Son just diagnosed with peanut allergy

Posted on: Mon, 03/04/2013 - 12:33pm
EmilyAnn's picture
Offline
Joined: 03/04/2013 - 19:17

I wasn't sure where to post this, but my son, who will be 5 in June was diagnosed with a peanut allergy and tree nut allergy today. He has had eczema and environmental allergies since he was a baby. He had a skin test when he was only a year old and it did not show any food allergies. Right before Christmas he had an allergic reaction. He was eating dinner and his lips swelled up. We thought it was probably from the pecans. I finally got him in with an allergy specialist today. She did the skin test and he is allergic to peanuts and all of the tree nuts they tested for.

I am feeling very overwhelmed right now. She gave me some info, but not much. I know to read labels on EVERYTHING and I have 2 epi-pen jrs. What else do I need to know? She didn't test for coconut or sesame, should I be concerned about those? How do we handle going out to eat? Birthday parties? Public places? What if there is a kid at the children's museum who eats a peanut butter sandwich for lunch then goes and touches the toys without washing his hands? She didn't give me any idea how severe the allergy is. Can smelling it or touching it cause a reaction?

Posted on: Wed, 03/06/2013 - 9:51am
Cali1530's picture
Offline
Joined: 10/15/2012 - 10:14

Hi EmilyAnn - I know how you're feeling!
Personally I am anaphylactic to Peanuts and ALL Tree Nuts, I have never been allergic to Coconut or Sesame, however allergies differ a lot from person to person, so if son has not been tested to these or exposed, I would get him tested before feeding him anything like that.
Going out to eat is, interesting, although most restaurants are getting a lot more knowledgeable about Food Allergies since they are only increasing in numbers, however not all are there. My rule of thumb is, if they have lots of nuts on the menu, or if the server/managers don't seem confident in what they are telling you, just not eating there is easiest. There are usually other options available.
Birthday Parties and public places are difficult for a child, when I was young, I was 'trained' very well to not eat anything my mother didn't already check or didn't pack for me, this may just have to be the way it is until he is old enough to know well enough for himself to read ingredients. There are also varying degrees of allergies to PB smells etc. I have passed out when in the vicinity of peanut butter and learned to simply walk away from it, he may have to as well if his is this severe.
It can definitely be overwhelming (I still am sometimes as well), but is a livable situation! Feel free to write back with any other questions or if I missed some, or if you are on Twitter you can ask me some questions there as well, I check that much more often at @california1530.

Posted on: Thu, 03/07/2013 - 4:55am
jamiemiddddleton's picture
Offline
Joined: 03/07/2013 - 11:44

God sake you Americans over think bloody everything. Theres no need to be so para about it so stop molly-coddling your poor child. I'm 16 and have had a BAD peanut allergy my whole life and if your son reads labels then he'll be fine. If you do it all for him then by the time hes a teenager he wont be able to do it himself. I suggests you stop being stop whinny and para and let him deal with it because then he will become accustomed to what he can and cant eat and he wont if you do it all for him. Dont deprive him of birthday parties that'd be pure wide just tell the other peoples parents or something. I seem to match up identically to your description of your boys other allergies etc... and i am allergic to coconut so yer wayne could be to. I suggest carry piriton and use that for everything including peanuts and for peanuts if thats not enough then use epi-pens. I am also allergic tae pulses e.g. lentils, chick-peas, peas but just dont get so para about it, its no that bad.

Posted on: Thu, 03/07/2013 - 9:46am
Cali1530's picture
Offline
Joined: 10/15/2012 - 10:14

That seemed like a rude response Jamie - I am in fact Canadian, not American, and I would say Canadian are in fact much more cautious than Americans in general about allergies, that's a good thing. I say being BETTER SAFE THAN SORRY has nothing to do with being paranoid.
Thanks for the friendly advice..

Posted on: Thu, 03/07/2013 - 7:38pm
minifigME's picture
Offline
Joined: 03/08/2013 - 01:18

Hi EmilyAnn. Please know that you are not alone, we have all been at that first frightening day and that there is support to be found here. Also know that this will be the hardest thing you ever have to face as a parent. You will have to stand tall to protect your son and be hyper-vigilant at nearly every turn in order to keep him safe... and it's not an easy task. You will need to grow thick skin as you will be confronted with ignorance and sometimes even anger from adults, teachers and other parents (who you will think should know better) on a regular basis in a world that does not, and possibly cannot, truly understand what it's like to have a peanut allergic child.
The good news is that there is real hope that more and more PA kids will be able to access treatments that will cause them to be able to be non-reactive if they accidentally ingest a peanut. My son Ian has been in an out-patient oral desensitization clinical trial at Stanford Children's Hospital for the last 16 months under the care of Dr. Kari Nadeau, an unbelievable advocate and groundbreaking researcher who has devoted her life to saving our kids. Please everyone who gets a chance to, take a look at the article out in the NY Times Magazine just yesterday at: http://www.nytimes.com/2013/03/10/magazine/can-a-radical-new-treatment-save-children-with-severe-allergies.html?pagewanted=all&_r=0
My son is in the (extremely accelerated) Xolair portion of the trial and so is now at the point where he ingests 17 peanuts a day as part of his regimen and is doing very well. When he was tested at the start of the program he had a reaction at only 1/60th of a peanut. The relief is beyond comprehension and we are grateful beyond what words can express!!
You will learn the drill pretty quickly here. Carry an Epi-Pen (and a back-up) at ALL times. If you leave the house without it, go back and get it. There is no such thing as being too careful. Read EVERY label. NO sharing food with friends. NO eating anything that you can't read the ingredients on. NO eating anything that you as a parent haven't checked. Many foods made out of the country are not required to list allergens so we avoided those also. When eating out always ask, then ask again, if the restaurant can't give you a definitive answer, don't eat there. With my son if he touched anyplace that peanut butter had been he would only have a skin reaction of redness/swelling but no trouble breathing, eye watering, itchy throat or pain in his stomach, *Please note that this is totally dependent on the severity of your child's allergy, (my son was a class 4). You will want to have him tested. Your doctor may tell you "it's not necessary" and to just "avoid" peanuts but push it through, you'll want to have that information. I know you are overwhelmed at the moment and many of the people you know just won't get it. But if you are always your son's advocate, even when it's uncomfortable... he'll be ok.
Also please know that hope has reached beyond the horizon and is now available (not yet easily) but available nonetheless to our PA kids. Five years ago it was just a dream but a "cure" has become a reality. I wish you peace in the days to come, it's a new life you are entering into hand-in-hand with your boy, he'll take his cues from you, so be strong!
Take good care, Taylor

