New Allergies

Posted on: Tue, 07/16/2002 - 1:10pm
lizziepv's picture
Offline
Joined: 07/16/2002 - 09:00

pMy son, who is 2 3/4, has just had his peanut allergy confirmed. He reacted to the skin test in April, but they waited until June to do the blood test. They performed a CAP RAST test on him. He was a 3 on peanut, milk and egg. This has been alot to handle. We had no idea feeding him peanut butter too young could cause this. I also ate alot of peanut butter while I was nursing him. I tell everyone I know with young children to not start them on any peanuts until they are three, and no eggs until they are two. I could really use some good advice on what I can do. I feel like people think I am overreacting./p

Posted on: Tue, 07/16/2002 - 3:36pm
Love my C's picture
Offline
Joined: 04/03/2002 - 09:00

Hi lizziepv,
I read your post on the Main Discussion Board inquiring about how to read the results of a CAP RAST test. Sorry I can't help you there as my son has had a rast and a skin test. Although you could do a search on these boards for the cap rast and I bet you'll have some answers to your question.
Since your son is young I thought I'd include a link that I found helpful from the Main Discussion Board on "What To Teach Toddlers".
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002619.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum1/HTML/002619.html[/url]
Another helpful link is to "Living With Anaphylaxis: Handling the Stress" which I need to review from time to time myself [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[url="http://www.calgaryallergy.ca/Articles/handlingstress.htm"]http://www.calgaryallergy.ca/Articles/handlingstress.htm[/url]
You'll probably just want to take some time to read up on this website as well as FAAN:
[url="http://www.foodallergy.org"]www.foodallergy.org[/url]
I know what you mean about other people thinking we overreact abut peanut allergy. Some will think that, some won't. Mostly it's out of ignorance about the allergy.
You do what you need to do for your son. Trust your instincts!

Posted on: Tue, 07/16/2002 - 10:16pm
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Hi -
My son has multiple food allergies, too. I know just how you feel. It can be very overwhelming, however, you did not do this to him. My two older children do not have any food allergies!
FAAN, mentioned above is a great resource for materials and they will answer questions, too. They pointed me in the direction of Dr. Robert Wood after my son's second CAP RAST results. After losing many sleepless nights about the worsening test results (and blaming myself), I've resigned myself to accepting the results are positive, keeping my son safe, cooking alot, and praying for resolution of some allergies at an older age.
I still value test results in the sense that they are a tool, but after Dr. Wood explained the "natural history" of peanut and milk allergies - it is not surprising to see them change (likened to a bell curve for milk; the immune system response to peanut is unique and replicates the imprint without exposure). Don't be disappointed to see them change in the future even if your son hasn't had a reaction. The bottom line from Dr. Wood is to manage by reactions/lack of reactions.
For milk and peanut allergies, I could be of some help, if you'd like. Egg allergy is difficult, I understand. Perhaps someone else can contribute on that one.
It's alot to handle all at once....you're definitely not alone!
Cathy
P.S. As I understand it, the IGE (along with eos and basos for the CBC) are general indicators of allergy. Ben's was 109.7U/ml. His doctor said if it were really high, it can inflate some results. That's why I leave it to the doctor - too many nuances!
[This message has been edited by B'sMom (edited July 17, 2002).]

Posted on: Tue, 07/16/2002 - 11:35pm
lizziepv's picture
Offline
Joined: 07/16/2002 - 09:00

Thank you for sharing information with me. I have already joined FAAN.
I found the link you sent very helpful. It gave me some ideas for how to talk to him. I have ordered a pre-schoolers guide to peanut allergies. I hope this helps him understand.
I know that all of this will become second nature to me eventually, but right now it is emotionally exhausting. We went grocery shopping last night for the first time since we found out about the milk and egg allergies, and it took twice as long as normal.
I have found a local support group that is starting up, and I think that will help.
Now, I just have to hang in there, even though everyone around me thinks I am obsessing over this.

Posted on: Tue, 07/16/2002 - 11:52pm
lizziepv's picture
Offline
Joined: 07/16/2002 - 09:00

Thank you for sharing this information with me. I have found someone locally who is starting a support group. I think this will help me. It will be nice to be around people who don't think I am psycho!!
I have already joined FAAN.
I have talked to his teachers at school, and my family about not feeding him something unless I give it to them, or unless they check it out with me first, but I always have this uneasy feeling that he is going to get ahold of something by accident when he is not with me.
I have found this site very helpful.
We are taking this one day at a time. It is just emotionally exhausting. Grocery shopping takes twice as long, and the constant telling him "You can't have this, you can't have that" is tiring. The link that was given to me about Toddlers was very helpful. I am going to buy him a lunchbox so he can have his "special" food in it.
Thanks for listening to me, it feels good to get it out.
OOPS. I got an error with the last post, so I did this one. Looks like they both posted.
[This message has been edited by lizziepv (edited July 17, 2002).]

Posted on: Mon, 10/05/2009 - 11:07am
cathlina's picture
Offline
Joined: 06/29/2001 - 09:00

I tend to think of having a peanut allergy as "healthy" living. Think of all the junk food that he won't be eating. Less sugar, too! And manufactured foods are packed with salt. I eat fresh meat, fresh vegetables and fresh fruit. I eat food to live rather than live to eat food. Good-bye obesity, diabetes, high cholestral etc. etc.

