
synthia

Posted on: Mon, 02/03/2003 - 12:31am
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Thank you for the welcome. No, she does not have a medic alert bracelet yet. I am waiting until after her appointment with the allergist to order one.

Posted on: Thu, 01/23/2003 - 10:02am
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Hi ants mom! Welcome!! Glad you joined us!
------------------
Be safe,
~Dawn~

Posted on: Fri, 01/24/2003 - 12:10am
river's picture
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Welcome ants mom! The more people we have to share with the more we learn.

Posted on: Fri, 01/24/2003 - 12:37am
synthia's picture
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Welcome aboard
Love this site
synthia

Posted on: Fri, 01/24/2003 - 6:10am
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Welcome, ants mom! We're here for you and all new members...lots of support and great info found here! Keep posting, new members!!
------------------
Stay Safe,
Fran

Posted on: Mon, 12/27/2004 - 4:28am
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Yikes--base support starts with your family. All the time, it's my wife and myself against the world to protect our PA son, although at times our two daughters "suffer" from foods we no longer let them eat at home, that's the way it goes when you think of the consequences. My wife and I will not eat what our son can't eat, unless we escape out to dinner once every 3-4 months!!! I'm not one to dole out advice....but does your husband want to raise your kids alone if something should happen to you? Best of luck.
Chris
Danielle 12 NKA
Jessica 9 NKA
Christopher 3 PA Level VI

Posted on: Mon, 12/27/2004 - 5:17am
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Welcome to the boards!!!
just if your intrested- ive got a nut allergy site too!! (Im 13 and treenut anaphylatic!)
[url="http://www.goingnuts.cjb.net"]www.goingnuts.cjb.net[/url]
and also its forum
[url="http://s8.invisionfree.com/The_Nut_free_zone"]http://s8.invisionfree.com/The_Nut_free_zone[/url]

Posted on: Wed, 12/29/2004 - 8:17am
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Hi and welcome BelindaA!
MY DS is 3 1/2 and PA - avoiding all nuts.
DH was a little bit slower in the starting process, he backed me up but I had to go over some details over and over, til he got the picture of how serious this is. (that is probably because we have never had to face any bad reaction). DH always tought of me as a worrier anyway before the allergy (I can worry too much sometimes about things but now I am glad I am this way).
I showed him some posts on this site, so he could see that everybody worries in a situation like that, asked him to do some searches on the Net, go to the doctor with me, etc.. and now he is doing all that on his own. He is getting more and more aware and careful everyday.
My family was worse to explain to, I had to be firm and make my point across. Now they are very supportive.
My tip is educate your husband and family with proofs and facts and ask for total support.
Best wishes,
------------------
Luisa [img]/peanut/boards/images/%%GRAEMLIN_URL%%/smile.gif[/img]

Posted on: Wed, 12/29/2004 - 10:24am
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Quote:Originally posted by BelindaA:
[b]Also, I've read that some people trust Pillsbury slice and bake cookies. Last night I was making some of the chocalate chip for my kids (I don't eat it b/c I don't trust it) and there was a nut in it. It was either a walnut sliver or a pecan. I'm not sure which. Just thought I'd let you all know.[/b]
Belinda, welcome to the group, and I'm sorry you had to join us!
Have you contacted Pillsbury to let them know about the nut you found in their product? I'd really like to know what they say in response. Did you save that bit of dough or anything by any chance for testing?
--Debbie

Posted on: Wed, 12/29/2004 - 10:37am
mommyofmatt's picture
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Joined: 03/12/2004 - 09:00

Hi Belinda,
Sounds like you're having a rough time getting your family to help protect you. Does your dh think you're a worrier? Would talking to your doctor or allergist (assuming they take things seriously) be helpful? Maybe he's a facts kind of guy. Present him with some.
The last statistics I saw were around 30,000 ER visits a year and 150-200 deaths from food allergies. Check out foodallergy.org for some good facts if you haven't already.
I feel for you, if I were in your shoes, I'd be really upset. Maybe he just needs some time to digest what this means, or he doesn't want to believe how serious this can be. Sorry, just guessing here...
When we got my son's diagnosis, my dh's first response was, "ok, we'll avoid peanuts, no big deal". It took him a few days and then his father did some research and talked to him and it sunk in how serious it is.
Obviously, you need your family's support to help you feel safe and to prevent reactions. Good luck with everything. Post any questions you might have.
------------------
***[b] ALLERGY ELIMINATOR*** [/b]
Meg, mom to:
Matt 2 yrs. PA,MA,EA
Sean 2 yrs. NKA

Posted on: Wed, 12/29/2004 - 10:51am
KarenT's picture
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Joined: 10/30/1999 - 09:00

Have you been tested or need any new tests done? Sometimes I think the family needs to hear it from the doctor how serious this allergy can be and what they recommend for your safety.
Teach your 10 year old how to administer the epi-pen, just in case. Pracitce with an old one into a grapefruit.
Buy peabutter or soybutter and have your family try it as an alternative. I have read where some families did a blind taste test and did not know it wasnt peanut butter.
Good luck.
------------------
Karalot

