Mom of a boy just diagnoed with PA

Posted on: Sat, 08/15/2015 - 3:15am
Dori's picture
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Joined: 08/12/2015 - 08:27

Hi Everyone - I am new here. My son just got diagnosed with a Peanut Allergy and I am devastated. No family history so this is a shocker. I am also full of guilt as maybe I did something wrong or perhaps I should have not given him any peanut butter. My baby is 19 months old and his reaction was a few months ago after I gave him peanut butter on a bannana- He got red blotches on this face about 10 minutes later. I was so naïve that I still didn't think he was allergic but didn't give him any more peanut butter until we got his test with the allergist. The allergist did a skin test and he got a hive. I was told the reaction was moderate.

I have a thousand questions for those of you who have been there. How do you deal with this? Is there any way he can outgrow this. My allergist said that 25% of her patients out grow it. Is this wishful thinking?

Posted on: Sun, 08/16/2015 - 2:15am
Momobubble's picture
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Joined: 01/03/2015 - 06:25

I have had a lifelong severe allergy to peanuts. I'm 18 now and have been on the other end to parents who are dealing with a allergy diagnosis for the first time. I'm the only one in my family with a food allergy so my whole family were completely new to this.
As a mother, you need to know that you can only do so much. No matter how hard you try, you cannot shield your son from the world and all the danger it brings, but you probably already know that.
From a child with an allergy to a parent I would say that you need to be careful. Educate yourself, hassle the doctor and read all the pamphlets, look up info online (try Nutmums.com, nutfree-mom.blogspot.com) and talk to other parents and people with allergies. My parents have never really taken my allergy seriously, and I've had to find out a lot of info by myself because they didn't want to educate themselves on the topic. This has definitely affected me in a negative way and was the gateway to my ongoing battle with OCD.
The chances of your son outgrowing his allergy is even lower than that. Of course, you can have a little hope that he will but don't ever take a risk just because there is some hope. It's not worth it. So stock up on up to date Epi pens, tell your son more and more as he gets older and never be afraid to educate others around you about the seriousness of a peanut allergy.

Posted on: Sat, 08/22/2015 - 5:35pm
PeanutAllergy.com's picture
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Joined: 06/21/2013 - 11:03

Question of the Week: Answered!
Every week, PeanutAllergy.com answers one of the questions posted in our community.
Our Answer:
Thank you for reaching out to our community with your question! It is hard to cope when you first discover your child has a food allergy.
Thankfully, with many resources available today, it is easier than ever to get started handling your child’s peanut allergy. Educate yourself about cleaning techniques, safe food alternatives, and obtaining the proper treatment in the event of a reaction. This community post discusses the important things to know when you first find out your child is allergic to peanuts.
Managing a food allergy can be difficult for a young child, but it is certainly possible. Teach your son to recognize his allergen and avoid any unfamiliar foods that may be contaminated. Label reading and hand washing will be very important tools for success. It’s also important to educate other people who may be caring for your son - learn more about that here.
Even though managing a peanut allergy can be stressful, you should try not to feel guilty or overwhelmed with bumps along the way. This article has helpful tips for you and your child to maintain your emotional well being while living with food allergies.
Many parents are hopeful that their child’s allergy will not be a lifelong condition. You can see discussions between parents, including success stories, here and here.
As far as the statistical probability of your son outgrowing his allergy, there are many factors to take into account. Food Allergy Research and Education (FARE) reports, “peanut allergy is one of the most common food allergies among children and tends to be lifelong; only about 20 percent of children are fortunate enough to outgrow it. A Canadian research team reports that children are most likely to outgrow their peanut allergy by age six. After age 10, the chance of spontaneous resolution is much lower.” This article further investigates the possibility of decreased sensitivity with age.
While these resources are helpful, please remember that each individual case is different, and your doctor can provide you with information specific to your son’s allergy. Here is a useful video about children and their likelihood of outgrowing the condition.
We hope you have found this response constructive, and we wish you and your son the best!

Posted on: Mon, 08/24/2015 - 10:33pm
claswell's picture
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Joined: 05/14/2009 - 14:44

My son was diagnosed at 15 months. He is 7 now. Being diagnosed so young, he doesn't know anything different. He started school last year and the school is very cooperative as are the children in his class and their parents. I am thankful that he was with me when he had his first reaction. I am a nurse and immediately recognized something was wrong. I was worried that this would define him as the child with the peanut allergy. But it is so common for children to have allergies these days. Don't feel guilty. Really you did nothing wrong. Allergies can develop at any time. I have other children so we have made adjustments. We are a peanut free home. I keep almond butter for the others but my son doesn't eat it. I don't want him to confuse it with peanut butter. The hardest thing is the foods processed in a facility with peanuts. This site is awesome. It gives you a lot of ideas. Take it one day at a time and read all labels. It does get easier. Vacations are hard I will tell you. Everytime we go on vacation the first thing we do is look for the nearest hospital. Goodluck.

