My sons bad reaction this summer (very long!!)

Posted on: Tue, 04/18/2000 - 4:56am
ihatepeanuts's picture
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Joined: 04/08/2000 - 09:00

My son (4

Posted on: Tue, 04/18/2000 - 8:14am
DMB's picture
DMB
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Joined: 02/22/2001 - 09:00

pWOW!! What an experience! I read your post on the introduction board that mentioned you had posted your peanut exposure on this board. My son just turned 3 and has been PA since he was 12 mos. We've never had to use the epi pen yet (just one trip to the ER before epi pen was prescribed) and hope we never have to. It's so good that you understood enough about the reaction to administer the epi pen and probably save your son's life. I'm also glad that you don't have that kind of food in your house anymore. That is the one place where I feel my son is "safe" since our house is peanut-free and we are extremely diligent about reading each and every label on the food that we bring into the house. It sounds like you already have a lot of experience in the "peanut allergy" department but I'm still learning everyday just by reading these boards. There is so much information out there so if you have the time--keep reading! Good luck!/p

Posted on: Tue, 04/18/2000 - 11:08am
andy's picture
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Joined: 04/26/2001 - 09:00

pHi i hate peanuts. What a great name. It helps you to tell us of your experience and it helps all of us to know there are others that share the same problem as us. I hope you never have a terrible night like the one you described again. Good for you for using the epi pen. Andy/p
p------------------/p

Posted on: Tue, 04/18/2000 - 11:50pm
Hope's picture
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Joined: 07/29/1999 - 09:00

pHi...br /
Thanks for telling us about your experience...it really does help to hear how other people handle reactions and at what point they make their decisions. It has shown me that we all know our own children best.br /
I am curious...now that you have administered the epipen once..do you think you will be less anxious the next time? (I pray you never need it again!). I think we all have this love/hate relationship with the epipen. It is a necessary thing to have around..but using it seems so intimidating! I have only used an expired one in a grapefruit before (to try and see what it would be like). We have another expiring this month and it is my husband's turn to try it out!/p

Posted on: Wed, 04/19/2000 - 1:51pm
ihatepeanuts's picture
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Joined: 04/08/2000 - 09:00

pHi again Hope: Yes, I hope and pray we neverbr /
have to use the epi again but if we do I willbr /
feel like I know what I am doing and maybe it won't be so scary (I think). I have hadbr /
the epi-pens since he was one year andbr /
was always soooo afraid about having to usebr /
it. I would ask the allergist at everybr /
yearly checkup how I would know when to usebr /
it or if I should wait...Especially when hebr /
was smaller I was so afraid because his legsbr /
were so small! I would put the trainer upbr /
to his leg and pushing it seemed like Ibr /
would be hurting him and I always thoughtbr /
that a needle would go right into his bonebr /
or something. As you can see I was prettybr /
panicky about it. When this episode happenedbr /
I knew this could be *the biggy* (a reallybr /
bad reaction) because it was peanut. Thisbr /
was his first and only reaction to peanut.br /
His other bad reaction was to egg andbr /
fairly milder reactions (hives, sneezing...)br /
were from wheat and dairy. So, Benadrylbr /
always did the trick. I knew that if Ibr /
didn't use the epi-pen that he maybe couldbr /
die. I remember this as if it were yesterdaybr /
because it was the scariest thing that hasbr /
ever happened in my life. I almost hesitatebr /
to mention this, because it may make me soundbr /
really bad, but I will: when I took my sonbr /
out of the shower and his lips were swollenbr /
and his body was popping out with the hives,br /
I told him I had to give him his shot. Hebr /
immediately began crying and I took thebr /
trainer out and used it on my own leg andbr /
told him that it really didn't hurt thatbr /
much. Terrrible isn't it!!? I was panickedbr /
and didn't know what else to do and therebr /
was so little time to think. I sat him onbr /
my lap, put the real epi-pen against hisbr /
leg, closed my eyes and pressed it in likebr /
you do with the trainer. I knew it went inbr /
when he started screaming loudly. Ofbr /
course then you have to hold it in for abr /
few seconds, so I just held him tight. Thebr /
doctor at the ER, after getting over hisbr /
amazement at our having and using the epi-pen, said they have no idea what the reactionbr /
or outcome might have been if I didn't givebr /
it to him. I know for my son that reactionsbr /
with dairy, and maybe egg (depends on howbr /
much) can be handled well with Benedryl. Ifbr /
it ever is a peanut I will *immediately* givebr /
the epi-pen. I still am always worried thatbr /
for some reason, the two epi-pens I havebr /
would be defective or won't work or something. But that's me; always seem to have to worry about something. But, I'mbr /
not as afraid to use the epi now that I knowbr /
I can do it. Sorry this reply is so longbr /
again. I really ramble on and on when Ibr /
type.br /
Tracy/p

