Losing my mind here watching my daughter after we out today. She was raking her tongue a little, and her stomach was obviously upset because it was rolling. She spit up a little, but she used to have some reflux problems that surface now and again if she eats too much or is nervous, etc. Has anyone ever had a middle of the night reaction? Do they wake up ahead of time and give you any warning? She just fell back asleep.
On Jul 9, 2001
Hi Doreen....I believe that although most reactions occur quickly, some progress slowly. When my son is showing symptoms close to bedtime, I make sure I stay up a few hours after he goes to sleep to monitor his breathing, skin appearance, etc. We always have a monitor on, but I never sleep well on these nights, even if he seems to be improving. For him to react in the middle of the night while we are sleeping and unaware is just about my worst nightmare. How has your child been doing?
On Jul 9, 2001
Well, she slept that night in our bed, and it was hard for me to get to sleep. I was concerned because the Benadryl I gave her didn't seem to help her. She could have eaten too much, but who knows. Her allergist called us today -- I called him but cancelled the call when she fell asleep. I told him she was fine, but he said those symptoms were legit and if there was any doubt to give her the epi-pen and bring her in. She woke up though. I think they would, but, then I thought "what if they don't?" Thanks for asking. It was good to hear someone else worried about this.
On Aug 18, 2001
Dale had a middle of the night reaction a couple of weeks ago. We had loaned our camping trailer out to some people who were visiting our church, after they left, I went in to check things out and I found some cookies inside that had a may contain label and a couple of packages of airline peanuts. I didn't let Dale anywhere near the trailer. I went in and cleaned everything thouroughly, then went inside, cleaned up, changed clothes and went to bed. This was about midnight. We went to bed, (Dale sleeps with us) about 2am I wake up to Dale clawing at me, with a croupy type cough. I woke up my husband and we started him on an albuterol treatment, then things got worse quickly, and we called an ambulance. At this point, I thought he was having an asthma attack, no hives anywhere. In the ambulance his sats were in the eighties, and he was given constant albuterol enroute. When we got to the hospital he was given epi and was fine within 30 minutes. I am still beating myself up for not recongnizing the reaction as anaphalactic, but this one was so different from his others. Our ped thinks maybe there was some residue left on me and that is what caused it. But this was definately a delayed reaction, and a wake up call for me. We now have six epis, and our ped says to give him epi regardless if he is having trouble breathing and there is any chance he was exposed.
On Aug 18, 2001
It's so mindboggling to me how such a small amount of "peanut anything" can create such huge and serious reactions. I'm so relieved to hear I'm not the only PA parent who checks their child's breathing every night and springs out of bed at the first sign of breathing difficulty.
A few weeks ago, I was out at our neighborhood BUNCO group game where the hostess had put bowls of peanut M&M's on each table. This being my all time favorite candy, I indulged- rather, over indulged- as DH was at home taking care of PA DD. When I got home, we were putting her to bed, and after having touched her on the arm (on my unwashed hands-What was I thinking?!), we noticed 2 hives on her arm, 2 next to her mouth, and one on her stomach, plus wheezing. Argh!!! We gave her Benadryl and all the symptoms went away, but like your testimonies, I slept horribly that night.
I hope and pray for a cure, a pill, an assurance that she will outgrow this horrible allergy!
On Sep 6, 2001
My son had a middle of the night reaction. He had gone to bed rather late after eating a pre-bedtime snack, like 10:30, and woke at 1:00 with the croupy cough and wheezing terribly. We gave the Epi-pen and called the ER. He was fine by the time we got to the ER.
NOW, we make it a habit not to give our kids things to eat at least two hours before bedtime, unless it is something out of a package that has already been opened and tried before (by my PA son). Doesn't matter if it is a brand we have tried before or if the label implies the food is safe. He has to have eaten from *that* package before or we won't have pre-bedtime smacks that night.
BTW, it was Oberto beef jerky he ate that night. He had never eaten it before. I called the company and there was apparently no nut or peanut products in it. Nevertheless, I don't buy beef jerky any more. C&N's Mom Alisa
On Sep 7, 2001
My son also had a wee hours reaction. Woke up with full body hives and one eye swelled shut. Benadryl helped but when the hives started again we went to ER where they gave him prescription antihistamine and steroids. Never did figure out what caused it.
On Sep 9, 2001
This is one of my worst fears, as well as one in a long car ride which we do frequently. She is only 2, so rarely away from my care. I'm glad to see that they woke up before their reactions. I would tend to think that if they don't feel good that there would be some warning. Glad to see no testimonials otherwise. Hope everyone is well from their reactions now!
By the way, to update from that night I wrote frantically, the allergist said I should have given her the epi and come into the ER. She was raking at her tongue and her stomach was heaving (she does this when she's constipated or has gas) -- did I tell you this before? The reaction (I believe it was one now because the whole week later she had green stools) was from a restaurant I called again and said there was no peanut products. Well, we're not going there again!
Thanks for the replies.
On Sep 28, 2001
okthis really confuses me here, I think we have been woken up like 5 times in my dd's (almost 2) life she would soundlike she couldn't get air through her throat, would be wheezing and that nasty barky cough, i took her to the ER 3 times and they always told me it was croup and one time they gave her a treatment, this was all before we even knew she was PA and now seasonal Asthama so how can you tell which is which? She scare me so bad a few weeks ago with this again and I wonder now if Ihad an Epi if I should have given it to her then or what???? Ok thanks
On Sep 28, 2001
I think you should speak to your daughter's allergist, but it is my understanding that wheezing is usually associated with asthma. Was it during the time of year that she seems to have the seasonal asthma? Perhaps some food that "may contain" triggered it, but, again, I'm sorry I'm not much help. You should probably ask your allergist. It's so hard to know. My pediatrician has even admitted this to me.
On Sep 28, 2001
Thanks Doreen, I am in the process of looking for a new allergist but can't wait til I do so I can ask about this! From the reactions that I read above they sound like what my dd went through but yes it did happen during the time of year that we can usually expect it to happen to! So hard to tell! I appreciate your help!
On Oct 2, 2001
Leahtard, I forgot about that croupy type cough everyone mentioned. That does sound like some of the reactions above. Thankfully, my daughter has not had any reactions that involved breathing difficulties, but my stepson had asthma, so that's when I keyed in on the wheezing. I think a lot of the PA children have asthma too. My daughter doesn't, but you know, I do believe you should talk to your new allergist, but even my daughter's allergist doesn't have all the answers. Unfortunately, nature takes its own course, and medical science can only do so much. Plus, it's hard to know when to be vigilant vs. paranoid (that was just in a different thread). I hope you get some answers.