looking for FAAN Materials

Posted on: Tue, 07/13/2004 - 12:53pm
kkeene's picture
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Joined: 10/20/2003 - 09:00

Hi just wondering if anyone has bought the following items from FAAN:

1) Epinephrine in Allergic Emergencies Video

2) Grade School Discussion Guide

3) Be a Pal Poster

4) Off to school with Food Allergies (booklets)

5) What the Laws say

Please if you have bought these items please give me your option as to if they were good resources? & if you would recommed them?

Thanks
Kathy

Posted on: Wed, 07/14/2004 - 10:03pm
kkeene's picture
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Joined: 10/20/2003 - 09:00

Does anyone buy FAAN materials ?????
IS there any other Org. that sells educational materials????
Please help

Posted on: Wed, 07/14/2004 - 11:41pm
synthia's picture
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Joined: 10/05/2002 - 09:00

Have you called FAAn and requested the info?
I have a copy if you would like me to mail it to you?
Or.if you pull DOE of Mass you will find a list on pgs oh I don't have a pg.found pages 38-41
I will try and cut and past it for you here!
When DH gets up I will cut and past it here.
Give me a few minutes,OK
Love this site
Synthia
[This message has been edited by synthia (edited July 15, 2004).]

Posted on: Wed, 07/14/2004 - 11:41pm
momtomitchell's picture
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Joined: 04/20/2004 - 09:00

AS I put in the other post, I have purchased several items from FAAN, my ds isn't of school age yet so I haven't seen the specific materials you talk about, sorry couldn't be of more help

Posted on: Wed, 07/14/2004 - 11:52pm
synthia's picture
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Joined: 10/05/2002 - 09:00

kkeene,
I have raised the DOE of MAss.
I'll have to try to get more info later(sick kid on my hands!
Love this site
Synthia

Posted on: Thu, 07/15/2004 - 12:05am
Anonymous's picture
Anonymous (not verified)

kkeene, there are a LOT of places that sell different things related to food allergies. You sound like you're getting quite desperate and also upset.
The only thing that I have ever purchased from FAAN were their BE A PAL stickers.
I have purchased pins that have something about PA on them through AAIA in Canada.
The educational video that I use to educate my son's school, another PA.com member very kindly made for me - it has four videos on it.
Not everyone has the money to purchase the great material that FAAN has to offer. Heck, not everyone has the money to become a member of FAAN period.
I haven't been to their website in a long time - I know at one point the school your child was going to could actually order things for free during a very specific period that otherwise you, the PA parent, would have paid over $100.00 for.
Even my Epi-pen trainer (which remember, you can call Dey and get them to send you one), was sent to me by another PA.com member.
FAAN has wonderful resources if you have the money. If you don't, my best advice to you (without having to tell the whole board here) is to start networking and see if you can get in touch with anyone off-the-board here who can help you out.
I know many kind people have helped me gather materials that I otherwise would not have had.
Actually, could you contact me off-the-board regardless?
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 07/15/2004 - 12:17am
Anonymous's picture
Anonymous (not verified)

kkeene, try this link:-
[url="http://www.calgaryallergy.ca"]www.calgaryallergy.ca[/url]
Now, if you visit that website and then go through their whole links section, you will be amazed at how many different places there are selling things. I remember at one point here that I tried to post about different places that had been listed at the Calgary Allergy website.
It really is our most comprehensive website in Canada because it does link off to all of these other places as well, and yet, again, I haven't been there in quite some time either.
As far as posters, for your child's classroom, I know there are at least two members here (and their links are posted here) who do have websites where you can print posters off for free.
One PA parent, in particular, got extremely upset about what would appear to be everyone "cashing in" on the allergy, instead of just helping other PA parents (FA parents) out of the goodness of your heart.
There is a lot of good educational matter out there that doesn't have to come from FAAN. It really depends on what you want and what you want whoever it is reading to HEAR.
It's very odd, but I honestly don't believe we've ever done that here before. Set up a thread where we could share or exchange or just plain give away things that were PA related. I know that when my son wouldn't wear the pins that I got from AAIA (you'll also find the link to there at Calgary Allergy), I posted about it here saying, hey, I have three pins, whatever, who wants them.
But as far as a regular thread, no, we've never had one. And yet, I do believe that a lot of materials are age specific. A lot of other ones, well, they're not.
I'm not saying that other members should be willing to say okay, I'm finished with this you can have it for nothing, but perhaps a thread where members have finished with something and want a reduced price for the item (now you have me on to something totally different, light bulb flashing, even before coffee).
No, as I say, I have been very fortunate in that I bought the pins from AAIA, have printed off basically any material I want from sources I've found here, have used one of the member's free poster websites, and along the way, other PA.com members have helped with with videos, trainers, etc. (which reminds me that Dey has not called me back from last week or the week before).
Check out the Calgary Allergy links and see if you find anything helpful there. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 07/15/2004 - 12:21am
synthia's picture
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Joined: 10/05/2002 - 09:00

[url="http://www.doe.mass.edu/cnp/2002/news/allergy.pdf"]http://www.doe.mass.edu/cnp/2002/news/allergy.pdf[/url]
taken from pages 38-41
Knowing how to read a food label will help to avoid food allergy problems caused
by ingredients in foods. The following terms are "labelese" for common foods.
You may find it helpful to keep these lists handy when you order foods. The lists
are updated frequently. Contact The Food Allergy Network for current lists.
Terms that indicate the presence of cow

Posted on: Thu, 07/15/2004 - 12:58am
synthia's picture
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Joined: 10/05/2002 - 09:00

kkeene,
If I am not mistaken you can nomanat you school for the pkg at no cost.
I did for little V's school
Love this site
Synthia

Posted on: Thu, 07/15/2004 - 10:20am
Anonymous's picture
Anonymous (not verified)

kkeene, I haven't been to the FAAN website in quite some time [url="http://www.foodallergy.org"]www.foodallergy.org[/url]
I couldn't even find the roll of 100 BE A PAL stickers that I have purchased and also had sent to me in the past.
They would seem to have a pretty extensive bunch of information that you can buy, but IMHO, it isn't inexpensive.
Check out the links section of [url="http://www.calgaryallergy.ca"]www.calgaryallergy.ca[/url] and see if there is anything there that can help you. I know that I checked out their website to-day, which I also haven't done in ages either, and found those pins I had ordered for my son 3 for $8.00.
Perhaps if you could determine what you feel you want/need/would like to have and post it here, another member may have whatever it is, may be finished with it, and be quite willing to send it to you.
I received three videos that another member recorded onto one tape for me. Against copyright privileges? Of course. But I had the training videos that I needed.
Another thing you may want to check out if you're looking for books and videos in particular, is your local library. I know that even when I lived in the one horse town (so the library was quite small), they were willing to order books and videos in for me as long as I had the title. I'm fairly clear that's how I got the video to show for my son going to JK and/or SK, through the local library.
Another source, which I have never called, but have heard mentioned here (and also, I know that some of them have GREAT Safe Snack and Lunch Lists put together) is your local Public Health Department.
Please note. I am not advising anyone NOT to buy products from FAAN. What I'm trying to do is say that hey, not all of us have the money when we may need the product, and we may need other members to help us out - we are all in this together.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 07/19/2004 - 7:24am
Suzy Q's picture
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Joined: 05/20/2004 - 09:00

I have purchased several items from FAAN and also attended their recent conference in Chicago. Their information is generally very informative, especially if you are new to food allergies. I didn't discover these boards immediately so the information was helpful. I also nominated my son's preschool for a free information kit.
The printed information is also nice to have because I can give to my dh who doesn't read these boards and relies on me to educate him.

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