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Posted on: Thu, 08/16/2007 - 6:40am
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

I sent a pointed email, basically pointing out how we in the FA community have a hard enough time being taken seriously without "credible sources" spreading ignorant misinformation such as this. And what a slap in the face this would be to Sabrina Shannon's parents if they heard it.
I've been a long time member and supporter of FAAN, but this has me very disappointed.
Amy

Posted on: Thu, 08/16/2007 - 7:26am
abigailsmoma's picture
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Joined: 11/30/2005 - 09:00

Has anyone contacted AllergyKids.com? She has been all over the news. I wonder if she has made a statement.

Posted on: Thu, 08/16/2007 - 9:31am
booandbrimom's picture
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Joined: 08/23/2000 - 09:00

Quote:Originally posted by Luc's Mom:
[b] exactly! i was thinking even more broadly-- like some of the "go to" experts, like Sampson, Burk, Woods.. it would be great to get one of them to respond.. thoughts?
[/b]
Usually, the institutions they work for have regulations against this. They don't want their researchers involved in "political" issues. Public statements have to be approved by the institution.
I feel bad for FAAN in this situation. They are literally d***d if they do and d***d if they don't.

Posted on: Thu, 08/16/2007 - 10:21am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Quote:Originally posted by booandbrimom:
[b] Usually, the institutions they work for have regulations against this. They don't want their researchers involved in "political" issues. Public statements have to be approved by the institution. [/b]
Thats not entirely true- i'm a professor at an academic institution, and while our press office must approve any university press releases, I, as a faculty member am protected by "academic freedom"- which essentially means i am free to go on TV, speak to newspaper reporters, etc.. and say ANYTHING - EVEN if it disagree's with my institutions "party lines"..
unless their institution runs dramatically different than mine (which is a health sciences/medical school univeristy) any of these esteemed researcher/clinicians could contact MSNBC as well, write a letter, etc.. IF the wanted to.. (unless of course all three of them are testifying.. along with FAAN.. ;-)

Posted on: Thu, 08/16/2007 - 10:27am
Momcat's picture
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Joined: 03/15/2005 - 09:00

Quote:Originally posted by Gail W:
[b] He said that the public perceives this as a frivilous suit...[/b]
Well, gee... I wonder why? Could it be because no one is standing up to say that milk allergies can be deadly?

Posted on: Thu, 08/16/2007 - 11:28am
rebekahc's picture
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Joined: 12/02/1999 - 09:00

"...because the decision had been made that [b]FAAN would not gain[/b] from becoming involved in this particular incident."
Exactly - it's about them and not bettering things for the allergic community.
Rebekah

Posted on: Thu, 08/16/2007 - 12:05pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

I should clarify that I believe he meant that the collective FA community would not benefit if FAAN commented publically on her statements . . . He doesn't think that pursuing her statements would benefit 'the cause' (my words), and could actually harm the cause. I'm not sure I agree with that, but I understand it. It seems FAAN tries very hard to remain keep a neutral persona, tries very hard to work with the food industry (large companies, like Campbell's and McDonalds).

Posted on: Thu, 08/16/2007 - 12:47pm
rebekahc's picture
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Joined: 12/02/1999 - 09:00

Thanks for the clarification, Gail. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Still seems they're wimping out, though...
Rebekah

Posted on: Thu, 08/16/2007 - 1:19pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

I think so too.

Posted on: Thu, 08/16/2007 - 9:37pm
sheri277's picture
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Joined: 03/17/2004 - 09:00

I have come to the conclusion that ultimately it is our responsiblity to educate others on food allergies. And that society can say what ever they want(JOKES and misconceptions) and that there is no organization that is going to clarify things. How sad..... that again we are made to feel like we constantly have to explain ourselves and no powers that be stand up and say what was wrong. By the way I am am still ****** that MS. Filan hasn't at least responded to the emails.

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