Posted on: Mon, 04/08/2013 - 12:58am
Sarah McKenzie's picture
Offline
Joined: 04/08/2013 - 07:37

Well said !!!

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Latest Post by KeithLaurb Sat, 09/21/2019 - 1:43pm
Comments: 0
Latest Post by blprestangen Mon, 09/16/2019 - 1:06pm
Comments: 12
Latest Post by mom2two Mon, 09/16/2019 - 1:03pm
Comments: 18
Latest Post by Kathryn Mon, 09/16/2019 - 1:02pm
Comments: 7
Latest Post by TheDaddy Mon, 09/16/2019 - 1:01pm
Comments: 9
Latest Post by desmond Mon, 09/16/2019 - 1:00pm
Comments: 1
Latest Post by desmond Mon, 09/16/2019 - 12:58pm
Comments: 19
Latest Post by desmond Mon, 09/16/2019 - 12:55pm
Comments: 1
Latest Post by TeddyCan Mon, 09/09/2019 - 4:32pm
Comments: 10
Latest Post by DTurner Mon, 09/09/2019 - 4:31pm
Comments: 5
Latest Post by B.M.18 Mon, 09/09/2019 - 4:30pm
Comments: 3
Latest Post by abolitionist146 Mon, 09/09/2019 - 4:28pm
Comments: 2
Latest Post by nutfreenyc Mon, 09/09/2019 - 4:19pm
Comments: 4
Latest Post by AllergicTeen2 Mon, 09/09/2019 - 4:18pm
Comments: 2
Latest Post by PeanutAllergy.com Fri, 09/06/2019 - 1:52pm
Comments: 1
Latest Post by mom1995 Fri, 09/06/2019 - 1:52pm
Comments: 2
Latest Post by mom1995 Fri, 09/06/2019 - 1:52pm
Comments: 35
Latest Post by PeanutAllergy.com Fri, 09/06/2019 - 1:52pm
Comments: 2

More Articles

Do you think you may have a food intolerance? Many people make it to adulthood without realizing they have a food intolerance because they have...

With only a casual understanding of Oral Immunotherapy (OIT) some people assume that simply feeding children a bit of their problem food, in order...

Babies usually show the same peanut allergy symptoms as older children as adults. It is estimated that up...

If you have a mold allergy, you’ve likely been advised to remove all sources of mold from in and around your house. But it doesn’t stop there....

You may be surprised to find that peanut butter is used to make many products. Someone who has a peanut...

More Articles

More Articles

What if, while attending a summertime family picnic, a food-allergic child shows signs of anaphylaxis. In a panicked instant, adults realize the...

Are the signs of nut allergies different than those of peanut allergies? Many people who have an allergic reaction after eating a peanut butter...

There is much buzz in the news about the potential health benefits of fecal transplants, and some of that benefit may extend to people with food...

If you or your child has a food allergy, a doctor or allergist might have talked to you about “co-factors.” Allergy co-factors are substances,...

An epinephrine auto-injector provides an emergency dose of epinephrine (adrenaline) to treat life-threatening allergic reactions. Those who have...

Oyster sauce is used for a variety of recipes, including as an earthy dressing for noodles, vegetables, and stir-fries, or as a base for other...

The high incidence of food allergy in children, and the reason many kids eventually...

Parents of children with food allergies often share tips about safe foods, allergy-friendly restaurants, and other experiences and challenges of...

Because food allergies are so common among children today, a great idea for sharing information with other classmates is to incorporate the topic...

When a child is diagnosed with peanut allergy, the implications ripple past the parents to rattle the rest of us - older siblings, grandparents,...

Your best defense against anaphylactic shock is to know what you’re up against. Anaphylaxis is a severe, life-threatening allergic reaction....

Inhalers Sometimes Contain Soy

Many people use inhalers to take the drug albuterol to help their asthma or allergies, and those with COPD...

Some people with shellfish allergy have concerns about consuming sea salt that might be contaminated with traces of shellfish. Though there are...

Nearly 25 percent of children with a peanut allergy will outgrow it. However, there is a small risk...