New changes in the allergy game

Posted on: Wed, 01/28/2004 - 5:14am
Triciasmom's picture
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Joined: 08/03/2000 - 09:00

Ugh. Well, hello everyone. I've not been on the boards for about 6 months or so. But here goes.... Just got Patricia's IgE cap rast back last night. First time we had the cap rast done. But we just switched to a pediatric food allergy specialist -- Maryanne Scott (co-author of Parent's Guide to Food Allergies).

Anyway, Patricia tested over 100 for peanut (no surprise there), 31 for egg, and also positive for cashew, pistachio, hazelnut, brazilnut, almond, and sesame. She tested at 1.11 for milk, so she is considered grown out of the milk allergy. The cashew and pistachio didn't surprise me because the one time that I offered her mango, she spit it out immediately (and she usually loves fruit). But now we have been put on epi-pen alert for tree nuts (except walnut and pecan)in addition to the peanut allergy. Need I even mention the peanut allergy nightmare that plagued me last night for the first time in months?

I guess I am not surprised about any of this. It kind of falls into my trend of never doing anything half-a$$ed. So I will definitely be getting Christina in for testing when she is 12-18 months, not that she is going to ever taste a peanut or tree nut as long as she lives under our roof. But I already suspect that she is allergic to wheat.

Hello....welcome to hell. Here is your epipen.... [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

Amy

Posted on: Wed, 01/28/2004 - 7:37am
Anonymous's picture
Anonymous (not verified)

Triciasmom, good to see you! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I'm sorry you don't feel great about being back though. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] (How is the baby?)
Okay, you know me for questions so..... Were you not avoiding tree nuts before because Tricia was only PA (at that point)?
The one that concerns me more is the sesame only because when I've looked it seems to be in everything (well, not everything, but bread I guess - may contain trace sesame). What was Tricia's score like for sesame?
I'm sorry you feel so depressed but hey, if someone suddenly handed me a whole new list of food allergies to deal with, I would be too.
We avoid all tree nuts just because so for us tree nut allergy wouldn't be a big deal. As I said, it would be the sesame.
And hey, at least you knew where to come and kvetch.
Big hugs! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Wed, 01/28/2004 - 9:44am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Hi Amy,
Good to see you on the board again, but sorry her results were so disappointing. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
Amy

Posted on: Wed, 01/28/2004 - 10:02am
Triciasmom's picture
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Joined: 08/03/2000 - 09:00

Cindy,
Patricia's scores (out of 100)were:
Peanut >100
Cashew 5.49
pistachio 4.64
hazelnut 5.98
brazil 4.86
almond 2.38
sesame 6.33
egg 31.40
milk 1.11
Not that I have a firm grasp on what the numbers translate when it comes to actual reaction. We had been avoiding tree nuts anyway, assuming that even if she wasn't allergic, there could be cross-contamination. But we hadn't been avoiding sesame. Oh well. Today I got new epi-pen jrs and was pleasantly surprised that they came in a two-pack with a trainer all for one co-pay! Gotta take the little joys in life where you can find them [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
Amy

Posted on: Wed, 01/28/2004 - 12:02pm
e-mom's picture
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Joined: 04/23/2000 - 09:00

Triciasmom,
Good to see you back on the boards again as well! Sorry to hear, though, that you have more allergies to deal with [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] UGH!! Sending lots of hugs!!!!!

Posted on: Wed, 01/28/2004 - 12:56pm
Anonymous's picture
Anonymous (not verified)

Just realized something that probably helped to make you feel crappy to-day as well - the PA nightmare.
I had a bad dream earlier. Awoke. Don't know what it was about. Wasn't PA. I went straight into a panic attack. Let's just say my mood has not been very good since then.
So, I think the nightmare + the additional news of Tricia's new allergies, well, wow.
Good to see you posting in other threads as well. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
It just seems like yesterday that your husband wrote that wonderful article. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
It will be okay.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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