Mom in Saskatoon looking for help

Posted on: Thu, 01/31/2008 - 9:48am
Momofgavin's picture
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Joined: 01/31/2008 - 13:25

My 9 month old son has just been diagnosed and I am overwhelmed trying to make our lives safe for him. Any other mom's living in Saskatoon that could offer some advice?

Posted on: Sat, 02/02/2008 - 12:10am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

Hi Momofgavin, just wanted to welcome you here. Sorry I am in Ontario but just wanted to recognize you. I know how overwhelming a new diagnosis can be.
My dd was ten months was ten months at her first reaction and shortly thereafter her spt. Try to remember that it will get easier to deal with after a while but at first its hard to see that. We all know where you're coming from.

Posted on: Sat, 02/02/2008 - 4:48am
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

Hi There... I know it is overwhelming.. But take one day at a time. My DS was diagnosed at about age 2. Maybe younger? when he was small it was easier because when we went out I would just take his food with me.. I kept my son on a pretty limited diet when he was first diagnosed. Did he have a reaction? I brought food for him where ever we went and wiped down the table when we went out side home. I would keep a little plasic place mat just forhim. He could put that on a table or whatever when eating. I does get easier.
Therese

Posted on: Sat, 02/02/2008 - 5:59am
Momofgavin's picture
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Joined: 01/31/2008 - 13:25

He had a reaction to contact from us kissing him, so it appears he's quite sensitive. It is overwhelming right now. I was planning on going back to work in April but we lost all of our daycare options because of his diagnosis, so we are now looking for in-home care. There are peanut-free facilities here but none of them take kids before 18mos and we are WAY down on the waiting list because I just started looking now. Another obstacle I've found is bread. All the instore bakery bread says may contain nuts, any brand that is for sure nut free?

Posted on: Sun, 02/03/2008 - 1:29am
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

Hi There again,
RU in Canada? I am inthe us.. We used pepperige Farm 7 grain and wheats bread. but we have no other issues with any grains.
I know I have read a brand of bread in Canada that people use that have nut allergies... you should lok through recent past posts.. I can't remember that brand name.
It really does get managable. They can exsist relatively normally. really, they can. Once you have system inplace that works for you it gets easier. It is really hard inthe begining because you are so scared. I know. But I have traveled with DS. we have been to Canada, on cruise ships to the Bahama's we have been to disney. We go out to eat a couple of times a month too. we Just tent to go to the same places over and over.. Find some local places and talk to them.
Therese

Posted on: Tue, 02/05/2008 - 2:02pm
blsdmom's picture
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Joined: 02/05/2008 - 20:01

Hi,
About the bread, I'm not sure how much time you have on your hands but, I have some yummy homemade bread recipes if you're interested. We make all our baked goods from scratch due to cross contamination. I think it tastes better plus the kids get involved. Let me know.

Posted on: Fri, 02/08/2008 - 12:37am
MommyOfTwo's picture
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Joined: 11/08/2007 - 09:44

Welcome! It can be so overwhelming at first but this is such a great source of info it really can help to make things a little better. I don't live in your area so I can't help you there but I do understand about getting the pa news when your baby is so young. My pa DS just turned 13 months and we found out about his pa at 3-4 months. Things have been seeming a little more difficult as he is starting to eat more table food and is so much more mobile. It can be scary but have faith you will get through it!

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