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Posted on: Sat, 11/11/2006 - 4:02pm
Peg541's picture
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Joined: 12/29/2002 - 09:00

As to what LindaJo says above me. Actually a physician can see the symptoms but he/she cannot predict how fast things are going to go.
Anaphylaxis is a catastrophic event and comes on very quickly or very slowly. You never know.
And no one, not a physician or a mother or a teacher can do CPR on a person whose airway is CLOSED OFF by swelling and hives. It just is not possible. Scratchy throat = something in the airway like swelling or hives.
That is why epi pens were invented so people could treat themselves with the most effective emergency medication IMMEDIATELY and then get further help.
Gail you were correct to question yourself. And you and I both know doctors are just humans and make mistakes too. They also don't want to make too much of a fuss and they think they may have a handle on things but in actual fact we do a disservice to our kids by admitting this.
Epinephrine is produced by the body. An unnecessary dose of epinephrine in an epi pen will cause a fast heartbeat, cold hands and feet and maybe some tremors. All normal and all survivable. But a MISSED dose of epinephrine will cause a whole heck of a lot more.
If our kids think their doctor daddies are going to save them without epi pens then they are going to "wait and see" some day when they are reacting and things will get out of hand.
And I am now going to say what I hate to say. Take a look at some of the stories in the Memoriam thread.
Peggy

Posted on: Mon, 11/13/2006 - 7:42am
Gail W's picture
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Joined: 12/06/2001 - 09:00

I received the lab results today. The unopened can from the same lot tested [b]negative [/b]to pecan, almond, hazelnut, walnut and peanut. (They tested for walnut though it was not an option on the form.)
[This message has been edited by Gail W (edited November 13, 2006).]

Posted on: Mon, 11/13/2006 - 8:25am
Momcat's picture
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Joined: 03/15/2005 - 09:00

Hrrmmm....
Are you going to chalk it up as another mystery reaction or take Mariah in for more testing?
Cathy

Posted on: Mon, 11/13/2006 - 8:51am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by Momcat:
[b]Are you going to chalk it up as another mystery reaction or take Mariah in for more testing?
Cathy[/b]
I don't know. I'm feeling discouraged. IMO this was a significant reaction in terms of symptoms, and because she hasn't had an ingestion reaction in such a long time that it also feels significant in terms of 'history'.
I forwarded an electronic copy of the lab results to our allergist, who happens to be at National Jewish in Denver this week. He responded, [i]"I guess that we could test for other allergens, but it would be searching for a needle in a hay stack and unlikely to be useful. I will send your email on to (a big gun at National Jewish) and get advice, but don't be discouraged if there is nothing forthcoming."[/i]
Right now I'm feeling angry at all the ambiguity. If it were me, I'd like to have further testing because I tend to look for needles. . . usually with stubborn determination. I'm curious to see a CAP RAST level for soy. But being that Mariah is turning 13 (on Thursday actually), it will largely depend on what she wants to do.
What would you do if you were in my shoes?

Posted on: Mon, 11/13/2006 - 8:57am
Naturemom's picture
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Joined: 09/30/2004 - 09:00

Gail,
If she were allergic to soy, she would probably be reacting frequently, not just to that specific can of soup. Does she normally eat shellfish? I would think that shellfish cross-contamination would be possible.
Will they be testing the can that she ate for the nuts and peanut?

Posted on: Mon, 11/13/2006 - 9:09am
Daisy's picture
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Joined: 01/16/2006 - 09:00

Gail,
Forgive my memory, but don't RAST levels usually spike after a reaction? Could give you some clues if you run some of the ingredients in the soup.
Did she have anything else that evening? Something to drink? Just brainstorming... [i]Not like you haven't done this already yourself.[/i]
Take care,
Daisy

Posted on: Mon, 11/13/2006 - 9:49am
bandbmom's picture
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Joined: 12/14/2005 - 09:00

Hi Gail - I'm sorry you didn't find the answer to Mariah's reaction. I can imagine how frustrated you must feel. I hope you can figure out the reason she reacted at some point to help put your mind at ease.
Hugs,
Tracy

