More Questions than answers after seeing the allergist?

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I've post quite a bit lately, about questions I've had. I'll try to summarize my scenario. Over the past 2 years or so, I seem to have developed PA & TNA, though I didn't suspect it until about 6 months ago. I searched & came across peanutallergy.com, & I called & talked with Chris(who has been extremely helpful), & I talked with my primary dr.'s office & they set me up with a local allergist.

I had SPT & a RAST test, which both came back neg., but I definately have EA. I was positive to cats & dogs, dust & dust mites, & a lot of pollens & grasses....but in my opinion, who isn't really bothered by these things.

So, after my allergist test, I've been having accidental reactions to things I didn't suspect. One of the foods I reacted to was peas. I broke out with hives all over my face. I had to take 2 benadryl to stop the itching & swelling of some of my hives.

I also have sever excema on the skin of my hands...so painful I'm to the point of tears some days. I called the allergist's office & asked to talk to the dr. but they just had the nurse call me. I told her that my skin was really painful & dry with severe painful slits & asked if the dr. could prescribe a cream of something to help me out. The nurse said kind of sarcastically, "you mean just for dry skin?" I said, "no, for my painful slits"

Is this typical for a dr.'s office & how they handle these situations? I also asked the nurse if I should talk with the dr. about my recent allergic reactions, & she said the next time I see her that I can talk with her. I just feel like they are not very helpful or understanding.

My reactions are getting stronger, longer, & more sensitive. I'm doing my best to avoid allergens, but I'm still learning & I don't feel like I have the support or concern of the allergist or their office.

My primary dr. is actually going to consult with his colleagues & go over my case & see about testing me for more specific allergens.

I'm sorry this is so long, I needed support from you guys & to vent a little as well.

Thanks.

On Dec 14, 2006

I also wanted to add that I'm using so many lotions & hand creams as they suggested, but they just don't help my skin at all.

Also the dr.'s office suggested crazy glue, which I've tried before, & I'm pretty sure that I'm allergic to it & glue on bandaids, as I break out in sores from the glue. I told the nurse I tried that & it made my hands much worse.

On Dec 14, 2006

I would change doctors because you should be able to speak to an allergist. There is no reason for you to be so uncomfortable. From what I understand they have special creams that can help you. For the time being I would try some olive oil (if you are not allergic to it) this is what I use when I have dry cracked skin in the winter. I don't know if mine is excema or just dry skin but when I get desperate for relief I use this and it helps my skin heal. But I believe that they have special cream I don't know if it is prescription or not. You can even call the pharmacist sometimes they can help before you get hold of a good doctor. I hope you feel better soon.

On Dec 14, 2006

All I will say is time for a new allergist. One that does not dismiss you ailments! You poor thing. I know how much a hangnail hurts I can't imagine the pain from your hands cracking. My neice swam since she was born and the chlorine made her hands crack and bleed constantly. She would put aquaphor all over her hands and sleep with gloves on. It helped her. Could you possibly be allergic to latex?

On Dec 14, 2006

Here is the eczema treatment our allergist told us to use for the kids:

Before bed, soak your hands in plain warm water for 20 min. Don't use soap. Pat them dry and right away apply plain (not scented) Vaseline to the eczema. Then on top of the Vaseline apply medicated cream (such as Cortaid if you don't have a prescription.) If the rash is infected you can also apply antibiotic ointment such as Neosporin. Then wear lightweight cotton gloves to bed (to keep the creams from rubbing off on your sheets). For itching, take dye-free Benadryl or some other over the counter antihistamine before bed. That way, it won't matter if it makes you a little drowsy.

Avoid using soap to wash your hands during the day. Switch to Cetaphil cleanser (or a generic version). After washing your hands during the day, apply a thin layer of Vaseline to the rash. Don't use regular hand lotion as it contains alcohol which is drying and colors and perfumes which are irritating.

I hope this can help you until you can see a doctor who can give you a good treatment plan.

Cathy

------------------ Mom to 7 yr old PA/TNA daughter and 3 1/2 yr old son who is allergic to eggs.

On Dec 14, 2006

You will need to avoid irritants oin your skin, so, dont handle raw meat with bare hands. or fruit such as tomatos, oranges, and if you have to peel a potato do it under running water.

Shampoo can irritate skin on hands, so wear plastic gloves when washing hair.

find a soap substitue.

Keep the hands clean and mositerize frequently.

This isnt a time for house work. any chemicals will really irritate, as will dust.

skin once inflamed and triggered can take 6 months to recover.

good luck. I have years of this sort of problem, and am in my normal bout of christmas eczema.

