just extremely lucky?

Posted on: Sat, 05/18/2013 - 1:05am
VballPlayer's picture
Joined: 05/18/2013 - 07:51

When our two PA kids were 2 1/2 they got a hold of older brothers PB sandwich had broke out n red splotches. Benedryl and a trip to ER to be safe. No epi given. Blood test and skin test positive for both. Given episode pens and instructed to avoid peanuts and tree nuts. At age 4, one got a hold of a peanut m&m at a party and threw up. Niavely we didn't go to ER. Gave benadryl as precaution before he threw up and watched.

They are both now 8. We have been stupid. We avoid nuts, but they have always eaten m&m, processed in facilities, may contains, etc. They eat pizza and cake at parties. We go to restuarants all the time and never ask (like Noodles and Co) about cross contamination. We eat ice cream from DQ and BR a lot. They eat DD and other donuts. We have stupidly eaten buffet restaurants and they have even taken Brownies from a container with other brownies with nuts.we have traveled to Canada, US, and the Caribbean and never once took precautions.

We switched allergists because other one moved. New one is scaring me to death. We have had no skin tests since the first one but blood IGe shows high and extremely high.

we are going to do the Uknow test but I have started taking better precautions and hubby says I am now over reacting and shouldnt change things until we get unknown test.

Of course the doubt in my mind is, could they have outgrown it and that is why we have never had another episode even though we were very stupidly unaware?! Have we just been extremely lucky?

Can we have really high blood test and not be allergic?

I am really so confused. Of course, I want to protect my kids and am making the necessary changes...I am not asking to be judged or berated for our stupidity.

Posted on: Mon, 05/20/2013 - 4:49am
akeadonise's picture
Joined: 12/18/2012 - 18:35

My Brother in Law, who is also PA and TNA, can eat things that were around peanuts and occasionally gets mild indigestion. If it has enough nut in it, he will hive up. He seems to not react severely. He is an adult taking chances, as my daughter gets older, if she ends up not being anaphylactic, then she can take those chances, but trial by error which could mean possible anaphylaxis, not ready for that. I would take that little extra precaution, until that test comes back. Remember, anaphylaxis is a rare occurrence, and always carry your epi-pens no matter how often nothing has happened.

Posted on: Mon, 05/20/2013 - 11:00am
anonymous's picture
Joined: 05/28/2009 - 16:42

Definitely take the extra precautions until you get a test done! You really don't want to risk anaphylaxis, and even if the kids have been fine up to this point it is possible their allergy has worsened over time. It's also possible that the blood test was faulty, but until you absolutely know for sure I'd suggest being careful!

Posted on: Tue, 05/21/2013 - 12:33am
VballPlayer's picture
Joined: 05/18/2013 - 07:51

Thanks for the replies. We carry the epi pens and benadryl now and are being more careful.... It was really more out of ignorance than not wanting to be diligent.... Not that that is a great excuse.
Just seems odd. Blood tests are trending downward But still high. No skin tests since diagnosis at 1 1/2 (I originally wrote 2 1/2) but after rereading records, they were 1 1/2.

Posted on: Wed, 05/22/2013 - 2:54pm
loriradakovich's picture
Joined: 01/15/2010 - 06:24

It's hard to say. The severity of peanut and tree-nut allergies can differ from person to person. I know that I would be absolutely overjoyed if my kids only got hives or a rash of some sort (or just threw-up) from nut products. Unfortunately, mine are severely allergic. And would probably end up either in the er or dead. The most concern for you and your kids I think is to get as accurate an allergy test done for peanut and tree-nuts as possible. I'd do both skin and blood tests, then, if those were ok, I'd have them take a "challenge" test in a doctor's office or in the hospital. Honestly, being able to know if you or your children are food allergic, and to what, and how severe it is, is the FIRST step to being able to LIVE as freely as possible (within the constraints of living with a food allergy). I wish you all the best and urge you to get your kids tested properly.

Posted on: Thu, 05/23/2013 - 3:14am
VballPlayer's picture
Joined: 05/18/2013 - 07:51

We HAVE had the RAST test done and the numbers are high - class 3(was class 6 at one point) and class 6. But, no allergists have done SPT since original diagnosis at 1 1/2 years old.

Posted on: Sun, 05/26/2013 - 8:00am
thekilij's picture
Joined: 03/27/2011 - 09:35

We got a blood panel done after my daughter had a mild anaphylactic reaction to a cashew dish I had made. The blood panel showed low numbers for the cashews and the peanuts, among other things. The allergy specialist dismissed our observations due to the blood panel showing such low numbers and suspected my daughter had no allergies. The skin tests she then performed indicated my daughter was severely allergic to the cashews and especially peanuts.
We carry Epi-pens and Benadryl with us at all times. Her school, summer camp, etc. all have pens. We make sure the servers where we eat are aware that she's severely allergic to peanuts and tree nuts. We make sure other parents know about her allergy regarding birthday parties, etc. and I will bring separate food for her so she doesn't feel left out.
However, I do not restrict her diet from all nuts. While it is not much of an issue because we eat very little packaged food anyway, I also do not refrain from using products that say that the food may contain nuts due to shared equipment. Many companies do this simply as a financial precaution which forces me to either go without the product or buy a super expensive nut-free product, which overall makes life more stressful than I think is necessary. By the way, I have also found that the labeling cannot be trusted. For example, Thai Kitchen is pretty detailed in their labeling when it comes to food allergies. They are EXTREMELY adamant that their coconut milks are completely free of peanut exposure. But my daughter had the most severe reaction to date after taking a swig of coconut milk from Thai Kitchen. Before everyone starts thinking, "But coconut is a tree nut!" my daughter is NOT allergic to coconut. She has eaten and still eats plenty of products with coconut and has even eaten fresh coconut with no allergic reaction. I also know there are other parents whose children are allergic to nothing but peanuts who have had problems with Thai Kitchen's coconut milks. Needless to say, I don't purchase anything from Thai Kitchen anymore.
I can't keep my child in a bubble. There are an uncountable number of things that could potentially take her life at any moment, including peanuts. I do what I feel is necessary to maintain a happy and healthy life for my child without making it unlivable. And you shouldn't feel guilty for doing so yourself.

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