Has anyone pursued a 504 for food allergies for their High School aged child?

Posted on: Sun, 07/19/2015 - 7:41am
alwaysbusy173's picture
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Joined: 06/25/2010 - 19:03

My multi food allergic child will be entering HS next year and I am being told that 504 plans generally do not exist in HS because the child is old enough to carry and self inject epinephrine at this point in their lives. This puts all the responsibility on the child who has not had to carry at all up to this point. I am concerned that the injector will be lost, forgotten, etc. when needed most. Has anyone had a similar situation and can guide me through this?

Posted on: Tue, 07/28/2015 - 8:31am
mom1995's picture
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Joined: 11/09/2004 - 09:00

We had one every year. Right threw her senior year. Section 504 was designed for everyone. It evens applies in college and on a job. It is a LAW for the protection of those who need it. Don't let the school tell you how it be. Just ask then this question in writing and get a written response.
Are you refusing to give us a 504 plan?
They will not say yes. They will do what is right because they know they can not deny you one. Esp if your child has been in the same school Dist this whole time and nothing has changed with regards to the reason for the 504. It is not about your child's age or ability to self monitor. It is about having in writing what the expectation is for the school to provide a safe inclusive environment for your child.
Some of the worse teachers we experienced were in high school. One that just said not my problem don't care put your kid in another class. Which we did.
After all see years I am amazed how many people still can't seem to get it.
Good luck

Posted on: Tue, 07/28/2015 - 8:26pm
Mrsdocrse's picture
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Joined: 01/16/2007 - 09:00

Hello,
My son is going into HS as well and has a 504. We will leave a back up in the nurses office. My son will carry his own epi. If he has a 504 that will follow him through college. If he is in public school or any school that received even $1 of public money they have to comply with the 504.

Posted on: Thu, 07/30/2015 - 9:34am
PeanutAllergy.com's picture
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Joined: 06/21/2013 - 11:03

Question of the Week: Answered!
Every week, PeanutAllergy.com answers one of the questions posted in our community.
Our Answer:
Thank you for reaching out to our community about this concern!
It can be scary for parents to send their severely allergic child to school at any age, and some schools are less helpful than others when it comes to managing your child’s allergy. For this reason, a plan was created under section 504 of the 1973 Rehabilitation Act that ensures people with various disabilities will be treated fairly and kept safe. They can be used in many medical circumstances, and they are especially important when it comes to the administration of medication in an emergency.
This article offers an explanation of what a 504 plan is, and why you may want to consider setting one up for your child. Also, be sure to check out this community post that lists many helpful reasons why 504s are important to have in place.
504 plans must be honored by any schools that receive public funding, but private schools are not under this obligation. This community post is a discussion about rights allergic people have at private schools that are not subject to the Rehabilitation Act.
Though 504 plans are commonly sought out for younger children, it is certainly not out of the ordinary to keep the plan in place through the child’s education. During the teenage years, any child is likely to become distracted with other responsibilities as their life gets busier and more exciting. For this reason, a parent may choose to keep the plan in place to avoid accidents or mishaps. For useful tips for avoiding reactions in middle school and high school in general, read this article.
Your child is not expected to be able to manage their allergy on their own simply according to their year in school - everyone is different. To learn the signs that your child is ready to take full responsibility for their allergy, check out this article. As your child reaches adulthood, they will need to stay safe in places other than school and should know good cleaning practices in any environment. Here is a community post about safety and rights in the workplace.
We gathered insight from our Facebook community about this topic, which you can read here.
We hope you have found these resources useful, and we wish you and your child the best of luck!

Posted on: Sun, 08/02/2015 - 8:07am
jap's picture
jap
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Joined: 08/11/2013 - 08:33

My daughter purchased a epi pen pouch that clips on to a belt, you can get numerous epi pen carriers on line so being without it is prevented
also look up the new talking epi pens called AuVi Q
Julian

Posted on: Tue, 08/04/2015 - 4:37am
nydl2's picture
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Joined: 03/20/2011 - 10:19

Hi, my son has multiple environmental as well as food allergies. He DOES have a 504 plan in his high school which was continued since kindergarten. He also has an in school building emergency protocol and the nurses in his high school has him eating in a room with friends of his choice beside the nurses office which is extremely food allergy free. I hope this helps you.

