need help from sesame allergic families!!

Posted on: Mon, 01/12/2004 - 12:23am
mary beth's picture
Joined: 01/10/2004 - 09:00

(aka Juliasmom) As I posted, we just found out Julia is also sesame allergic. I saw in responses to my reaction story that some kids are airborne sensitive to sesame. Julia seems to be one of these. My questions: 1. the test came back positive for sesame seed, class 2 which doesn't sound so bad, but her airborne reaction makes me feel like it's rather severe. Is that an appropriate correlation?? I know with PA, being airborne sensitive seems to correlate with severe allergy. 2. Could any of you kind souls give me input on where you found unexpected sources of sesame? I need to educate myself quickly! Thanks everyone! Mary Beth

Posted on: Mon, 01/12/2004 - 1:26am
MJMD's picture
Joined: 07/18/2003 - 09:00

Hi, Mary Beth -
We have been avoiding sesame for about 6 months now, on advice of our allergist. I have a 3 year old son who is PA/TN. I also have a 16 month old son who we're treating as if he's allergic. At our last visit, our allergist told us to avoid sesame & coconut for a few years because their protein is so similar to the peanut protein. The only places I've really found it is in crackers & some breads. I avoid some manufacturers who make sesame products b/c I've found sesame seeds cross-contaminated in their other products, like bagels. Unfortunately, there aren't too many mfrs. who label warnings for it, but I have seen it on occasion. Good luck!

Posted on: Mon, 01/12/2004 - 3:19am
Anonymous's picture
Anonymous (not verified)

I developed my peanut and sesame allergies at the same time - as an adult. Personally, I find sesame harder to deal with, partly because not as many companies label for cross contamination (some do), but also because of the kinds of foods cross contaminated. It tends more to food staples that I have difficulty making.
I have not yet found a bread company that does not run sesame seeds on their bread and bun lines where I live. (Atlantic Superstore is the only one I've found, but can't buy it where I live.)
granola (bars)
these are foods I can think of immediately that you need to check with the manufacturers to find out if there is a risk of cross contamination.
I have recently found that I can eat Christie crackers (in Canada) as they do label for cross contamination. Check them out in the US.
You also have to be careful of chinese food as sesame oil is very common.
And pizza places. Many use sesame seeds on crusts or bread sticks.
I don't eat in restaurants any more as I was always having reactions. And I do have ana. reactions even to trace amounts of sesame seed.
My best advice is buy a bread machine. Even if you don't usually bake, just follow the directions -- everything goes in the pan, plug it in, push a few buttons, and the machine does the rest.
I also avoid ready made pies -- but that's as much because of pa as sesame. I haven't actually called companies to check on the safety, I just don't eat them anymore.
Also, there are quite a few threads on the board about sesame seed allergy. Try doing a search in Main, Recipes, and Off Topic. You may find more information than you can handle. (People here are sooo helpful [img][/img] )

Posted on: Mon, 01/12/2004 - 4:02am
momofjen's picture
Joined: 10/07/2002 - 09:00

My 6 year old DD is PA, TNA and Sesame Allegic. As time goes by, I am beginning to think that the sesame allegy is the hardest to deal with. We have recently started to avoid anything coated with bread crumbs. I have yet to find a comercially made bread crumb which does not have sesame seeds in them. So, watch out for chicken nuggets and meatballs. Also, keep an eye on sauces, especially BBQ.
Good luck!

Posted on: Mon, 01/12/2004 - 4:53am
solarflare's picture
Joined: 02/07/2002 - 09:00

My Jason is allergic to peanuts and sesame (among other things)... I don't have to worry quite as much about baked goods because he's also allergic to wheat and oats.
The sesame allergy is only a problem for us at burger joints, and with Japanese food. Being in a Japanese-American family and having a sesame allergy is a real trial.
Cheryl, mom to Jason (6 PA/TnA/other FAs and EAs),Joey (4 NKA) and Allison (1 suspected milk allergy)

Posted on: Mon, 01/12/2004 - 8:29am
Sandra Y's picture
Joined: 08/22/2000 - 09:00

Mary Beth
I don't think the allergy test is a good indicator of how sensitive a person will be to any food, and especially sesame.
I read an article that explained that the blood test is not very accurate with sesame allergy, and that in fact there are some people with sesame allergy and it won't even show up in a blood test. If I can find that link I will raise it, but right now I can't remember where it is.
My son tested class 2 for sesame when he was about 2 years old. We had him tested again at age 7 and he's now class 4. However, he has never had much reaction to sesame and he is around it a lot, though of course he doesn't eat it.

Posted on: Mon, 01/12/2004 - 12:13pm
Sandra Y's picture
Joined: 08/22/2000 - 09:00

Mary Beth,
This is the article I was talking about. It has good info and is not overly technical.
Also, I mis-remembered what the article says about allergy testing for sesame. It specifically says that skin prick tests are unreliable for determining sesame allergy. But it also goes on to say that anaphylaxis to sesame can occur even without an "IGE-mediated mechanism." I take this to mean someone could react to sesame even if a blood test doesn't pick up on the allergy (blood tests are supposed to identify IGE responses to allergens). In any case, this author considers allergy testing generally unreliable when it comes to sesame.
[This message has been edited by Sandra Y (edited January 12, 2004).]

Posted on: Mon, 01/12/2004 - 12:24pm
Anonymous's picture
Anonymous (not verified)

Sandra, that article looks interesting. I'm printing it off to read later. [img][/img]
As someone else mentioned, bread crumbs are also a risk of cross contamination (labelled or not). And check anything breaded, chicken, fish, etc.

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