My allergist is refusing to prescribe epi-pen

Posted on: Thu, 03/14/2002 - 12:55pm
kmor's picture
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Joined: 03/14/2002 - 09:00

I just don't understand. EVeryone I talk to can't believe it. My daughter had a RAST test two weeks ago. She is three, she had skin tests prior for various things (not peanut we were just avoiding it). Finally I demanded a RAST test and I was told her results were Peanut -6, Milk -6, egg - 6, beef - 4, cashews -3, whey -5. I was told 6 was as high as it can be. When I asked about an epi pen the doctor said well since we don't know how she will react we'll wait and if she ever is exposed and has an anaphaltic (sp) reaction then I'll prescribe one. This doesn't make sense to me. I have benedryl with her at all times but I just don't understand why he won't give me an epi pen. Should I seek a new allergist?

thank you.

------------------
Kelley

Posted on: Thu, 03/14/2002 - 3:07pm
Nicksafe's picture
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Joined: 02/25/2002 - 09:00

I think you are absolutely right that your daughter should have an epipen prescribed for her and most on these boards would agree. If you look at the post below from Kami's Mom on outgrowing PA it says that Dr Robert Wood,who seems to be an expert in this field, says that every peanut allergy is potentially life threatening and reactions are unpredictable. It therefore follows that anyone with peanut allergy should have an epipen. If you consider your daughters other allergies it strengthens the argument. A different doctor sounds like a very good idea, the sooner the better.

Posted on: Thu, 03/14/2002 - 9:58pm
Jandy's picture
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Joined: 05/21/2001 - 09:00

kmor,
Maybe you can have her regular doctor prescribe one for her while waiting to get to see another allergist. I would be insistant on this-"I would like to be prepared for a life threatening reaction especially since my child is multiply food allergic. My comfort level in this regard for to have a prescription for 3 EpiPens"-
Maybe include in your request the info that one allergist has lost right to practise in field of allergy because he didn't prescribe EpiPen to a child who had tested positive to peanut and child later had a reaction. Legal lawsuit threats maybe quick way to get
action.
Take Care hope this helps,
Jandy
P.S.- my son to mult. food allergic too and we went almost 3 years from testing to get EpiPen. I just thank God thank one reaction didn't progress any worse than it was.

Posted on: Fri, 03/15/2002 - 2:03am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

YOWZA!!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]
CAP RAST class 6 means that (my understanding) your daughter has essentially got a 100% chance of having clinincally relevent reactions to this substance. Since reactions are unpredictable, your daughter is a walking time bomb.
What possible harm does your physician see in prescribing a drug that you will only use if it is needed????
See another doctor or throw a screaming fit at the one you have. Mention malpractice if you think it will help. This is negligent behavior on his/her part. Ask him what will happen if her first reaction is anaphylactic? Doesn't he/she think that this might be possible?
Skin tests may be positive without any indication of clinical significance, and so can RAST- but not for peanut (anything above class 2 is highly predictive) and not at those IgE levels. (And ANY research article on that subject published in the last three years will say so very clearly.)
ACT NOW. NOW!!!!!!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]
"additing" my post [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I just had a GREAT idea. (Welllll... hear me out.)
I think you should call this allergist back and tell him that you want to set up a challenge in his office. That way everyone can "know what her reactions will be like" in a controlled setting where medical aid will be available. How about doing this for the milk as well, while he's at it? If he doesn't think that this is a good idea, ask WHY NOT? Point out to him that nobody will ever DELIBERATELY expose their highly allergic child, but that very few PA children make it more than a year or two without an exposure, and you'd like to know what you are up against. In other words, take his logic to its natural conclusion and hold him to it.
[This message has been edited by Corvallis Mom (edited March 15, 2002).]

Posted on: Fri, 03/15/2002 - 3:44am
Sandra Y's picture
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Joined: 08/22/2000 - 09:00

That allergist is unbelievable! And reckless! Talk to your regular pediatrician--ours gives us as many scripts for Epi-Pens as I want, no questions asked. And find a competent allergist. Good luck!

Posted on: Fri, 03/15/2002 - 4:45am
Kathryn's picture
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Joined: 02/17/1999 - 09:00

I would do two things: one notify the state licensing board that the doctor's knowledge in this area is incomplete and ask that they educate him [you should do this to protect yourself and others and they will handle the situation tactfully] and two, print out and give him this document that explains that he is wrong: [url="http://www.aaaai.org/media/resources/position_statements/ps26.stm"]http://www.aaaai.org/media/resources/position_statements/ps26.stm[/url]
Finally sit in his office and refuse to leave without a prescription for at least 2 pens. You are the patient and it is your right to be treated appropriately and to make informed decisions about how you want to be treated. He can advise but if that advice is contrary to accepted medical practice then he is unlikely to remain resistant.

Posted on: Fri, 03/15/2002 - 4:59am
wood145's picture
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Joined: 09/10/2001 - 09:00

I can not believe that your allergist wants to wait and see what kind of reaction she might get. I would get an epi-pen from the pediatrician and get a new allergist. I would also tell the allergist some of the things mentioned in the previous posts. Good luck. Karen

Posted on: Fri, 03/15/2002 - 6:52am
kmor's picture
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Joined: 03/14/2002 - 09:00

Thanks everyone, with the allergists lax attitude I was wondering if I was over reacting. I talked to my dd ped. this morning and she couldn't believe he wouldn't prescribe the epi pen so she gave me a rx and we picked them up this afternoon. Thanks again. I also am going to call the allergist and tell them we are switching and why.

Posted on: Fri, 03/15/2002 - 10:10am
cathlina's picture
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Joined: 06/29/2001 - 09:00

I have never heard of a doctor who won't prescribe an Epi-Pen if the patient has allergies.
Call you family doctor...mine always renews my Epi-pen prescription every year. You may need to make an appointment to get the prescription though.

Posted on: Fri, 03/15/2002 - 5:27pm
LaurensMom's picture
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Joined: 05/23/2001 - 09:00

So glad to hear you were able to get the pens. Still, I hope you'll still consider reporting this doctor. You are lucky to have this board to get information from. I'm concerned about the other patients this allergist "treats" like this.

Posted on: Sat, 03/16/2002 - 2:59am
hkymom's picture
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Joined: 11/17/2001 - 09:00

My first allergist said the same thing when my son was three. He figured as long as he was always by my side nothing would happen(what a joke) Well someone did feed him something one day when my back was turned. Guess what I broke the sound barrier getting to the ER. I got my epi pen that night from the hospital.
Do not listen to this doctor find someone that will prescribe the epi, we never know when we will need it.

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