Posted on: Mon, 10/21/2013 - 1:38am
Sarah McKenzie's picture
Joined: 04/08/2013 - 07:37

I am sure everyone out there remembers the first time they heard the horrible news their child or loved one had a life threatening allergy. Your heart hurts, wondering if they will be ok, wondering how you will protect them. I don't think my husband and I fully understood all the obstacles at first. Then as the time goes by slowly, you start to think of new things and new obstacles our son will face and then our hearts truly break. Thinking - he won't be able to go see the Royals/Chiefs play at the stadium, he needs to be careful the first time he kisses a girl, will he be able to go to the birthday party of his friend, will he always carry his Epi-Pen's when he's a young man? There's so much more!!

We think, do our friends understand why we don't want to come over to there house when there's food every where, are we being annoying by reminding his daycare "please always keep his epi-pen's on him". Then of course your friends that say "everything will be ok" "maybe he will outgrow it" "you can't look at his as life threatening" (now that one makes me want to scream!!!) Maybe they are trying to help make us feel better, but it DOES NOT. The only thing that goes thru my mind is, this is life threatening to our son and it's our job is to keep our son safe....... And that's exactly it, it's our job and it's our son's job, it's our families jobs!!!! I feel as though some people will never FULLY understand even if they say they do. They don't know what it takes to go to the grocery store or find a restaurant that is safe for our son. So I can't (sometimes I have to remind myself of this) be worried or bothered by what friends, daycare thinks because it's our jobs. I am learning how to become stronger, we have to become strong and show our son how to be strong.

Posted on: Tue, 10/22/2013 - 2:51am
survivingfood's picture
Joined: 09/04/2013 - 19:29

Also surrounding yourself with like minded people and other parents with children with severe FA will make your road easier.

Posted on: Tue, 10/22/2013 - 3:28am
Sarah McKenzie's picture
Joined: 04/08/2013 - 07:37

Yes, very very true! Thank you.

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