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Posted on: Mon, 02/10/2003 - 1:15am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Cindy,
This is part of LauraP's post under the Schools forum titled Schools-Section 504 and IEP. I think this will answer your question better than anything I've said:
Section 504 of the Rehabilitation Act:
It's this law that most peanut allergic students will fall under. It's a civil rights statute and it protects your child from preschool through college. Your child is covered under 504 if two conditions
are met:
1. He or she has a disability as defined by statute: In a nutshell (no pun intended) 504 defines a disability as a physical or mental
impairment that substantially limits one or more "major life activities". Peanut allergy affects various body systems - cardiovascular, digestive, respiratory, and skin. BINGO. Definition met.
2. In addition to meeting the definition of disabled, your child also has to have a record of the impairment (at some point during your child's classification the school will want to see medical
documentation pertaining to the peanut allergy. When you are asked to provide this, make sure your doctor specifies what it is
your child is allergic to and the life systems which can be affected, the treatment plan, and specifics as to drugs to be utilized and dosage).
So. Your child qualifies under 504. What does the school have to do? They'll come up (with your input) with either a special ed
program (meaning a plan that meets the needs of your child) or in lieu of that a regular education program with related services.
Under 504 your child has to be permitted to participate in non-academic activities, which include things like lunch and field
trips.
What can't the school do? They CANNOT deny your child admittance. They CANNOT deny your child the right to participate in activities or services.
HTH,
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 02/14/2003 - 5:40am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Well, I faxed my request for Cameron to be covered under Section 504 to the Superintendent yesterday afternoon, and he called me @ 8:45 this morning.
To be honest, I don't know what I think of the conversation that we had. He did alot of questioning like how severe is his allergy (like that one cindy? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ), I said well all pa has potential to be severe, but if your referring to his past history of reactions he's had 2 anaphylatic reactions and several other reactions that when medication was administered, it subsided the symptoms, and kept them from being anaphylatic. Other questions such as what do I do now when he is around other children, well, he isn't around other children except here at home. What precautions do you take at home, now please tell me is I'm to sensitive, but this question just burns me up, the RN asked me in the meeting something similar by asking if I check his art supplies at home? Now maybe I'm too sensitive, but these questions to me are basically inquiring of my "neortic" behavior. Am I misinterputing their meaning?
Anyway, it ended the same way my meeting at the school ended and that was once I have the documentation from his dr's we can discuss things more.
OH, he also asked me if he'll outgrow this allergy, I told him that statistics are 20% do, but once there has been an anaphylactic reaction it kind of blows the hope out the window, he preceeded to tell me that when he was 30 something, his bottom lip swelled and his mouth was itchy, he went to the dr and they told him he was allergic to walnuts, they told him to avoid walnuts b/c next time his throat could close, THEN said the dr said but then again, it could have been a one time thing and may never happen again! Bull in my opinion, I don't believe the dr told him that, & if he did, he needs to go back to medical school, and besides, what was the reason for that story, that Cameron might not have another reaction and I'm over reacting.
I don't know, I might be too sensitive, I was real nice w/him, but know I'm looking at a fight, probably.
Thought I'd keep you all posted. And vent a little I guess
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 02/14/2003 - 6:55am
river's picture
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Joined: 07/15/1999 - 09:00

Lana, you're not too sensitive. These fools don't really believe it's serious and are trying to deter you from your decided course of action. Their passive aggressive questions and comments tell all. (Dealing with PA can be like suddenly being transported to planet Mother-in-law.) Don't let them get to you---they are obviously a notch below moron on the intelligence scale.

Posted on: Fri, 02/14/2003 - 8:24am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Hi Lana ! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I think you will be their teacher. And you'll do a great job, of course. I found for me that if I questioned our teachers/administrators motives I ended up going a bit coo-coo. They just don't know much about PA and are bound to ask some very stupid questions. The dialogue is what's important, and you've got that going. You'll be the one to keep them all on track, do 99% of all the thinking and work, and if you're lucky, they will take the ownership and all the credit!
Gail

Posted on: Fri, 02/14/2003 - 8:31am
joeybeth's picture
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Joined: 09/01/2006 - 09:00

lana: i also am offended when asked if we expect the same rules to apply at home. they do, of course, but it's none of the school's *%#& business. at home, you are present, medication is handy, you are trained to know how to administer the medication, you clean surfaces, there aren't hundreds of unwashed little hands touching your pencils, crayons, toys, etc.. there is no comparison at all. plus, you know your child and have the ability to sense when something is wrong. no comparison at all. joey

Posted on: Sat, 02/15/2003 - 12:34am
kelly01's picture
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Joined: 03/19/2001 - 09:00

Hi CamsMom:
Without hearing the tone of the question (as you did, so I certainly understand that your interpretation could be different) I would give the superintendent the benefit of the doubt. It is quite possible that he just wanted to get a feel for how you handle the situation at home. I know that when I used to teach Sunday school (I know, a far cry from a professional teacher!) I had a child with Down's Syndrome in my class. I wasn't sure how to handle things, so I talked to the parents and one of the questions (that was provided to me from a professional teacher) that I asked were how certain situations were handled in the home. The questions served to give me some insight on how to handle things in the classroom, as well as what type of independence/skills they were trying to build at home.
Again, I am not going to say that you are being sensitive, as I did not hear the tone of the conversation. But quite possibly the superintendent was asking this question for informational purposes only.
I think it is quite common for educators to ask parents about how various things are handled at home.
Hope things go well for you. I didn't get a chance to post before on this topic, but I wanted to add that I was SHOCKED at how the poorly the RN is handling this!
Take care,
Kelly