Posted on: Tue, 10/06/2009 - 9:32am
BestAllergySites's picture
Offline
Joined: 03/15/2009 - 21:46

leas14-so sorry you and your son are just learning of his diagnosis. Being a teen is one of the hardest times to deal with food allergies.
The first thing you need to do is assure him that the new expense is not an issue-even if it is. He shouldn't have to worry or feel bad about this. It could lead to risky behavior.
The next step is to teach him that HE is responsible for keeping himself safe. This means carrying his epi pen at all times, not sharing food, reading ALL food labels, not eating home made foods provided by others-even if they assure him it's safe...and then some.
There is a learning curve but it will get easier in time.
If the cost is an issue-consider making home made snack items so that you know they are safe. Buy fruit, vegetables, etc. for snacks.
Stay away from foods that list warning labels like "may contains" or processed in.
Any other questions feel free to ask. We are here to support you in any way you need.

Posted on: Wed, 10/07/2009 - 10:28am
lakeswimr's picture
Offline
Joined: 02/01/2007 - 09:00

How did your child get diagnosed with those allergies? I assume your child had a reaction and then you brought him in for testing. It would be very rare for a child to go 14 years with no food allergies and then suddenly to get that many allergies all at once.
Testing is only 50% accurate for positive results (both RAST blood testing and skin testing have aprox the same accuracy rates) and over 90% accurate for negative results so if any of those were diagnosed by testing alone they may be false positives and this would be a good thing to discuss with an allergist.
Do you have an allergist or did the ped run the tests? Squash and lamb would be very, very, very uncommon food allergens. It is certainly possible to be allergic to any food but those are not common.
What reactions have you seen in your child?
If you have not yet seen an allergist I recommend it.

Posted on: Wed, 10/07/2009 - 10:33am
leas14's picture
Offline
Joined: 09/30/2009 - 10:12

Thank you everyone for your advice. We will take it all into account.
Over the last year or so he has been throwing up after eating, he ped told us it was from his asthma.. but over the summer he started having worsening symptoms.. Facial swelling with difficulty breathing, hives, vomitting, and constant severe headaches. He has been to the ER which they blew him off so I took him to an asthma allergy specialist.

Posted on: Fri, 10/09/2009 - 6:28am
lakeswimr's picture
Offline
Joined: 02/01/2007 - 09:00

That makes sense. I'm so glad you took him to a allergist. Do you have epi pens? I hope so because if not you do need them as well as a clear, written emergency plan. the reactions you described are VERY serious and all plans I know of would call for giving the epi for those things in response to ingesting allergens.
So, I am not sure if I understood your original question. I would recommend joining FAAN via www.foodallergy.org They are the Food Allergy and Anaphylaxis Network, a national organization for people with food allergies. They have great information. The food allergy initiative is another great organization as is kids with food allergies. You can google and find their web sites.
I would also recommend you get some books about food allergies. Dr. Young's 'The Peanut Allergy Answer Book' 2nd edition is great and so is Dr. Wood's 'Food Allergies for Dummies'. FAAN, mentioned above, sells pamphlets and other information on a huge variety of topics and books and other useful things like epi pen carriers, how to read a label cards, etc.
I would shield your son from talk about how expensive your food bill is now. He should not have to think about that until he is the one paying. There are many great cookbooks out there. Cybele Pascal's 'The Whole Food Allergy Cookbook' is nut and soy-free and very good. Kids with food allergies has a wonderful recipe data base where you can put in all the things you are avoiding and get all sorts of recipes. Your allergy set is tricky especially because of the soy but what you are avoiding is far less than what I have to avoid for my son who has multiple food allergies and I have found many great recipes I can use at home and many allergy-free products to use.
I would discuss with your allergist seeing if any of those foods that tested positive might be in the 50% false positive set. If there are some foods on your list that you have not seen reactions to it is worth it IMO to do a food challenge so you are not overly restricting your child's diet needlessly. I'm 100% certain your child has life threatening food allergies from your description of things, though.
Please ask away if you have more specific questions.

Posted on: Tue, 12/01/2009 - 12:25am
LinKay's picture
Offline
Joined: 08/17/2007 - 09:00

yeah, I would check on teh false positives too.
I don't doubt that allergies can come on any time in life. sounds like he is at the age of change (puberty). So that is a time when he could suddenly develop allergies. Same thing happened to my nephew. Right around 14 had a severe reaction to tree nuts. He had eaten them before on many occasions. Also my dh developed his shellfish allergy at the age of 18. He grew up eating shell fish, then one day, bam, a severe reaction.
But, back to the false positives. We were told that my dd had peanut, tree nut and soy allergies. She wasn't tested for squash and other legumes, but knows which ones she can and can't have. She also had milder allergies to wheat and dairy. Anyway, turns out her soy allergy is not as bad as they originally said. She can tolerate soy oil and soy lecithin just fine. That opened up an entire list of food items for us.
Also, like lakeswmr said, just eating 'from scratch' foods is so much healthier and better tasting. I really don't find I spend a lot more than before. In fact, because I cook from scratch, I may even spend less. Of course, I didn't find substitutes for her. We just changed our menu.
We eat a lot of potatoes and rice, chicken and beef.
The cook book Sophie-Safe Cooking is a fabulous cook book. Has many really tasty and allergy free recipes.
Good luck. I remember that devastating feeling. The day we found out, I took my dd out to the store to find safe foods for her. I came home sobbing. I was depressed for quite a while. But we came through it, we found things she can eat and are happier now! I didn't have a support group at the time either. This site is a fabulous place for emotional support as well as great advice and help.

Pages

Peanut Free Store

More Articles

There are many reasons why you may want to substitute almond flour for wheat flour in recipes. Of course, if you have a...

Are you looking for peanut-free candies as a special treat for a child with...

Do you have a child with peanut allergies and an upcoming birthday? Perhaps you'd like to bake a...

Most nut butters provide all the same benefits: an easy sandwich spread, a great dip for veggies, a fun addition to a smoothie. But not...

Do you have a sweet tooth and more specifically a chocolate craving? Those with peanut allergies must...