Posted on: Thu, 03/14/2002 - 12:38pm
kmor's picture
Joined: 03/14/2002 - 09:00

My daughter's peanut allergy was just confirmed. She is also allergic to milk, beef, nuts and eggs. She is 3. She has never been exposed to peanuts so I don't know what type of reaction she would have. My allergist doesn't feel she needs an epi pen which I don't understand. THis weekend I plan on doing more research on this. I am still hopeful she will outgrow her allergies. She also suffers from severe eczema.

Posted on: Thu, 03/14/2002 - 12:59pm
jillsmom's picture
Joined: 02/11/2002 - 09:00

kmor, welcome!
What, no Epipen?? I believe you absolutely should have one! Harrass that MD(be persistant I mean!).My daughter is 5, and is allergic to peanuts,nuts,milk and eggs. Alot the same as yours!
Take care

Posted on: Tue, 11/04/2003 - 1:45am
signingbaby's picture
Joined: 11/04/2003 - 09:00

I hope this board isn't as quiet as it seems. [img][/img]

Posted on: Tue, 11/04/2003 - 3:37am
arachide's picture
Joined: 08/16/2000 - 09:00

Welcome, and no, the board is far from quiet...
If you don't have an allergist, definately get one if possible (pediatric allergist preferably).
Were you given a prescription for epipens? If not, get one immediately.
Use the "Search" function to look up topics of interest to you. You'll find the search function in the top right part of your screen under the "Reply to This Topic" bubble.
There are a lot of kindhearted people on these boards, but please remember that this site is a public forum, so there are all kinds of people who post here in all their shades and textures.
Welcome once more.

Posted on: Tue, 11/04/2003 - 4:04am
signingbaby's picture
Joined: 11/04/2003 - 09:00

Thank you for your welcome and your reply. Unfortunately we are "between insurance" as my husband started a new job and our insurance coverage doesn't start until November 16! I still can't believe that. But I will be getting a referral and an epi-pen as soon as we are able to.
Thanks again!

Posted on: Tue, 11/04/2003 - 4:53am
pgrubbs's picture
Joined: 10/27/2003 - 09:00

You may want to pay out of pocket for an epi-pen prescription. We don't go anywhere without at least 2, because you never know when something could be cross contaminated. If you cannot get one until the 16th- be VERY careful. I would not give any pre-packaged or processed food without an epi pen handy. (I have a tight comfort zone).
This may seem overwhelming, but I am of the "better safe than sorry" school! I am pretty new to PA, too (5 months), and I think I am starting to get a handle on it and feel more comfortable with things. I'm sure you will, too!This board is a real help.

Posted on: Tue, 11/04/2003 - 4:56am
margaret's picture
Joined: 11/01/2000 - 09:00

Definitely spend the $ out of pocket. You are gambling on your child's life if you don't. Charge it on your credit card if you must and worry about how to pay for it later. Your child (and your peace of mind)is worth it.

Posted on: Tue, 11/04/2003 - 4:58am
Timmysmom's picture
Joined: 10/16/2003 - 09:00

Welcome! I only joined a month ago and I think this board is far from quiet; in fact I think it's screaming with information from other parents just like yourself!
When you are able to I would go to an allergist as well. PA is a serious allergy that shouldn't be taken lightly. My son was diagnosed 2 yrs ago. He is now 4. I wish I had found this site then. I've learned more here than from any doctor.
You mentioned that you are between ins. right now and you are waiting to get your epi-pen? Check with the ins. you intend to use. Many ins. companies DON'T COVER the epi-pen as was the case with me. I fought and fought and fought with my husbands ins. carrier and union to get it covered. My son's pediatrician tried to get it preapproved. They will not pay for it. we thought we had EXCELLENT insurance. The Epi-pen jr dual pack with trainer cost $110 (US). Prices vary from pharmacy to pharmacy so shop around if you need to.
Lots of luck to you and your son. You will find lots of useful info here to educate and prepare you for what lies ahead. Stay safe!!

