Letter to Super, long but can you read? Thoughts?

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Obviously I have eliminated names, can anyone give me their thoughts on this letter? They are basically denying his environmental protection for his allergies/asthma unless we sign all these consents for their doctor to speak to our allergist without us present, as well as all kinds of evaluations for special ed, which even if they are needed, are of no use if they kill him in the process. DS has been out of school since the beginning of November, Pre-K.

Dear x,

Regarding your letter dated November 21,2005 stating that

On Feb 2, 2006

hglmom - I like the content of your letter, but personally I see a lot of things that need to be *tidied* up a bit.

I would go through it and re-organize it some, making sure to put all sentences regarding any particular subject in the same paragraph or section of your note. Make sure you are not repeating yourself within that paragraph or section, then move on to the next topic.

For instance you mentioned the nut table in several different places in the note - put all references to it in one place - discuss it thoroughly then move on. You have lots of great statements and questions about the table, but they are kind of scattered all around the letter.

People start skimming and not reading to the end of the letter if they start to see you repeating yourself or rambling.

Thank God for computers - it is really easy to keep your original copy of the letter, then play around with it, and rearrange it and see if you can come up with something more concise.

------------------ Sherlyn Mom to 6 year old twins Ben & Mike - one PA & the other not. Stay Informed And Peanut Free!

On Feb 2, 2006

Quote:

Originally posted by hblmom: [b]X meets the criteria for a 504 designation based solely on his documented medical conditions of food allergies and asthma, and as such is entitled to a comprehensive, enforceable plan, the development of which, and any questions anyone may have, have nothing to do with X

On Feb 2, 2006

Both you and bandbmom are being told the same thing from your School Districts... that you are [i]required[/i] to sign a consent for your child to be considered for a Section 504 designation.

Link: [url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/002127.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/002127.html[/url]

I think it would be excellent if both of you (hblmom and bandbmom) would write a letter asking this exact question to your respective OCR office and then post the responses that you each receive. It would be very interesting to compare your responses.

On Feb 2, 2006

Quote:

Originally posted by Gail W: [b]I think it would be excellent if both of you (hblmom and bandbmom) would write a letter asking this exact question to your respective OCR office and then post the responses that you each receive. It would be very interesting to compare your responses. [/b]

Excellent idea! Keep it short and too the point. My experience has been with my local OCR office a rather quick response (within a few days)to e-mailed questions.

On Feb 2, 2006

I wish I had something new to add. This looks good I agree with the organization par....I started to scan it myself and had to pull back to follow it. Its a great letter and a great stand. Its called a *consent* form for a reason, your permission is requested, not required. Exciting stuff, stick with it.

On Feb 2, 2006

Thank you for all the constructive points, I will be fine tuning this with a parent advocate and also hopefully their legal team as well. I will print this out so we can use your suggestions. I also plan to have them form this into an OCR complaint. This is so frustrating.

On Feb 2, 2006

Yes, it is extremely frustrating.

Just a suggestion - I really like Gail's suggestion of a quick letter (I would email it) to your local OCR asking them the question of the school district requiring you sign a consent form prior to them giving the 504 designation. My experience (with my state's OCR) has been that they will respond to your question, and give you a glimpse into their thoughts on the matter, which may be all your school district needs. You can print the OCR response, show it to the school and hopefully they will see they don't have a chance. IMO, the e-mailed question would be much easier and faster than a full OCR complaint.

Just my thoughts.....trust me, I understand if you are to the point that you are fed up and ready to sock it to them with a complaint.

On Feb 2, 2006

I'm almost thinking this might be best as 2 letters? Letter #1 -- Deals solely with the consent to release med recs & for school-rep doc to communicate directly with your own docs (cutting you out of the process). Rather than ask them why they feel it is necessary, I would give them all the reasons why it *isn't* and finish with a polite request that they provide copy of any written law/policy that *requires* they get this med consent or *entitles* them to their request. Letter #2 -- Deals with accomdations already in place & failures such as nut table you discuss. State the facts as to what had been originally agreed upon, the details of the failure, and your constructive suggestions for fixing the situation in an immediate and satisfactory way.

I think you're off to a good start -- take a deep breath & do your best to pull out all emotion from letter(s) and stick to the facts -- they surely already know you are aggravated.

Please keep us posted on you final letters and their responses.

Besides the fact that we all have a vested interest in this -- we just plain *care*,

'Nuff said. ~Elizabeth

On Feb 2, 2006

We must be posting at the same time Elizabeth, I was just thinking about the two separate letter thing myself. I have shortened the letter in the original post, it probably still needs some organization though. I need to think out loud here for a minute. I am trying to break this down into baby steps, I see the first hurdle as getting the designation, period. I know I have been absolutely irate at what they have done. I know and they know what they did. I can't help but think if I just stand firm, get them to designate him eligible for a 504 ( I'm sure he qualifies, I am also sure they have all the documents needed regarding his diagnosis) once he's classified, he gets "a plan", right? Whatever the plan entails remains to be seen, but they can't just deem him 504 eligible then do nothing, right? I have mailed the questions in my letter above to OCR as well. In addition to demanding that we give clearance to their physician to speak with our son's allergist regarding "precautions and procedures that are reasonable and necessary to provide for X's condition in the school" they are also trying to get us to sign consents for special education, and making those consents required or "there will be no further communications regarding the development of a 504 plan." This was a letter from the superintendent. They seem to be making his eligibility seem based on what accomodations need to be made, don't they? Thanks everyone for your ideas. I greatly appreciate it and I will post what I receive from OCR.

On Feb 3, 2006

I am certainly no expert on any of this -- just a student as we all are. (I'm facing my own 504 1st attempt this summer.)

Is it possible special ed needs would be under seperate IEP & then PA needs under 504?

Though I am not in your shoes regarding OTHER special needs, I would absolutely separate the 2 as to how dealt with & as you have stated, deal with ultimate safety issue of PA *first*.

Mommabear comes to mind as having "dual" needs handled in her kids' schools. Keep re-raising this &/or e-mail her direct to see if she or others in dual situation can help out.

I feel truly unqualified except that I read your original post & saw an alternative as to how you might approach the whole situation. There are so many here who are WAY more experienced in all of this.

One step at a time, right? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Keep us posted on how you handle & direction it all goes. Cheering for you & I'm about 3 months behind you in the whole 504 process.

~Elizabeth

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