Meeting with School

Posted on: Thu, 02/06/2003 - 2:27am
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I had my meeting with the school yesterday. The principal, asst. principal, director of school services and the RN was in attendance.

First of all I need to clarify that I changed my plan from a pf school to a pf classroom and table. This decision was made by me mostly b/c I wanted to go in there with the most convenient and less threatening request. Not b/c of one particular person on this board, whom I hope refrains from posting in this thread.

The school (especially the RN) felt that these two things were unreasonable. They even thought the water fountain (taken from another plan here) was too much too ask. The plan stated "Child is not to use water fountain. Parent will provide a water bottle, to be used at the teacher's discretion." I told the nurse, that I thought that was one of the least accomadations being asked for. How can that not be controlled, when other students use the water fountain, he is to drink from his bottle.

Anyway, they will be talking with his Dr.'s, then we will reconvene to discuss things further. I brought the letter from his original allergist addressed to his previous peditrician, which stated "on a scale of 0-4 he clearly showed a greater than 4+ reaction to peanut antigen. Patient clearly has pn sensitivity, and this fits into his history that he might have had an anaphylactic reaction." This still wasn't good enough for them, they want his current allergist to say that the pf classroom and table are neccessary accomadations.

First thing this a.m. I contacted my state dept. of education and luckily the woman I talked to has a child with food allergies, and herself has anaphylatic reactions to shellfish! Anyway, before 11 am this a.m. 2 people from the state contacted me and are already in contact w/my school and are going to work w/them to accomadate Cameron, to what degree yet, I'm not sure, they said his safety his priority. I've talked w/his peditrician's nurse, and she said that his Dr. will back me 100%. I'm waiting on a return call from the allergist.

The asst. principal suggested homebound option, which they pay for a instructor to come to our home and teach him. I will concede to this option at a very last resort.
I did not tell them that, I told them I want him in school for the social learning aspect. They said that is definately your right.

Two things I want to add that helped me and hurt my efforts:

#1) The Proposed Management Plan that I took in was the biggest help to me and to them for two reasons, first I let them know that I did know what I was talking about, and 2) it gave details, although preliminary, of what I was wanting. For anyone starting out, this is the best tool you can take with you. Thank you so much for having this posted. I added and deleted things I felt were pertinant to Cameron's needs and my comfort zone, but the outline was wonderful!

#2) They have another PA child that is in attendance at the school...This child has no plan and no epi pen AT ALL. This hurt my efforts terribly, but I told them that every parent has different CZ and that I do not fault that child's parent for her's but I do want a plan for Cameron. Someone stated well her allergy must not be as severe, and the nurse said "well, she put a pb sandwich to her mouth and got very very ill, but we gave her benedryl b/c that is all she requires. Made me cringe that they all knew she was allergic and was still able to put her hands on a PB sandwich. The child thankful knew what she had done and she is the one who ran to the nurses office and alerted her to what happened. That scares the living day lights out of me.

The state is really on the ball with this, I have already spoken to them several times this morning and 3 of the calls were made by them, and just recieved another call from the Director of Health Services at the state and she has talked with someone that wasn't in the meeting yest. but is suppose to get back w/her once she has been updated. She suggested I go ahead a write a letter to the superentendant and request a 504 for Cameron.

I feel optimistic, yesterday I was so emotionally drained and let down. I didn't feel comfortable posting this info until today, b/c of the previous thread that went bad. Hopefully this one will not go in the same direction.

Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 02/06/2003 - 3:19am
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Lana,
I'm glad that you had your meeting, and that things didn't get downright ugly. I think it's great that the state is behind you and helping out.
As for going in with the "most convenient/least threatening" approach, that's what we went with - but with the full understanding of everyone involved that things might have to be changed if DS starts reacting to these 'compromises'. Have you left that door open for yourself?
I have to say that, once again, I'm amazed at the reactions of some schools. I guess it all comes down to the compassion of the individuals who 'run' the schools.
We are very fortunate, to put it mildly. We weren't questioned on anything, and the school is meeting and surpassing all our requests and hopes.
Hang in there - you're doing GREAT! I hope things get better soon. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 02/06/2003 - 3:38am
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Cam's Mom
HiCould I please get the contact #'s and names of the states persons you spoke to?
Has it may help Little V.
I will keep my fingers crossed and my heart goes out to you.Be strong.
I also am reguesting a PNand TN room for DD.
May be we can change thing here in FLa for all the PA/TNA childern.
Love this site
Synthia

Posted on: Thu, 02/06/2003 - 3:56am
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lana: i know this is just a detail...but i was wondering why they have a problem with you supplying a water bottle. please don't tell me it's because they "don't want the other kids to feel left out." water is water. i don't see what the big deal is with your child being allowed to drink his water from a different container than the others. it's not like you asked them to install a separate water fountain with your son's name on it or anything. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] maybe it's because they don't want to have to deal with keeping up with it during drink time?? i don't get it. also...you might remind them that if they had agreed to going peanut-free in the first place you might have been able to skip that detail. (or would you? ) i would think the water fountain would certainly be less risky if the kids were NOT consuming peanut butter at school (or other peanut-ty items) joey

