Let\'s Raise Money For Vaccine

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Since so many of us spend so much time worrying and feeling helpless about this horrible allergy, instead...why don't we take action and start raising money for the vaccine? I think we should all get together and think of ways to hold fundraisers. We should also bombard the peanut companies like Planters and Jiffy Peanut Butter into donating large amounts of money. It actually is in their best interest. I'd be willing to donate my own money and I'd do anything and everything to get everyone I know to donate. I'm sure that Dr. Sampson and his department at Mt. Sinai would appreciate the financial support and it just may speed up the process. What do you all think?

On Jan 25, 2000

Hi Tina, It would be great to get a company like that to donate for research :-) Any suggestions on how to get their attention, or their $ LOL

On Jan 26, 2000

Tina,

I also would and will do whatever it takes, anything to ease the fear in my life. My allergist told me he hopes to see a vaccine in 5 to 10 years (why so long) I really wonder if anyone is even working on it. Everyday I read the paper with the president gives x amount of dollars to this and that (environmental issues) and I wonder if he realizes how many of our children are in danger with these allergies and if anything is being done with it. Anyway I will support whatever you try to do. (sorry for babbling) ROBYN

On Jan 26, 2000

Not to mention all the $$$ given to the peanut grower's lobby in WDC! Did you see the comment made to Presidential candidate, John McCain in the Time magazine interview about some appropriations bill giving $1 million to research "peanut quality", some kind of agricultural subsidy! This peanut thing is highly linked to big money and special interest groups in WDC. The peanut growers union has a lot of pull. Why do you think all of the major airlines (except United, god bless them)went back on the "peanut-free" zones. Congress was pushed by the powerful peanut growers (special interest group) and voted the mandate down. We are up against a lot in this fight.

(John McCain is against special interest groups controlling what happens in Washington and their influence on these politicans we elect to office who are then controlled by special interest). Thanks for reading my 2 cents. smile

[This message has been edited by Momma Kitty (edited January 27, 2000).]

On Jan 27, 2000

I think what would draw attention is a famous spokesperson who has peanut allergy. I have heard that there is a professional football player who is severely PA. Does anyone know who he is? My brother saw him in an interview but doesn't remember his name.

On Jan 27, 2000

There is a thread on the vaccine issue on this board with very interesting info. Also, awhile ago, I read in the Nov'98 University of Arkansas for Medical Science Update that a new company called Atopics, Inc. is researching (led by Wesley Burks, M.D.) the development of a hypoallergenic peanut. The company is developing technology to identify allergens, modify them to reduce allergenic effects and develop a peanut plant that will not contain allergens. I think you're right, PattyR, about getting a high profile person to help bring this allergy out in the spotlight. Whenever people hear of food allergy, they right away think of hives, rash, or something else non-threatening. I know, because that was me before I found out about my DD P.A. 1 yr ago! Maybe we can get Oprah to do a show about peanut allergy if we get all the members here to write her;tell her and her producers about our daily struggles and fears in schools and in public places, about our ideas, and about how this allergy has affected our lives. Do you remember how she had to film her show in Texas because she had to go to court about the beef situation! She'd be a good one to get the public's attention.

On Feb 2, 2000

I know that Debra Messing (Will and grace) has food allergies, but I'm pretty sure it's not peanut. But hey, at least she has some idea....

On Feb 2, 2000

Great idea Tina In the UK they have toyed with the idea as per their research. However, I'm not overly anxious to introduce a live vaccine to which my daughter is anaphylactic to. But you just never know with technology these days.

On Feb 2, 2000

I hope that someday there will be a vaccine but I am not hopeful that it will come soon enough to have a big impact on our children as they are growing up. I suggest that each of us,in addition to supporting research, support endeavours like PeanutAllergy.Com that provide education and support for those living with peanut allergies. I missed these boards while they were gone the past few days and I have been guilty of using them without contributing to their financial support. I plan to change that. I hope that in addition to financially supporting vaccine research that each of you will also support Chris. Thanks for listening. Take care.

On Feb 9, 2000

I want to thank you for mentioning to help support us! The boards going down has caused more financial headaches. I hope those of you reading this will send your financial support today! I can't do this without you. We work full time on running this site and working on the hundreds of issues we are involved in. The bills have to be paid!

I sincerely hope you make the effort and simply send us a check with what you can afford to send. Let us know how much you appreciate what this site has done for you and help us to continue to bring the world of peanut allergy to society! Don't worry that you cannot send a lot! Hopefully you are able to send a substantial amount, but if your circumstances do not permit that at this time, we understand! But do please send something! If we receive something from a few thousand people it will help!

Our goal is to continue developing a communications center for our community. This will allow us to make changes, stay informed, stay safe and so much more. If you believe like we do that this is a great resource, let us know by your support! The more we have the more we can do! We have been receiving information for many years and are committed to putting it all together and we can only do this if we have the financial resources!

