New here...28 month old just diagnosed with PA

Posted on: Thu, 09/06/2007 - 6:56am
Mom2K's picture
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Joined: 09/06/2007 - 09:00

DD (2 yrs 4 mos) was just diagnosed with peanut and cashew allergies this morning. I

Posted on: Thu, 09/06/2007 - 8:45am
Sarahb's picture
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Joined: 01/22/2007 - 09:00

1) Is it strange that we aren

Posted on: Thu, 09/06/2007 - 11:04am
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Joined: 01/16/2006 - 09:00

Welcome,
First of all, {{HUGS}} to you and your DD. I'm sure you're probably still in shock. It IS quite a lifestyle change, but one that can be managed with success...as evidenced by the many allergic young adults on this board that have grown up with the allergy.
Sarah answered most of your questions, so I won't go over all of those except to say don't put too much stock in the RAST value. [b]Positive is positive.[/b] Meaning if she is positive, don't take a chance with what-ifs, just avoid. And many nuts are processed on the shared lines, so it really doesn't matter WHICH ones she tests positive to...stay away from all tree nuts if she is allergic to a tree nut; there is just too much cross-contamination. Later, when she is older, you could ask that she be tested for specific nuts, such as pecans (that you could buy in the shell) if you want her to eat some nuts. If she were to test negative, then the Allergist would likely do a challenge in their office where she would eat the pecan in a controlled setting. Stay away from peanuts & "may contain peanuts" if she is allergic to peanuts.
BTW, there are many kids (& adults) that react to kisses or peanut protein on clothing from family eating these products. Save Thai as a treat when she spends the night with Grandma; or better yet, when you and hubby stay in a hotel for your anniversary or special event.
There is a recent post on the reactions thread about a little boy that has been around peanuts several times without reacting, such as at the circus. His mom wrote that he even picked on up, and did not react. Then she tried to get gum out of his hair with PB. She didn't slather him in it, just very carefully used it to remove the gum. He soon reacted and had to go to the ER.
Just take a deep breath, have a good cry and be very thankful for your beautiful, healthy child.
Take care,
Daisy
PS. And visit Off Topic when you need a break from the serious reading. This really is a great group of folks here. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 09/06/2007 - 10:34pm
Mom2K's picture
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Thank you SarahB and Daisy for your post.
I guess I am very uneducated and naive about peanut allergy. In my mind I thought some people are "deathly allergic" and others might be "mildly allergic". If positive is positive then I guess that's what it means.
Not to belabor the point, but is there somewhere with actual "medical" support that I can read/print that talks about this?
When I first mentioned the allergy to some people, they were also believed that maybe DD isn't "that allergic". I want to be able to print something out from a medical source to show them. I've done some looking around on websites but haven't found anything.
Are there some books I should get? I really need to better educate myself and my DH on this subject.
Also I was planning on avoiding peanuts and all tree nuts for DD, as recommended by the ped. I guess it would make me "feel a little better" if I knew that if somehow she ingested a peanut item etc. that she would be OK. I fully realize that I need to SAFEGUARD her but the whole thing is SO scary to me right now.
Since I just found out about this yesterday, I'm afraid to take her anywhere!
Ok, I need to take a deep breath.
thanks again, I'm sure you will see me around these boards.
I'm off to try and jot down a game plan on what I'm going to do.

Posted on: Fri, 09/07/2007 - 1:21am
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Joined: 08/17/2007 - 09:00

Welcome from us too!
I went through the same questions and confusion that you are feeling right now. Its a shock in the beginning but I can promise you that it gets better.
As far as medical statements on peanut allergy, I asked for info from our allergist. She gave us many hand outs, etc about the allergy. I also had her write a letter detailing peanut allergies, and the precautions that need to be taken, (such as handwashing, avoidance, etc) and also explaining anaphylaxis and allergic reactions.
People seem to take a dr's letter more seriously than my comments.
I also read the book, The peanut allergy answer book and found other sites like allergicchild.com which have info on them about allergies and refer to studies.(not trying to endorse these things, just found them helpful for me).
When we first found out, I left all the kids home, and went to the grocery store. I went through just about every item there checking the ingredients, and making a list of what we could have. That helped me because then it was a physical list I could refer to and help me to realize that there are still safe foods we can enjoy.
When i first read your post, all the memories and feelings came back from when we first found out about our PA daughter. Even the desire to sit down and cry!
We understand your feelings right now.
Good luck. It will get easier.
Linda

Posted on: Fri, 09/07/2007 - 3:59am
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Quote:Originally posted by Mom2K:
[b]...Not to belabor the point, but is there somewhere with actual "medical" support that I can read/print that talks about this?...Are there some books I should get? I really need to better educate myself and my DH on this subject..[/b]
Yes, FAAN (The Food Allergy & Anaphylaxis Network [url="http://www.foodallergy.org)"]www.foodallergy.org)[/url] is an excellent place for beginners. It has basic info, videos for school/family and alerts & recalls.
Next, the AAAAI (The American Academy of Allergy, Asthma & Immunology [url="http://www.aaaai.org)"]www.aaaai.org)[/url] is the specialty board of certified Allergists. A Doc can say they treat allergies, but to be an Allergist, they have to belong to this board and have completed a medical specialty in Immunology. They have a section of their site dedicated to patients.
But you have already found your best resource! [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] We are living it. Many of us are medical professionals - professors, nurses, physicians, support staff...but when we are on here we are patients and parents just like you.
Even the folks that started this website are parents. If you will go to the homepage of this site they have a Member section & a shopping section. You may join to support the site & get a choice of a book, or you can just purchase the book. [i]I believe the proceeds go to run this site.[/i]
The Peanut Allergy Answer Book is a great, easy to read resource for anyone dealing with a "nut" allergy.
The Complete Peanut Allergy Handbook is another great book. It is written by a well-known allergy researcher.
Take care,
Daisy

Posted on: Sat, 09/08/2007 - 9:04am
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Joined: 09/17/2004 - 09:00

The Peanut Allergy Answer Book (both 1st and 2nd editions) will provide great information and should make your daily decisions easier.
Sadly, you will find many parents/people who also feel that there is such a thing as a "mild" peanut allergy.....

Posted on: Sun, 09/09/2007 - 8:13am
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Joined: 09/08/2007 - 09:00

Hi
I am new to this too. It is scary isn't it?
I am trying to find out as much as possible, but there seems to be too much.

Posted on: Mon, 09/10/2007 - 10:26pm
Mom2K's picture
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Joined: 09/06/2007 - 09:00

Thank you all again.
I picked up a copy of The Peanut Allergy Answer Book, the revised version on Friday. I've finished reading it and it was very informative. Thanks for the suggestion.
I'm going to ask my DH and other family members to read it as well.
Helensmom, {hugs} to you too, you are right, WAY too much info to digest.

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