Neocate juices

Posted on: Sat, 08/04/2007 - 12:12pm
M. Mariano's picture
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Joined: 04/30/2007 - 09:00

Hi,

My DD is allergic to milk as well as many other things. At 14 mo. weighs only 19lbs. Don't know if her size has to do w/ her allergies, but after lack of concern w/ her allergies in the first place, don't trust our Dr.s opinion (o.k. looking for a new Dr./ Allergist, but thats a whole diff. story)Neither the Dr. or the allergist are concerned about her size. I just want to be sure she is growing properly. So I've been hearing a lot about this NEOCATE, I'm wondering about the "juice" I understand it has many vitamins and protiens my DD could be lacking. I don't want to mess with the formula at this point, but was wondering if any of you have tried the juice. Do kids like it? Is it worth the $$? I would give this to her in replacement of the regular juice she is drinking now and keep her on the soy milk/ formula. What are your opinions about this? I want to know more before I spent $100. on juice, but if it will help her I'll spend 1,000,000,000. KWIM??? Thanks

Posted on: Sat, 08/04/2007 - 1:00pm
chanda4's picture
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Joined: 12/14/2006 - 09:00

I don't know about the juice...but just wanted to add, unless it is meant for growth/nutrition purposes, don't do it! Kids, especially toddlers, don't need juice. Giving them a cup of sugar water is the same idea(don't do it). (IMO of course)
I have an 18mth old that just hit 21lbs(she was 17lbs at age 1)....she is a smaller gal, but she is gaining, so we keep trudging along! I have increased her weight gain a little the last few months by continuing to give her 2 bottles(6oz) of Alimentum a day. In the am and right before bed(I try to keep them away from meal times so she *eats*)....then she gets a little sippy of Rice milk with meals. My 6yr old had to drink Pediasure when he was around this age because his weight gain slowed as well...but since Savannah is milk allergic, I had to continue with the Alimentum instead. I think it's helping, she looks great! I plan to do this until she hits age 2, then tapper off the formula all together, but we'll see how she's doing(one step at a time).
So I guess I didn't answer your question about the juice, I just think anything labeled *juice* should be avoided(of course unless it really is packed with nutrients to help her gain a little....but sugar won't do that). I offer my kids water all day, free access....and limit juice to maybe one small cup(or juice box) a day.
and in no way do I want to come across as a know it all....this is just what we do, it seems to be working, so I thought I'd share, Thanks [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Chanda(mother of 4)
Sidney-8 1/2(beef and chocolate, grasses, molds, weeds, guinea pig, hamster & asthma)
Jake-6 1/2(peanut, all tree nuts, seasame seeds, (avoiding all seeds&coconut)eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-4 (milk, tree nuts(avoiding peanuts and seeds)soy, egg, beef and pork, cats, dog, guinea pig, hamster, grass, mold, dust mite and EE)
Savannah-1 1/2 (milk, beef and egg, dog(avoiding peanuts, tree nuts, strawberries, sesame seeds, green beans, peas and corn)

Posted on: Sat, 08/04/2007 - 2:16pm
April in KC's picture
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Joined: 08/28/2006 - 09:00

My 13-month old has multiple food issues. I say "issues" because I'm not yet sure how many of them are IgE allergies - more likely it's Celiac disease and some intolerances. But he has done very well on Neocate infant formula (which I added at 9 months in addition to breastfeeding, to help him gain weight). I don't have experience with the juice - most likely I will move to Neocate 1-Plus next. However, I do trust the Neocate brand - this formula worked for us when many others caused reactions. He has gained weight well and likes the formula.
You might check out what their website has to say about their entire range of products, if you haven't already. It is terribly expensive, but I know what you mean about spending a fortune if it makes your child better. For us, it has been a godsend.
I know on the POFAK boards (boards for kids with multiple food issues), Neocate and Elecare are really trusted brands, particularly for kids with G-tubes. I also recently read a news story about a child with MFA and severe eosinophilic disorders who couldn't eat ANYTHING but Neocate. He ate ice chips when the rest of his family ate meals, and he had a snow cone (just plain ice, no flavor) on his birthday.
Perspective, you know? I was thankful for it.
April

Posted on: Sun, 08/05/2007 - 12:47am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Okay, April brought up some good points. Will your daughter be drinking this juice as a meal replacement-like?? I was looking at the Neocate website, if it's *Splash* juice you are talking about, then by no means is that even comparable to the average juice I was talking about in my post above. Reading the ingredients, their juice is packed to the rim with nutrients. But if your daughter is able to *eat* I think getting her to eat would be the best route. Like April mentioned, alot of the kids on Neocate are on feeding tubes or dealing with serious eating disorders/allergies. My son Carson was almost put(it was the next course of action if he didn't improve) but at age 3 they almost put him on a neocate formula-only diet! He suffered from horrible EE pain and was doing rounds of steriods for the pain. I think in his situation, *if* he would have been put on the neocate diet, I might have looked into the juice....it looks very nutritional. But don't get caught up into buying all this fancy expensive stuff if your daughter doesn't need it. Have you gotten with a nutrionist to discuss how to feed her, maybe get a little more fat/calories into her diet(around her allergies). Don't go to just any nutrionist(some of them are of no help) but see if your pediatric allergist has a recomondation...we have done this in the past, it *can* be helpful as well.
But not to be so negative(sorry, I don't mean to sound that way) but reading about the neocate juice, it does sound great...did the allergist recomend it?? I wouldn't order it unless the allergist or Ped suggested doing so(and are following her diet closely). Good luck [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Chanda(mother of 4)
Sidney-8 1/2(beef and chocolate, grasses, molds, weeds, guinea pig, hamster & asthma)
Jake-6 1/2(peanut, all tree nuts, seasame seeds, (avoiding all seeds&coconut)eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-4 (milk, tree nuts(avoiding peanuts and seeds)soy, egg, beef and pork, cats, dog, guinea pig, hamster, grass, mold, dust mite and EE)
Savannah-1 1/2 (milk, beef and egg, dog(avoiding peanuts, tree nuts, strawberries, sesame seeds, green beans, peas and corn)
[This message has been edited by chanda4 (edited August 05, 2007).]

Posted on: Sun, 08/05/2007 - 2:53am
M. Mariano's picture
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Joined: 04/30/2007 - 09:00

Thanks for your responses. Yes, my daughter can eat most fruits, vegetables and meats, but is not that great of an eater. We go to the "new" dr. in a week so I'll get her opinion as well. Chanda, I appreciate your responses to the postings and your experience w/ 4 children w/ allergies. I understand you are in Denver and so am I. I would like to meet you, will you be at the Allergy Walk at Wash park in Sept? Let's network! My personal e-mail is [email]melinda_mariano@dpsk12.org[/email]. Let me know if you'd like to meet and talk! - Mindy

Posted on: Sun, 08/05/2007 - 4:36am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Sure Mindy, my email is in my profile too. I haven't decided on the walk yet, if I can get to it, I'd love to go. We'll have to chat!! Thanks [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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