Posted on: Tue, 11/04/2003 - 3:54pm
MommaBear's picture
Joined: 09/23/2002 - 09:00

Quote:Originally posted by Timmysmom:
[b]Many ins. companies DON'T COVER the epi-pen as was the case with me. I fought and fought and fought with my husbands ins. carrier and union to get it covered. My son's pediatrician tried to get it preapproved. They will not pay for it. we thought we had EXCELLENT insurance. The Epi-pen jr dual pack with trainer cost $110 (US). Prices vary from pharmacy to pharmacy so shop around if you need to.
Would you be free to mention the company name and type of insurance? ie: PPO, HMO, etc?

Posted on: Wed, 11/05/2003 - 2:53am
Timmysmom's picture
Joined: 10/16/2003 - 09:00

Mommabear: Gladly! My husband is a NYC Police Officer. Our medical insurance is through Aetna HMO. The PBA covers the prescription coverage 2 ways. One plan is called National Prescription Administrators (NPA) and is a PICA program. PICA covers psychotropic, injectables, chemotherapy, and asthma drugs. we thought the Epi-pen would be covered under PICA because it is an injectable drug. The other plan is Caremark, for all other drugs.
My pediatrician tried it through all three plans. No one will cover it. I just had the Epi-pen refilled 3 weeks ago. I was on the phone constantly tring to fight this. My doctor was furious for me. He said he would contact our local congressman to get some results maybe?? As a medical professional maybe he could get somewhere. It makes me so ANGRY that companies now cover birth control pills (didn't when I needed them!) and Viagra but they won't cover an Epi-pen to save a child's life.

Posted on: Wed, 11/05/2003 - 3:29am
ajinnj's picture
Joined: 05/13/2003 - 09:00

I have Aetna POS and they cover my epipens (I don't even have to pay a copay for them). I just thought that was kind of strange since it's the same company, just a different type.

Posted on: Wed, 11/05/2003 - 3:36am
Timmysmom's picture
Joined: 10/16/2003 - 09:00

AKINNJ: Aetna HMO doesn't cover our presriptions. Every employer alters their own coverage, to my understanding.

Posted on: Thu, 11/06/2003 - 1:41am
gizmo's picture
Joined: 11/05/2003 - 09:00

I agree with all the others get him tested immediately.
This is so common the lack of info
good luck

Posted on: Mon, 10/27/2003 - 9:15am
blair's picture
Joined: 08/08/2019 - 13:01

welcome Susie T R,
It can be challenging dealing with multiply food allergic. It does become somewhat routine for awhile and then something happens that upsets the comfort zones for awhile then it settles back down again. Hopefully there is a chance she'll outgrow the egg allergy.
For years we hoped this would be so for DS (13 yrs old) but I guess not. Hopefully she can enjoy doing activites and feel included at school as much as possible. My DS and I just got back from a two day one night field trip. There was lots of planning for the event and school bought safe snacks so he would not feeel different. the hotel and I planed modified safe meal for a diner and breakfast which was served at same time other kids at his table went to "cafeteria line". I packed back up snacks and extra packed lunch for the one choose your own dinning place lunch.
We had a good time.
He still is not ready to go over night without a parent but doesn't want us to bbe around too much either.
Take Care,

Posted on: Tue, 10/28/2003 - 7:16am
SusieT-R's picture
Joined: 09/25/2002 - 09:00

Blair, Thanks for saying "Hi!" We had hoped AR would have outgrown the egg by now, and the truth is that to an extent she has...she is no longer anaphylactic; however, she has protein induced colitis which takes about three days to set in once the protein builds up in her system, so eggs are still out for us! I am always wondering what it will be like when she reaches her teens, so it was great to meet a mother who has a teen! We have only let AR sleep at her grandparents house..and I worry about future issues such as slumber parties, sleep-over camp etc. How do you deal with weddings or other large social engagements?

Posted on: Sat, 05/10/2003 - 7:09am
Danielle's picture
Joined: 04/08/2003 - 09:00

You will find lots of great information here!
Do lots of searches and you will find answers to almost any question.
Again welcome!