Posted on: Thu, 02/06/2003 - 4:11am
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Cam's Mom,
Well, that first meeting is over with, anyway! You must be very glad about that.
I must say that initially I had to shake my head about the RN thinking that your proposal was too much... (and the ass't principal proposing the 'homebound' option seemed particularly horrifying to me!) but then it occurred to me that my kid's school really did a turn around about PA issues when a child 2 years ahead of my PA kid had a moderately severe reaction (exact cause unknown because he has multiple allergies) on the bus coming home from a field trip. It happened right near the school, so the bus just radioed ahead & there was an ambulance waiting when they got there. The principal had to ride in the ambulance w/ this kid & she changed her tune about PA after that. (Probably the mounds of paperwork she had to do on the incident -- I am guessing on that, but it seems likely -- had something to do w/ her change of heart too!) So you are probably completely right, that your school's experience w/ the other PA child has set their expectations about the severity of PA & how it "should" be handled. Maybe pressure from the state will serve as the catalyst for change & your administration will not have to wait for a serious reaction to see the light.
Anyway, congratulations for having done all your homework on this... your child will certainly be better off at school for all your hard work.
Anne

Posted on: Thu, 02/06/2003 - 5:11am
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Lam,
Thanks for the input on leaving the door open, I hadn't even thought of that, but will definately make sure that there will be an open door. And yes, I'm also amazed at peoples reactions, in this case, especially the RN's.
Synthia,
I'll email you the person you need to contact, if your email isn't in your profile, email me at [email]nopnutmom@yahoo.com[/email] and then I'll email you back w/the info. She is absolutely wonderful, and extremely helpful.
Joey, I have no idea what was so difficult about the water issue, she made the statement, while looking at my plan, "some of these things are just not going to be able to be done" I said "which things do you have a concern about?" She said "well, like the water fountain" I said "I think that issue is self explanatory, how is it going to be difficult for anyone, when the other children go to the fountain, he gets a drink from his bottle, the teacher should keep it, and only get a drink when everyone else is allowed." She didn't say anything else.
Anne, Thanks! And yes I'm glad it's over, it was nerve wrecking to say the least. Especially while waiting in the front office a staff member was walking around eating a snicker bar...My heart just sunk! That really put my shield up, and made me even more nervous.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 02/06/2003 - 6:02am
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Cams mom
Thanks very much for the E-Mail
I will give her a call fri.
Keep in touch.
Feel free to E-mail me any time
Stay strong.
Love this site
Synthia

Posted on: Thu, 02/06/2003 - 6:26am
California Mom's picture
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Lana, I'm really sorry to hear how things went with the school. I think you are asking for very little and it is quite disturbing that even the RN is not supportive. I'm very glad to hear, however, that you are working with the state and they are being helpful. Good luck! Miriam

Posted on: Thu, 02/06/2003 - 6:33am
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Congratulations on your success with your meeting!
It's awful that the other PA child's parents are so irresponsible, and it does thwart you in your attempts. But it still sounds like you handled it really well so I'm sure they'll take you seriously.
About the water bottle---last year a boy in my son's class, (not PA) used to carry a water bottle around his waiste, (he was a constant drinker.) I asked him where he got this bottle and he said at the Boy Scout store.
Whewww! Another hurdle jumped---pour yourself a warm bath Lana.

Posted on: Thu, 02/06/2003 - 11:51am
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Synthia,
No problem w/the contact info, please keep me posted as to what Diane tells you, feel free to email me or if you prefer you can just post it.
Miriam and River, thank you for the replys and it is a shame that another PA child is without a epi-pen, that is truly scary, maybe after he starts school, if everything goes good, maybe it'll make her more aware, I'm hoping anyway (for the girls sake). I hope the same situation doesn't happen like Anne posted before they will take things seriously and understand.
And River, I've opened me a nice cool wine cooler (first alcohol I've drank in 5 yrs, ought to be interesting, huh? [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] ) But I felt like I could sure use a good relaxing night!
Hopefully I can contribute back to this board what it has given me.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sat, 02/08/2003 - 10:04am
Anonymous's picture
Anonymous (not verified)

Simply re-raising so I can read later (otherwise, my mind will go blank [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] )
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sat, 02/08/2003 - 10:38am
Anonymous's picture
Anonymous (not verified)