I have been in contact with researchers such as Dr. Sampson. What we need money for now is to help promote the fact that we are looking for persons to participate in the studies which are ready to go! The money for research is not the current problem!

Finding people willing to participate in the studies which are necessary to finding a cure is the current problem. We have to get the word out there and we need your financial support so we will have the resources to do so!

Together we can do a lot, but we need to get organized and work together!

We know what we need to do to get the word out there, but we need the money to be able to do it! It takes hundreds of hours of work and the only way we can afford to do it is if we all contribute!

If you truly want a cure, stop talking about wanting it and do something about it!

We cannot sit idly by and hope others will do the work necessary to make our lives better! Get involved! Make personal sacrifices! Make a pledge and make a contribution NOW!

I don't want to come across as money hungry and if you know me you know I have dedicated my life to peanut allergy.

There are now thousands of us on the mail list, and hundreds of thousands more who use this site, and I am (shall I call it ashamed?) to say that most, yes most, have never given a penny!

Some of this I take responsibility for. I feel that if we had informed you more of how much we are doing that you would have no hesitation in supporting us! We have not been able to do this because: We never knew when we started this site that it would take off so fast. We were not, and could not, have been prepared for the amount of work which came so quickly and which is of such high importance that we feel could not take a back seat. There are many important issues which we had to get involved in immediately or they would have changed all of our lives. We heard about many things which other organizations and researchers had not and felt a burden to be sure they were addressed. We regret non of this, we do however have a financial problem which needs to be addressed. We cannot continue to grow at the rate we are, or continue the quality service to those who contact us if we do not have the financial resources to do so.

We are asking that you support the work that we do and this website and our commitment to creating a communications center which will allow us to accomplish so much in the future.

I look forward to hearing from you.

I hope you understand that it is frustrating to have all of these important issues which need to be addressed, and to have so many people in contact with us, and to know that together we could address the money issue easily if we worked on it together. Yet here I am having to ask for your help, to try to convince you to make out and send a check when I know that you care and take the allergy seriously or you would not be here. One of the problems has been not having the time to spend on informing you of all that we are doing, and how much we need your support. We have many people working to put this information together and yet I am so busy I cannot even find the time to help them coordinate this effort. This effort is vital to our existence!

How do we let very important, time dead lined issues go to deal with this crisis? We don't. We appeal to you to let you know about the situation we are in, and we hope that you make the sacrifice along with us, and you make the effort to actually get the check in the mail!

I know we can rely on you and I want you to know that I have faith in you that you will come through now when we need you to.

I am glad you are with us!

(Please let your friends and families know that we need their support as well!)

Stay Safe,

[email]Chris@PeanutAllergy.Com[/email]

(To send donations (financial support), information etc.) PeanutAllergy.Com 123 Grant Ave. Medford, MA 02155

USA

PHONE NUMBER 1-781-395-9530

FAX NUMBER 1-603-388-5483

Contact info form page/please fill out [url="http://www.peanutallergy.com/formpage.htm"]http://www.peanutallergy.com/formpage.htm[/url]

Home page: [url="http://www.PeanutAllergy.Com"]http://www.PeanutAllergy.Com[/url]

Discussion Boards: [url="http://www.peanutallergy.com/bbpage.htm"]http://www.peanutallergy.com/bbpage.htm[/url]

On Feb 9, 2000

I agree with Chris that the money for research is there it's the participants who are needed. I contacted Dr. Sampson about their study because I really wanted to participate. They said I would be perfect for the study. However, they do not provide transportation and I am financially unable to pay for it myself. This may be part of the problem in finding participants, so maybe they could find sponsorship/donations that would help those of us WILLING to participate actually get there to do it.

Rebekah

On Feb 11, 2000

Quote:

Originally posted by rebekahc: [b]I agree with Chris that the money for research is there it's the participants who are needed. I contacted Dr. Sampson about their study because I really wanted to participate. They said I would be perfect for the study. However, they do not provide transportation and I am financially unable to pay for it myself. This may be part of the problem in finding participants, so maybe they could find sponsorship/donations that would help those of us WILLING to participate actually get there to do it.

Rebekah[/b]

On Feb 11, 2000

Rebekah, Thank you soooo much for willing to particiapte in the study. I think we should all help you with you finances. Why don't a bunch of us send you $100 each? I'll be the first to do so. Send me your address and I will send you a check. (And, I want everyone to know, I also support Chris with Peanut Allergy.com. I sent him a substantial check recently.) We've got to work together. We can help if we band together! Rebekah, you can reach me at [email]TinaMay@aol.com[/email]. Thanks again!

On Feb 11, 2000

Here's an idea: In lieu of birthday gifts for me and for my husband, we will ask them to make a donation to peanutallergy.com.

