Is your life consumed by your/your child\'s peanut allergy?

Posted on: Wed, 01/14/2004 - 3:42am
Renee111064's picture
Joined: 07/05/2001 - 09:00

Do you live an every day life? ARe you consumed with your childs/your peanut/tree nut allergy?


Posted on: Wed, 01/14/2004 - 4:06am
solarflare's picture
Joined: 02/07/2002 - 09:00

Outside of food related activities, I generally don't let my son's life-threatening allergies (peanuts, tree nuts, shellfish) bother me much. I do spend a lot of time on places like, or reading food allergy mailing lists, but it's not the only thing I do.
We have a pretty normal life. I tend to have a pretty loose comfort zone. I try to be realistic about the whole situation.
Jason is a cub scout, and sometimes participates in extracirricular sports when finances allow. I don't ask for any special accomodations as far as that goes. I do volunteer as room parent at school, and I've been an assistant coach for one of the sports he was involved in, but I'd probably do the same even without the allergies as a factor.
Cheryl, mom to Jason (6 PA/TnA/other FAs and EAs),Joey (4 NKA) and Allison (1 suspected milk allergy)

Posted on: Wed, 01/14/2004 - 4:27am
deegann's picture
Joined: 07/27/2003 - 09:00

[This message has been edited by deegann (edited March 15, 2004).]

Posted on: Wed, 01/14/2004 - 8:37am
AJSMAMA's picture
Joined: 06/12/2002 - 09:00

Not as much as it was in the beginning. I do still scan his face for the random hive and listen to his breathing at night like the other mother said. I feel pretty comfortable with the assortment of food I know is safe for him and that helps a lot.
Jaime [img][/img]
[This message has been edited by AJSMAMA (edited January 14, 2004).]

Posted on: Wed, 01/14/2004 - 8:43am
Peg541's picture
Joined: 12/29/2002 - 09:00

Consumed no but scared to death sometimes yes. I was freaked out sending DS off to college just freaked out.
PA touches us every single day. We are relaxed and have fun and do all sorts of things but PA is always there at the back of our minds.
[b]And frankly I think it should be[/b]
Right now DS is off on his own and I am relieved of telling the story for the millionth time to another authority figure. He is more than capable of handling this himself and I am relieved that I am off of the hook but I do think about it every day.
This does not diminish my or DS life. It adds to it, just a part of who we are.

Posted on: Wed, 01/14/2004 - 9:09am
Anonymous's picture
Anonymous (not verified)

Some might think, incorrectly, that given the amount of time I spend posting here that I am consumed by my son's PA. However, I'm not. If you can believe it, I actually find it relaxing to visit here most of the time and just hope that I can either raise interesting discussion questions, ask stuff that I need to know and get the answers that I trust, or help educate other people re PA.
It does seem, with the difficulties I'm having this year with Jesse's school and the measures I am going to to correct the difficulties, that I could be considered *consumed* as well.
But you know what? I honestly don't think so. I don't call every manufacturer. I don't wipe down things in public. We do what most every family does as long as there aren't peanuts/nuts around. I feel our lives are pretty *normal*.
I mention Jesse's PA to people only when they're people that would be in a position that they *had* to know. For example, we had a meeting somewhere after school to-day and I told the woman we were having the meeting with about Jesse's allergy because she might, one day, offer him some candy or something.
If I am *consumed* by anything, it would be the feeling that I really want to get information out to people, if I can, that will be helpful, so that they never have to go through what Jesse and our family did. Jesse almost died and if I can save one other PA parent from going through what our family did because of sheer ignorance and denial, that makes me feel better.
Is PA my *mission* in life? Totally different question. [img][/img]
I actually consider myself pretty laid-back about Jesse's allergy. We have our rules in place (our comfort zone), we have our talks when we need to (like a couple of weeks ago when he couldn't find his Epi-belt), and we go out there and live our lives.
Best wishes! [img][/img]

Posted on: Wed, 01/14/2004 - 11:24am
lizzytish's picture
Joined: 01/08/2004 - 09:00

I have to say right now PA IS controlling my life!My dd is only 2&1/2 and i am fairly new with this whole PA thing.SHe is also in daycare which scares the heck out of me!I have realized that alot of people don't understand how serious this allergy is.She has an Epi pen but i think i have not found that "comfort zone" that i have heard you all talk about.I feel like there is so much more for me to learn about it.Does anyone have any tips?What are the chances she will out grow it?We go to an allergist and she has been tested twice and the second time the numbers went down slightly so i am keeping my fingers crossed!I am glad i found this site though!
Madison 8/17/01

Posted on: Wed, 01/14/2004 - 11:47am
StaceyK's picture
Joined: 05/06/2003 - 09:00

[This message has been edited by StaceyK (edited October 21, 2004).]

Posted on: Thu, 01/15/2004 - 1:16pm
KarenH's picture
Joined: 09/21/2002 - 09:00

I'm not at home. I mean, I chat here pretty much for the same reason as Cindy-really it's only here that I have found friends that really "get it", that I can complain about things that nobody else, even my husband, understands. I like to have good conversations, debates, and find out info.
Home is also peanut free though.
At work, I find that I tend to be more consumed when it is lunch or recess. I can't help myself now but to check out what everyone is eating-in the classroom, in the staff room, in the hall. I see pb and I move far away. I cringe whenever someone microwaves something. (as I had a bad inhalation reaction) It's like wading through a minefield, and never being sure if the kid next to me is going to pull out a pb sandwhich or a ham one. It's a little stressful, really.
I don't really like lunch time anymore.

Posted on: Thu, 01/15/2004 - 2:56pm
momjd's picture
Joined: 02/24/2002 - 09:00

In the beginning my life was consumed by my son's allergies. Then I decided to quit trying to be and do what everyone else did and just live our life the way we needed to. Since then, we've been really happy, reaction free (for the most part) and I'm no longer as anxious. Not everyone would choose to live the way we do, but we are happy. We've just chosen as a family to eliminate many of the activities/factors that caused stress and instead focus on things that we can do that are safe and anxiety free.

Posted on: Fri, 01/16/2004 - 1:03am
pgrubbs's picture
Joined: 10/27/2003 - 09:00

Do I think PA consumes me? NO. Do my in-laws think it consumes me? Yes. Depends on what we are talking about.


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