Cam's Mom, I'm pleased to hear that your meeting with the school went well (or fairly well). [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I don't understand what the issue about the water bottle is either. The water bottle is something that I learned from here, from rilira's 504 Plan that is posted on the board. Jesse attended school safely for JK and SK without his Mother (me [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ) even having thought about that.
It was in reading rilira's 504 Plan that I thought, OMG, I didn't even think about the drinking fountain. That's why it's now included in his written school plan and it makes total sense. But again, the things that you can possibly not think about until you've looked at someone else's plan.
(Total aside - I remember my Mother telling me not to drink from water fountains at the school because someone could come up from behind me and smash my mouth into the drinking fountain and I would lose my teeth - was that enough to scare the bejesus out of me so that I never used a water fountain at school? Yes! Unless I looked around and saw that the hall was totally empty. Can you imagine a Mom telling her kid that? I don't think she realized the serious psychological repercussions it would have on me! [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] )
Does this mean that you will now go ahead to have a 504 Plan put into effect?
Things are so much different and from what you wrote, so much more difficult than it is here, in Canada. I have never had to provide a doctor's letter to Jesse's school giving them test scores on the *severity* of his PA.
The only thing that I had to have the doctor sign off on was the emergency medical plan which I wrote out and had the doctor sign. He just read the thing. I didn't have to prove to the school that Jesse was PA and that his reactions were anaphylactic. Of course, if I had had to do it, I would have, but it's just interesting that I didn't have to. It seems as though you have a lot of hoops to jump through to simply get your child into the school system. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
As far as the other PA child and the instructions that the school has been given regarding her care - well, this is where I find things can get kinda weird. I know that when I was in Stayner, Jesse was the only PA child in the school at the time, when he entered, and I kinda wished there was another PA child in the school and another PA parent to talk to. By the time we left Stayner, I think the number was up to 4 or 5 PA children in the school. I had paved the way and the school was "reduce the risk" just as we were leaving that town.
Jesse does have another PA child in his school, in Grade 1. When Jesse had his anaphylactic reaction at school in December month, I went over in the afternoon to review his emergency medical plan because basically I knew they had screwed up big-time (although I never followed-up on this with anyone). I happened to see the emergency medical plan for the other PA student (I am great at reading upside down, a great thing that one of my boss' taught me along the line) and no wonder I look like Psycho Mom from He**. She is also allergic to bee stings.
I do know that I posted about it here and what the exact wording was, probably in Jesse's reaction thread. I don't really want to mis-quote, but for a bee sting it was something like, give her Benadryl, call Mom.
If she INGESTS peanuts, administer Epi-pen, call Mom.
So, you can see where, if Jesse could have an anaphylactic reaction to residue (which I believe he did) and the school doesn't really understand because for the other PA child they only have to take it seriously and administer an Epi-pen should she INGEST peanuts. Just great.
Of course, I recognize that it's another PA parent's comfort zone, just as the Mom with the TNA child has a totally different one than I do. He is in Jesse's class. And again, I would look like Psycho Mom from He** with the requirements that I do have for the school.
Cam's Mom, to tell you the honest truth, I would LOVE it if Jesse was in a peanut free school. I would love a peanut safe school. I would love a reduce the risk school. I have to admit that it is the ONLY thing I miss about living in the other town. I had worked so hard and banged my head against the wall so often with the principal there and we finally seemed to click and get it together enough that we had a "reduce the risk" (what a great catch-all phrase that is) school and I moved. But, as I said, I did help other parents with PA children there.
On the flip-side, if Jesse is able to navigate through his school years (and only up until Grade 8 anyway) with a peanut free classroom only, perhaps that does show us parents more that our children can move around in this world safely. That is, if they don't suffer a reaction along the way.
Now, as I posted, I do believe Jesse suffered an anaphylactic reaction at school in December month from residue. I don't think that he has a newly developed sesame seed allergy. That's why I'm not rushing to get the allergist referral.
So, where do you tighten things up? The principal of his school had asked me to look over another school's policy re peanut allergic children in the school, but I'm not clear now whether this was before or after I was accused of harrassing Jesse's teacher.
I also think that because the principal is new at the school, she's trying a whole lotta new things (like the breakfast program I'm running) and some things aren't going to fly in the community whether she wants them to or not. So, I can certainly go over the policy, which I believe is for a "peanut safe" school (I really want to post it here - it is quite lengthy, but good), but why bother if she's really not going to do anything with it anyway? Do you know what I mean?
You obviously made the correct choice is going in asking for less. If the RN got wigged out about your son having his own drinking bottle (and I still can't wrap my mind around that one [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img] ), then can you imagine how she would have reacted had you asked for (and our asking always *seems* like demanding) a peanut free school.
I realize now that I had posted earlier to-day in your other thread when you really didn't need any further posts in it. Perhaps the links re peanut free schools, etc. can be useful for other members of PA.com. That's the great thing about posting information here (and I hope you post your plan for Cam as well [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ). We all help one another out.
The thing I couldn't understand about your other thread is, you were asking about peanut free schools. If another PA.com member doesn't agree with peanut free schools or peanut free classrooms, for that matter, can they just kinda avoid the thread and go on?
I know there was one running under Schools a few months ago where my two cents worth would not have mattered because it was about children not in a peanut free setting and asking how it was working out. Well, I can't answer that question because I'm not in that position. So, why bother entering the thread? Do you know what I mean?
It's like anything else on this board. If someone posts about something that I know nothing about or can contribute no support, caring, encouragement or information to the thread, what is the point of me posting a reply at all. I compare it to watching TV.
I don't know.
Please keep us posted on how this continues to go. It just sounds really positive right now and I am really pleased for you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sat, 02/08/2003 - 11:58am
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Cindy,
The thread you re-raised for me was indeed a very comprehensive plan, and a wonderful one to say the least! Oh if I could only get a portion of that plan, what confindence I'd have. They seem to really care about there students.
I don't understand the water issue either, was reaching for whatever she could in my opinion. I also forgot too mention that when reading the part about the art crafts, and that I need to inspect each of them to make sure they are free of pnut protiens/oils, and that they need to replace old with new ones at the beg. of the year in case they are contaminated...She had the nerve to ask me if I check all of his art supplies at home...That infuriated me, big time! I said I most certainly do, along with shampoo, lotions, shaving cream, you name it it's checked...I wouldn't be asking you to do things I don't do for my own son. That and the water bottle comment really sent me over the top.
Monday I will be faxing my letter formally requesting that Cameron be covered under the 504 to the Superintendent of the school. The lady at the state level advised me to this ASAP, and that way this issue CAN'T be put on the back burner, which she said could always happen with FCAT Tests and spring break coming up.
The thing about the Dr's approval of the request I made were perplexing to me also. I even brought the letter the allergist which diagnosed Cam and did the testing on. This letter was addressed to his pedi. and stated what his scores were and that he had an anaphylatic reaction. They didn't even attempt to read it. So they are just, IMO, stalling so that they can talk w/district level administration and probably their attorney. I say this, b/c they knew I had obviously researched my legal part of this. I may have intimidated them, but oh well, I went in there prepared, and they weren't expecting what I was asking for. The word "homebound" was used a couple of times, and if he is definately inhalation reactive, then they said he definately needs to be homebound.
Friday I faxed his pedi. my letter, which was very detailed to what I needed and the request I've made to the school. Which was outline of RhondaS letter (which was great Rhonda, you are wonderful!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ) I included the Proposed Emergency Plan with it and asked him to review and approve it. I am not signing a release for them to speak w/Cam's Dr's b/c the way the RN is being, she may take what she wants from his dr and leave out what she wants, whatever benefits the school.
I completely understand your view on not posting in threads. And not only that, the topic wasn't even requesting whether I should or should not ask for a ban. Oh well, go figure!
Thanks Cindy for the info, I'll keep you posted.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by Cam's Mom (edited February 08, 2003).]