Posted on: Sat, 05/10/2003 - 3:01pm
Jana R's picture
Joined: 02/09/1999 - 09:00

Quote:Originally posted by pedsarnp:
I found your site while researching information to present to our major league baseball team stadium about hopefully dedicating a peanut free section.
Welcome Sarah. Your profile says Washington - is that state or DC?? I've been collecting links to approach the Seattle Mariners - is that where you're attempting? If so, we should join forces!
Incidentally, we went last night and ended up in the middle of about four groups eating peanuts - we talked to an usher (or whatever they call those guys) and he let us go into a mostly empty section where the seats would have cost us $28 more apiece! I wish we'd asked earlier in the game! It was especially great since it was my son's birthday.

Posted on: Sun, 05/11/2003 - 5:52am
river's picture
Joined: 07/15/1999 - 09:00

Hi Sarah, if we give you information on dealing with PA, will you share your secrets on how you juggle it all with 5 children? Those of us with only a fraction of that family, would like to know how it's done.
If your stadium doesn't go for peanut-free, try pitching a food-free idea.
JanaR, that 'usher' was just a doll. Sometimes having PA does have it's perks.

Posted on: Thu, 08/24/2006 - 2:14pm
Adele's picture
Joined: 01/31/2005 - 09:00

Hello mom2ben,
Welcome to the boards! If you've been lurking for a while, then you probably already know your way around the various forums.
You've got lots of company here. I think the majority of the members are parents of PA kids....but there are some adults with PA, me included.

Posted on: Thu, 08/24/2006 - 2:14pm
Adele's picture
Joined: 01/31/2005 - 09:00

Hello mom2ben,
Welcome to the boards! If you've been lurking for a while, then you probably already know your way around the various forums.
You've got lots of company here. I think the majority of the members are parents of PA kids....but there are some adults with PA, me included.

Posted on: Tue, 09/29/2009 - 1:31am
BestAllergySites's picture
Joined: 03/15/2009 - 21:46

I think this is GREAT that you are doing this. What you are addressing above is good.
A couple thoughts on my end...there are two key factors:
1. Safety
2. Inclusion
1. Safety-peanuts in the cafeteria and in the hot lunch program poses a danger to children with allergies from a cooking and cross contam. standpoint as well as from a students eating standpoint. By allowing peanuts/tree nuts in the food-you now have more kids eating it who might not otherwise and more kids contaminating more surfaces and potentially leading to reactions.
2. Inclusion-by law public schools must have a lunch option for all children regardless of disability. Peanuts and tree nuts in the hot lunch/cooking area might mean that severely peanut allergic kids might not ever be able to buy hot lunch due to their allergy/cross contam. This is illegal.
Take a look at the resource page from my website for more info on disability law (life threatening food allergies are a disability.)
Good luck!

Posted on: Tue, 09/29/2009 - 12:28pm
jenniferbfab's picture
Joined: 05/04/2008 - 12:43

Kudos to you for this effort! It's very exciting and I will be interested to hear how things progress. Will you please come back and give us some updates? Also, I am curious--is your effort focused solely on nuts or are you also working on other options as well, such as gluten-free lunches?
Also, would it help your mission to get some exposure on peanut allergy/food allergy blogs and websites? I would be happy to feature your group in a post on my blog, Food Allergy Buzz ( Other websites and blogs may be interested as well. Let me know--I'd be happy to help however I can.
Jennifer B.

Posted on: Wed, 09/30/2009 - 10:25am
Wartburg Communities Class's picture
Joined: 09/28/2009 - 19:08

Thank you for your comments and ideas. We are very excited about this project and to see what we can get done. We have another blog that has started with the same thing and we would appreciate if you would follow our progress on that blog as well. The link is down below. If anyone has any more ideas, suggestions, or concerns, we would love to hear them.

Posted on: Thu, 11/05/2009 - 11:30pm
Food Allergy Assistant's picture
Joined: 03/04/2009 - 07:15

Welcome Tracy! You'll find the food allergy community to be very supportive and caring.

Posted on: Sun, 11/08/2009 - 2:46am
BestAllergySites's picture
Joined: 03/15/2009 - 21:46

Tracy-welcome to glad you found us.
I too have 2 boys that are now 6 and 5. They are 17 months apart!! Only my 6 yr old has allergies.
It gets easier in time and this is a great community here full of wonderful advice and information. Feel free to ask any questions or share what's worked for you and your family.

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