New here, lots of questions

Posted on: Fri, 06/16/2000 - 12:36pm
brimor's picture
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Joined: 06/09/2000 - 09:00

We found out a couple of weeks ago that our 14 month old is allergic to peanuts. We've known for several months that she's allergic to fish.

Is there any tricky wording for peanuts on the list of ingred? I know for milk it can be really hard to pick it out. I just want to know for sure that I'm not giving her something with peanuts in it. How many of you that had your children tested at this age for allergies found them to be accurate? Her ped thinks she's too young for skin testing and the RAST isn't accurate. Does anyone deal with eczema too? She has a lot of red bumps arounf her neck area, and a really bad spot on the back of her neck. She itches to hard it bleeds. Does that sound like eczema?

We are new to PA and are trying to learn all we can. I'd really appreciate any help or advice! I'm sure I'll be here a lot!! Thanks!!

Liz

Posted on: Fri, 06/16/2000 - 1:37pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

pWelcome Liz! This website you will find overwhelming at times, but ASTONISHING with information. We truly value the experiences of others, both positive and challenging!/p
pI am 22, and have had PA since I was born. 4 of the 6 kids in my family have it. Also, several of us had eczima (oops! spelling!)....which also runs in the family. Both tree nuts and ground nuts, and often related "families" some fruits and vegetables can trigger reactions for those of us who have it more severe./p
pI would advise any testing, and also all precautions. Ask for an Epi pen for emergency situations, and for a peace of mind. /p
pEducating yourselves, your children and others will make your child feel and live a normal life! Many of us have been through it....not always easy, not always fair,.....but I'm happy and healthy, and thank god this is all that I have to think of at each meal! =) Take care, and feel free to email with any questions. Everyone is very open for support and thoughts!br /
Jennifer/p

Posted on: Fri, 06/16/2000 - 5:18pm
Anonymous's picture
Anonymous (not verified)

pJennifer, I really like reading your postings, I read one earlier in the day too, because you share what you've gone through since you were born and really help me believe that my son will live a normal life.br /
Brimor, again, you've found the right place and I'm sure you will find answers to all of your questions somewhere here. Yes, it can be a bit overwhelming and also addictive as you thirst for knowledge, but an absolutely wonderful site. If you have a question that you can't find an answer for, you simply post a topic for it and go from there. You'll really be okay. A lot of us haven't been dealing with PA for very long, our children seem to be fairly young, or they are in the postings I read, but look at Jennifer, 22, posting. It's a really positive place to be.br /
Question and you'll find the answer from someone. Welcome again!/p
p------------------/p

Posted on: Fri, 06/16/2000 - 10:28pm
mkruby's picture
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Joined: 05/01/2000 - 09:00

pBrimor..Welcome aboard!/p
pMy son went into anaplylaxis at 9 months, second son tested at 6 months...and found to be anaphylactic to peanuts and shellfish. Both boys were tested an early ages and both boys are still allergic to the items they were tested for at such a young age. Any doctor who tells me they don't believe in testing early...I leave and find one who does. You are doing the right thing...finding information and guarding yourself and child with knowledge. Knowledge is power, as well as empowerment. Best wishes. Kim boys are now 8 and 6./p

Posted on: Sat, 06/17/2000 - 3:38am
andy's picture
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Joined: 04/26/2001 - 09:00

pHi Liz. Welcome. I am glad you found us. My best suggestion is to spend lots of time reading as much at this site as you can and you will be amazed what you learn. It may seem overwhelming at first. I am 47 and have always lead a completely normal life with a few minor inconveniences. There are many of us here to help in any way we can. I think the key is educating yourself and not letting this take control of your life. Andy/p

Posted on: Sat, 06/17/2000 - 5:08am
Tina H.'s picture
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Joined: 10/13/1999 - 09:00

pAndy,br /
I have so many questions for you! Thanks for taking the time to help those of us who are relatively new at this. When you were small, did your parents spend every waking moment worrying about your peanut allergy? Were your reactions severe as a child? What were your symptoms? Has it gotten worse over the years? It seems that today there are many more foods prepared with peanut products. Do you find it harder today to avoid peanuts? And finally, what advice can you give us to keep this horrible allergy in some sort of perspective?/p

Posted on: Sun, 06/18/2000 - 4:38am
andy's picture
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Joined: 04/26/2001 - 09:00

pHi Tina. My parents never worried at all about my PA. I do not know if that is because peanuts, peanut oil, peanut butter, etc. are in so many more foods today then they were then or they just did not realize the potential for problems. My parents and I always were very careful concerning me avoiding peanuts, etc. but we never thought about cross contamination or asking if something was cooked in peanut oil. In fact I never had an epi pen until I learned about them at this site. About 6 years ago I ate a peanut by accident at a restaurant and I told my doctor about it a few days later and he told me I must have an ana kit and immediately inject myself if I eat a peanut again. Now I have switched to the epi pen. I never knew how serious PA is. My reactions have always been the same. If I eat a peanut I immediately know it. I know if it is going down my throat. Within an hour or so I start vomiting horribly. It is an exhausting experience. I am weakened for a day or 2 afterwards. However until my doctor told me after my last attack, I had no idea I could go into shock. I do not know why noone ever told me or my parents. I have probably had 7 or 8 attacks in my life. They have all been about the same except for 2 which were mild. I try to eat safe foods, but the possibility of cross contamination at restaurants is truely scary. It has not been harder to avoid peanuts, but that does not mean I will not have my next accident very soon because some restaurant changes the way they cook something or some new restaurant does something stupid. On the other hand I live life to the fullest. I work hard, travel, and go out to dinner about 3 times a week. I have absolutely never let this problem get in my way at all. Maybe I have been lucky and maybe I am wrong. I try to stay safe. I now keep an epi pen with me, but I do not let myself go crazy thinking about the possibilities. Thanks for asking. Andy/p

Posted on: Sun, 06/18/2000 - 10:22am
jrizos's picture
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Joined: 05/30/2000 - 09:00

pHi I am new to my youngest son is PA.When we first noticed symptoms the M.D. ordered the rast test which did not include peanuts. I found out before going to the allergist that he was allergic to the peanuts. He had a bad reaction after touching them. The allergist said it is not necessary to test him because we already know he has the allergy and the reaction was quick telling us it is severe. the rast test showed a severe reaction., Their is a chance for false pos or neg test in a young child and he said this could give us a false sense of security. I do not need a test to know my child. I think my allergist made a sound decision in our case. I took him back to the pediatrician for the excema. He said the allergy attack made the excema worse. I used a hydrocortisone cream 1% 3X a day for 1 week because this was his face. ( the cream will make the face skin thin and be absorbed into the body if used longer than 1 week) and I used a eucerin cream (not the lotion and nor fragrance) after I applied the hydrocortisone cream. I also gave benedryl once a day for the iching for almost 3 weeks. This worked and he has not had a problem scince. Just use a thin layer of hydrocortisone cream and the body absorbs it better after a nice bath. As for reading labels I am still learning. I think I need to avoid chocolate. I find the peanut label usually as the last ingrediant. Read the whole label. Today my husband found the peanut ingrediant off to the side under the nutrition value label on a choc bar made from hersheys. Good thing he is so cautious./p

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