Just had scratch testing...so overwhelmed!

Posted on: Wed, 02/14/2001 - 10:24am
mamadoodle's picture
Joined: 01/26/2001 - 09:00

pI knew my 2 yo DS was severely allergic to milk and pistachios, but today we had the scratch test done and now I am so overwhelmed. His Dr. gave each allergen a number (1-4, 4 is most extreme). The test showed eggs, milk and cashews as 4's and peanuts, soy, almond, hazelnuts and brazil nuts as 3's. He told us to obviously avoid all the 4's, but for some of the 3's...he recommended just minimizing them as much a possible in his diet. For example, he has had soy before without major symptoms...so the Dr. says that I should TRY to eliminate it, but if he get a small amount, not to be too worried. I think he was trying to help me "ease" into finding the right foods for him./p
pIn your experiences, what do you suggest...should I absolutely avoid the "3's" or will small amounts be okay? My DS loves beans, and the Dr. has put this on the "minimize" list....also he loves rice with soy sauce....what can I give him instead? He already has no milk products, so with these new things to avoid, how in the world can I give him a balanced diet that a 2 year old will eat?/p
pSorry so long....I'm just sorting through my pantry and already at a loss for what to fix -- and, this is only Day 1! Please tell me this gets easier./p
pThanks in advance for anyone who is kind enough to respond to this long ramble [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p
p[This message has been edited by mamadoodle (edited February 14, 2001).]/p

Posted on: Wed, 02/14/2001 - 11:07am
Aliciamot's picture
Joined: 01/14/2001 - 09:00

First of all you need to call the doctor back because there was obviously some miscommunication. Skin tests have a high rate of false positive results. If your child has been consuming a food with no adverse reaction then I don't believe an allergist would tell you to avoid it even if the skin test was a "3" Sometimes we do feel overwhelmed at the allergist's office and that is why it is so important to write down each question you may have and to make sure that all of your questions have been fully answered and explained. I would definitely call the doctor back tomorrow!

Posted on: Wed, 02/14/2001 - 1:00pm
tkiaml's picture
Joined: 06/18/2000 - 09:00

After having had an anaphylactic reaction to wheat my son tested a 2 on skin test! He has been tested the same way several times since and has always had the same results (including results for egg, peanuts, walnuts, almonds, dairy).
I have also read that skin test results should be compared with the persons sensitivity to confirm positive results. In my son's case, I know the results have been correct for wheat, egg, dairy- He has never had peanuts/nuts but my daughter is PA and considering his correct results with his other allergens I believe the peanut/nut allergies are accurate.
I would be cautious about giving your child possible allergens and, of course, discuss this further with his physician.
Make sense??

Posted on: Wed, 02/14/2001 - 2:23pm
WoozerMom's picture
Joined: 12/28/2000 - 09:00

I only tested 2 on my tests, and I am extremely PA. Sometimes numbers are meaningless. I have 2's on other foods which I tolerate easily.

Posted on: Thu, 02/15/2001 - 9:06am
maddiesmom's picture
Joined: 12/20/1999 - 09:00

You also might want to study if he has, if fact, had reactions to the foods he came up allergic to. You mentioned the soy, and said he has had no problems. BUT, my daughter is a 2 for soy and gets upset stomach (loose stools) when she has it. After really studying what she eats and I realized that she was actually having a reaction-they can be all sorts (hives, loose stools, vomiting, and the most extreme which is anaphylactic). Keep a good record of what he eats this week and watch for any reactions-you might be missing something.
I agree with the people who posted above regarding the "numbers". I personally think ANY number above 1 needs to be avoided if possible. Especially if your child is young and can't TELL you how they are feeling inside. Better to be safe than sorry.
You might want to ask for a RAST test. That is a blood test that can test for the same foods and see if they come up. It is kind of nice to cross-reference the two tests to see what comes up.
Good luck! We all know what you are going through! This board is a great help! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 02/15/2001 - 9:36am
anonymous's picture
Joined: 05/28/2009 - 16:42

My cousin was surprised to recently learn that she is a 2 for almonds. She has eaten them all her life, and now doesn't know if she should avoid them or not. I guess a 2 could go either way - reaction or tolerance, but I would definitely be leery of any 3s. A 3 isn't that far off from a 4, if you know what I mean. The allergy may unexpectedly worsen.

Posted on: Thu, 02/15/2001 - 1:39pm
mamadoodle's picture
Joined: 01/26/2001 - 09:00

Thanks for the replies. Maddiesmom, this morning I was just thinking I should watch my DS when he has eggs,soy, peanuts (all 3's) to see if I might be missing minor reactions. And sure enough, when I gave him toast w/just a bit of Nucoa (soy margarine) he started scratching his ears, then I noticed a little patch of itsy bumps on his leg. I definitely think the soy did it. Maybe it has been this way all along and I just never noticed. (As you can imagine, I am checking his body all the time now). Now, my question is....
If he only reacts mildly, why worry about it? I have heard both sides of the arguement...one says exposure to any problematic allergens can postpone or even prohibit a child from outgrowing their allergies...but my Ped said, that is not necessarily so. Help please. I want to do what is best for my son, but don't want to make drastic changes unless we have to. The allergist put "beans and peas" on his "to be minimized" list because of their relationship to soy and peanuts, although he wasn't tested specifically for them. My DS LOVES canned beans. Should I really try to avoid giving them to him????
I appreciate all of your replies/input. I know I can call my allergist back, but since I already know what he said...I am looking for the experiences of others so I can determine whether or not he is on the right track for my DS.
Thanks again everyone!

Posted on: Thu, 02/15/2001 - 1:53pm
anonymous's picture
Joined: 05/28/2009 - 16:42

Cayley is a 4 for peanuts and she can eat beans, peas and other legumes with no problem. Some can and some cannot. If your son has always eaten canned beans and never had a problem, I don't understand why your allergist is telling you to avoid them.
Perhaps he is worried about a future, potential cross-sensitivity. I'm just letting you know what my experience has been - I wasn't advised to avoid other legumes, just peanuts. Does your allergist understand that he's eaten beans in the past with no difficulty?

Posted on: Thu, 02/15/2001 - 11:13pm
Head Cook's picture
Joined: 11/19/2000 - 09:00

Everybody else has already said it, but don't rely solely on that scratch test. For us it has been our own food diaries and Rast tests that have given us the answers. We had several false positives on the scratch test. My son is also soy and legume allergic and it is a tough world. Most people I have talked to with soy allergy can tolerate soybean oil (unless it is cold pressed- au naturel) and soy lecithin so I would say to watch on the margarine again. If you can't have soybean oil life gets really tough, and your food choices are very limited. My son is a 4+ to soy and he can do oils and margarines - thank goodness.
Good luck...
Head Cook

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