Multiple food allergies & high IGe levels!

Posted on: Tue, 05/01/2007 - 4:12am
M. Mariano's picture
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Joined: 04/30/2007 - 09:00

Hi,

I found out that my 10 mo. old daughter has multiple severe food allergies, including penuts, eggs, milk and sesame. Who knows what else as they only tested the ten most common. Anyway, I've been REAL freaked out and on the internet since. O.k. her RAST test results are 11 to peanuts, 21 to milk, 21 to egg. From what I've been reading many allergies are not even a whole number- YIKES! This has me exteremley worried. My questions are...

1.) Is it less likely for her to outgrow the milk and eggs since her score is so high?
2.) What is the normal rate (or the range a number can drop in a year (if I keep her completely away from these foods)? Has anyone else experienced these high numbers?
3.) What is the RAST test scale? Do all Dr.s use the same scale? What score makes a class one, class two or class three allergy and so on?
Please help, any advice is appriciated as I'm getting only more confused from talking to the Dr. - Thank you! - Mindy

Posted on: Tue, 05/01/2007 - 4:23am
jtolpin's picture
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Joined: 05/28/2003 - 09:00

Answers to questions, first:
1)Generally, yes.
2)no normal rate and Yes.
3) scale goes from <.35 to >100
Forget class. Its meaningless.
Usually, the higher the score the less likely of outgrowing.
Forget about outgrowing. Live life as if you think it's lifelong. Acceptance.
Caitlins got a handful of scores that are >100. Whats that mean? We avoid the food. period.
To avoid: peanuts/nuts, milk, egg, and sesame is ok.
Learn how to cook without eggs (bakin' without eggs cookbook). You have wheat and soy. You're golden. Read on, newbie.
I've spilled my guts this AM in another post. Read that one (my2girls). it goes for you too.
Welcome!
Jason
------------------
[b]* Beyond Obsessed * [/b]

Posted on: Tue, 05/01/2007 - 4:27am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

Quote:Originally posted by M. Mariano:
[b]Hi,
I found out that my 10 mo. old daughter has multiple severe food allergies, including penuts, eggs, milk and sesame. Who knows what else as they only tested the ten most common. Anyway, I've been REAL freaked out and on the internet since. O.k. her RAST test results are 11 to peanuts, 21 to milk, 21 to egg. From what I've been reading many allergies are not even a whole number- YIKES! This has me exteremley worried. My questions are...
1.) Is it less likely for her to outgrow the milk and eggs since her score is so high?
2.) What is the normal rate (or the range a number can drop in a year (if I keep her completely away from these foods)? Has anyone else experienced these high numbers?
3.) What is the RAST test scale? Do all Dr.s use the same scale? What score makes a class one, class two or class three allergy and so on?
Please help, any advice is appriciated as I'm getting only more confused from talking to the Dr. - Thank you! - Mindy[/b]
It sounds as though these numbers are probably RAST values of kU/L, which just give a concentration of the IgE, or allergen-specific antibodies, in your daughter's blood sample.
My recollection is that the numbers you've given are either class III or Class IV. It is almost certain, then, that this represents [i]real[/i] allergy. That's the bad news. The good news is that the milk and egg are likely to be outgrown sometime in the next four years. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
If you don't have a good, board-certified allergist, you should find one. Does your child have any other signs of atopy? (wheezing, eczema, etc.?) Does anyone in her immediate family have a history of allergy, eczema, or asthma? If so, it is likely that you will be dealing with environmental issues in another year or two. (Best to have an allergist that you can discuss things with.)
Also-- you need to have a frank discussion about treating severe allergic reactions. In a very young child, you will be below the wt. recommendation for an Epipen Jr. But you will need to have a means of giving epinephrine on hand with the results you reported for peanut and sesame. (These two are so unpredictable that it is best to be prepared for the worst.)

Posted on: Tue, 05/01/2007 - 4:34am
anonymous's picture
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Joined: 05/28/2009 - 16:42

A book I really found informative was Understanding and Managing Your Child's Food Allergies by Dr. Scott Sicherer.
As previously said don't worry too much about the numbers, but it is nice to hope and pray for a child to outgrow the allergy...my ds RAST score for peanut at age 4 was 8.20 and 4.29 for egg and because of his "lower" scores (even though they are considered Class III and High) I do hope and pray everyday he will outgrow them.
[This message has been edited by ccm'smom (edited May 01, 2007).]

Posted on: Tue, 05/01/2007 - 4:40am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

And slap a medicalert bracelet on your child.
[url="http://www.medicalert.com/home/Homegradient.aspx"]http://www.medicalert.com/home/Homegradient.aspx[/url]
That way, if you were ever incapacitated (by an accident or something) or separated from your child, she would have something to speak for her. (Since at 10 mo she isn't likely to be articulate for a while yet! LOL!)
More good news, though-- my daughter has worn her medicalert bracelet since she was about this age, and she is now 8 yo and feels naked without it. Sometimes older kids may resist wearing one. Early habituation has its benefits. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
My daughter's RAST scores for pn have never been as low as what you posted, but we've never expected her to outgrow that one.... I can say, though, Jason is correct. Allergic is allergic, and you're better off (emotionally) not gazing into the mists of time with longing for a day that may never come. DD [i]should[/i] have outgrown her egg allergy long ago. She has most definitely NOT done so. Until recently, her RAST values were less than 5 kU/L, she has had severe reactions from vanishingly small traces.
So, RAST number really doesn't matter, as Jason says.
The good news is that your child will not recall ever having lived any other way. Mine does not. So while [i]I[/i] may long for her to be able to have a bakery birthday cake, [i]she[/i] really doesn't care. Oh, sure, she's [i]curious[/i]-- but hardly 'haunted' by what she cannot have.
She no longer recalls being allergic to soy and wheat, which she outgrew when she was about 2-3 yo.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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