New & freaked out!

Posted on: Thu, 07/29/2004 - 12:46am
coldincanada's picture
Joined: 07/28/2004 - 09:00

6 year old daughter was diagnosed on Tues. I gave her about 1/4 tsp. peanut butter on a cracker to try. She has always hated the smell of it but wanted to try it. 1/2 hr later we were at hospital - she was hoarse & croupy, getting sleepy, eyes welted up & puffy. They did all the right stuff - then she threw up & gave her gravol. Poor little thing. Luckily she is in a peanutfree schools but I gave her all the peanut "may contain" stuff at home - which she loves (Ritz cheese crackers..) Dr. said if she can't have it at school - don't do it at home. Very scary stuff. Hubby is in denial - saying continue life as we had. Do we do "no dairy queen because they have peanuts there" stuff? I am still in denial a bit too. We start holidays today. I have to pick up her medi-alert bracelet & we have 2 epi-pens already (I pick up another 2 today). Where to I begin? What do I do when she goes to a friends house - or does she? I am just new so I haven't gone back to any of the other message boards but will do so. I hear this is a great message board -I am sure you will be hearing alot from me!

Posted on: Thu, 07/29/2004 - 1:50am
kkeene's picture
Joined: 10/20/2003 - 09:00

Welcome to the board.
I actually hate to say that knowing it is this horible allergy that brought you here, but none the less I'm glad you found the site, it has been a real god sent to me.
Were in Canada are you from?
I grow up in Northern Ont.
But live in the US (MICH) with my 3 1/2 year old son who has this allergy, along with egg & fish.
Your reaction sounds so familiar although with us my son was only 9 months.
You will need you educate you entire family & friends. Once you have found you comfort zone you may feel more comfortable letting her visit places/people with out you.
I would really suggest borrowing some videos from your allergist or library if you can about allergies. If you can't find them you can buy them from FAAN [url=""][/url]
I just got the following ones from my Library & found them very helpful
1) Alexander the Elephant who couldn't eat peanuts
2) It only takes one bite
3) Anaphylaxis, When seconds count...
Like I said my son is 3 1/2 but he just watched the Alexander movie & totally gets his allergy, He knows he can't eat cert. foods & knows that they are Peanuts, Eggs & fish. He know it will make him sick & that if sick he NEEDS his EpiPen! He can tell you exactly how to use it & everything!
I am so proud of him.
I have a copy of these videos that I am going to have HUBBY, inlaws etc... watch.
Also I have left him with Friends (in my house) if I have an appt. or something so i will have them watch too. Then I will know how comfortable tthey are with the whole deal....
Hope this is helpful to you.

Posted on: Thu, 07/29/2004 - 12:41pm
anonymous's picture
Joined: 05/28/2009 - 16:42

Hi ColdinCanada. We live in Ontario and when you mention Dairy Queen I have to say to avoid it - but on the bright side McDonald's ice cream is way cheaper and safe!! We go there all the time for an ice cream treat on the way home. For at home ice cream and popsicles check out Chapmans.
It is okay to be overwhelmed - give yourself time to adjust and to educate. Scott is 9 and had his reaction at 6 months so we are so used to this it is a part of life. The lucky part is that labelling of food products is good in Canada. You have many 'safe' treats like smarties, kitkats, aero bars, coffee crisp, etc. And we have labelling of "Safe to Share" etc. which helps your daughters friends know what is safe.
Does she go to her friends house? Talk to her friends parents - get their comfort zone. I bet this summer you won't want her to and that is okay. Let it sink in - learn about it yourself and then educate. In a couple of years your daughter will know what is safe and what is not and that is a big plus.
Scott goes golfing, goes to birthday parties (after careful checking), plays sports, etc. We give him every opportunity we can. The bottom line though is that as his parents we are responsible for him (not to mention how much we love him) and therefore we err on the side of caution. Nothing, absolutely nothing, that "may contain" enters our house. If I do not know a parent or they do not seem to take his allergy seriously, he does not go to their house or party, etc.
You will do fine. Take it one day at a time.

Posted on: Fri, 07/30/2004 - 5:56am
e-mom's picture
Joined: 04/23/2000 - 09:00

kkeene and Scott's Mom,
Way to go! Very nice responses! Couldn't have said it better myself. [img][/img]

Posted on: Sat, 07/31/2004 - 2:55pm
smartalyk's picture
Joined: 07/20/2004 - 09:00

Hi coldincanada (although it isn't so cold right now [img][/img] )
I am in Canada as well (Saskatchewan). I have to agree with the no Dairy Queen recommendation. It is chalk full of peanuts and nuts (I used to work there as a teenager and know that there is risk of cross-contamination big time!).
As for friend's houses, etc... you will soon find your comfort zone. When Evan was young, he mainly went to my best friend's house (her dh is nut allergic) or relative's houses that took the allergy seriously. We have been dealing with the allergy since he was 17 months old though so we didn't have to change anything. It is more work to educate other parents and to get a sense for how much they understand. But you will want your daughter to have good experiences and not live in a bubble... so you will take those extra steps.
Never go against your instincts though. They are there for a reason!
Sorry you went through this. It is a frightening experience!

Posted on: Sat, 07/31/2004 - 3:56pm
mae's picture
Joined: 07/12/2002 - 09:00

Hi and welcome! It is scary at first - so much to learn. We have a 9 1/2 year old boy who was diagnosed before he was two.
We still read labels when we shop because things change day to day with manufacturers. He gets more responsible for his allergy each day - yet... It is a part of our everyday life.
Went for a walk the other night. Luckily he had his epi pen on - we were invited in to a friends for coffee and ice cream [img][/img]
No ice cream for DS - but we found a safe snack for him. Potato chips...
Lots of good info here. Where are you in Canada?
Take care [img][/img]
[This message has been edited by mae (edited August 04, 2004).]

Posted on: Sat, 08/07/2004 - 1:47pm
anonymous's picture
Joined: 05/28/2009 - 16:42

Hello coldincanada - I am coldinSK on another messge board! We are very new here too, only since July - Belle is now 10 months. I have times when I can't breath when I think about all of the hidden dangers out there. I have however given myself leave to panic when I need to. My husband has eaten a PB sandwhich everyday for lunch since I met him. It took a few days to sink in, but now he is trying to choke down ham. My 8 year old is amazing at watching out for her little sister - your six year old will get the idea. She probably knows someone who also has the allergy already. It is frightening when something threatens your child - but we Moms are a pretty strong lot. Just from what I have seen on this board in the last month gives me hope.

Posted on: Wed, 08/11/2004 - 3:36pm
KIMBERLY's picture
Joined: 02/15/2000 - 09:00

Hi ColdinCanda, i am in Manitoba, cold here too. My ds age 7 had his first and only reaction at 1 year. Our rule always have an epipen , always. We try very hard to not put him in a bubble so he can enjoy his childhood and all experiences that go with it. We check every label coming into the house. no ingredients = no eating. Very carefull with homebaked goodies, do other parents without a PA really get the cross contamination issue? DS always asks about the ingredients when he is offered food .. it does get easier, just becomes a way of life. As they say, you don't get what you can't handle. We parents are a hardy lot and our PA kids are even hardier, they adapt.

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