Posted on: Mon, 11/13/2006 - 9:58am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Hi Naturemom. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] She's had other reactions that we presumed were from peanut contact, but they could have been from soy. <> I don't know. I feel desperate for answers. I went back to the link of Campbell's soup recalls and also the Campbell's soup website. . . and also thought about shellfish too. To my knowledge, she has never eaten shellfish, though I've had some in our home.
No, they won't test the opened can. I wish they would. I asked them repeatedly on the phone, and was told that they wouldn't due to their practice standards. They were very clear about that before I sent it. They used the open can only for the purpose of comparing the production code to the new unopened can code.
Here is the full text of the letter:
[i]November 13, 2006
Dear Ms. W,
My laboratory received the open can of soup that you retrieved from the trash and the unopened can of soup on Wednesday, November 8, 2006. Both samples are identical products with the same production codes. We did not test the empty can of soup due to the risk that the sample could be compromised.
The laboratory has completed testing on the unopened can of Campbell's Condensed Soup, Cream of Potato, with a production code of (blue print) Jun 23 2006, CU YL, R4 06236 0008, (red ink) JUN 22 2008 OU YL, R4, 06236 2151. The laboratory tested the unopened soup for peanut, almond, hazelnut, pecan and walnut using specific commercial and FARRP proprietary methods specific for trace amounts of these foods.
The soup was negative for the presence of any of these foods.
I am sorry that we could not assist you in finding out what caused your daughter's reaction. Please do not hesitate to contact me for any assistance we can give you in the future at (phone number and e-mail address).
Sincerely,
Steve Taylor, Ph.D.
Professor and Director
Food Allergy Research and Resource Program
University of Nebraska
The information, advice and opinions provided by a University of Nebraska employee represent the best judgment of the employee at that time, but should not be considered legal advice on any local, state, federal or international regulation or statute. We encourage you to contact the applicable regulatory agency and/or qualified attorney to confirm the information presented in this correspondence.[/i]
Daisy, thanks for your ideas. I've wracked by brain. She hadn't had anything for a couple hours prior to the soup. And she began reacting almost immediately. No crackers; water to drink. Now my memory has faded, but there wasn't anything unusual that we had in our home. It seemed clear at the time that it was the soup. . .
Now I'm really wondering about shellfish. . .

Posted on: Mon, 11/13/2006 - 10:48am
Momcat's picture
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Joined: 03/15/2005 - 09:00

It may not be worth it to RAST for everything under the sun, but it is certainly reasonable to do soy and shellfish because those are top 8 suspects and could have been in the soup. It would be good to eliminate them at the very least.
I'm with you [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ! I always want more info and will doggedly search for needles...
DS once reacted to a popsicle. I sent it in for testing and the whole bit. Never figured anything out, but I felt I at least had to try to figure it out.
Cathy

Posted on: Mon, 11/13/2006 - 11:06am
Daisy's picture
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Joined: 01/16/2006 - 09:00

Gail,
If they still have the soup, and I'm assuming they keep it for a period of time for any re-testing, could you request testing for shellfish?
Looks like this would be cross-contaminated for shellfish much more easily than for nuts. [b]Did you ask the Campbell's Rep exactly what other soups are processed on this line?[/b] Would be interesting to know; might narrow down your choices for RAST.
I raised this question on the Off Topic "Shellfish" thread recently. I'm a canary for shellfish; inhalant reactions in restaurants and reactions to Pizza Hut sauce (which has a 'processed in' warning), among others.
I'm still new to worrying about cross-contamination so after seeing your Campbell's Soup thread I looked at the other "Cream of..." soups they make. Sure enough, Cream of Shrimp of one of them.
I have used Cream of Chicken for years for my turkey pie. (I am still somewhat GI allergic to chicken and I avoid, but my symptoms are only a tummy ache. Never have been able to re-introduce it into my diet.) But the Cream of Chicken soup has never even given me a tummy ache. And I eat it for a couple of days in a row, lunch and dinner, unless my DH beats me to it! I use one can to about 4 cups of turkey broth.
[i]Say it isn't so...[/i]
Could you get your Ped to order a RAST panel if your allergist isn't thrilled about ordering? Depending upon the lab your Doc uses, you can look on the lab website for specific RAST testing available in your area or look at the laboratory's Directory of Service manual at the Doc's office.
Happy Birthday to Mariah,
Daisy

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