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Posted on: Mon, 11/13/2006 - 12:00pm
starlight's picture
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Honestly? I think it would be a really really good idea to get Mariah tested for shellfish. Even if it WASN'T a shellfish cross-contam. issue with the soup, Mariah is at an age where she is going to start wanting to go out with friends for fun. She NEEDS to know. It is one thing to sit with friends in a restaurant and not order anything because there are peanuts in the menu. But shellfish...shellfish steam travels everywhere. And many restaurants serve it. The last thing you (and Mariah) to want happen is for her to find out she's shellfish allergic when her and her friends walk into Red Lobster for dinner. Also, even if she never becomes airborne allergic to shellfish, if she is SFA and she goes on a date and the boy orders crab legs, or lobster, or shrimp...ugh.
I went through my teens not knowing if I was SFA or not (it was just assumed I was), and now that I know that I'm actually NOT, it's sad looking back thinking how many times I had to stay home because I didn't think I could eat at the restaurant my group of friends went to almost 3 times a week. So if she ends up not being SFA, the test will still be worth it because she won't be worrying for nothing!

Posted on: Mon, 11/13/2006 - 10:33pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by Daisy:
Looks like this would be cross-contaminated for shellfish much more easily than for nuts. [b]Did you ask the Campbell's Rep exactly what other soups are processed on this line?[/b] Would be interesting to know; might narrow down your choices for RAST.
I hadn't thought to ask. I will today. Thank you!
And starlight, I agree it would be a good idea for Mariah to be tested for shellfish. Thank you for bringing that perspective. She has already started to go out on her own. As Momcat pointed out also, she doesn't need to be tested to everything, but perhaps a couple select allergens.
Thank you all.

Posted on: Wed, 11/15/2006 - 10:30pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Are you going to test her for lentils, garbanzos/chickpeas, and some other legumes?
Seems more probable, given it's a [i]soup[/i] and those aren't things a company might label as "may contain" or "manufactured on" since they aren't a "BIG 8", but I could be wrong on all counts, KWIM?

Posted on: Wed, 11/15/2006 - 11:51pm
Anonymous's picture
Anonymous (not verified)

Gail, I'm so sorry that you didn't get an answer as to what caused Mariah's reaction.
I know that with the last two reactions Jesse had (one of which was anaphylactic), it was suggested to me by Anaphylaxis Canada that he had developed a soy allergy, but as someone else said above, if it was soy, the kids would be reacting far more frequently.
I also discovered in September month, when Jesse ate a different brand of soy burger that he was fine - no reaction.
I would have to agree with most everyone else and see if your allergist will test for the shellfish - although I'd feel even better if Campbell's would test that can of soup that Mariah actually ate from.
Jess had the one "mystery" reaction, which was his last anaphylactic reaction (touch wood), four years ago, and it took me 1-1/2 YEARS to figure it out as best I could (that it was cross contamination ingestion and not residue).
I just find mystery reactions SO frustrating! I can well imagine how you feel, especially because you did everything "right" - contacting everyone and having the food tested.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 11/16/2006 - 12:07am
Gail W's picture
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Joined: 12/06/2001 - 09:00

MB, lentils is a good idea.
The FARRP lab is holding on to both cans until our allergist decides if he wants further testing on Mariah and/or the soup. Campbell's has requested the cans, and FARRP will mail them to Campbell's, but we'll wait to send them until after Mariah has had any testing first. If she has testing and tests positive to something that is not declared on the labeling, then we might have the product tested for that allergen.
Campbell's will not give me any additional information regarding what is included in their "flavorings" because it is considered "proprietary", BUT they will provide the information directly to our allergist. They insist that if one of the top 8 is in their flavorings that it would be declared on the label as mandated by FALCP. So once our allergist gets info from Campbell's re the "flavorings" we'll decide what/if testing Mariah will have.
I've asked Campbell's for, but have not received, information regarding what other products are made on those same lines. Campbell's said that they would investigate that question and get back to me, but they haven't as of today. It's only been 2 days though. . . This may also provide information that could be used for testing.
FARRP released the lab results to the FDA. And Darcy from FAAN has called back to stay in touch.
I've been very grateful to everyone involved. . . the people at the FARRP lab have been absolutely wonderful, FAAN has been supportive, Campbell's has been responsive, and the FDA has followed up. Our allergist continues to be a genuine partner. Posters here have helped me sort through the experience and helped me think through possible culprits. All in all, the process has been very positive.
I just wish/hope an answer is forthcoming. <> But I'm starting to sense that there may not be.
So that's where we're at...
Thanks everyone. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 11/16/2006 - 12:13am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Hi Cindy. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] We were posting at the same time.
Quote:Originally posted by Alternative to Mainstream:
[b]I just find mystery reactions SO frustrating! I can well imagine how you feel, especially because you did everything "right" - contacting everyone and having the food tested.[/b]
It is frustrating. I'm not good with ambiguity.
But I didn't do everything "right" because I threw the can in the trash. The FARRP lab will not test the original can. <> I don't blame myself, but if there is a 'next time' I will remember this frustration and will know better.
Thanks for checking in on me. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 11/16/2006 - 2:14am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

Just one more thought on this subject...
I have to wonder what the limit of detection is on the analysis. The reason that I ask is that Dr. Taylor's lab was originally of the opinion that heat refining of peanut oil left "no protein" in the oil. I communicated several times with Dr. Taylor about what the actual quantitative value was-- and it wasn't "zero." He just didn't think it was "enough."
I say this because I am absolutely certain that DH's two reactions were not from soy, and he has no other known FA that are capable of inducing that kind of reaction... other than walnuts.
I really cannot fathom how a can of soup could have contained them, but there it is.
Then again, you'd probably know if she were that sensitive to walnuts, right?
I hate mystery reactions too.