Posted on: Sat, 02/08/2003 - 3:15pm
Anonymous's picture
Anonymous (not verified)

Cam's Mom, it's really late and I may have mis-read something that you posted above. Are you saying that if your son is inhalation reactive that even if covered by a 504 Plan he would not have the *right* to attend the school?
I don't understand. My best friend's son is airborne reactive, covered under a 504 Plan, and now, finally, after having to leave school last year for a few months, successfully in school in Michigan.
What about all of the other members here, in America, who have children that are airborne reactive?
I'm really confused [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img] Sorry. I know you don't really need my confusion, but this does baffle me.
From what I understand from the policies we have here in Ontario, anaphylaxis is anaphylaxis and it doesn't matter if it is caused by ingestion, contact, or inhalation.
My child still has the *right* to attend school in this province and he still has the *right* to a "peanut free" classroom.
I have never heard that someone could be denied entry into a school, with a 504 Plan in place, because they were inhalation sensitive. Would they be saying the same thing to you if you son was contact sensitive and not inhalation sensitive?
Very strange and also very sad. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
I think the other thing that bugs me about this is that we never know when our child may or may not become contact sensitive or inhalation sensitive.
With Jesse's last reaction, I am fairly clear that it was contact. Yet, he has managed to navigate through school for three years without having a contact reaction (especially an anaphylactic one). So, does that mean that he only recently developed a propensity towards contact reactions? And, if so, who is to say that he may not develop inhalation reactions next?
My point being (if I could ever just spit it out [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ) - if you son was PA, without inhalation or contact reactions, the school may be more willing to accept him. He's firmly ensconced in school for a couple of years and then becomes inhalation sensitive.
Do they then boot him out?
No, pure craziness.
(Unless, in fact, I did mis-read, and it's me that's crazy instead [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] )
As far as I understand things, with the Americans with Disabilities Act and a 504 Plan your son has the *right* to an education in America. Enough of this telling you that he has to be "homebound".
Please keep us posted. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sat, 02/08/2003 - 11:07pm
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Cindy,
You posted:
"If another PA.com member doesn't agree with peanut free schools or peanut free classrooms, for that matter, can they just kinda avoid the thread and go on?"
Don't know whether you are addressing me in this sentence, but since I recently have posed questions about the subject, here goes:
Actually, it's irrelevant whether I agree with "peanut free" or not. It is not my point. Have I expressed that verbatim? I am obsessive by nature and having been immersed in an industry in which litigation is frequent (and possibly to some extent causes the re-evaluation of standards of care)I sometimes find myself disecting situations in everyday life attempting to see (for myself) what is reasonable, necessary, and actually able to be accomplished, just for my own peace of mind. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Disclaimer: These are question posed for contemplation only. Discussion, Input.
By using the term "Peanut Free" with regards to an entire school are we legally binding the school to those exact words? why or why not? Is it something (if used verbatim) that is actually able to be accomplished? Guaranteed? Considering that most schools do not currently supply ALL foodstuffs comming in school buildings, let alone produce them, is it prudent for them to attach such a label to the school as a whole? Is there a better term to use? Legally speaking, that is. How does the concept of respondent superior apply to the school and those who enter it? Again, I am not an attorney, I am not schooled in law in anyway, these are just questions I have asked myself. I am not offering legal advice, I am not suggesting either way is more correct or prudent. Just trying to understand for the future what I myself as a parent of a PA child can expect in the road ahead. I am pre-planning, so to speak. I have found most people appreciate and respect honesty and would hope those I encounter in life extend the same to me.

