It just got worse - she has diabetes

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Well everyone. I just got home from spending a week in the hospital with my peanut allergic daughter. No not for the peanuts, but she was diagnosed with Type 1 Juvernile diabetes. She is 3 1/2. I just felt you should all know because you have been like family to me. I also want you to know that I will still be reading these posts althought you might not be seeing me post as much. I will however continue my search for answers. Specifically - Is there any connection with the food allergies and diabetes. Both happen because the immune system is doing something it shouldn't. Diabetes can be caused by 3 things. Genetics (we have no history anywhere), viral ( chicken pox, coxsackie virus, rubella, flu etc) - she has not been sick in over a year., or environmental ( There are now studies showing a possible link with cows milk. -my other two children had milk allergies, she was the only one to drink milk). Anyway I am now researching possible environmental links and this may give us some clue to other immune system problems such as food allergies. Wish me luck as this is an awful disease. I must prick her finger 4 or 5 times daily and give her 2 insulin shots. My nerves are shot and I am very tired. But she is a trooper. She eats exactly what I give her and when I tell her too. Try telling a 3 year old you can't eat when you are hungry and you must eat when you are not. I am so proud of her. If we can survive this, I hope I can educate you guys as well. Thanks for all your support along the way with the peanut allergy. Patti and Katherine P.S. Diabetics have been shown to have an increase for celiacs disease - which I believe to be a gluten allergy???

[This message has been edited by Patti (edited July 11, 1999).]

On Jul 11, 1999

Patti, I am sorry to hear of your news. I must tell you that your daughter is very fortunate to have you as her mother! You always rise to the occasion and fully educate yourself about the challenges your family faces. We have a couple of little friends (7 yr olds) who are diabetic, one recently diagnosed and one diagnosed around age 2. These little girls are both very well educated and responsible. They deal head on with their diabetes and are often seen doing tests at parties (cake time) and on school outings. (This is far less awkward than it sounds.) Please know that we are all thinking of you as you face this new challenge! Let us know how things are progressing. Do you mind my asking what took you to hospital a week ago?

On Jul 11, 1999

Coco, Thank you for those kind words. I feel like I know you guys. Anyway I don't mind you asking me why I took her to the hospital. Believe it or not I brought her to the pediatrician on Tues. morn. (in fact I kind of pressured them into letting me come) because I needed some peace of mind. We had been at the pool a lot the previous week and weekend (july 4th). I noticed she had been drinking a lot. Mind you it was over 100 degrees and we were snacking on junk. Everyone asks "what do you mean a lot?" Well probably in a span of 5 hours at the pool - 2 juice boxes, an 8 oz. bottle of water. She didn't eat much which I attributed to drinking a lot (although most diabetics can't get enough to eat either). The other thing that bothered me was it seemed like she was obsessed with drinking. Mommy what did you put in the cooler to drink? Oh thats all? etc. Well we went to the pediatrician at 8:30. She was well as can be and the pediatrician immediately sent me to the ER. She was spilling sugar into her urine and she had ketones (she was burning her fat for energy) I almost fell on the floor. I had my two other boys with me and I went to the hospital and didn't leave till Friday night. They said I caught it real early so she didn't need intensive care. They said most parents realize it when the kid goes into a coma. Anyway the shock still has not worn off. My two boys are also having a hard time dealing with this as well. I wish I could only find a support group as nice as you guys for the diabetes. Anything else just ask. Patti

On Jul 11, 1999

Patti, I will be e-mailing you directly with a name and e-mail address of someone who has a child with both the peanut allergy and Type 1 diabetes. Hopefully, he can be a good resource for you.

I also have a friend who has a child with type 1 diabetes - Her son was diagnosed at the age of 2.5 years old. We have had many heart to heart discussions - Even though her child does not have food allergies, she seemed to be the most understanding of my fears. We discuss school issues, family outings, etc.

All my best to you and your family!

Mary

On Jul 11, 1999

Patti....My heart goes out to your daughter and you....She truly is lucky to have a mother who has remained strong and willing to educate herself. Always remember, that when things get to heavy to carry, you can always unload on us. My prayers are with you. Lynda

On Jul 11, 1999

Patti I have just E mailed you some sites including a bulletin board, chat room, and several other types of resources. I hope that something in there is useful for you and your family.

On Jul 11, 1999

Patti,

I also wanted to let you know how sorry I am to hear that you and your daughter are now having to deal with the diabetes also. How fortunate for your daughter that you were vigilant enough to take her to the doctor while the diabetes could still be brought under control before she became comatose.

I think the most positive thing I can add is that thank god we are living in an age where these things can be treated. Pity the poor mothers 100 years ago whose children had these various immune system disorders.

I'll be thinking of you and your daughter. Please e-mail me if you need any support.

Debbie

On Jul 12, 1999

Patti, I don't know a whole lot about diabetes; however, one type (I believe Type II) is the type that is a result of an immune disorder. Basically, the pancreas produces insulin but the body either attacks the insulin or makes it impossible for the insulin to work. The other type, type I, is where the pancreas just shuts down and does not produce insulin anymore. I don't know if this is an immune reaction or not. My friend was diagnosed as an adult with Type 1 diabetes. She also first noticed it due to thirst. She was at her in-laws for the weekend. Her in-laws made a comment regarding her drinking and it occurred to her that she was sitting there with a whole six-pack of empty soda bottles in a short span of time. She thought she was so thirsty because she had been breastfeeding. Then when she got home she noticed that she couldn't read the time correctly on her clock. She thought she needed new glasses. She then passed out and was taken to the hospital. Scary stuff. Anyway, I just wanted you to know that I really feel for you. Peanut allergy is enough to deal with isn't it? Hope all goes well for you. Christine

On Jul 12, 1999

Hi Patti,

I am so sorry to hear the news about Katherine. I echo the others in saying she is lucky to have you as her mother! You're the kind of person who "takes the bull by the horns" and keeps on marching.

You both are in my thoughts and prayers!

Stay Safe!

On Jul 12, 1999

Patti - All I can say is "I'm sorry!"

I am type II related to all of the years of steriod use for my asthma. I am doing great now but all it takes is a bad month with my asthma and I am watching my sugar levels again.

You remind me how lucky my Spencer is, even though I feel exactly the opposite some days. Trying times like this last week (for you) truly show that women are the strongest people on Earth!

You are a great mom and you are doing a great job! Stay strong! Our thoughts are with your family.

------------------ Kelly M Another Mom in Michigan

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