Posted on: Wed, 04/19/2000 - 7:40pm
rilira's picture
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Joined: 11/11/1999 - 09:00

pTracy-/p
pReading your story makes me cry! WE have not had to use the epi so far. Thank God! I can only imagine what it must have been like for you. It helps to hear other people describing what it is like to actually use it on their kids. Thanks for sharing./p

Posted on: Thu, 04/20/2000 - 3:30am
MaryLynn's picture
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Joined: 06/25/1999 - 09:00

pI just wanted to say that it does not sound terrible the way you handled the situation. I had to use an Epi-PEn on my duaghter last spring and was unsure and needed the back up because I discharged the first through the grey cap into the air./p
pThe ER doctors were reat where we went and gave the oral steroids and a glass of juice to my daughter. They also told me that once an Epi-pen is use to call 911 and say that an Epi Pen has been administered as the Epi con last as little as 10 minutes and that you can crash coming off of it./p
pHow did your son do with the oral steroid at home? They make my daughter gag under the best of situations and she has to have ice or something else frozen before and after to numb her mouth./p

Posted on: Thu, 04/20/2000 - 11:24am
Nina's picture
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Joined: 07/18/1999 - 09:00

pWow, you guys! Thanks for sharing your stories. We haven't had to use the Epi-pen yet (knock on wood) but in the beginning (about a year ago now -- how time flies!) I dreamt several times about our son (now 2)having a reaction and in my dreams I always immediately used it. This has given me confidence that if the time comes, I'll be able to do it (although I, too, question if I'll really recognize it quickly). When our son had his first and only reaction they gave him multiple shots of epinepherine (in addition to Benadryl and steriods) to counter his reaction. He also had oral steroids for a couple days after which he handled fine. We have MANY Epi-pens just in case we screw up, they malfunction, or one or two aren't enough. It's so scary to think about using them but better to think about it and be prepared than deny it could ever happen./p
pTracy -- I noticed in another post you said you live in Wisconsin. Where? We're in Mpls/St. Paul area. ANy chance you're going to the Food ALlergy Network's conference in Chicago April 29? I'll be going and driving from here on Friday and planning to spend the night in Madison at my Dad's Saturday night before heading back on Sunday. Do you live along the way?/p
pStay safe everyone and be brave! Nina./p

Posted on: Thu, 04/20/2000 - 2:43pm
ihatepeanuts's picture
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Joined: 04/08/2000 - 09:00

pMarylynn: My son hated the steroid medicinebr /
(if I remember correctly). Actually by thebr /
next day he was completely fine. You neverbr /
would have guessed the ordeal he had gonebr /
through the day before. I think I was tobr /
give the steroids for like 3 days but by thebr /
3rd day we didn't finish. Maybe we shouldbr /
have but it really didn't seem necessarybr /
at the time. That is a good idea aboutbr /
eating something frozen before hand. I willbr /
keep that in mind. What do you mean aboutbr /
coming off of the epi-pen and crashing? /p
pNina: I live in a small town called Rosholt.br /
It's about 20 minutes NE of Steven's Pointbr /
which is about in the middle of the state.br /
It is maybe 2/p

Posted on: Fri, 04/21/2000 - 6:24am
Nina's picture
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Joined: 07/18/1999 - 09:00

pTracy -- I'll make sure to post after the conference. Take care, Nina./p

Posted on: Fri, 04/21/2000 - 1:28pm
MaryLynn's picture
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Joined: 06/25/1999 - 09:00

pWhat I was told by the ER dr. was that the epi could last as little as 10 minutes and the next reaction could be worse than the first...in my daughter's case her airway could become completely blocked without any other symptoms. Therefore we should be with a medical team that would have life saving devises./p

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