On Feb 11, 2000

Tina,

Thank you so much for your willingness to help! :-) I've e-mailed you with the details and some ideas. Please let me know what you think.

Rebekah

On Feb 12, 2000

I like your idea about gifts. I would love to have a brochure that I could give to people to encourage them to donate to this site/cause. Does one exist? If it does, perhaps it could be added to the web site in a downloadable/printable version so we could print out our own copies and share them with friends and relatives. I think that awareness is the key. Once we have that, then the $ and attention necessary for studies & vaccine will hopefully follow.

[This message has been edited by PattyR (edited February 12, 2000).]

On Feb 12, 2000

Quote:

Originally posted by Tina H.: [b]Rebekah, Thank you soooo much for willing to particiapte in the study. I think we should all help you with you finances. Why don't a bunch of us send you $100 each? I'll be the first to do so. Send me your address and I will send you a check. (And, I want everyone to know, I also support Chris with Peanut Allergy.com. I sent him a substantial check recently.) We've got to work together. We can help if we band together! Rebekah, you can reach me at [email]TinaMay@aol.com[/email]. Thanks again![/b]

I would be more than willing to donate to your trip. I donate to the Jaffe Research Institute, which funds the food allergy studies at Mt. Sinai. I wonder whether branch hospitals with the lastest research facilities in food allergies could serve as research sites in order to broaden the subject pool and perhaps decrease the cost the potential participants in the study. Perhaps, it would be less costly to send Dr. Sampson and his team to various hospitals equiped to deal with his research design and treatment.

My e-mail address is kim ganeyesq.ptd.net.

On Feb 12, 2000

Speaking as someone who knows *nothing* about publicity or the media, I have an idea...

What do you guys think of having PeanutAllergy.com spearhead a collection to send Rebekah or other suitable people with financial need to participate in this study? We could submit special donations to PA.COM specifically earmarked for that purpose with an eye towards getting some publicity/PR? It would maybe make a good story... calling attention to the need for participants in this study & portraying us (Chris, whomever) as more than a group as a group actively working towards a solution to the peanut allergy problem, not just people trying to take PB&J sandwiches out of school lunch rooms. (Just kidding! Even though I know there are people who think that very thing about me! )

I would be willing to contribute to this effort individually, but if we could do something extra -- like get some positive publicity for Chris -- by doing this together, I say that is all the better. What do you all (& Chris) think?

Anne

On Feb 12, 2000

I think that if PA.com is willing and able to set up a system for collecting/distributing funds earmarked for study participants that is the best way to go. The cost of participating in the study would be very high without corporate sponsorship though. When I called Dr. Sampson's office I spoke with his nurse practitioner who explained the study to me. It consists of monthly injections over a 6 month period and something like 19 trips to the study site. Studies are currently being conducted in Arkansas, Boston, Denver and New York.

I was brainstorming with myself [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] and came up with a few ideas: 1. Donations of frequent flyer miles.

2. Airlines might find it in their interest to donate seats on flights since they seem to like serving peanuts so much.

3. The anti-IgE injections are NOT peanut specific so it will help with ALL allergies. That should greatly expand the number of people who could eventually benefit from these shots and possibly the number of people interested in helping fund participants.

The PR angle is a GREAT idea too!

Rebekah

On Feb 14, 2000

Of course! We want to put this together. Studies such as this must be done in order to continue towards a cure! It is one of the reasons we created all this!

Those of you who have an interest in this e mail me.

Hopefully we all have an interest in this and you understand the importance!

Here is some contact info to make it easier for you and others when you let them know how to get involved.

MAILING ADDRESS: (To send donations (financial support), information etc.)

Be sure to include a note about what your check is for! PeanutAllergy.Com 123 Grant Ave. Medford, MA 02155

USA

PHONE NUMBER 1-781-395-9530

FAX NUMBER 1-603-388-5483

Contact info form page/please fill out [url="http://www.peanutallergy.com/formpage.htm"]http://www.peanutallergy.com/formpage.htm[/url]

Home page: [url="http://www.PeanutAllergy.Com"]http://www.PeanutAllergy.Com[/url]

Discussion Boards: [url="http://www.peanutallergy.com/bbpage.htm"]http://www.peanutallergy.com/bbpage.htm[/url]

------------------ Stay Safe,

[email]"Chris@PeanutAllergy.Com"[/email]

On Oct 6, 2000

Any updates on donations being sent in for research subjects for Dr. Sampson's ANTI-IGE study? Is anyone participating? Does anyone have an update on the status of the study?

On Nov 5, 2000

Count me in! I sent a check to Chris a while ago and it's time I sent another.

On Nov 5, 2000

I hope all the Canadians out there who use this site have contributed what they could. Although pa.com is an American organization they're certainly on the ball. Breakthrough research there does come here eventually.

Though Canadian dollars don't stack up well against $US, I sent what I could several months ago and will do so again in the near future.

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