Posted on: Sat, 02/15/2003 - 4:44am
Anonymous's picture
Anonymous (not verified)

Cam's Mom, so you're basically still at square one? Just bloody lovely. Remember the last line of your post before the one about the phone call with the superintendent.
They do not have the right to deny Cameron admittance to the school. I'm sure that they're trying to figure out ways, but bottom line is they don't.
I'm not clear but do they think if they ask you stupid questions (about what you do at home), tell stupid stories (i.e., the walnut allergy - although the man may truly have been misinformed by an idiot doctor), you'll decide that Cameron should be "homebound" rather than continuing to have idiotic conversations with them?
I'm really ticked off right now, Cam's Mom.
I truly am.
Your call basically went no where.
I did read somewhere recently that it is a *good* idea to supply doctor's information to the school as well to show how serious your child's allergy. Apparently this is supposed to work for you (not against). I just can't recall where I read it, but it was probably here somewhere and in just a recent thread.
As far as both the nurse and the superintendent asking you what you do at home with Cameron, you know what? This is the part that almost ticks me off the most. [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]
What you do at home with Cameron and how you deal at home with Cameron's PA, to me, essentially is none of their business. Why?
Because you, his Mother, are in charge of him and his care at home and you do what you do to keep him safe. It is a totally different thing then sending your child into a school situation where you won't be there.
This is how I base that argument. When Jesse had his anaphylactic reaction at school in December month, I feel the school screwed up (pardon my language, I am angry), by not recognizing that he was having a reaction and not administering the Epi-pen.
However, when I, his Mother, got him home, I decided not to use the Epi-pen. That may or may not have been the correct thing to do, but I trusted myself and what I saw happening and took him to the hospital without administering the Epi-pen, something I never thought I would ever do.
Am I going to tell the school that I have the right to make this decision and they don't?
Of course not. I'm Jesse's Mom. I decide what's best for my son when he's in my care and I also have a written school plan in place to decide what I think is best for Jesse when he is in the school's care.
I think there are many situations whereby as PA parents we may act differently at home with our children than we would want the school to act with them (a quick example is not coming to my brain at this point [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ). I think you know what I mean.
If I was asked that question, I would respond that my emergency medical plan was the same, that we have a peanut/tree nut free home and "may contain" and "made in" free home and that there are two Epi-pens each time we leave our house.
I think the question was demeaning. Especially from the nurse re art supplies.
Yes, you check his art supplies. Yes, you check the labels on stuffed animals. Yes, you check cosmetic labels. Yes, yes, yes.
[img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]
What's the next step now?
I'm sorry, Cam's Mom, I don't know if me going into rant mode is even helpful to anyone but this just ticks me off big time.
Take care of yourself. Please know that you are doing the right thing. And please let us know what happens next. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Sat, 02/15/2003 - 10:26am
anonymous's picture
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Joined: 05/28/2009 - 16:42

River, I thought I was going to die laughing at your planet MIL comment, too funny.
Kelly, the tone of the Superintendant wasn't in a derogitory tone, I might give him the benefit of the doubt that his meaning was an educational reason, but still lingers in the back of my mind of the off the wall (IMO) story of the walnuts. Now the nurse was totally being a butt to put it mildly, she rubbed me the wrong way in the very beginning, she was in charge throughout the whole meeting (which is totally fine), she did most of the talking, and to me, was quite offensive I know everything attitude. But I will be trying to get along w/her for Camerons sake, and not be a butt myself (I've pretended to like DH ex for the kids sake for 12 yrs, I guess I can do this for 3 yrs, lol) [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] But her attitude and tone, may be the reason I was so offended at the Super's question. And Gail, I agree that they don't know anything about PA and here they are being hit with something that is totally bizarre to them.
Joey, All the little kids running around w/pb on them definately makes it a MAJOR difference to me.
Cindy, yes back to square one! Your post is exactly how I was ranting after getting off the phone..."What diff. does it make what I do at home, their aren't 200 kids eating pb in my house, and who is she to ask me if I check my art supplies at home, rant, scream holler, light a cig. and rant some more! Well maybe not all that [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I was upset though, and still am to some degree, but have decided to chill out and get the Dr's notes and go in there "armed", once I have that, I'm hopeful things will be different, of course I'm probably up for a let down again. But this is when I will be much firmer w/medical documentation. I just wished I'd had it in the beginning, so I wasn't sitting around wondering what is going to happen next!
And yes, I do have a much tighter comfort zone when away from home, it's just natural instinct IMO. But I will have to say, I fully believe that the other PA child attending w/o ANY protection including the epi, is the biggest reason for them judging my precautions. This really does make me look like phsyco mom from he**! (Cindy, had to use your adjetives they are the most appropriate description [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] )
BTW, I have to tell you guys that DH agreed w/Gail and Kelly (before you guys posted), he basically said the same thing, "honey, they don't know anything about PA, they are just trying to understand"
Well I appreciate EVERYONE's input, I do tend to get upset (and defensive) when I get worried that his PA won't be taken seriously. Guess we all do.
Thanks to all of you and I'll post back when I jump the next hurdle.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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