Posted on: Sat, 08/29/2015 - 7:09am
amerikanegirl87's picture
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Joined: 08/07/2014 - 22:26

I had a really similar experience to you. There's no history of Peanut Allergy in our families either so I didn't think my son would have it. Gave him peanut butter at 11 months and he broke out in hives and redness all over his face and neck and where his diaper touched his skin (from the proteins coming out in his urine), his eyes and ears swelled up, etc. It was really scary. We are about a year in from finding out the news about the Peanut Allergy. Those first few months... the first whole year actually was REALLY scary and hard. Trying to figure out which foods are safe, how to keep him safe around others, and outings and functions. I thought about and worried about his allergy constantly. It's still a battle but it has gotten better. It will get better and more manageable over time.
This board has been SO helpful in finding out what foods/brands are safe and reliable, and asking anything really regarding the allergy since we are all in the same boat. I hope it's helpful for you too!
Logistically, I bring the Epi Pen EVERYWHERE we go.
I only let my parents and in laws make food for him. Other than that, I don't let anyone else give/make him food. Want him to learn to only take food from us. Our families have been really understanding and good about educating themselves on what foods are safe for our son. Really thankful for that.
Our house is nut free. And we are sure to let people know that when they come over if they bring food etc.
If I go anywhere, I bring nut free snacks for my son and enough to share with other kids his age.
I also make sure to bring his own dinner/lunch if we go to a dinner party etc. I bring him a burger and fries or something he really likes so he feels special. And I always bring a dessert for him so he doesn't feel left out.
At the park I don't let him put his hands in his mouth and I wipe his hands with baby wipes when we leave the park in case anyone was on the play structure eating PB&J (which I've seen a few times and we leave when we see them doing that).
I really recommend this book: http://www.amazon.com/The-Peanut-Allergy-Answer-Book/dp/1592335675
And yah, unfortunuately the likelihood of people outgrowing peanut allergies isn't common... but there are a few that do. So one can hope!
I keep telling myself I'm thankful it's such a common allergy (kind of... I mean I wish no one had it, but at least there's awareness about it more and more). And I really think labeling and restaurants and schools are going to change over the years as our kids with these allergies grow up and become adults and are the ones running/managing these places. I'm really hopeful for the future and that this allergy will be easier to navigate and easier to keep them safe.
Those are the main things I can think of right now... I hope this helps and I hope the support you find here helps give you a peace of mind and make this year less overwhelming for you and your family as you navigate this tricky allergy!

Posted on: Sun, 11/22/2015 - 11:23am
Hanksmomma's picture
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Joined: 11/17/2015 - 15:07

Oh I know how you are feeling! We were just diagnosed as well at 19 months and I am just so devastated. I think about it constantly. It consumes me!!! So I don't have any advice, but I'm a scared momma too!!

Posted on: Sun, 11/22/2015 - 1:48pm
abolitionist146's picture
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Joined: 08/06/2010 - 11:48

Hello to all. I'm 22. I'm anaphylactic to peanuts and four other nuts as well. I just stay way from all of them.. I have only ever had 2 reactions. You just have to be careful. I have a 3 month old daughter. I've been doing research on vaccines and I've found that they use peanut oil in vaccines as a bonding agent. Kind of makes me wonder if it causes nut allergies.
Having this allergy is tricky. You will lose a lot of friends and have trouble with family. You will learn that some people will just never get it or understand it. DO WHAT WORKS AND FEELS WHAT IS CONPORRABLE FOR YOU! Don't be afraid to say no! It's your life or child's life on the line. Best thing I can tell you. Be aware of labels/cross contamination. Make homemade goodies vs buying them. When it comes time for school talk to all teachers and school officials that will come in contact with your child. Growing up we had a safe table it had a peanut free sign on it. Only our friends would sit with us they always had safe lunches. Talk to your children's friends parents so they know about the allergy. Help your child be aware of their surroundings.
I'd you have any questions, I think you can message on here.. maybe?
Good luck!

Peanut Free Store

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