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Posted on: Tue, 06/06/2006 - 5:10am
milosmom's picture
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Joined: 05/30/2006 - 09:00

Good idea Gail- thank you. Also luvmyboys I hope you don't mind but I reworded the information your doctor wrote for my letter- it is great! Thanks everyone.
Dear *******,
I appreciate this opportunity to address the subject of the conversation we had Saturday. As you know, Miles has severe, potentially life-threatening, sensitivity to peanuts, tree nuts and eggs. He is at risk of a fatal anaphylactic allergic reaction. Approximately 150 people die each year due to anaphylaxis to foods. Miles has a history of aaphylaxis and allergy tests are positive for peanuts, tree nuts and eggs. It is essential that Miles have emergency medications consisting of Zyrtec, Benadryl and Epi Pen available at all times so that they may be administered immediately in case of an allergic reaction.
Avoidance of all contact with food allergens (i.e.peanut) is the only way to avoid a potentially life-threatening allergic reaction. This includes avoidance of ingestion, contact and inhalation of peanut protein. Such avoidance is a highly complex task, impossible for a child without the ongoing assistance of an adult. It is because of the very life-threatening nature of Miles allergy that it is imperative he have immediate access to an adult trained to administer epinephrine at all times.
Epinephrine or any other rescue medication or device does not necessarily resolve anaphylaxis and does not eliminate the need to seek additional emergent care. Death or permanent disability is a possible outcome any time anaphylaxis is triggered. Peanut is of particular concern since a triggering dose cannot be reliably determined, even for an individual. Total avoidance is imperative.
The Epi Pen is simple to administer, and I have no problem training the workers weekly if neccessary, as it is a quick process. I am attaching a consent to administer auto injector, as promised and will mail a signed copy to you. Additionally, California does have the Good Samaritan Protection laws, which generally protect individuals from liability who render emergency assistance in good faith, with no expectation of payment, and who hand the patient over to appropriate medical personnel (such as EMTs or a school nurse) as soon as possible. These should alleivate the concerns regarding liability.
I will also mail a copy of the Emergency Allergy Action Plan that we created with Miles's doctors, which I showed you when we spoke. It has a simple chart (for example one or two hives and no other symptoms- administer 1 tsp. zyrtec or benadryl, and watch for further reaction. All over hives or hives with other complications such as wheezing, vomitting or diahrehaa? Epi-pen, call 911 then administer zyrtec/benadryl.)
As mentioned above, avoidance of all contact with food allergens is the only way to avoid a potential reaction. If there is peanut residue on an individual's hand and they touch a surface that Miles touches he can have a reaction. This is especially relevant as many of the kids in the nursery have older siblings who attend Crosswalk where nut products are offered as treats. As Miles gets older, and becomes acutely aware of what he can not eat, we will be more at risk of an exposure from a contaminated surface such as the games downstairs or an undeclared nut ingredient. When he moves to the toddler room in a few months it will become an issue as well.
I am requesting that Crosswalk rethinks it's policy of offering candy as prizes, and offer an alternative non food prizes. At the very least I would ask that you would remove the nut candies, to reduce further the risk of a potentially life-threating allergic reaction.
Unfortunately severe food allergies are becoming more and more prevelant. Until there is a cure, I would hope that we could all work together to protect the lives of children like our precious Miles."
I was then going to add links to some web pages with further information and perhaps the In Memory page here to really bring it home.
Is this appropriate?
Thanks guys!!
Jaleh

Posted on: Tue, 06/06/2006 - 5:11am
milosmom's picture
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Joined: 05/30/2006 - 09:00

FYI-
I am the worst speller.

Posted on: Tue, 06/06/2006 - 12:37pm
luvmyboys's picture
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Joined: 05/25/2006 - 09:00

Milosmom, BTW I took my letter from other dr letters for 504's on this board! Don't give me the credit =) Sounds good. One more possibility, I seem to remember reading somewhere an effort to reduce use of foods as rewards in school, perhaps due to obesity? I know our school is moving in this direction. Maybe you could find some 'official' study recommending this to give other support for reducing food rewards...just thought that might help since you seemed to think this would meet with resistance. Isn't crazy how much food they always seem to be shoving at kids??? DS's preschool sunday school seemed to be BASED on food and they considered chocoate a necessity 1 week...fogive me but I don't seem to recall Jesus eating much chocolate!LOL!
Luvmyboys

Posted on: Tue, 06/06/2006 - 10:45pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

I like it.
Question: you make only one request that I see, right? (i.e. crosswalk rethink offering candy). Is that the only change you want? Or do you have more?

Posted on: Tue, 06/06/2006 - 10:54pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by milosmom:
[b]. . . but I feel like if I can impress upon them the severity of the allergy and it's not just me be a freak that it will give them pause, and my son will be safer as a result. [/b]
Maybe you could achieve that by attaching a recent credible newspaper/magazine article about food allergies? That way it isn't "you", but rather the experts who emphasize the serious nature of PA. You might want to review the "Media" board to find one that would suit this purpose?

Posted on: Wed, 06/07/2006 - 12:12am
milosmom's picture
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Joined: 05/30/2006 - 09:00

Gail-
My requests are that there be someone on hand to give the epi pen as right now it's not their policy, and that they stop giving out candy, at the very least, nut candies. I can't stop them from serving nut muffins and things like that in the cafe as they are for the adults too.
I am sending them a few links to various sites so that it also comes from the experts and not just me- in case they write me off as neurotic.

Posted on: Wed, 06/07/2006 - 8:49am
Chicago's picture
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Joined: 04/21/2001 - 09:00

I think it is a good email with the right sort of "tone", but like Gail I was a bit confused about exactly what your requests were. Maybe state those two things (Epi and no nut candies) up front as your requests and then follow up with the text you have.
Good luck.

Posted on: Sun, 06/18/2006 - 3:11pm
milosmom's picture
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Joined: 05/30/2006 - 09:00

I took everyone's advice in wording the email- (thanks!) and actually heard from the nursery director this morning. She said they had a meeting regarding their policy. They can not force a volunteer to administer the epi-pen, if someone is on hand willing to administer it then fine otherwise we take our chances. So our way of dealing is to ask the volunteers if they are willing to take on the responsibility and then show them how to do it.
They will not stop serving peanuts or peanut products downstairs. No further explaination. I was annoyed but I figure he's okay in his nursery right now and we are moving in a month or two so I will just leave it at that.
I do know the director mentioned that there were two other kids who had inhalation reactions. I pray that their parents will continue to work to change policy to protect their kids.

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