Posted on: Sun, 02/09/2003 - 4:48am
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MommaBear,
Cindy's comment, IMO, and the way I percieved it, was not saying she didn't agree to disagree. She simply meant that the way the thread went, which there was no reason for, was not what this board is about. The person who initiated the thread going bad, came in there with the intention of debating why a ban shouldn't be implemented, and who does and doesn't support bans. And the way it was presented was a "I know best" way. This board is about helping other people and the way most people go about it on this board, is to offer experiences, opinions, and support. We all know that we have different opinions on most subjects, but the way we go about helping one another is stating our opinions w/out reaming the other for their opinion. And the previous thread is exactly what happened to me, I was reamed by that member for wanting a ban, and basically told me that the 2 organizations mentioned by her, would not support my decision, therefore I was wrong in my belief or wants. Another member actually disagreed w/a ban and posted, but the way it was presented was not in "your wrong to want a ban" way, it was presented in an effort to help me see the other point, or another way of doing it.
This may not be the way Cindy meant her statement, I don't know, but this is the way I percieved it.
As for your questions;
I don't see how having a pf school/classroom would be legally binding, they aren't being sued when students bring drugs or weapons to school, and most are drug and weapon free.
Able to be accomplished, I don't see why not...Guaranteed, never. Drugs and weapons can't be guaranteed not to come into the schools, but if they didn't have the policy in place, imagine the drugs and weapons that would be present, it simply reduces the risks.
Them attaching the label "Peanut Free" and there being a better term...there is the same term for drug and weapon free. I just don't see the difference, peanuts can have the same effect on my son as drugs and weapons are going to.
There will never be a guarantee that peanut products will not entering the school, there is also no guarantee that my son won't have a reaction in a pf school/room, but his risks of having one is greatly reduced by this policy being enforced.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 02/09/2003 - 5:36am
cynde's picture
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Lana, I loved the comments in your last post.
"Peanut free" sends a stronger message to parents, and gives the school more authority when dealing with blips. Our sons K class was called a "peanut safe" area. The principal asked parents to think about not sending in peanut products. How's that for wishy washy. So if a parent thought about it and decided to still do it, the school has no recourse.
"Peanut Free", the school tells parents they cannot send in peanut products. If they do the students eat sandwiches while supervised, and peanut snacks are simply sent home. Of course their are no guarantees, it's all about "REDUCING THE RISK"!
------------------
Cynde
[This message has been edited by cynde (edited February 09, 2003).]

Posted on: Sun, 02/09/2003 - 7:04am
Anonymous's picture
Anonymous (not verified)

Momma Bear, no, my comment wasn't directed at you personally and actually not at anyone in particular because I stopped reading the other thread after the first page, once it "went bad".
The thing with the other thread was Cam's Mom asked a very specific question. She asked how difficult it was to get a peanut free school.
She didn't ask if members here believed in peanut free schools or peanut free classrooms for their children. She asked a very specific question. How hard is it to implement a peanut free school?
So, for members to come in and not specifically answer her question but start bashing and carrying on, in my opinion, is simply uncalled for. Her question basically didn't get answered.
I value reading other people's opinions about how they deal with their PA children in the school system. I appreciate reading why some PA parents don't require a peanut free school or classroom. I'm not saying that dissenting opinions shouldn't be posted.
What I did simply mean was that if someone (not you) wasn't going to answer the question that was posed, but start a whole other debate, then why bother entering the thread?
There was one under Schools a couple of months ago about PA children successfully attending school in a peanut filled classroom. I didn't enter the thread. I don't agree, but I also get the feeling that if you are one of the PA parents that requires a "peanut free" classroom or school for your child, you are seen as a minority here on the board, and my soul, we better watch our mouths (or fingers typing). The most vocal people are people that are against peanut free schools and classrooms and I continually feel the need to explain my position when I shouldn't really have to.
If you agree with my position re a peanut free classroom or school and I'm having difficulties and start a thread, help me out.
Don't come in and tell me why what I asked was not realistic and not supported by FAAN.
Do you know what I mean?
Also, Cam's Mom, one thing I did want to mention. I still have to e-mail Chris about PA.com and what their stance on "peanut free" is. However, I would like to note that if you look at the website address for PA.com it is a company, not an organization such as FAAN. It's [url="http://www.foodallergy.org"]www.foodallergy.org[/url]
For some reason, I feel that that distinction needs to be made. An allergy organization that people look to and an actual company that people join in a discussion board on are two different things.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Sun, 02/09/2003 - 11:03am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Cindy,
Sorry I didn't get back to your post earlier, I had some things I had to do, and am just now able to back to it.
As far as him not being allowed to enter the school if he is airborne reactive, I don't think they were saying he COULDN'T enter, they just thought he really NEEDED to be homebound.
And I totally agree 100% about the fact of how the reaction occurs shouldn't be a factor as to what accomadations are made, but that is what they are wanting, confirmation of how "sensitive" he is from his Dr's before they even discuss a PF room. And that shouldn't matter, since he's had anaphylatic reactions in the past. Besides if they weren't stalling me, then IMO, they would have atleast looked at the letter I had with me from the diagnosising allergist. I think this is just putting me off, till they can talk to higher ups.
But to answer your question, I think it's more or less a preference that he not be in school, they'd rather the homebound option.
Also, thank you for the clarification on PA.com, it does make a huge difference when comparing organizations to actual companies.
Thanks Cynde for the reply, I believe the fact that reducing the risk is the only way to explain.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 02/09/2003 - 12:24pm
Anonymous's picture
Anonymous (not verified)

