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Posted on: Wed, 02/27/2002 - 11:50pm
CVRTBB's picture
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Joined: 11/23/2001 - 09:00

Mew,
You may have a point there. No, my dh has not talked to them about it yet, but I think if anything further takes place that he will. He used to think I was being too overprotective also but has dramatically changed his opinion lately. (Especially since seeing a documentary on bee sting allergies on TV of all things.) I have been having some severe problems myself with allergies to something unexplained lately and I think that has also helped him to understand a little more. (My mouth has swollen to 4 or 5 times its normal size- I hide in the house cause everyone says I look like I have Monkey Lips LOL [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] and my eyes have swollen and breathing problems... been very close to borrowing the kids' shots a few times [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I also get blisters covering over half of my bottom lip... looks really bad for a couple weeks! This has happened twice in the last month and a half.) Anyway, he has told me that he will talk to them next time. My 5 yo PA daughter is going to the allergist today for tests. The last time she was tested was about 3 years ago so we are hoping that she has outgrown some of her allergies.
Valerie

Posted on: Thu, 02/28/2002 - 7:45am
hkymom's picture
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Joined: 11/17/2001 - 09:00

CVRTBB,
Without sounding stupid what is a pen pal allergy pack? and Where would I purchase this?

Posted on: Sat, 03/02/2002 - 9:48am
CVRTBB's picture
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Joined: 11/23/2001 - 09:00

The URL for the Allergy Pack is [url="http://www.allergypack.com/english/page2.html"]http://www.allergypack.com/english/page2.html[/url]
We have the Pen Pal Original and LOVE it! It has been wonderful! Timmy just puts it on with his belt every morning and forgets about it for the rest of the day! It is not at all in his way and he doesn't mind wearing it at all (he is 6 and in Kindergarten). We had a long talk with him about never opening it unless he was told to by an adult- to never show it off, and he has never once disobeyed. I also wanted him to carry benedryl and there was no place for it so what we did was take a FastMelt Benedryl and cut it into a circle and put it in with the shot on top of it (on the cap end up of course) and that has worked great. I would highly recommend it.
Also, I took my 5 yo daughter, Rebekah, to the allergist for testing yesterday and she has outgrown almost everything!!! Hooray!!! She was barely a 1 to peanut, a 1+ to onion and dust and that was it!!! (She used to be VERY allergic to 10 different foods- white potatoes, corn, green beans, peas, milk, eggs, peanuts, oat etc...) We are sooooo excited! We are praying that if we continue to keep her away from pn products that she will fully outgrow it but the allergist said to continue to keep the epi jr with her to be on the safe side.
Valerie [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 03/03/2002 - 11:36pm
hkymom's picture
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Joined: 11/17/2001 - 09:00

Thanks, I am going to look into getting one. I have never heard of it. I always have a problem with friends parents remembering to return the epi. Of course my son also forgets.

Posted on: Sun, 03/31/2002 - 10:05am
CVRTBB's picture
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Joined: 11/23/2001 - 09:00

Since I have written so much negative on this situation I thought it only fair that I come back and update on recent developements [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Timmy now has his own little table for snack and lunch which he and his sister now sit at for Kings Kids also. They have pulled the peanuts and peanut butter cookies from the menu. AND... the Preacher decreed that there would be no more eating in the classrooms for Kings Kids... from now on all eating is done in the gym sitting at tables. Basically the same setup as for school. I had a long talk with my Preachers Wife and the Principal and we have worked it all out so that he is now safe and I feel so much better about him being there. They had an Easter Egg Hunt on Friday during school at the Preachers house and they made sure the candy eggs were peanut free and the Preachers wife made special cupcakes that were pn free for Timmy for lunch (as opposed to the bakery ones the other kids were eating) and showed me all the ingrediants that she used [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] (I went to "help" him hunt [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]) I think she is finally starting to "get it" [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] We will be moving in the next several weeks. We just bought a house. We are so excited... Anyway, just wanted to update and let you all know how well things are going now. It does pay to try to educate people [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] We did get the documentation from the Pediatrician and the Allergist and took it in also.
Take Care and thank you all for caring [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Valerie

Posted on: Mon, 04/01/2002 - 4:21am
Kim M's picture
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Joined: 06/09/2001 - 09:00

I'm so happy for you! It sounds like things have worked out for the best, and I'm sure you're glad that you are able to stay with your church.

Posted on: Sun, 06/11/2006 - 2:40pm
CVRTBB's picture
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Joined: 11/23/2001 - 09:00

