More Newton news - mentions this site!!

Posted on: Sun, 04/11/2004 - 1:03am
StaceyK's picture
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"The Newton guidelines also have generated much debate on peanutallergy.com, a nationwide discussion board. There have been more than 100 postings in the last month alone.

"It's become very personal [and] I think this has gotten out of control," Karen Nacht, a parent whose first-grade son is allergic to peanuts, said in an interview."

[url="http://www.boston.com/news/local/articles/2004/04/11/reaction_to_allergy..."]http://www.boston.com/news/local/articles/2004/04/11/reaction_to_allergy...

If you read the whole article, it sounds like this issue has gotten really out of control in Newton. No wonder Jesse's Mom was so reactive.

Posted on: Sun, 04/11/2004 - 1:48am
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Quote:Originally posted by StaceyK:
[B"It's become very personal [and] I think this has gotten out of control," Karen Nacht, a parent whose first-grade son is allergic to peanuts, said in an interview."
[url="http://www.boston.com/news/local/articles/2004/04/11/reaction_to_allergy_guidelines_is_divided/"]http://www.boston.com/news/local/articles/2004/04/11/reaction_to_allergy_guidel ines_is_divided/[/url]
[/B]
You were saying, Pete?

Posted on: Sun, 04/11/2004 - 1:52am
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to quote:
"In 2002, the Massachusetts Department of Education became the first in the country to release suggested guidelines for protecting students with life-threatening allergies. The 76-page guide, on which Newton's guidelines are based, came after three deaths in the state within two years that were related to food allergies."
[i]The Massachusetts Document[/i].
to quote:
"The most recent case, in May 2001, occurred when an Amesbury middle school student died after eating nuts during class. The parents of the boy have filed a $10 million lawsuit against the town and the school district."
[i]noting.[/i]
off hand...........wonder if the MA document will figure in?
to quote:
"It remains unclear how hard and fast the guidelines will be, with most of the language using words like ''discourage" and ''request" rather than ''prohibit" or ''eliminate.""
[i]noting.[/i]

Posted on: Sun, 04/11/2004 - 3:56am
Anonymous's picture
Anonymous (not verified)

Stacey K. (and others), do you think it's a "good" thing or a "bad" thing that PA.com was mentioned?
I would personally have preferred that it not have been, not clear why (probably because I need more coffee or because my children have gone bonkers).
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sun, 04/11/2004 - 7:11am
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Quote:Originally posted by Alternative to Mainstream:
[b]Stacey K. (and others), do you think it's a "good" thing or a "bad" thing that PA.com was mentioned?
[/b]
don't know. You know what they say about pleasing people and time.

Posted on: Sun, 04/11/2004 - 8:29am
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Quote:Originally posted by StaceyK:
[b]"It's become very personal [and] I think this has gotten out of control," Karen Nacht, a parent whose first-grade son is allergic to peanuts, said in an interview."
No wonder Jesse's Mom was so reactive.[/b]
I wanted to point out that Karen Nacht [b][i]is[/b][/i] Jesse's Mom.
[This message has been edited by TOTBS (edited April 11, 2004).]

Posted on: Sun, 04/11/2004 - 8:53am
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I hope that all of you are are watching what is going on in Newton, MA with a helluva lot more than detached interest. Newton, MA, where I live, is one of the most socially progressive, hyper-educated and liberal communities in this country, yet the press is having a field day painting scenarios of conflict and division, punctuated by mothers crying over not being able to pack peanut butter sandwiches. If we (parents of children with life threatening allergies, not just peanut) can't make it here, believe me, we can't make it anywhere. I hope that all of you will follow what happens in Massachusetts and Newton -- and give it as much premonitory importance as gay families wishing to marry are viewing the current argument in Massachusetts around that issue. Next year, when you go to your school committees asking for food-free celebrations and the like, you will be able to note what has happened here and provide it as a prototype for changes that must be made to make children with life-threatening allergies not only as safe as they can be, but as included as possible in every aspect of school. If you want to hear more, first hand, from a PA parent working for these guidelines and against intolerance and small-mindedness, let me know, I'd be glad to share.

Posted on: Sun, 04/11/2004 - 12:43pm
Anonymous's picture
Anonymous (not verified)