Cam's Mom, do you know if you have to prove the severity of your child's PA for him to be able to attend school with a 504 Plan in place and with the Americans with Disabilities Act behind you?
Here's my reasoning. I have heard the phrase "but her PA is not as severe as your son's" before. I have posted about it here. What I have found, after hearing it for years, and posting about it here, was that PA parents really mean, when they're speaking to me, that their child has not had an anaphylactic reaction like Jesse has.
I am not clear if they realize that their child has the potential to have an anaphylactic reaction or if they will just always believe that their child's PA isn't "severe". That's not my business. The comment did used to bother me.
The thing is, from all I can understand from the information I have received on this board, is that we never know what the next reaction will be like. We never know when a child that has never had an anaphylactic reaction will have an anaphylactic reaction.
We do not know, if our child's PA has not resulted in a severe (i.e., anaphylactic) reaction when it will.
Given all of that, I am trying to make a point. There are many members of PA.com whose children have never had an anaphylactic reaction and yet who still require a peanut free classroom for their child. There are two main reasons for this, I think. First of all, if you have the same tight comfort zone as a PA parent whose child has had anaphylactic reactions, you are trying to lessen the chance of your child having one.
If your child does not have an anaphylactic reaction, then they can be considered in the 20% that may outgrow the allergy. Once you have that anaphylactic reaction, outgrowing the allergy has been blown out the window.
And of course, the other obvious reason would be that no one wants their child to suffer an anaphylactic reaction.
Perhaps I was fortunate [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] in that by the time Jesse was starting school he had already suffered two (perhaps 3) anaphylactic reactions and almost died because of his allergy. I fit into the board policy re anaphylaxis without question. However, at no time did a principal ever ask me for documentation from a doctor showing them that Jesse had, in fact, suffered an anaphylactic reaction or was even allergic to peanuts. They have simply taken my word for it. As I said before, the only thing I needed the doctor for was his signature on the emergency medical plan which I filled out, he read, and had to sign.
Cam has had anaphylactic reactions. However, let's say he hadn't. Cam has PA. Cam has the potential (I really wish I could do bold lettering) to have an anaphylactic reaction.
He has that potential regardless of what his score may be in an allergy test.
I'm sorry, it just seems to me as though you have to jump through a helluva lot of hoops to get your child into school. It makes my threads re what's going on with Jesse's school this year seem extremely mild in comparison.
I marvel at each and every American member here who has to do this to get their child into school. Prove with documentation that their child is PA. Prove how severe the PA is. And then, if it's really severe, be told that it would really be in the child's best interest for the child to be homebound rather than attend school.
I admire you. I think I'm banging my head against a brick wall, but, my soul, it is absolutely NOTHING in comparison. And, I think I'd also be packing my bags and moving to Canada, to a province that at least ensures you child the *right* to a peanut free classroom, kinda no questions asked.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Sun, 02/09/2003 - 1:27pm
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Cindy,
I'm not sure if it is a requirement that he have a Dr's letter to be eligible for the 504, but I think it is. Now, as far as the inhalation reaction and him not being allowed in school. I dont think they can refuse his entry into school for any reason.
The reason the Asst. Principal stated the homebound option due to inhalation is (which I don't agree with, it made me real defensive), but her reasoning as she stated it was she said she just keeps picturing these little guys running around after lunch w/gobs of pb and jelly that has dripped on their shirt, this concerned them for the contact and inhalation reactions. And if Cameron is sitting next to them with this on their shirts, then he can inhale it.
I am probably confusing you more! It's hard to explain the whole conversation in writing. I know they were completely taken back after they looked at my plan, actually even before then, when we were discussing his history of reactions and causes. I think the thing that keeps going through their minds, unfortunately is the other pa child not needing anything. That, and the fact that the RN (who is in the medical field), was so outspokenly against the requests.
I agree that anyone with a peanut allergy is indeed a risk for anaphylatic reacations, regardless of their past history. Cameron's has become worse with less exposure, and I tried to relay that to them by comparing my non-pa son's sensitivity increase to bee stings. But I don't think they comprehend what I'm saying.
I hope I haven't confused you more. And also, what American's face trying to have a safe learning enviroment for their children is extremely exhausting, and I've already told DH if we move anywhere else, it's gonna be Canada. But I feel for you and Jesse and what you are encountering with his teacher, it is appalling to me that people with that kind of demeanor are in the profession of teaching our children, down right frightening!
Again, hope you are a little less confused, and hope I answered your questions.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 02/10/2003 - 1:15am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Cindy,
This is part of LauraP's post under the Schools forum titled Schools-Section 504 and IEP. I think this will answer your question better than anything I've said:
Section 504 of the Rehabilitation Act:
It's this law that most peanut allergic students will fall under. It's a civil rights statute and it protects your child from preschool through college. Your child is covered under 504 if two conditions
are met:
1. He or she has a disability as defined by statute: In a nutshell (no pun intended) 504 defines a disability as a physical or mental
impairment that substantially limits one or more "major life activities". Peanut allergy affects various body systems - cardiovascular, digestive, respiratory, and skin. BINGO. Definition met.
2. In addition to meeting the definition of disabled, your child also has to have a record of the impairment (at some point during your child's classification the school will want to see medical
documentation pertaining to the peanut allergy. When you are asked to provide this, make sure your doctor specifies what it is
your child is allergic to and the life systems which can be affected, the treatment plan, and specifics as to drugs to be utilized and dosage).
So. Your child qualifies under 504. What does the school have to do? They'll come up (with your input) with either a special ed
program (meaning a plan that meets the needs of your child) or in lieu of that a regular education program with related services.
Under 504 your child has to be permitted to participate in non-academic activities, which include things like lunch and field
trips.
What can't the school do? They CANNOT deny your child admittance. They CANNOT deny your child the right to participate in activities or services.
HTH,
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 02/14/2003 - 5:40am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Well, I faxed my request for Cameron to be covered under Section 504 to the Superintendent yesterday afternoon, and he called me @ 8:45 this morning.
To be honest, I don't know what I think of the conversation that we had. He did alot of questioning like how severe is his allergy (like that one cindy? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ), I said well all pa has potential to be severe, but if your referring to his past history of reactions he's had 2 anaphylatic reactions and several other reactions that when medication was administered, it subsided the symptoms, and kept them from being anaphylatic. Other questions such as what do I do now when he is around other children, well, he isn't around other children except here at home. What precautions do you take at home, now please tell me is I'm to sensitive, but this question just burns me up, the RN asked me in the meeting something similar by asking if I check his art supplies at home? Now maybe I'm too sensitive, but these questions to me are basically inquiring of my "neortic" behavior. Am I misinterputing their meaning?
Anyway, it ended the same way my meeting at the school ended and that was once I have the documentation from his dr's we can discuss things more.
OH, he also asked me if he'll outgrow this allergy, I told him that statistics are 20% do, but once there has been an anaphylactic reaction it kind of blows the hope out the window, he preceeded to tell me that when he was 30 something, his bottom lip swelled and his mouth was itchy, he went to the dr and they told him he was allergic to walnuts, they told him to avoid walnuts b/c next time his throat could close, THEN said the dr said but then again, it could have been a one time thing and may never happen again! Bull in my opinion, I don't believe the dr told him that, & if he did, he needs to go back to medical school, and besides, what was the reason for that story, that Cameron might not have another reaction and I'm over reacting.
I don't know, I might be too sensitive, I was real nice w/him, but know I'm looking at a fight, probably.
Thought I'd keep you all posted. And vent a little I guess
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 02/14/2003 - 6:55am
river's picture
Offline
Joined: 07/15/1999 - 09:00