Posted on: Thu, 01/06/2005 - 4:25am
BelindaA's picture
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Joined: 12/27/2004 - 09:00

Thanks everyone for the advice. Sorry, I haven't logged on in a few days.
My husband did go to the allergist with me once, but he acted like it still was nothing to worry about. I have printed out some info for him to read, and I tell him a lot about the allergy. He's always been the type to NEVER worry about anything. It's just going to take a LOT of me educating him over and over until he gets it.
I do have a list of instructions by the phone for my 10 year old in case something happens. He knows where my epi pens are, but I haven't shown him how to inject one in case I can't. That's a very good idea!
About the cookie dough, I haven't called Pillsbury. It happened at night, and then I just kept putting it off until I forgot. I will call them. That was the last of the dough, and my kids finished it off. I'll let ya'll know what they say.
I bought some soybutter last week, and I love it! My son took a teeny taste and said ugh!, but he didn't really give it a try. I did tell him the pb will be banned from our home, b/c I have to feel safe in my own home.
Sorry I'm replying to everyone at once. I haven't really looked at all the ways to reply or post.
Thank you all!!!

Posted on: Thu, 01/06/2005 - 5:08am
Suzy Q's picture
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Joined: 05/20/2004 - 09:00

Hi and welcome. I am also pretty paranoid about what my son eats. We have known about his PA for about 1.5 years. After we found out, it took us about 4 months to get all of the PB out of our house. He was only 2 so we kept it on a high shelf and my daughter only ate it occassionally. We also had a few may contains in the house which my son did not eat. But after a lot of reading and learning about contact and inhalation reactions, everything was removed from the house. Our allergist also told us we needed to get it out of the house or he was going to have a reaction eventually.
The Peanut Allergy Answer Book is pretty good and short. There are a lot of stories about people having reactions from contaminated sources and also how fast deadly reactions can occur. Perhaps your husband could read this book as well and maybe he will get the idea of how serious it is.
I would just tell him that PB won't be in the house anymore. If he wants to eat it away from the house fine, but he needs to let you know so he won't get you sick by kissing you.
I have a 12 year old daughter and she is great about the allergy. Definitely let your son practice and also review procedures with him regularly. I posted our action plan on the refrigerator which describes the symptoms of a reaction and how to use the EPI.
PB is good, but I really don't miss it at all. I can't bring myself to eat it anymore.

Posted on: Thu, 01/06/2005 - 6:28am
Anonymous's picture
Anonymous (not verified)

Hi Belinda,
I've got adult on-set allergies to peanuts and sesame seeds. I was married and had two kids when this all started.
I can completely understand your fear of being alone with your children and having a severe reaction. At first, we couldn't figure out what I was reacting to. I couldn't get off antihistamines long enough to get testing done, and I was reacting every day. My husband missed a lot of time at work. [img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img] He ended up having to book a few weeks off, just to babysit me so that I could NOT take antihistamine to get some testing done.
He also did a lot of travelling, all across Canada and occasionally in the US. Usually he would only be gone 3 - 5 days.
As I got more accustomed to what I could/could not eat, I got a lot more comfortable with him travelling. Now, I don't worry about it. (The two kids I had are now adults, and I have a six year old, so, I am still often alone with my child.)
I agree that it would be a good idea to teach your 10 year old how to use the epi-pen on you. My six year old has been trained on using the epi-pen - but because he carries his own. He is allergic to insect bites/stings.
I wanted to mention that there is an *adult forum* on the board. If you haven't yet, you might want to take a look at it.
btw, peanuts and sesame seeds are both banned from my home. I do allow *may contains*, although I don't eat them, and I'm careful not to let them actually touch anything I might eat.
Gotta run, be back lately.

Posted on: Thu, 01/06/2005 - 6:47am
BelindaA's picture
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Joined: 12/27/2004 - 09:00

Thanks SuzyQ for the book!
Anna Marie, I felt like I was reading some of my own words. I have severe outside allergies, and I was also constantly having some kind of reaction. I would have to wait for my husband to be in town to stop taking my antihistamine in case I had a bad reaction. Before he started traveling, he was coming home from work a lot b/c of some reaction. I guess now that I've had all of my testing done, and learing so much, I can look forward to relaxing. (But I doubt it will be any time soon!)
Thanks!
P.S. Anyone from Mississippi?

Posted on: Fri, 01/07/2005 - 12:10am
Anonymous's picture
Anonymous (not verified)

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Yes, over time you can relax.
btw, when my husband eats anything with peanuts, nuts, or sesame seeds - I sleep on the couch. Now, when he goes away on business, he has an affair with a box of Turtles. (the chocolate kind) Sometimes, when I know he'll be gone for several days - I hide a box of them in his bag.

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