Jesse's Mom, you said:-
you will be able to note what has happened here and provide it as a prototype for changes that must be made to make children with life-threatening allergies not only as safe as they can be, but as included as possible in every aspect of school. If you want to hear more, first hand, from a PA parent working for these guidelines and against intolerance and small-mindedness, let me know, I'd be glad to share.
Queer thing, or perhaps not, but my PA son is in his fifth year of school and that's what I've been doing for five years now - exactly what you posted above.
I have shared my experiences, which are vast and varied, with members here at PA.com and would like to think that they have been helpful (to some) and I have also received wonderful support, caring, concern, encouragement and information from other PA.com members when things have not been easy on our PA journey.
We're all here to help one another in one way or another, be it by leading or providing suggestions for those better equipped, for whatever reason to lead, and having "paved the road" in a previous community for my PA son, I personally know how both difficult and rewarding it can be.
I also know, when met with opposition (and it can rear it's ugly head, even after your child has been in school for five years), I have gotten great advice from fellow members here.
Currently, I have an Ontario Human Rights Commission complaint (I'm Canadian) to file against my son's school board, school, and staff members of the school.
Problematic with my activism, and also widely talked about by me, here, on this site, is that we are always moving. So, whatever strides I may make at one school have to be taken the next year again at a new school and are not always met with open arms.
I am sure that there will be many members who would love to speak with you about how you get things done to ensure the relative safety of your child while he is at school.
If you could find the recently re-raised thread re Fun Fairs under Schools, three years ago, I fought like he** so that my PA son could be included in an after school event - all food had to be "safe" etc. This year, when presented with yet another Fun Fair, but at another school, my priorities may or may not have changed and I'm willing to let the Fun Fair issue go (perhaps) given the dynamics of the school he's in now and given whether or not my son considers it an important event to attend.
There are many of us here, if not all of us, who have "paved the way" to some degree, so please don't negate us.
BTW, my son's name is Jesse as well.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sun, 04/11/2004 - 12:50pm
Anonymous's picture
Anonymous (not verified)

Jesse's Mom, and sorry, I spoke about me because I know what I've been doing since I learned about my son's PA and then became a member here. But just off the top of my head, I can think of 10 people on this board (members) that are extremely active and have been for quite some time regarding school and other *issues* regarding their PA children.
10 people just off the top of my head. And again, I do believe that each of us paves the way in our own way, there are varying degrees, some are met with less resistance, etc.
But again, when I sit back, I can think of 10 people that I personally admire for the work they have done on behalf of their PA children and therefore other PA children. That's just in one minute. Not too shabby IMHO.
And I'm not included in the 10, and again, I know what I've been doing for the past five years. I'm proud of what I have done. I'm also proud to be a member here where I have received tremendous support when I have been met with the unexpected (my PA son not being allowed to attend school this year for the first two days at a new school, same school board district, because of his PA - never thought I would see the day that would happen in my province, but it did, and funny thing, when I posted about it, then I began to here about other people in my province this was happening to).
You're obviously saying you're an asset. Stay with us a bit and you'll see that each of us are assets in our own way. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sun, 04/11/2004 - 8:41pm
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Alternative to Mainstream:
[b]Stay with us a bit and you'll see that each of us are assets in our own way. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[/b]
Well *said*, Alt to M. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by MommaBear (edited April 12, 2004).]

Posted on: Sun, 04/11/2004 - 9:13pm
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Jesse'sMom:
[b]I hope that all of you are are watching what is going on in Newton, MA with a helluva lot more than detached interest. Newton, MA, where I live, is one of the most socially progressive, hyper-educated and liberal communities in this country, yet the press is having a field day painting scenarios of conflict and division, punctuated by mothers crying over not being able to pack peanut butter sandwiches. If we (parents of children with life threatening allergies, not just peanut) can't make it here, believe me, we can't make it anywhere. I hope that all of you will follow what happens in Massachusetts and Newton -- and give it as much premonitory importance as gay families wishing to marry are viewing the current argument in Massachusetts around that issue. Next year, when you go to your school committees asking for food-free celebrations and the like, you will be able to note what has happened here and provide it as a prototype for changes that must be made to make children with life-threatening allergies not only as safe as they can be, but as included as possible in every aspect of school. [/b]
I *believe* I live in a socially progressive, [i]hypereducated[/i] and liberal community (I mean, how does one define "liberal" anymore?? [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]) I also *work* in one. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I don't feel such is that rare, IMPHO. I could be wrong. I live in a pretty *ordinary* area. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]
As I best recall, and my memory isn't *perfect*, postings *here* by a member who achieved a *plan* for their child that I [i]still[/i] *dream* of.
It involved a [b]*food free classroom*[/b] (but that was only a part of it). I thought: forest and trees. [i]"Why didn't I think of that??"[/i] In retrospect, maybe I was micromanaging so much, that I didn't see "The Big Picture". [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
I also keep in mind that even *I* feel a tinge of sadness at the thought of removing *food* from *social celebrations*. Maybe it's a *Greek Thing*. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] So if I request a *food free classroom*, I'll keep that in mind, even if only to give me understanding/empathy for those who *accomodate* my child.
That member, if I remember, and my memory could be inaccurate, worked *years* on that plan. They have also posted about multidisciplinary relationships/input/collaberation/thinktanking that not only helped *establish* such a plan, but [i]continue to motitor, intercept, and improve[/i] upon it. That member, and their family, as I recall, has even been pivotal in establishing further research related to PA.
Quote:Originally posted by Jesse'sMom:
[b]If you want to hear more, first hand, from a PA parent working for these guidelines and against intolerance and small-mindedness, let me know, I'd be glad to share. [/b]
Do you mean as in [i]a telephone call from Illinois[/i]? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I'm excited you are posting. Yes, your input, and experience, *to me*, would be invaluable. I hope you share. There is much to *share* here. I can *empathize* with what you are experiencing. Certain pieces wrt *my own situation* have fallen into place, some only in my mind, others [i]in reality[/i]. It's a process. Sometimes a long one. But then again, I'm a perseverative, can't put something down, type of person. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Disclaimer: I am not offering advice in any manner or form. Just recollecting and *thinking* out loud. My memory is not perfect.

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