Lana, you're not too sensitive. These fools don't really believe it's serious and are trying to deter you from your decided course of action. Their passive aggressive questions and comments tell all. (Dealing with PA can be like suddenly being transported to planet Mother-in-law.) Don't let them get to you---they are obviously a notch below moron on the intelligence scale.

Posted on: Fri, 02/14/2003 - 8:24am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Hi Lana ! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I think you will be their teacher. And you'll do a great job, of course. I found for me that if I questioned our teachers/administrators motives I ended up going a bit coo-coo. They just don't know much about PA and are bound to ask some very stupid questions. The dialogue is what's important, and you've got that going. You'll be the one to keep them all on track, do 99% of all the thinking and work, and if you're lucky, they will take the ownership and all the credit!
Gail

Posted on: Fri, 02/14/2003 - 8:31am
joeybeth's picture
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Joined: 09/01/2006 - 09:00

lana: i also am offended when asked if we expect the same rules to apply at home. they do, of course, but it's none of the school's *%#& business. at home, you are present, medication is handy, you are trained to know how to administer the medication, you clean surfaces, there aren't hundreds of unwashed little hands touching your pencils, crayons, toys, etc.. there is no comparison at all. plus, you know your child and have the ability to sense when something is wrong. no comparison at all. joey

Posted on: Sat, 02/15/2003 - 12:34am
kelly01's picture
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Joined: 03/19/2001 - 09:00

Hi CamsMom:
Without hearing the tone of the question (as you did, so I certainly understand that your interpretation could be different) I would give the superintendent the benefit of the doubt. It is quite possible that he just wanted to get a feel for how you handle the situation at home. I know that when I used to teach Sunday school (I know, a far cry from a professional teacher!) I had a child with Down's Syndrome in my class. I wasn't sure how to handle things, so I talked to the parents and one of the questions (that was provided to me from a professional teacher) that I asked were how certain situations were handled in the home. The questions served to give me some insight on how to handle things in the classroom, as well as what type of independence/skills they were trying to build at home.
Again, I am not going to say that you are being sensitive, as I did not hear the tone of the conversation. But quite possibly the superintendent was asking this question for informational purposes only.
I think it is quite common for educators to ask parents about how various things are handled at home.
Hope things go well for you. I didn't get a chance to post before on this topic, but I wanted to add that I was SHOCKED at how the poorly the RN is handling this!
Take care,
Kelly