On Dec 14, 2006

Thankyou so much for your replies. I will definately do what you guys have recommended. I have been wearing lotion with socks to bed at night, & I'm just starting to switch to organic, less chemical hair products & I'm going to keep doing so until I figure out what's giving me hives outbreak on my face. I'm also wondering if the hives is a combonation of contact & systemic reaction. I still have slightly itchy hives & dry patches on my eyelids & face from suspected peanut exposure from DH. I'm not completely sure, but we're trying to figure that out.

Thanks again!

On Dec 14, 2006

H

[This message has been edited by onedayatatime (edited September 07, 2007).]

On Dec 14, 2006

The crazy glue is supposedly for helping to heal the the deep slits that I get in my hand. As crazy as it sounds, I've heard people say it before, so when the dr. said it to me, I thought that it just might work....NOT... oh, well. I will do what everyone here has recommended.

Thanks

On Dec 15, 2006

I think you would be wise to seek another allergist. I don't like that you don't get the information you need when you call.

As for the eczema, my ds has suffered with severe eczema since he was an infant. His skin has improved since we've gotten a handle on his environmental and food allergies. I also think his allergy shots have helped.

Many doctors recommend aquaphor, aveeno, vaseline etc. The petroleum based products including cortisone cream in petroleum base have always futher aggravated his skin. I have also seen where a product worked for awhile, then would start giving him irritation and hives.

I've posted about this stuff before, it is so good....Cutar from [url="http://www.Sumlab.com]www.Sumlab.com"]http://www.Sumlab.com]www.Sumlab.com[/url] It is a liquid that you can soak in. It works. We've used it for 3 years and he hasn't rebounded like with other remedies.

Also the creams that have worked are Acid Mantle, CeraVe and cortisone creams in cream base.

Also, some people with eczema benefit from short soaks in water followed immediately with cream and a cotton covering.

When ds was at his worst, the ped. kept telling me to limit baths to once or twice a week. Later I realized after visiting the dermatologist that short soaks followed with lots of cream actually helped add moisture to his skin.

Also, my ds takes omega 3 fatty acids called Coromega which are these packets that are orange flavored. I also believe this helps his skin.

I hope you can get things straightened out. Try the Cutar... [url="http://www.sumlab.com/Shop/psoriasis/cutar.asp?"]http://www.sumlab.com/Shop/psoriasis/cutar.asp?[/url]

[This message has been edited by saknjmom (edited December 15, 2006).]

[This message has been edited by saknjmom (edited December 15, 2006).]

On Dec 20, 2006

My eczema gets quite bad at times. My hands are the main issue, though sometimes it's a patch of skin under my eyes. Prevention is best, lots of cream (not lotion). Personally, I like Aveeno. When my skin gets awful---cracks so deep that you can tell they've split several layers of skin and they swell so much that I can't bend my fingers-- then it's time for medicine. Start with an over-the-counter cortisone cream. If that doesn't do the trick, talk to your general practitioner about Diprolene cream. It's a prescription-strength cortisone cream. It does wonders on my skin. Don't get the generic. For some reason, it doesn't seem as effective. When the skin around my eye swelled massively due to a patch of eczema in that area, the dr. prescribed Westcort cream (that reaction was triggered by something in a pet store. I touched only fish products, but it was something in the air. I could feel myself reacting as soon as I walked into the store).

PPs mentioned lots of great things. Another idea is to make sure the humidity level in your home is high enough. It can get very dry in the winter, and this dries the skin more. You may want to get a humidifier. After a shower, pat yourself dry and don't rub. That'll help keep in moisture, and put on cream as soon as possible after showering so you can seal in the moisture. Definitely use a non-soap cleanser with no fragrances, like Cetaphil.

If the general practitioner doesn't help you, I'd see a dermatologist. They know more about eczema than allergists do.

On Dec 20, 2006

Just wanted to tell you about a couple products that have worked for my DS with eczema . One is called Vanicream. I order through the Pharmacy, but it is not a prescription. The other comes from Bath and Bodyworks called "Too Shea" and it is the one with 100% Shea Butter only. These creams actually stop his itching. My DS has had a great year with his skin, and is just now starting to have problems. He takes really quick showers, and then we "lube" him up. The steroids do work, but burn if he has been scratching.

On Dec 20, 2006

FYI- shea butter is made from the shea nut tree-

On Dec 20, 2006

I'd check with your allergist if you need to avoid shea products- not sure if considered a "true" tree nut or if is more the seeds of a fruit-

On Dec 21, 2006

Wow....I knew that Shea Butter came from a tree, but never thought about from a nut... Thanks for the warning for others sake....in our case it has been a relief from the itching. There was a lady at work that brought in some samples of natural remedy products, and suggested that I use Shea Butter for my DS eczema. I didn't use her product because it really smelled and looked horrible and knew my young son would not like it. I wonder now if that could have been a good decision, because her stuff was not highly processed like the Shea Butter I buy at Bath and Bodyworks. In fact it was brownish/greenish in color and the one I buy is clear. Interesting.

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