Posted on: Tue, 08/04/2015 - 12:57pm
alwaysbusy173's picture
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Joined: 06/25/2010 - 19:03

Thanks to all for the information and for sharing your experiences. Even though we have had a 504 for the past few years, I feel I am being viewed by the school as a trouble maker, with some teachers (and, of course, uneducated parents) even taking it out on my kid! I feel I am tested at every situation, whether it is in school or out, and that my child's privacy and happiness has been compromised. It is a never ending, frustrating struggle, as I'm sure you all know. But, I know I need to be the advocate until my child can do it on their own. If you have any more suggestions, please feel free to share especially on the topic of having a nurse/delegate available for after-school sports and/or class trips.

Posted on: Wed, 08/05/2015 - 1:10am
nydl2's picture
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Joined: 03/20/2011 - 10:19

My son was also "targeted" as being a pain in their necks and as someone who is spending "precious" school dollars just to keep him safe. I changed all that by being THE most active PTA parent volunteer. I was there almost everyday and was in a lot of the functions and clubs. All the faculty got to know me as well as ALL the nurses. As they got to know me, they got to know my son and we all became friends.They fell in love with my son and his personality. My son is now a senior and I haven't volunteered in ages but because of all those volunteer work and active PTA mom mode my son is still known and loved in school. Very well cared for and protected. His school mates are awesome with how they all gang up to protect him. Some parents are still uninformed and still huge pain in the necks but you can't please everyone so as long as the majority is there for my son i am happy.

Posted on: Wed, 08/05/2015 - 3:42am
alwaysbusy173's picture
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Joined: 06/25/2010 - 19:03

Yes, been there, tried that and it didn't work. The other PTA parents were part of the problem, as well as school administration. I was always the "outsider" and felt I was back in grade school with all the "behind the back" rumors being spread about me. But thanks for the suggestion.

Posted on: Wed, 08/05/2015 - 4:31am
nydl2's picture
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Joined: 03/20/2011 - 10:19

Hi AlwaysBusy,
Yes, i know all about the other PTA and regular parents. Like you said...been there done that and more that is why i made sure I was one of the moms there that was in almost all the PTA boards. Believe it or not when your one of the very few on the PTA and school boards more people actually start to respect your decisions and your suggestions. I was in about 4 different PTA board groups as well as the school parent boards which was how the school administrations from the secretaries to the school principals got to know me and my child. I am a mama bear when it comes to my children and I accept a no when it comes to their safety in school. I have fought tooth and nail with the administrator who "decides" whether your child is eligible for a 504 plan or not. My son is NOT allowed to ride the school bus because they refused to have a nurse in the school bus for my son. I conceded on that matter because I didn't want to rock the boat as my son was in kindergarten at the time. My worse adversaries are the parents and just a few teachers but the parents were the worse. One who was supposed to be my close friend actually was telling other parents that I just wanted the attention so i fabricated the allergy thing. I told the parents who told me this that this parent was an idiot as I have doctors documention with the school administration and the school nurses and why would I even want to get NEGATIVE attention for my son? I can't believe how vicious people are especially to little kids whose lives are compromised by idiots like them. But with what I did I made sure my son is safe in school. My son loves school a lot so it is imperative that he feels safe there. My suggestion is to check if your school nurse is one who would "fight" for your child while he is in school. I know it isn't the best or correct way but a little gift during holidays and end of school year is also a good thing. I also made sure I introduced myself to the school DISTRICT head nurse and let her know your child's situation. Now THAT helped me a bunch! Good luck!

Posted on: Wed, 08/05/2015 - 4:33am
mom1995's picture
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Joined: 11/09/2004 - 09:00

You have commented now several times about what the school thinks or other parents. My very best advice is to stop caring about anything other then what will make your childs life better. Those other people are but passing threw however the actions you take now to show your child how to stand up against the crowd will do more for your childs ability to stand up for their own rights when needed. Our daughter just had an issue at her job and she handled it with easy because she was witness to every single interaction I had with administrators from about 3rd grade on. I needed her to see a strong women so she could become one.

Posted on: Wed, 08/05/2015 - 4:44am
nydl2's picture
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Joined: 03/20/2011 - 10:19

Yes, the school district tried that on me too. Stating he is old enough to be responsible for himself. I went straight to my allergiest and had my allergist write a letter to the school stating that he didn't feel that my son was "responsible" enough to self inject. The school district couldn't do anything BUT agree to continue the 504 plan for my son since I had a doctors note. Legally if the school district doesn't want a lawsuit in their hands when God Forbid anything happens in the future to that allergic child they have to agree to the 504 plan. Just mention LAWSUIT to the school administrator and they will just about agree to anything as they are afraid of being sued. I had all the documentation with me and the doctors note and I didn't get any hesitation with being given the 504 plan and in school health plan for my son who is now entering senior year. I plan to get a 504 plan for him in college also. Now THAT will probably be a fight. But its ok i am ready. :)

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