Posted on: Sat, 02/15/2003 - 4:44am
Anonymous's picture
Anonymous (not verified)

Cam's Mom, so you're basically still at square one? Just bloody lovely. Remember the last line of your post before the one about the phone call with the superintendent.
They do not have the right to deny Cameron admittance to the school. I'm sure that they're trying to figure out ways, but bottom line is they don't.
I'm not clear but do they think if they ask you stupid questions (about what you do at home), tell stupid stories (i.e., the walnut allergy - although the man may truly have been misinformed by an idiot doctor), you'll decide that Cameron should be "homebound" rather than continuing to have idiotic conversations with them?
I'm really ticked off right now, Cam's Mom.
I truly am.
Your call basically went no where.
I did read somewhere recently that it is a *good* idea to supply doctor's information to the school as well to show how serious your child's allergy. Apparently this is supposed to work for you (not against). I just can't recall where I read it, but it was probably here somewhere and in just a recent thread.
As far as both the nurse and the superintendent asking you what you do at home with Cameron, you know what? This is the part that almost ticks me off the most. [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]
What you do at home with Cameron and how you deal at home with Cameron's PA, to me, essentially is none of their business. Why?
Because you, his Mother, are in charge of him and his care at home and you do what you do to keep him safe. It is a totally different thing then sending your child into a school situation where you won't be there.
This is how I base that argument. When Jesse had his anaphylactic reaction at school in December month, I feel the school screwed up (pardon my language, I am angry), by not recognizing that he was having a reaction and not administering the Epi-pen.
However, when I, his Mother, got him home, I decided not to use the Epi-pen. That may or may not have been the correct thing to do, but I trusted myself and what I saw happening and took him to the hospital without administering the Epi-pen, something I never thought I would ever do.
Am I going to tell the school that I have the right to make this decision and they don't?
Of course not. I'm Jesse's Mom. I decide what's best for my son when he's in my care and I also have a written school plan in place to decide what I think is best for Jesse when he is in the school's care.
I think there are many situations whereby as PA parents we may act differently at home with our children than we would want the school to act with them (a quick example is not coming to my brain at this point [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ). I think you know what I mean.
If I was asked that question, I would respond that my emergency medical plan was the same, that we have a peanut/tree nut free home and "may contain" and "made in" free home and that there are two Epi-pens each time we leave our house.
I think the question was demeaning. Especially from the nurse re art supplies.
Yes, you check his art supplies. Yes, you check the labels on stuffed animals. Yes, you check cosmetic labels. Yes, yes, yes.
[img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]
What's the next step now?
I'm sorry, Cam's Mom, I don't know if me going into rant mode is even helpful to anyone but this just ticks me off big time.
Take care of yourself. Please know that you are doing the right thing. And please let us know what happens next. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Sat, 02/15/2003 - 10:26am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

River, I thought I was going to die laughing at your planet MIL comment, too funny.
Kelly, the tone of the Superintendant wasn't in a derogitory tone, I might give him the benefit of the doubt that his meaning was an educational reason, but still lingers in the back of my mind of the off the wall (IMO) story of the walnuts. Now the nurse was totally being a butt to put it mildly, she rubbed me the wrong way in the very beginning, she was in charge throughout the whole meeting (which is totally fine), she did most of the talking, and to me, was quite offensive I know everything attitude. But I will be trying to get along w/her for Camerons sake, and not be a butt myself (I've pretended to like DH ex for the kids sake for 12 yrs, I guess I can do this for 3 yrs, lol) [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] But her attitude and tone, may be the reason I was so offended at the Super's question. And Gail, I agree that they don't know anything about PA and here they are being hit with something that is totally bizarre to them.
Joey, All the little kids running around w/pb on them definately makes it a MAJOR difference to me.
Cindy, yes back to square one! Your post is exactly how I was ranting after getting off the phone..."What diff. does it make what I do at home, their aren't 200 kids eating pb in my house, and who is she to ask me if I check my art supplies at home, rant, scream holler, light a cig. and rant some more! Well maybe not all that [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I was upset though, and still am to some degree, but have decided to chill out and get the Dr's notes and go in there "armed", once I have that, I'm hopeful things will be different, of course I'm probably up for a let down again. But this is when I will be much firmer w/medical documentation. I just wished I'd had it in the beginning, so I wasn't sitting around wondering what is going to happen next!
And yes, I do have a much tighter comfort zone when away from home, it's just natural instinct IMO. But I will have to say, I fully believe that the other PA child attending w/o ANY protection including the epi, is the biggest reason for them judging my precautions. This really does make me look like phsyco mom from he**! (Cindy, had to use your adjetives they are the most appropriate description [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] )
BTW, I have to tell you guys that DH agreed w/Gail and Kelly (before you guys posted), he basically said the same thing, "honey, they don't know anything about PA, they are just trying to understand"
Well I appreciate EVERYONE's input, I do tend to get upset (and defensive) when I get worried that his PA won't be taken seriously. Guess we all do.
Thanks to all of you and I'll post back when I jump the next hurdle.
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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