WARNING- VERY LONG VENT!
I just did a search for this as I remembered that I had posted about the whole incident here...
Things have gone well at school since kindergarten for Timmy (who just finished fourth grade)... the last two years were wonderful pa wise. The Pastor took out all the peanut candy bars and candy from the lunch room and sports program. They still had "may contains" and other nuts but that was not a problem with me because pn is his only nut allergy. This all came about two years ago after the athletic director handed out reeses cups at a school alumni/staff basketball game (that I was playing in) to a large group of kids who had won a contest. Timmy stayed outside away from the area while the kids were eating but later came back inside. He started playing with a basketball with another boy and we had to leave because he was going into anaphalxis and had to be rushed to the ER. I pitched a hissy fit and they have been great about keeping it out of the school ever since.
Wish I could say the same about the church!! Last year I went round and round with the guy that ran the King's Kids program on Wednesday night about serving peanut snacks... he never completely gave in but did start passing them out at the close and told the kids not to eat them till they went home.
This year they did not serve snacks at King's Kids at all, yeah! This guy did not work in Kings kids till the last few months but they maintained the "no snacks" thing. Last Wednesday night was the final night of King's Kids and the kids put on a program. At the end the Pastor announced that there would be punch and cookies served outside. I knew that everyone knew about his allergy and figured nobody would bring peanut butter cookies. I stood talking to a friend and the kids had all run outside, I was not worried because Timmy is old enough to know what not to eat. He came back in right away and said that he could not have anything because it was all "may contain." I told him not to worry that we would stop and get him a big treat on our way home. A minute or two later I went outside and right off realized that they were passing out reese's cups to all the kids!! I was furious!!!!!!!!!!!! I grabbed my kids and we left quickly. Timmy had been playing catch with a baseball with another boy. After we got home Timmy got a fist sized hive on his belly, his lips and eyes ballooned up and his throat got itchy. I gave him benedryl and a quick bath and watched him till 3 am (when the wheezing stopped and his face looked better and the hive went away). I was SO ANGRY!! I waited till Friday and went in and talked to my Pastor about it.
I told him of all the bullying incidents that had taken place at school this year- of one kid shoving a pbj sandwich in his face and a different time a kid shoving a bag of peanuts in the shell in his face and being called "peanut boy". I told him if this was his idea of a "Christian school" then we didn't need it. He said he wasn't aware of what had taken place and that he would get to the bottom of it THAT night so that it would not happen again.
Then on Saturday I got a call from the wife of the man who had brought the candy bars to see if I will be in the nursery on Sunday morning because she and her husband were doing Junior Church. I asked her if they were serving a snack (this was after the Preacher had promised to speak to them about the incident) and she got huffy and said yes and I can't guarentee what will be handed out so I told her my son would not be there.
I then called the Pastor's house to find out why he had not kept his word and his wife answered the phone. We got into a shouting match pretty much and she called me a hypocrite and said that I had been seen eating peanuts and snickers. I said that was untrue that I do eat Cashews occasionally- Timmy is not allergic to tree nuts- and I have once or twice tried the ALMOND snickers, again he is NOT allergic to almonds.
I'm done! I cannot take this hypocrisy and their trying to kill my son any longer! (These are not the only incidents at the church- every time they have a church dinner my son is not able to participate because he (the Pastor) will not even mention the allergy from the pulpit to make the people aware of it to give them the choice of helping to keep him safe (reducing the risk).
This time I am serious about keeping my son safe and have already found another church that is willing to work to keep my son safe. I am soooo excited about this! They already have a child attending that is tree-nut and milk allergic so are trained in proper protocol and willing to work with us. The new church is in the same denomination but what a difference I see in the churches! Now I am praying that things work as well with the kids changing schools. There is another Christian School in our town that uses the same curriculum, hopefully we can work out a way to be able to financially be able to send them there. If not I will probably be homeschooling. (Not my preference!)
Sorry this is so long and that I sound so bitter, really I'm not... just very tired of the long battle of trying to keep my son safe... and now having to start all over again with a new school. Hopefully, this one will truely be a "Christian School!"
Valerie

Posted on: Sun, 06/11/2006 - 4:11pm
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Joined: 12/29/2002 - 09:00

YOU HAD BEEN SEEN EATING SNICKERS????
How dare they catalog your movements. How dare church going God loving people act like this.
I'm so sorry you have to go thru this but you certainly do.
Does your church hand out flyers on Sunday? Little programs? Can you sit with someone in charge and develop a flyer introducing people to PA?
You don't need it announced from the pulpit, you can do it yourself and get the info out the way you want.
Just a few paragraphs and include your email or phone # so they can ask questions. Start off by asking for everyone's help so your child can have his church be another of the places he can feel safe. Include FAAN's URL too so they can research the rest themselves.
Use my son as an example. His university did not take peanuts out of the cafeteria, they would not think of it.... But his dorm banned peanuts totally. When we moved him in three years ago there were signs on every door, signs in three languages banning peanuts. They kept the ban going so far for three years, even the semester our son was in Scotland.
It can be done by caring loving people.
Good luck.
Peggy
[This message has been edited by Peg541 (edited June 12, 2006).]

Posted on: Sun, 06/11/2006 - 7:54pm
Claire's picture
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Joined: 04/19/2000 - 09:00

Being called Neurotic wouldn't bother me,but being told I could not check on my child would bother me. I don't care what the situation is a mother should be able to freely check on her child whenever she wishes.
I do day care and I tell all parents not to knock just to walk in. What do I need to hide that I can not have them walking in.
I would be so mad if I were you CVRTBB about this whole thing.
My kids are in public school and they have never had a care about me popping in.
That tells me they are good to my children.
NO I think you should be very upset.
Did you show the people how ill your son was getting and did they even care?
People are so amazing about how they only care about themselves these days.
BEst of luck to you and your little ones. Claire

Posted on: Mon, 06/12/2006 - 12:36am
Christabelle's picture
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Joined: 10/03/2004 - 09:00

Oooo this really ticks me off.
I missed this story in 2002 and just read the whole thing now...
ummmm
This calls for media attention or some kind of public humiliation/calling out. These people sound completely insane and or evil.
I would not be able to check the paybacks factor, not to mention protecting other kids they might be jeopardizing. MORONS!! People are such idiots. What would Jesus do?

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