new dad to PA

Posted on: Thu, 02/20/2003 - 3:49am
choguy's picture
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Joined: 02/20/2003 - 09:00

Hello,

I have been reading your posts for the past month and have decided it was time to join the discussion. I have learned a lot from reading about all of your experiences - many thanks!

By way of introduction, my wife and I are parents of a soon to be three year old boy who was recently diagnosed with PA. Unfortuately, we discovered it the hard way: Within 10 minutes of having his first PBJ sandwhich (which he loved), he developed a moderate anaphylatic reaction. My wife called me and I rushed home from work. I arrived to find my house surrounded by two ambulances, a fire truck, and two police cars. After my heart rate returned to normal, I found my son was stable in the back of the ambulance. My wife had given him some Albuterol to help is breathing. We have since seen an allergist and we now have six Epipens distributed in various locations.

As many of you have experienced, we have a lot of frustration with our pediatrician. Our son had outgrown a dairy allergy but his doctor warned us to keep him away from peanuts until he was at least two. We thought we were smart by waiting the additional year. The worst advice he gave us was to go ahead and do a food challenge at home (which we did with the above results)! When we asked for a RAST a year ago, he convinced us that the test results were unreliable so it wasn't worth the blood draw. What idiots we are! My wife and I have been involved in medical research for nearly 30 years between us - we know better than to trust MD's.

Sorry for the long introduction. I just want everyone to know of our history. We have just gotten started in dealing with all of this; it's only been two months but seems more like two years. We have another child on the way, so my wife has stopped eatin all peanut containing products in hopes of not sensitizing the unborn baby. Thanks for reading all of this. I look forward to reading more and perhaps adding my two cents.

Posted on: Thu, 02/20/2003 - 3:54am
cynde's picture
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Joined: 12/10/2002 - 09:00

Welcome, sorry to hear about what you went through. Sounds like your on the right track to educate yourselves and prepare for possible problems in the future. Good luck.
------------------
Cynde

Posted on: Thu, 02/20/2003 - 4:19am
Peg541's picture
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Joined: 12/29/2002 - 09:00

Welcome, keep reading, it helps.
Our son is 18 and PA all of his life. He has only had three reactions which is pretty lucky but his world is small for sure.
Our pediatrician did not believe in allergies or asthma. We believed the pediatrician. Our son had to have tonsils and tubes on an emergency basis to finally make us stop trusting the pediatrician.
Some of them are like that. He was just stuck in his doctor rut and our son got the short end of the stick.
We also are in the medical profession but both of us never took care of children before so our son suffered before we caught on.
Right now he is healthy, hearty and getting scholarship offers from every college he applied to. There is a bright side at the end of the tunnel. We feel totally comfortable sending him off to college in September because he has been taught since day 1 to take care of himself.
Don't beat yourself up about the pediatrician. Your children are different than the ones you read about or study. There is a much different relatinship and it often makes it tough to see anything else.
Good luck
Peg541

Posted on: Thu, 02/20/2003 - 4:56am
mchammond's picture
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Joined: 09/21/2000 - 09:00

Welcome! You will find a wealth of information here.
We received very little information about this allergy until our son had a biphasic reaction and we went to an allergist. I suggest you find an allergist so it doesn't take as long for you (and your child) to get a handle on this allergy.
As far as the "rast" test, I questioned my allergist because he wanted to retest (prick method) for pa and after reading posts here I thought the rast may be a better option. He explained to me that recent studies are indicating that test is not as accurate as they once thought for this allergy and he no longer recommends it.
Good luck and I hope you find a good allergist.
Candy

Posted on: Thu, 02/20/2003 - 4:56am
Anonymous's picture
Anonymous (not verified)

Welcome choguy [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Your two cents will DEFINITELY be welcome.
Lots of us have had problems with doctors (gp, ped. allergist) and although I would never wish it on anyone it is nice once-in-awhile to be reminded we aren't alone. So you've already paid half. [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]

Posted on: Thu, 02/20/2003 - 5:44am
synthia's picture
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Joined: 10/05/2002 - 09:00

Welcome Choguy
Lots of good info here,and support
Hope the little tike is ok.
Look forward to hearing from you.
Love this site
Synthia

Posted on: Thu, 02/20/2003 - 6:33am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

Hello!
I am also new to posting but have gratefully read the postings for some time now. I also appreciate the information and support. My daughter has had a PA since she was one, and is now almost five. I have not had any problems with her doctor, pediatrician or her allergist. I guess from reading the other posts I have been fortunate.
This is a supportive group of people and I thank you for letting me participate.

Posted on: Thu, 02/20/2003 - 6:50am
Anonymous's picture
Anonymous (not verified)

Skymom, It's always good to hear that some people don't have problems with doctors. Gives the rest of us hope.

Posted on: Thu, 02/20/2003 - 11:52pm
Peg541's picture
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Joined: 12/29/2002 - 09:00

I'll bet it is not actually our doctors that are the problem. We are around our allergic children 24/7 and see so many more patterns than their doctors do. I guess I'd like to take the heat off of the medical profession since I know what a hard job that is. I did my share of complaining about our pediatrician. He was also a lovely man who NEVER charged us a cent in 14 years!
Peg541

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