Posted on: Thu, 11/16/2006 - 3:11am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Corvallis Mom, Mariah had an anaphylactic reaction to a blueberry muffin. Her symptoms were mostly GI, which was different from her previous anaphylactic reaction to peanut which was mainly respiratory symptoms. We thought/think the muffin was cross contaminated with walnut. But we don't know for sure.
I spoke with the supervisor at Campbell's this morning. I feel a shift in their position.
She told me that Campbell's no longer wants the can(s) because FARRP has already tested them and the results were negative. Her statement seemed to indicate that if they had tested positive, they would have wanted them for retesting.
She assured me, repeatedly, that there was 'no possible chance' of cross contamination from the lines due to their cleaning procedures. I asked about possible shellfish cc, lentils, peas, etc. "No." She stated how closely they work with FAAN, and that they clean their lines extremely well due to the training they've received from FAAN re CC. They require their sub-suppliers to supply them with evidence that there is no cc as well. She was adamant. (I was wondering why, then, did they want to test the can?)
She also repeatedly stated that 'flavorings' would not include any of the major allergens, but included ingredients such as garlic, onion and parsley. However, she is available if our allergist would like to like to speak to her regarding their proprietary flavorings.
She went on to say that she thought at this point it would be best if we worked with our allergist and for Mariah to undergo additional testing. I said that may be the direction our allergist would go, but that I'd like Campbell's to cooperate so that we could narrow the testing down. It seemed pretty clear that while she was amenable to speaking with the allergist, that she didn't see any point to it.
<> I think she said the phrase "due diligence" about 4 or 5 times.
Oh, and she also made a statement that the reaction 'couldn't have been that serious' if we didn't treat her with the epi-pen.
So, now that Campbell's and the FDA have the negative lab results, I think they're finished.

Posted on: Thu, 11/16/2006 - 3:59am
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

I just saw this thread, since I don`t usually come to this part of the board. Having sent items off for testing several times, I have to say that dd`s allergist always tells me a test on food is helpful only if positive. Dd`s allergist says that a negative test means nothing. The reason is that if it is cross contaminated, the part she ate may have peanut protein and not the part that remains and gets tested. So you really don`t know anything about the part she ate (not to mention that they would not test the exact can she ate the soup from). Also want to comment that over the weekend dd and I ate some Campbells Bean and Bacon Soup that had two peas which were not supposed to be in there. It never had peas before and the ingredient list did not list peas. Sounds like they are not very careful. One more thing, about Campbells wanting to test it themselves if FARRP found it to test positive, but not if FARRP found it to be negative. What does that say? They aren`t really concerned with finding out the truth, they just want to retest it if it tests positive so they can use a higher cutoff and say it is negative. It is hardly an unbiased test if the company that made it tests it. This is why when dd had the reaction last Sunday after eating the Divvies chocolate chips that I would not send it for testing where Divvies wanted it sent. Better to use the FARRP in Nebraska like you did. They are unbiased and accurate.

Posted on: Thu, 11/16/2006 - 5:11am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by Carefulmom:
[b]Dd`s allergist says that a negative test means nothing. The reason is that if it is cross contaminated, the part she ate may have peanut protein and not the part that remains and gets tested. So you really don`t know anything about the part she ate (not to mention that they would not test the exact can she ate the soup from). [/b]
This is essentially what our allergist says as well. Still worthwhile to test, of course, as a 'positive' would seem to provide an answer.
Quote:Originally posted by Carefulmom:
[b]Also want to comment that over the weekend dd and I ate some Campbells Bean and Bacon Soup that had two peas which were not supposed to be in there. It never had peas before and the ingredient list did not list peas. Sounds like they are not very careful. [/b]
Indeed. I specifically asked about the possibility of peas. She stated that there was 'no possibility' that the soup could be cc with peas. She described their cleaning process. Unless those are underdeveloped beans, it seems Campbell's is wrong.
Quote:Originally posted by Carefulmom:
[b]One more thing, about Campbells wanting to test it themselves if FARRP found it to test positive, but not if FARRP found it to be negative. What does that say? They aren`t really concerned with finding out the truth, they just want to retest it if it tests positive so they can use a higher cutoff and say it is negative. It is hardly an unbiased test if the company that made it tests it. [/b]
In fairness to Campbell's, they don't do in-house testing. I was originally told that they did, and I was asked to send it to their world headquarters. Then later I was told that they send it out for testing, and that it would be [i]sent out [/i]from their world headquarters (not tested there). The FARRP lab is one laboratory that Campbell's uses.
But still, since the lot sample tested negative to nuts, Campbell's appears to have closed our file.

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