Support group for the kids with food allergies?

Posted on: Tue, 11/17/2015 - 3:49am
Liamsmominkc's picture
Offline
Joined: 11/24/2013 - 22:04

Hello,
We have been living with severe Peanut and Tree Nut allergies for 10 years now. My son is in 5th grade at a new school, and his anxiety is worse than ever. At his old school his friends were very supportive, he was relaxed and happy. Here they seem to be open, but there have been several incidents at lunch. One included him being sent to the office to eat lunch, because there were too many kids that day with peanut butter, leaving him in tears. Then another child at the school had been bullied in an incident the week before. The nurse is sympathetic but has told me she still eats peanut butter herself and has peanut butter crackers in the nurses office! There is also another boy who goes into that lunch room every day asking about peanuts and nuts on the menu. I could go on, and we all know the variety of attitudes and incidents that can occur. My son has quit eating lunch-and I pack his every day. He is afraid every single day that he could die, and this breaks my heart. It's hard for us as parents, but these kids also live in fear for their lives with every bite they eat. SO, I have decided to create a support group just for these kids. "I've got your back" is our slogan, and I've found a young teacher at a local after-school program who has numerous food allergies herself, including peanut and tree nut, who would like to lead the group.
Does anyone have any experience with this? There are so many support groups for parents and adults, but what about these terrified kids? I want them to know that they are not alone in school every day, and that they have someone to talk to when they feel afraid. It's one thing to be your own advocate, but I want them to have a place where they can discuss their feelings with others who are going through the same experience.
I don't know where to start, and need some advice.
We are all in this together!

Posted on: Sat, 03/05/2016 - 4:08am
PeanutAllergy.com's picture
Offline
Joined: 06/21/2013 - 11:03

Question of the Week: Answered!
Every week, PeanutAllergy.com answers one of the questions posted in our community.
Our Answer:
Thank you for your question. We are sorry to hear your child is having a difficult time at school. It’s definitely important for your child’s allergy to be taken seriously at school.
The idea of creating a support group is a really great one. Many children can feel like they are alone in their experience with a food allergy.
Firstly, you might also want to consider other options specifically for your child. For example, you can speak to the school about creating a 504 plan. 504 plans, named for Section 504 of 1973’s Rehabilitation Act, guarantee a disabled person’s right to full participation in the benefits of federally assisted programs. This applies to a food allergy. It means that you can agree upon specific food allergy accommodations with the school and document them so that they are followed. You can read more about 504 plans and how to talk to your child’s school about one here.
It’s also important to talk to your son — or any child with food allergies — about dealing with bullying or teasing from other students. Many children are unfortunately familiar with this experience. While we cannot stop other children from behaving in harmful ways, there are some ways to deal with each situation as it rises. This teenager offers advice on how he deals with teasing related to his food allergy. You can see his tips here.
You might also want to consider joining an online support group where other parents talk about similar challenges. They might be able to give you some advice on starting a support group for kids. This board is a great place to start but there are other resources as well. Learn more here.
Finally, we recommend that you speak to the school about starting a support group and see if they can offer you any advice or resources. It should be a priority of theirs to keep the kids feeling safe and welcome within the school environment.
We also reached out to our Facebook community with your question, and you can see their responses here.
We hope this information helps. Take care!

Peanut Free and Nut Free Community

Click on one of the categories below to see all topics and discussions.

Latest Discussions

Latest Post by lexy Tue, 01/28/2020 - 12:21am
Comments: 6
Latest Post by JRM20 Sun, 01/26/2020 - 11:15am
Comments: 6
Latest Post by JRM20 Sun, 01/26/2020 - 11:11am
Comments: 5
Latest Post by Italia38 Wed, 01/15/2020 - 11:03am
Comments: 10
Latest Post by Italia38 Wed, 01/15/2020 - 10:52am
Comments: 2
Latest Post by penelope Tue, 01/14/2020 - 1:03pm
Comments: 1
Latest Post by penelope Sun, 12/29/2019 - 6:21pm
Comments: 2

Peanut Free Store

More Articles

Which candy bars are safe for those with peanut allergies? Those without allergies are accustomed to...

Are you looking for peanut-free candies as a special treat for a child with...

For those who have wondered whether airport x-ray machines negatively affect epinephrine auto-injectors, the folks at Food Allergy Research &...

Molecular allergy component testing identifies the specific food or environmental proteins triggering a person’s allergic reactions. Component...

An epinephrine auto-injector provides an emergency dose of epinephrine (adrenaline) to treat life-threatening allergic reactions. Those who have...

Misunderstanding the significance of food allergy test results can lead to unnecessary anxiety and dietary changes. The three tests used most...

It can be easy to overlook the presence of nut allergens in non-food items because the allergens are often listed by their Latin or scientific...

Tree nuts and peanuts are distinctly different. An allergy to one does not guarantee an allergy to the other. Peanuts are considered legumes and...

Welcome to the complex world of being a Peanut Allergy Parent. Get ready to proofread food labels, get creative with meals, and constantly hold an...

Take control of your food allergies! Get results in ten days and change your life forever! If you are tempted to use a home testing kit...

What can you eat if you can't eat peanut butter? Fortunately for people with a peanut allergy, there...

According to the Asthma and Allergy Foundation of America, one out of five people in the U.S. has an allergy. Because there is a...

Eliminating peanut butter is the best way to handle a rash caused by this food

If your baby or toddler develops a rash caused by peanut...

Nearly all infants are fussy at times. But how do you know when your baby's crying means something wrong? Some babies are excessively fussy...

For those who don't have experience with peanut allergies, going 'peanut-free' often seems as easy as avoiding peanut butter sandwiches and bags...

A new study shows that there may be a link to peanut ingestion in pregnant mothers and peanut allergy in their children.

Dr. Scott Sicherer...

When people think of nut allergies, they tend to think of peanuts. In fact, a sizable number of people are allergic not to peanuts (which are...

Cakes are a central part of many celebrations, from kids' birthdays to weddings. For those with severe ...

Are you looking for a high-protein snack that you can take with you? If you are allergic to peanuts, this is harder than you might think. Peanuts...

If you or a family member are allergic to peanuts, eating dinner out can pose a significant risk. Even if the menu item does not contain...